Calling all TNs

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  • Hope60
    Hope60 Member Posts: 223
    edited August 2012

    Hi ladies - I haven't posted much in a while. Just been feeling low, mood-wise, and didn't want to bring you all down. But I 'm coming out of hiding for 2 shout outs....

    Cocker - Congrats on finishing rads, and great news about Mandy!

    Inmate - Thanks so much for checking in!

    Hugs to all.... 

  • the5owens
    the5owens Member Posts: 99
    edited August 2012

    Ladies amazing news...went in expecting biopsy and the doctor doing the ultrasound said that what was showing on MRI and us were normal lymph nodes...I got the all clear on the left breast!!! Yay!! Thanks for thinking of me!!

    Steph

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited August 2012
  • Luah
    Luah Member Posts: 1,541
    edited August 2012

    Cocker: great news on finishing rads... and your daughter's benign outcome. 

    Inmate: Great to hear from you. Sorry to hear you're in such pain and fatigue... hope that trial gets going, like, yesterday!

    5owens: What a relief. Those crazy MRIs... grrrr, but at least you know all's well on that front!  

  • Babs37
    Babs37 Member Posts: 455
    edited August 2012

    5owens- GREAT NEWS!!!!

  • JAN69
    JAN69 Member Posts: 947
    edited August 2012

    Annie - Yes, our home and surroundings are beautiful.  I often stroll around the property and marvel that I live here.  I can't imagine living any where else.  There is a down side to this paradise:  fire.  Yesterday the wind blew in thick smoke and an internet report said the fire was about 3 miles away!  DH and I started talking about what we should load up in the cars if necessary.  The wind was strong, smoke was thick, water dropping planes were buzzing overhead.  Turns out the fire was near a road that firefighters could get to easily and they contained it quickly.  Bless those firefighters, they risk their lives for ours.  Sigh.

    Find some joy today dear friends         Jan

  • Tazzy
    Tazzy Member Posts: 2,546
    edited August 2012

    Inmate.... glad you are nothing more than tired - thanks for letting us all know.

    Cocker - surgery OK - still very tender and sore under my arm,  Seeing a LE PT specialist next Wednesday.   Doing my daily exercises.    I am not a very patient person so really 3 and half weeks out of surgery I feel I should be back to normal - ha ha !   and tired, get tired so easily.    How did you find rads.... that's next on my list.

    Want you to know that I am thinking of you all even though I haven't responded.   Wishing you all sunshine and happiness in your days.  

    Peace and Love xxx

  • LNBCA
    LNBCA Member Posts: 49
    edited August 2012

    Hi ladies, my mom wanted me to ask you all a question, (I don't think I'll ever get her to  join here). Her eyelashes and eyebrows have all fallen out, after finishing treatment 6 weeks ago. I told her I was pretty sure it was normal because I remember her Onc. telling her the chemo would be in her system for at least 4 weeks after finishing. But...she's stubborn and still wanted me to ask ;) Thanks a lot! Hope everyone is well!

  • Tazzy
    Tazzy Member Posts: 2,546
    edited August 2012
    My last taxotere chemo was June 22... .still no sign of lashes... brows just coming back, but hardly.  Sorry its not better news.  Apparently lashes are the last things to return - least that is what I have been told.Cry
  • Babs37
    Babs37 Member Posts: 455
    edited August 2012
    LNBCA- If I remember correctly, my eyelashes and eyebrows fell 5/6 weeks after my last Taxol, right after my mastectomy. It's weird because my hair started to grow back on Taxol and I kept most of my lashes/brows all through it too. At least I kept the hair! Tongue out
  • LNBCA
    LNBCA Member Posts: 49
    edited August 2012

    Thank you, I'll let her know it's normal ;))

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited August 2012

    Good Morning Ladies

    Hope - you will not bring us down. We are all here for you as you are for us.  Sending you a great big hug to hope you feel better soon.

    Steph - wonderful news. Nothing beats - all clear.  Congratulations.

    Luah - great to hear from you. Have missed your little posts.

    Jan69 - what would we do without those wonderful firefighters.  It seems such a terrrible shame that fire and smoke could mar your beautiful surroundings.

