Illinois ladies facing bc

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  • tlangston07
    tlangston07 Member Posts: 354
    edited August 2012

    Hi Diana..I am fairly new to this post also but it looks like we are rad twins as I am at the 15 day mark also.I don't know where Gurnee is but I live in Hillsboro..Hate we have to be here but welcome..this is a beautiful forum.

    Terry

  • camillegal
    camillegal Member Posts: 16,882
    edited August 2012

    Hi Diana--welcome? Sorry actually to welcome u but everyone has to be somewhere and we are a friendly group here. U sound like u have a wonderful family and thst's so good for u. And u'r 1/2 way thru rads so that's good and u seem pretty well with SE. Of course here u can rant and rave and be mad or sad or just pkain silly whatever u choose. There are a knowledgeable group here so questions are certainly handled like crazy--so make this one of u'r favorites and tho this is not what u want at least u'll be comfortable here.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited August 2012

    Welcome to Diana & Terry.  We are all so glad you are here --- of course we'd like to wish no one needed or wanted to find us here, but I think its going to be awhile...so welcome aboard.  You both sound as if you are doing pretty well......through most of the traumatic and difficult parts.....there is no real preparation for those little three words that turn you inside out and change your life within about that many seconds. 

    We are all in various stages.....some of us have 5 or more years since dx, but others like myself still have a while to go.  It is just nice to spend time here because you learn how to get used to life going on.  You may be ever mindful--especially at test time, but life returns and you will discover at some point that your whole life isn't really all about this disease anymore. 

    Diana....you have your last rad session on my birthday.  I think I can remember that. 

    I hope you will come often and share.....whatever you need to or feel like.  It is comfortable here.

    Hope you all have a great Saturday night.

    Hugs, Jackie

  • kjiberty
    kjiberty Member Posts: 1,385
    edited August 2012

    Welcome Diana and Terry.  This is a great group of gals!  My last rad is just a few days before yours--9/10!  

    Diana:  Thanks for sharing. 

    Have a wonderful weekend. 

  • camillegal
    camillegal Member Posts: 16,882
    edited August 2012

    Oh Terry I didn't mean to leave u out--when I see a bunch of threads it seems like u;ve been around, but I guess not here. This is a great ggroup here and I know u'll feel good here---Let me make this clear Diana and Terry--I can't type and I don't use spell check so u have a lot of guessing to do --the others are getting used to me and u will too.

    And I'm still awake and I don't like it so there. LOL

  • C-squared
    C-squared Member Posts: 514
    edited August 2012

    Welcome Diana & Terry!  We have a couple things in common Diana.  I was also diagnosed last November, just a week after you.  And I also live in Gurnee.  My team is with Advocate but I was treated at Condell.

    Have a peaceful Sunday allSmile

  • Graceembraced
    Graceembraced Member Posts: 97
    edited August 2012

    Welcome Diana and Terry,

    I hope you find comfort and answers here as needed.

    I am a third through taxol, I am keeping polish on my nails, but just took it off to reapply and saw the dark circles at the base. Do you keep polish on to protect them or to not see what is happening? Does icing during taxol help? I have not done it, but will if someone had success with it.

    Thanks for the comments! Janet

  • Graceembraced
    Graceembraced Member Posts: 97
    edited August 2012

    Oh yeah, and my nose is really dry and bleeding a lot, can't see many nose hairs anymore. Anyone else experience that? What works to help that? Thanks

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited August 2012
    Remember, we all stumble, every one of us.
    That's why it's a comfort to go hand in hand.
    - Emily Kimbrough
  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited August 2012

    A little something above for the new gals, and those who are not posting often.  Still thinking about you daily Lemon and hoping the best for you and (Dad) and your family.  Much love.

