2012 sisters

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  • Moonflwr912
    Moonflwr912 Member Posts: 6,856
    edited August 2012

    Tazzy, glad yours are gone! My drain for my TE is gone too, a lot faster than after the BMX. Looking forward to a shower tomorrow!

  • Tazzy
    Tazzy Member Posts: 2,546
    edited August 2012

    Oh! a shower... all that lovely water running over your head - bliss !!

  • Moonflwr912
    Moonflwr912 Member Posts: 6,856
    edited August 2012

    It's the little things.....

  • websister
    websister Member Posts: 1,092
    edited August 2012

    We really do need a 'like' button on this site, like Facebook.

    Yay, Tazzy and Moonflower - very happy for you both!

  • juneaubugg
    juneaubugg Member Posts: 951
    edited August 2012

    FREE AT LAST, FREE AT LAST.... THANK GOD TAZZY IS FREE AT LAST!!  YAY!!!!!!!!!!!!!!!!!!

     Jean, any change you friend was told it was Grade 4 not STAGE 4?? Just a thought.

     Today was a good day after I woke up at 1:15.  I slept like a rock having taken a pill finally.  UGH.  Then mom came over (she insiisted) she drives me crazy!  Everything is always about her and it requires me to be spiritually fit to handle her.  Thanksfully today i was.  

    I spent hours putting  together receipts/EOBs and forms for submission to my FSA provider to get $1200 back that I have paid out of pocket so far.  I am only half was through my bills and have another 800 in FSA funds.  I suppose I won't be using the FSA money I requested for new glass for my DH.  Grateful that I did put away $3000 though. Pretax medical $'s are quite te value.

     My husband is off tomorrow so he goes to play gold. I am going back to the Natropath Dr. who I'm not sure I'll go see again.  Not thilled so far with him.  Then dinner with a friend. 

    jpmom:  don't go away for so long, you're missed!

    2Fried:  I'm not religious, but I am spiritual and fully agree.  Pay it forward.  We only keep what we have by giving it away.

    Mcook;  thinking of you and hope to "hear" from you soon.

  • Aruba
    Aruba Member Posts: 543
    edited August 2012

    Tazzy, So glad you are drainless  and even better NED!!!!!!!!!!!!!!!  What a feeling it must be!  JPMom, thanks for taking the time to comment to us all!  I try to do that at times and know I always forget someone.  As for the stats for chemo..doing it takes me from 12% down to 8% so a 4% decline. Having discussions with DH, DS, DD and brother and father as well. Really think rads will be next treatment for me.

  • Tazzy
    Tazzy Member Posts: 2,546
    edited August 2012

    Juneau... if I haven't said it before I love your new 'do' you really do rock short hair.

    Aruba: good luck with your decision.  I am quite happy I wasn't given a choice about chemo - I dont know how I would've coped with that one.

    websister - how was the LGFB workshop?

    hugs to you all xx

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    I'll apologize now that I am not sending personalized updates tonight (I've been enjoying doing the word doc along side post readings the past few times I've posted...). But Tazzy - since I see your smiling face above this box as I type - yeah for no drains and good results!!!

    Today was a challenging day for me but I prevailed at the end and I am patting myself on the back. For most of the day it looked like I wouldn't be able to abide by my quote - but I got there by the end of the day and found me some happy. And I conquered the challenges put in front of me. I took control and let the nanny know I don't need her to hang around until we find someone. Tomorrow is her last day and my boys are all set to enjoy the day care affiliated with their pre-k for next week. This will not only give me time to find a new nanny - but it will keep her negativity out of my house, and keep the kids out of my hair while I'm radioative from my muga scan and when I start chemo. That's right - the other challenge I conquered is that I harrassed the folks at my MOs office until my schedule was confirmed. My muga is approved and set for monday. And my first AC is set for next Tuesday morning. So now I search calmly for a new nanny and prepare for my first date with the BGC. I feel ready - for now. We'll see what Monday night brings me. But all of the stories you have shared here have put me in a good place to walk in that door next Tuesday. Thank you all. Big hugs, feel good and sleep well. Love you all and thank you for all your support!!!

  • 2FriedEggs
    2FriedEggs Member Posts: 640
    edited August 2012

    Wow busy board today! Just got back from cirque du soleil. Haven't really done anything since all of this BC crap started so it was nice getting to go somewhere nice. But sitting there made me realize how I used to take my mushy saggy breasts for granted. These expanders have no give what so ever and those who have them(Juneau you have one, imagine 2) know how far under your armpits they go and how hard they are. I had to sit there almost like some weightlifter with my elbows flexed so my expanders didn't poke my upper arms.To top it off I was sandwiched between 2 big guys who were both hogging the arm rests on each side of me so it was really uncomfortable. Another reason to be anxious for my squishees! LOL ok so I'll apologize now for being whiney over something so minor especially since I did enjoy the show.

    TAZZY great news about the drains. Crazy how irritating you realize they were especially once they are out huh? Enjoy your new found freedom and your shower. I loved your quarter story; that's exactly what I was talking about and I bet while you were standing there looking at her smile you had a brief moment that cancer and all you have been thru never entered your mind. 