    Tazzy - Rads was a breeze for me,  so much so that I wondered whether it was working.  Had no problems whatsoever and it was only on the fifth week that I started to get a little bit pink.  I had no tiredness and still don't.  The oncologist did say that rads continue to work for 7-14 days after and I might go more red or blister but so far so good. Hoping it will be a breeze for you too.    

    Ladies I have the 'what ifs' today. What if it comes back, when,  how.  It seems like if I try and plan something or get excited about something coming up there is always a cloud hanging over it.  Did you feel like this.  I know I should be happy and planning forward but I'm finding it very hard to do for fear that something will go wrong. My thoughts seem to be a jumbled up mess at the moment and I can't seem to shift them.

    Happy, stress free day for everyone.  Annie         

           

  • Tazzy
    Tazzy Member Posts: 2,546
    edited August 2012

    Thats great news Cocker on the rads.... and as for the What If's.... I always say "What IF my aunt had balls, she'd be my Uncle' Wink

    ((((Hugs to everyone))))

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited August 2012

    Taz you are a scream.  Don't ever leave this site or I will hunt you down.

  • browerl
    browerl Member Posts: 126
    edited August 2012

    it is so hard to keep with all the post and who said what, I wish they had a "like" botton on here!

  • mags20487
    mags20487 Member Posts: 1,591
    edited August 2012

    cocker...oh yes...the "What ifs"  all of us have them...regardless of where we are in our treatment. I get them all the time.  Like after I enjoy a meal with all the things I should not eat...wondering if I just made it come back.  It is so normal to have these feelings.  It is much like a roller coaster ride with it's ups and downs.  Rest assured that as more time passes and you begin to celebrate those milestones (1 yr 2 yrs out etc) your thought of the "what ifs" will be less and less and you will be back to living.

    had the basal cell cut off my back today.  Numbness has worn off and just a tiny bit sore but nothing compared to what we have all had to endure eh?  Piece of cake--chocolate cake that is HAHA..crap now I want chocolate cake...or cookies...or something sweet...or wine...see never crave what is good for me.

    Maggie

  • TifJ
    TifJ Member Posts: 1,568
    edited August 2012

    Mags- has anyone ever said...oooh I'm craving some broccoli?? Don't think so!!

  • Titan
    Titan Member Posts: 2,956
    edited August 2012

     Cocker...wonderful news about Mandy..whew...I was sweating that one out

    and yeah..I do crave broccoli...goes great with white zin

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited August 2012

    Ooooh chocolate cake oozing with icing.  Yummy. Nothing wrong with my appetite.  I have just fried some potatoes I had left over last night and cooked a poached egg with it.   I know I shouldn't but boy it was nice.

    Just had my port flushed and they said I may have to have it left in for a year in case it was needed!!!!!   Bugger.

    Bower1 - yes a like button would be really good.  Perhaps the moderators will hear us.

    I am so full I am going to have a rest now.  Annie

  • NavyMom
    NavyMom Member Posts: 1,099
    edited August 2012

    Oh Damn, Mags.  I am sitting here drinking a nice glass of white wine and now I want some cake, too!  I think i will have to settle for a cookie or two.   Geez, I have no will power at all.

  • TifJ
    TifJ Member Posts: 1,568
    edited August 2012

    Titan you are truly one of kind!! LOL!!

  • borntosurvive
    borntosurvive Member Posts: 213
    edited August 2012

    Cocker:  I was just looking at my empty calendar for 2013 and thought "what if" as I flipped through it.  When I was diagnosed in November I didn't even buy a 2012 calendar because I figured I wouldn't be here for 2012.  I feel like a sitting duck sometimes, just waiting for something to happen......for that stupid C to come back. 

    A friend today told me that she "totally understands" what I am going through because she felt the "same way" when she went through her divorce 10 years ago.  Honestly......really?!  A divorce to a guy you should have never married?!  And then she tells me that she was "worried you were mad at me because you've been distant".  I've been distant because I have been struggling with my emotions every day and who wants to be around me when I'm like this.  Also I've been a bit preoccupied trying to figure out this whole living life thing that I am not suppose to do since finishing chemo 4 months ago.  GGGRRRRRRR.  Sorry Ladies, that's my vent tonight.  