    Rain predicted today which we can sure use with the quite scant amts. only once or twice this whole summer.  I am really tired of drought.  We are biting the bullet and getting a big lawn vacuum to pull up all the leaves and mulch them.  It is becoming far too hard to keep up anymore with two acres so full of trees.  I resisted this a long time.....felt the exercise was good for us...but Dh was 73 on his birthday and I'm 6 yrs. younger.  Change sometimes has to be gracefully accepted.  I think we will  ( oh I hope anyway ) will be able to do more this year then just blow and rake leaves for the better part of two months......and be a little exhausted the whole time.

    I hope you all have a marvelous Sunday. 

    Hugs, Jackie

  • hopefulhealing
    hopefulhealing Member Posts: 722
    edited August 2012

    Just lost my post.

    Lemondrop keeping you and your Dad in my prayers.

    Thanks ladies for the good wishes for my surgery. Two hours. Two incisions on each hip where they took about 3-4 cm of skin for the skin grafts to make the areolas and nipples. I was under a moderate sedation. IV Valium, Versed and another drug.  Pretty out of it, but he said I asked several times if I could watch the surgery. He said they just ignored me and laughed and said he has never had anyone ask to watch their surgery.  I asked my other PS if I could watch the exchange surgery and he also said no :) but to surprise me he took pictures during it to give to me.  I have a round sponge type dressing covering the areola and nipple area on each breast kept in place by about 15 staples on each one.  I was NOT expecting staples. Then each breast is covered entirely with tegaderm.  I was doing fine until I developed redness and blisters along the entire medial edge of the tegaderm on the right.  So extra trip down non Friday. He cut away the tegaderm from the red and blistered area. I now have a new large long blister fluid filled on the right medial aspect under the tegaderm again!!!  I see him on Tuesday so I am hoping it doesn't pop before then and he can decide what to do.  Never is easy with me.

    Nervous to see what it looks like under the dressing.  He said it won't look pretty at first but he feels good about the long term results. We will see.

    Welcome to the new ladies. I am sorry you are now a part of this club and facing the journeys ahead but you will find everyone here so kind and helpful.

    I hope you all have a good week.

    It is hard taking them to school the first time but amazing how soon not having them at home becomes the norm. Even though you still miss them.  

    Have a good week everyone. I will keep you posted on the blister saga :) 

  • kjiberty
    kjiberty Member Posts: 1,385
    edited August 2012

    hopefulhealing:  Glad you are doing okay! Take care of yourself!

  • dltnhm
    dltnhm Member Posts: 873
    edited August 2012

    Thank you all for the warm welcome. And your kind words. Since I am coming (posting that is) to you post-surgery, post-chemo, and more than midway through rads ... it's a different place than coming to you when all this began or even coming to you when I actually found this thread. So I do feel like I know some of you already :-)

    C-squared --- Well we do have some things in common. Gurnee, no less and late November diagnosis. We will have to meet up and chat in person one day. I run a lot (but not fast) - west side of Gurnee all through the neighborhoods and along Grand and Hunt Club and Washington too - so you may have seen me and not known it. Who knows we could have stood in line together somewhere at some point over the years ;-)

    Hopefulhealing --- so sorry for all you have been through. Pray that you will not have more blistering and that your skin will 'calm down' until you see your surgeon. 

    Graceembraced --- I went through weekly Taxol but did not ice. I noticed a purplish bruising look to my big toes early on - my Taxol followed DD AC and a three week break. The toenail next to the big toe on my right foot also got a little purplish at the base too. I only had one toenail depart (it just fell off one day totally dry underneath with nail regrowth and a very strange discolored ridge of toenail. And none of my fingernails or toenails ever hurt. I didn't have fingernail issues at all - in fact they were growing rapidly all through it. I ran through chemotherapy so my oncologist and my nurse wanted to attribute that one toenail to my running because it didn't really present the way they usually saw toenails with Taxol. But it was definitely the Taxol. I didn't paint my nails at all. I know from reading this thread that others on here have addressed their nail issues in detail and will give you good advice. I keep putting off a pedicure because I want that one nail to grow more - it's rather unsightly but I still wore and keep wearing sandals. 

    tlangston07 ---Gurnee is north and home to Six Flags. It is also east of Waukegan so not too far from Lake Michigan and the Great Lakes Naval Base. After 8 years here I should know more Illinois geography than I do ... but alas it hasn't been a priority and my GPS lady usually gets me where I need to go. 

    camillegal, kjiberty, and Illinoislady thank you too for your welcome. 

