Illinois ladies facing bc

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  • Adey
    Adey Member Posts: 3,610
    edited August 2012

    C-squared-  Blah!  I thought today was Thursday!  Will be thinking of you tomorrow at my pre op.  (c:  I've calmed down now that I had today to get things settled.  Thank goodness for flying, I would have been in the car right now.  Phooey.  My mind is settling.

    kjiberty-  I'm pushing Bradley!

    camillegal-  You totally entertain me and I appreciate it!  Tongue out

    G'nite my ladies.

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  • joan888
    joan888 Member Posts: 810
    edited August 2012

    C-squared..... Good luck tomorrow.

    Adey... So glad you got out of NOLA safely and good luck in Charleston.

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  • camillegal
    camillegal Member Posts: 16,882
    edited August 2012

    I guess everyone is going to sleep now and I'm awake hahaha---I had another goofy day--in the bathroom lots--thank God for Depends-LOL

    I thought today was Thurs. WTF I can't keep track of days or weather and I can just look at the tv and it would tell me. Oh one new thing---y newest med says dizziness, confusion---but I figured how am I going to notice--no one else will either. Can't get a break

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  • Graceembraced
    Graceembraced Member Posts: 97
    edited August 2012

    Good morning ladies ... Hope ll is well for you today!

    My sister and her family are in town for the long weekend, I'm so excited. I feel as if cancer sucked my summer away and am looking forward to four days with them.

    Her grandson (2) and granddaughter (5 months) have a cough.

    Do I ask them to move to a hotel? I practice good hygiene, washing my hands lot, have Lysol spray and wipes all over the house, have face masks and will not be holding them...just being in the same room brights my day.

    My DH is worried but I feel even if they stay somewhere else, I'll be with them all day anyway. Suggestions, advise, opinion, experience...

    I have treatment today and was going to ask my onco, but I know the wisdom of you ladies too!

    Enjoy this beautiful day!

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  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited August 2012

    Get rich quick! Count your blessings! Anonymous

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  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited August 2012

    (((((C-squared )))))) good vibes today.

    Camille....wow!!!! wish all that stuff still wasn't going on.  At least you can get a little levity from it, but I've always said.....it's amazing what you can do when you have no choice.  You seem not to have a whole lot of choice right now --- hoping and praying you find the combination to getting all this handled. 

    Grace --- I'm a poor one to give advice as I see it pretty much like you.  I don't think I could keep too much distance between me and those I love.  You have it sounds like pretty good measures in place.  The coughs...are they from uri's or just allergic reaction to something.  No escaping germs anywhere.....just have to do what you can to minimize them and hope it works. I wish you well and I also wish you lots of joy.

    Hang in there Adey !!!

    Hugs, Jackie

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  • hopefulhealing
    hopefulhealing Member Posts: 722
    edited August 2012

    Good luck C squared. It will be so much better!

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  • HeidiDisney
    HeidiDisney Member Posts: 14
    edited August 2012

    East Peoria, IL here

     Diagnosed in July 2012

    Had first surgery Aug 8 with a rexcision on Aug 31

    ER/PR +, Her 2, neg

    Oncotype score 49(not sure what this means for me as I go on 9/4 to the med onc)

    Will be having radiation therapy over 33 treatments, which doesn't bother me

    I don't know if it means chemo or not since I am leaning towards no chemo at this point for a variety of factors.

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  • zap
    zap Member Posts: 2,017
    edited August 2012

    Happy Birthday, Rita.  You are one of the kindest and most compassionate people I know.  You have always been solidly there for those who needed you....even during times that were profoundly sad for you.  Although you live miles and miles away, I consider you a dear friend.  We were diagnosed at about the same time, traveled on that journey together, but we have also traveled the journey of family fun and love, good books, retirement from teaching and memories of our moms during their last days.

     I just wish I could love catfish so we could get together for a catfish dinner, but hey I hate that ugly face on the fish.  Paul and I went to Peru, Illinois last Sunday and were looking at the map and Bloomington is not that far from Peru.  Maybe one day I will mozie (spell check won't touch that word with a suggestion)  on down there for fun and you can have catfish while I eat shrimp.

     Happy Birthday, sweet Rita and thanks for being you.

    PS:  As always no pretty cake.  If any one can post a picture of a catfish cake, I would be amazed and grateful!

    Love, Susan

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  • Rabbit43
    Rabbit43 Member Posts: 152
    edited August 2012

    HeidiDisney...so glad that you found us, but sorry that you have to be here. I wish I had known about this site when I was first diagnosed and throughout my treatment. You will find a lot of support here and a number of very knowledgable and compassionate friends who really "get it". Your appointment with your MO will likely give you a lot of information and a plan for what comes next. The uncertainty about my treatment plan was tough for me to take. I felt much better once we had a game plan. I hope that will put your mind at ease. Keep us posted on what happens with the MO and know that you are in my thoughts and prayers.

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  • hopefulhealing
    hopefulhealing Member Posts: 722
    edited August 2012

    heididisney the Oncotype is a test that actually looks at the DNA of the tumor.  It helps predict the need for chemo and has different levels.  So based on the outcome of the test, your grade, stage ect. your Oncologist will be able to help put together a plan as to whether chemo is the right answer for you.  You will find that you can be real here. You can vent, cheer, cry and say whatever is on your mind.  We get it.  It is not a pollyanna pink journey. It is real and scary but with the love and support you surround yourself with we each find our own way through it.

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  • HeidiDisney
    HeidiDisney Member Posts: 14
    edited August 2012

    My best friend's husband is an RN, so he's also been helping and answering general questions.