    Websister a like button would be great-I'd be liking your suggestion right now instead of typing this.

    Ramols so glad you were able to find some "happy" today. Good idea to get the negative energy out of your house -you don't need that.

    Aruba-I'm sorry you have such a tough decision to make.

    Soya- you amaze me- you are so dang self-disciplined with your excercising, etc

    For those of you facing job and insurance issues that really sucks. You really don't need those worries on top of everything else.

    I'll have to read thru the rest of the posts tomorrow.Thinking of everyone  and wishing you the best. One more day and it's weekend!

  • Soyaandpepper
    Soyaandpepper Member Posts: 368
    edited August 2012

    Tazzy-Isn't it great now to have the drains out? Its so good to actually be able to take a REAL shower! Happy healing!

    2FriedEggs-Great that you were able to enjoy something nice for a change after this Breast Cancer Crap! Soon you'll get rid of you TEs and exchange them for implants!  

  • Soyaandpepper
    Soyaandpepper Member Posts: 368
    edited August 2012

    ramols-Glad your day ended with a positive, hang in there!

  • firestorm531
    firestorm531 Member Posts: 176
    edited August 2012

    Tazzy - YAY!  No more drains....ahhhhhhh doesn't that feel good :)

    Aruba - I have to agree with the others; I'm glad I don't have to make that decision.  Prior to my lumpectomy that was my area of biggest indecision and my decision on it changed daily...but my sentinel node biopsy changed all that.  Sort of relieved but sorta not LOL  You're in a tough spot; all I can say is go with the decision that gives you the most piece of mind.

    Jobs and insurance can be such a bummer...  I'm lucky, I only work part-time and my employers are being incredibly gracious with me.  But I still worry that this is seriously straining our relationship and that I may not end up with a job in the end.  My insurance is through my husband's employer and I worry that their premiums will go up as a result of me.  Its the potential domino effect that keeps me up at night...along with those delightful hot flashes :\

    My port is seriously hurting today; I am so not amused.  I really thought this thing was going to be easy-breezy but that must've been the extra local numbing talking LOL  Looks like another day of trying to work from home since hubby (and probably the general population) doesn't feel I should drive while on drugs LOLOL

    Thank you for the name suggestions...  'Ted' arrives today thanks to Amazon :D  I can't wait to Febreeze him and squeeze him and love him and hug him and make him MINE!  hahahaha  Moonflwr is so right - its the little things ;-) 

  • 2FriedEggs
    2FriedEggs Member Posts: 640
    edited August 2012

    McCook how are you? Hope your surgery went well. Update us when you can

  • jeanl151
    jeanl151 Member Posts: 146
    edited August 2012

    thanks everyone for your thoughts. My friend has decided to change doctors and has an appointment in boston next week at a breast cancer cente.  I am hoping this will give her a more accurate diagnosis and proper treatment.

        to all of you... I know from my own experience how long this treatment road is.  I wish each of you a smooth road and nothing but the best results when you are done with treatment.  Continue to use this wonderful website. I felt it so helpful while on my journey.

      Jean

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    It looks like I'm having surgery sometime in October. Left mastectomy. Biopsy showed cells in 1 or 2 nodes. Is there any chance, they might do a sentinel node biopsy? Or will it be aux?



    I'm also waiting to hear if I get funding to start on arimidex. I'm between insurance coverage until October 1.

    Blessings
    Paula

    FIGHT LIKE A WARRIOR!!!


















  • Cindyl
    Cindyl Member Posts: 1,194
    edited August 2012

    Soteria, SNB is the standard of care.  Tell them you want one and that you don't want anymore nodes taken than absolutly needed.  You do not want any more risk of LE than absolutly needed. 

    I still don't understand why they get so carried away with removing nodes... yes I understand that they want to know if the nodes have been involved but is just seems to me that once you know that yes they are, the extent is moot.  But I got my medical degree at BCU* Cool so what do I know. 

     *that's Breast Cancer University

  • jpmomof3
    jpmomof3 Member Posts: 643
    edited August 2012

    Ramols, hope you can find some more happy today, sometimes it takes some effort but is worth doing!  Good luck on tuesday.  It will be good to just get it started. 

    Tazzy, how great was that first shower?  Best ever?

    Firestorm.  Sorry that port is bothering you so much.  It will get better.  I was afraid to move my arm much or touch it at all, i was worried it would move or get pulled out of the vein... but it becomes more a part of you and you forget it after a while.  It was annoying how it stuck out so much though.  I had to get a pad for my seatbelt to keep it off the port area.

    Soteria, i had an axillary node dissection but it isnt all that common to do a big one any more.  They just took three other nodes out after the SNB.  They dont do those large dissections as much anymore because the chemo and the rads does the work just as well and much less likely to cause lymphedema.  Just talk to your docs to see what they recommend.  but if your surgeon talks about taking out all or most of the nodes I would very much recommend finding a different one or at least getting a second opinion.

    At work today.  Looking forward to a weekend off.  But my fatigue has improved greatly and I am feeling much more normal.  Now on to radiation to knock me down, but the worst is behind me...