  • JAN69
    JAN69 Member Posts: 947
    edited August 2012

    Born - Your post is another post I could have written.       Jan

  • CatWhispurrer
    CatWhispurrer Member Posts: 263
    edited August 2012
    Cocker - I just had my port taken out a couple of weeks ago, about 4 months after chemo ended and 2 months after rads ended.   My MO said that the BS would tell me I had to keep it a year and I said NO WAY!  Then, he said that I could maybe get by with keeping it 6 months.   Well, I called the BS and made an appointment to get a follow-up and tell him I wanted it out ASAP.   Even though I went through so much putting it in (BS nicked my lung and caused a partial collapse so I had to be hospitalized and went through one of the most painful things I ever endured - a chest tube put in under a local - right through my right foob), I told the BS I wanted the port out.   He said he would but it would be done in the office with another local.  By this time, he should have known, and I had told him a bunch of times that locals DO NOT WORK and I feel everything so there was NO WAY I was having it done in the office.  They would have to take it out the same way they put it in.   In the end, my insurance agreed and I had it taken out in the hospital under a light sedation.   It was a breeze and I am glad it is gone.   So, anyway, I guess my point is, don't let them tell you that you have to keep it a year.  You don't.   I figured I was done with mine and that it was just horrible to think I should need it again.   We are supposed to be thinking positive thoughts right?  Then, why would I want to keep the port?  I think 4 months after chemo was plenty long.   Okay, so that was my vent for tonight.   I also get the what-if's all the time and still cry quite frequently, scared of everything.  Heck, without a scan or something, how the heck do I even know if I am NED?  They don't even do a mammo until October and I don't have any faith in mammos, especially since I have dense breasts.   So, I just keep worrying.  I know you all understand...
  • JAN69
    JAN69 Member Posts: 947
    edited August 2012

    Annie - I had my port removed soon after chemo was finished and some scans proved I was NED.  That had to have been less than a month after chemo.  I had a local (my request) because I had another appointment later that day.  I had a love/hate relationship with my port; I loved that chemo didn't kill my veins, hated it because it was always somewhat painful.  I can't imagine why they want you to leave it in for another year!  Spring in New Zealand sounds peaceful.  Do you plant a vegetable garden?  Hope you can relax and find some joy in your days.  Jan

  • belleeast
    belleeast Member Posts: 653
    edited August 2012

    hi all, i follow this thread every day. i have a question,i am 7 months out from chemo,5 months out from rads. i have been nauseated,slight dizziness/lightheaded,very tired for 1 wk. Is this par for the course,is my body still recovering?

  • bak94
    bak94 Member Posts: 1,846
    edited August 2012

    CS-I still have my port and will keep it for awhile. I don't even notice that it is there so I don't mind. Since I have LE in both my arms I  am glad to have it for my blood draws and zometa.

    I am having the major what ifs tonight! My scans are bright and early, and then I see the doc for the results. So. tomorrow afternoon I will either be extremly happy or scared shitless. Cancer has taken so much from me I am really feeling angry tonight. It took my mom, my dad, my best friend, my nephew, 2 of my aunts and countless women here on the boards. It has left me with no energy, no boobs, pain and tightness everyday. I can hardly work and when I do I am miserable because of the hot flashes and sweating. It has taken my peace of mind from me, although I know I am responsible for that. There is my vent for the day. I am tired of trying to be positive. I am grumpy and pissed off. I want my old self back. I want my friends and family back that i have lost. I find myself withdrawing from people because I think what is the use. Oh, yes I am on an anti depressant and I see a psychiatrist, not helping, at least tonight it is not.

  • OBXK
    OBXK Member Posts: 791
    edited August 2012

    Mental meltdown day here. I had those awful feelings - where everything seems to be overwhelming. Only lasted a couple of hours, but it left me feeling fragile and exhausted.

  • bak94
    bak94 Member Posts: 1,846
    edited August 2012

    Hi Belleaste-It could still be side effects, or it could just be that you don't feel well this week. I find my energy comes and goes, but I sure do not have the energy I used to have. Even before cancer there were bad days or weeks where I didn't feel well. I hope you start to feel better. We are about the same time out from rads.

    OBXK-Yeah, hoping to feel much better after my scans! All I can do is hope for good news. I hate this feeling, the waiting, the not knowing, but I think I rather not know than find out something bad tomorrow.

  • tibet
    tibet Member Posts: 545
    edited August 2012

    Bak94,

    i saw your signature saying Stage 3 or 4 depending on who you ask. May I ask why you put it like this? Just curious on the definition of stage though. thanks.

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