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  • spunkyboobster
    spunkyboobster Member Posts: 738
    edited August 2012

    Adey-so sorry you have to reschedule

    C-squared-thinking of you today, hoping that TE is out of your armpit by now and you're recovering comfortably.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    R•I•T•A

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  • spunkyboobster
    spunkyboobster Member Posts: 738
    edited August 2012

    Happy Birthday Rita-hope your day was great!

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  • joan888
    joan888 Member Posts: 810
    edited August 2012

    Rita.... Happy, happy birthday.  And thanks to you for starting this wonderful forum!

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  • HeidiDisney
    HeidiDisney Member Posts: 14
    edited August 2012

    So a high oncotype score doesn't always mean chemo?  The book my doctor gave me seemed to indicate that chemo was expected with a high score.

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  • doxie
    doxie Member Posts: 1,455
    edited August 2012

    Happy birthday Rita.  I second the thank you from joan888 and you are still with us!  

     Heididisney - Rita's crew is here for you.  Here is a link for more info on the Oncotype test.  www.breastcancer.org/symptoms/testing/types/oncotype_dx.jsp  This link will help with understanding the results.  www.oncotypedx.com/en-US/Breast/PatientsCaregiversInvasive/GettingTested/UnderstandingResults

    This is the beginning of a long journey.  We are here with you.   

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  • Char2010
    Char2010 Member Posts: 532
    edited August 2012

    Hello Illinois Ladies,

    Thank you for the birthday wishes (I know I am a little delayed- have not been online lately). Wishing quick recovery to all the new members. Love the beautiful weather. Happy Laor Day weekend to all.

    Char2010

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  • Char2010
    Char2010 Member Posts: 532
    edited August 2012

    Happy birthday Rita. Hope you enjoyed your special day.

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  • Char2010
    Char2010 Member Posts: 532
    edited August 2012

    HeidiDisney, let us know what your MO says. I was told no chemo and then four days later the oncotype results came in and the MO told me it is my decision now since I am in the "gray zone" (my score was 20). I decided to do chemo. Had 33 radiation treatments after that. The whole thing sucks I have to say.

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  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited August 2012

      I hope you have a most memorable day on your special day.  You are so loved and appreciated.  I wish you all the birthdays you want spent with all the people who make you happy.

    Love, Jackie

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  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited August 2012

    Happy Birthday Rita.....you are a special person and cherished friend. 

    Love, Jackie

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  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited August 2012

    Rita....I'm so sorry...my picture would not go in.  Happy Birthday.  You are very special and so appreciated.  Hope your day is truly wonderful in every day.

    Love, Jackie

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  • blackjack
    blackjack Member Posts: 1,010
    edited August 2012

    HAPPY BIRTHDAY RITA...HOPE YOU ENJOY YOUR SPECIAL DAY.

    REMEMBER TO EAT YOUR CAKE AND ENJOY IT:)) Hope you can come to the holiday get together in November,

    It would not be a party without you !!

    BJ

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  • HeidiDisney
    HeidiDisney Member Posts: 14
    edited August 2012

    I talked with my parents and we're going the no chemo route regardless because of all the problems I had with a colon perf-almost died three times and spent 3 mos in the hospital with that two years ago.

    My BFF's husband is an RN and talked to me about the side effects that they don't tell you about-neuropathy and the like.  That is not something I want to put myself through. 

    I am just anxious to met with Dr. Prager and get that meeting over with and get on with the radiation therapy.

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  • camillegal
    camillegal Member Posts: 16,882
    edited August 2012

    Kind of late, but Happy Birthday Rita--I hope it was great.

    Hi Heidi-Welcome to our side of the world--sorry u'r here but it's a good safe place---wait til u talk to u'r onc. before any decisions are made--I'm not advocating chemo or anthing else but it'sgood to have all the facts and of coirse ake sure u tell about u'rcolon--(which sounds awful) so sorry about that. But whatever the decision we're here and u'll find all kinds of women with so much knowledge of this awful disease it will actually be comforting

    Oh wait someone else birthday---HAPPY BIRTHDAY..

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  • C-squared
    C-squared Member Posts: 514
    edited August 2012

    HAPPY BIRTHDAY RITA!!!  Smile

    Thanks to all for your kind wishes and support.  The procedure went well.  I think it feels much better to have the TE out of my armpit and the Percocet is keeping any pain at bay.  My plan is for rest (although it is 4:30am -ha!) this holiday weekend.  I'll keep you posted.  Thanks again!  CC

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  • lago
    lago Member Posts: 17,186
    edited August 2012

    I was MIA because this thread was knocked off my favs.

    RITA so sorry I missed your birthday. Hope you are still celebrating.

    Heidi Welcome. I agree with camillegal. Talk with your onc. Yes nueropathy is a SE but not everyone gets it and most times it is resolved. I know my onc was ready to reduce my dose if my nueropathy got worse. I got a numb heel. I still have it but not a huge issue. I can still stand on one foot and not fall over.

    I am sure they will not give you the same crap you got last time that almost killed you. I would talk to your onc about some of the chemos that are a bit less toxic. How big was your tumor? I too had a big one and no nodes (5.5cm IDC 6-6.5CM with the DCIS part).

    Hope your surgery goes smoothly today.

    This weekend: African Festival of the Arts or facebook link
    Next weekend:   Renagade Art Fair 

    and the big news for today:

    -------------------------------------
    ❣ ❣ ❣ 2 YEARS NED ❣ ❣ ❣
    -------------------------------------

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  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited August 2012

    Be nice and smile to everyone you meet. You don't know what they are going through, and they may need that smile, and treasure it. -Christine Huppert 

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