    Blessings,

    Diana

  • mdg
    mdg Member Posts: 3,571
    edited August 2012

    Welcome to all of our newbies!  Sorry you got the big C but we are happy to welcome and support all of you!  This is a fun group to hang out with.

    Hopeful healing - I also had the areola grafts and the healing took a long time.  They looked horrible for weeks and I was worried they were getting infected because it looked so bad.  Feel free to PM me if you have questions.

    Anyone heard from Robo lately?  I have been reading more than posting but I have not seen any posts from her in a while.

    Now that school is back in session - I am free for a weekday lunch.  Anyone in the west burbs want to get together sometime?  Let me know. 

  • joan888
    joan888 Member Posts: 810
    edited August 2012

    Trying to catch up again this evening. Warmest welcome to all the new gals. I am starting to get lost with so many new names. Wish it wasn't soooo, but you have found a great place. Diana, I didn't find my way to this forum until I was in the midst of chemo.... what a Godsend it was for me.



    Grace... I had problems with nosebleeds after my third tx. Yes, even nose hairs disappear. Don't remember that i really did anything other than smear a little Vaseline in my nostrils from time to time. Unfortunately, hair north and south disappears. I never have gotten hair back in my armpits....YEAH! One silver lining of chemo for me.



    I didn't experience any nail problems, but I did keep OPI Nail Envy nail strengthner on them all the time, just as I always have. Not sure that did any good against Taxotere.



    My recovery from spine surgery continues...... so anxious to be able to toss this big, hot brace in 6 more weeks. I have started PT which is all leg strengthening and range of motion stuff. I go back to LE PT for 3 days this week and then get measured for a custom sleeve on Friday. On of my LE PT's referred me to a massage therapist who is qualified to work with LE patients. I saw her on Saturday, and OMG, so wonderful. Wish I could have brought her home with me. She really knows how to work with LE.



    Hope everyone enjoyed the weekend. My DH and I went for a nice long walk in the rain this evening. A beautiful rainbow came out over the lake. I will take that as a good omen for us all this week.



    Robo...wherefore art though? Laura GTO... better get the old searchlight out!

  • camillegal
    camillegal Member Posts: 16,882
    edited August 2012

    Hopeful---I'm glad u seem to be doing OK--even with that blister--OUCH that hurts me thinking about it.

    And I didn't really get on this sight right away well I knew I lived in Ill. but I really don't know where any thing is--(I was born and raised here) Im so observant. Bt I tuly enjoy this site and find out some

     of us know the same Drs, and hospitals it's kind of comforting. And of course the same restaurants and shopping areas--more comfort there. hahaha

    And I love rainwalking--not storms--just rain. But I am sorry for the reason, but we have each other to talk to who really gets it.

  • kjiberty
    kjiberty Member Posts: 1,385
    edited August 2012

    Diana:  I am not originally from Ill, and living in the Peoria area...So I definitely don't know much what's up north of the State.  My sister-in-law does live in Woodstock and my DH graduated from Libertyville HS.  That was a long, long, time ago, though.  

    We had record rain here-2.25".  Wish the farmers could have had the rain sooner.  

    Joan:  Glad you are recovering well.  I have had back surgery, so I can relate.  It's not fun... 

  • doxie
    doxie Member Posts: 1,455
    edited August 2012

    Graceembraced - a bleeding nose could indicate anemia.  I had mild bleeding through all of chemo until my anemia resolved itself 6 weeks afterwards.  My RBC was particularly low after the last infusion.  I had 4xTC.  Severe fatigue is also indicative of anemia.  I declined the offered blood transfusion after the last round.  

    I only had trouble with toenails.  I used Eucerin each night on all my nails.  When one big toenail started to hurt and separate, I strapped it tight with a bandaid.  Helped with the pain and, maybe kept it from separating further? - who knows.  Did that for about three months.  Other nails hurt at time.  In time some peeled like snakeskin leaving a thin nailbed below.  8.5 months out from chemo and my big toenails are still growing out.  I expect more shedding before they are completely grown out.  

    A welcome to everyone new.  Hope we can help all of you in some way.  I met someone now undergoing rads who had tossed off her wig at a retirement party in a park in Wheaton this weekend.  I invited her to join us on the boards. Hopefully she'll stop by.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited August 2012
    I love the sweet smell of dawn - our unique daily opportunity to smell time, to smell opportunity - each morning being, a new beginning.
    ~Emme Woodhull-Bache
  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited August 2012

    Ah....finally got our rain late yesterday evening.  It was a nice quiet, gentle ( but lots ) rain.  More will come maybe today and then again towards the week-end.  I think from Issac probably.  It won't help us much but will at least start our water table filling back up.  So nice to not look outside and see everything damp looking and not dry and dusty.

    Hope you all have a great Monday.  Your always in my thoughts.

    Hugs, Jackie

  • mdg
    mdg Member Posts: 3,571
    edited August 2012

    I also had some nosebleeds during chemo.  I would get them in the morning.  I did TCx4 and did get anemia.  I started iron after my 2nd tx due to anemia.  My nosebleeds did not last long - a few weeks. 

  • spunkyboobster
    spunkyboobster Member Posts: 738
    edited August 2012

    Maria-I'm up for lunch. What days are best for you?

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited August 2012

    We have a few things in common.  I live in skokie, not that far from Gurnee.  My youngest daughter just left for college and the empty next hit me particularly hard this year.  and I had one infusion at Lutheran General.  Hope you come through this in flying colors and next year it will be a distant memory.

  • mdg
    mdg Member Posts: 3,571
    edited August 2012

    I am pretty open next week.....anyone else?

  • camillegal
    camillegal Member Posts: 16,882
    edited August 2012

    am I blue??? Anyone remember that song? I associste songs with feelings LOL

    I've had my diarehha (sp) after 5 yrs u'd think I could spell it---mostly on for 3 days now--uh I'm exhausted and I double up on my pills to stop it. So I'm blue hahaha

    But this too shall pass--sooner or later

    I hope everyone is doing well today I'ts Monday for some work--the rest of us just a new day

  • spunkyboobster
    spunkyboobster Member Posts: 738
    edited August 2012

    I can get together next week on Tuesday or Friday-

  • C-squared
    C-squared Member Posts: 514
    edited August 2012
    joan~so good to hear from you.  You have the patience of a saint!!! 6 more weeks?!?!?!?  I don't know how you do it!!  After all that I've been through maintaining optimism and a smile on my face all throughout the last school year, I seem to have lost any degree of patience this year.  I returned to school last week (I'm an OT working with children with special needs) and I cannot believe how much more direct I have become with colleagues.  We rely on each other for the team to function efficiently and smoothly.  At times I just want to scream... Arrrggghhh!!!  I had such a better attitude when I didn't have energy and they were so much more understanding when I was IN treatment.  It almost seems like I'm in the anger stage (E.K. Ross) ..., 9 months later.  Ugh!  And I believe that the stages apply to many a crisis.., not just death and dying.  My heart is open to anyone who is willing to share some words of wisdom. 
  • camillegal
    camillegal Member Posts: 16,882
    edited August 2012

    C-squared--I never have words of wisdom--but u'r still recooping from a lot of things going into and out of u body--it's not thst long and now u must be on meds which acts on all of us differently (we're not at our usual best) Allow u'rself as much time as u need and as far as the meds go thst can be a whole different issue for u or maybe not--u'll see but be kind to u'rself

  • camillegal
    camillegal Member Posts: 16,882
    edited August 2012
  • camillegal
    camillegal Member Posts: 16,882
    edited August 2012

    OMG i copied a picture---first time on here--get ready guys fun is coming to Illinois.

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