    I think I am getting some mild cording too.  it almost looks like a cord popping out from my axilla to the upper arm.  it is painful to reach out and stretch certain ways but the stretching does seem to help.

  • chrissera
    chrissera Member Posts: 79
    edited August 2012

    sorry i haven't been around much but I haven't been feeling well and needed another transfusion. Feeling much better today, but that won't last as I am in the BGC for my last chemo cycle. while that is a good thing i am not looking forward to what comes next. I meet with my BS in 2 week to get a recommendation for surgery. I personally am ready for a Mastectomy and just get it out... but we will see what hes says.

    This site and all of you are a blessing to me. I am not one to post too much as I do not consider myself qualified to say too much. But I follow all of you and your stories and you are all an inspiration to me every day. When I cannot take any more I come hear and read that you are all in the same place as me and take comfort that I am not alone.

    Here's hoping minimal SEs to those of us at chemo today and a peaceful weekend to to those recovering from surgery/procedures.. Somehow we will all make it through.

  • 2FriedEggs
    2FriedEggs Member Posts: 640
    edited August 2012

    Chriserra sorry you haven't been feeling well and about the transfusion. What do you mean you don't feel qualified to say much?  CindyL put it great that she got her medical degree at BCU (Breast Cancer University). While you may not have completed BC university yet, your personal experiences and opinions on your treatments,etc are still highly regarded as they are with any BCU student here. But this is also a place for you to come to talk about your fears, your emotions, your results, your treatments, you name it because we too have had tons of them thru this BC process and understand what you are going thru. Sometimes non-cancer patients just don't get it or you feel that they don't want to hear it anymore. Well we do, so please don't feel your posts have to "qualify" in any way. We have all been thru a variety of treatments over varying amounts of time. While some are just starting at BCU others are graduating so it's a great place to share, good or bad, what's going on. We hope you'll want to share with us more often.Like you said, you are not alone and there are better days ahead for all of us.

    JPmomof3 That cording is a pain in the butt. Mine was uncomfortable but didnt last too long. Hope your's goes away soon. Glad you're feeling better.

  • Tazzy
    Tazzy Member Posts: 2,546
    edited August 2012

    Ramols... glad you found your little piece of happiness.  Thinking of you for Tuesday... you can do this, and on days if you feel you cant... we'll be here holding your hand.

    2Fried: happy you did something ‘normal' even if squished between too hulks.   Yes for that moment I forgot all about this crap.   Here's to you soon being squishy

     

    Firestorm... port issues just sound awful to me (not having one)...hope it clears soon.

    Jean - hugs to your friend and you

    Soteria... good luck... you'll be on the ‘other' side before you know it.  Like everything the waiting
    sucks.

    Cindy - BCU ....love it.

    Jpmom - happy to hear your fatigue is diminishing.  Enjoy your weekend off.   I know nothing of cording yet... least have no symptons... which reminds me - off to do my stretching.

    Chrissera - sorry you needed another transfusion.  And I agree with 2Fried, you are as qualified
    as any of us to add your 2cents worth.

    In the words of Ramols - here's to you all finding your little piece of Happiness today.

  • chrissera
    chrissera Member Posts: 79
    edited August 2012

    thanks for the encouragement ! My port was sore like a bruise for about 2 weeks after it was put in. but it is better now, although every now and then it feels "pinchy" even when just sittingstill. It took a good month for me to be able to sleep comfortably with it. So for those having isues, it will get better. mine is in the right chest and the scar is visible with certain shirts but I wear it as a badge of honor so to speak ... my husband calls it my war wound in this fight against bc. ( no surgery scars for me yet)!

  • taraceta28
    taraceta28 Member Posts: 36
    edited August 2012

    2friedeggs: nicely put. I find my comfort here. We all can relate in some way or another to everyone. I noticed we had are surgeries at a similar time. how long before u get expanders out? I have 8 rads left then have to wait 3 months. hopefully i get softer boobs for christmas....

    chrissera: good luck with your last chemo cycle. thanks for sharing. we Will all make it through :)

    jpmomof3: glad your fatigue is better :)

  • jpmomof3
    jpmomof3 Member Posts: 643
    edited August 2012

    Chrissera, you are in the club!  we are all in it together.  Feel welcome to rant rave or celebrate with the rest of us.  Sorry you feel so bad.  Good luck with your last chemo and it will be great to have it behind you.  I hope you dont need any more transfusions!

    Tazzy that dory picture makes me laugh every time i look at it.  I am going to start howling the next time my kids watch that movie and they are going to wonder what is wrong with me.

  • jpmomof3
    jpmomof3 Member Posts: 643
    edited August 2012

    OMG someone I never met before actually just complimented my on my hair.  I so wanted them to ask where I get my hair done.  Answer:  I got it free for doing business at the chemo department.  AHAHAHAHA. HOOO 

  • Aruba
    Aruba Member Posts: 543
    edited August 2012

    JPmom. That made my day:)

  • Tazzy
    Tazzy Member Posts: 2,546
    edited August 2012

    jpmom... priceless - ha ha ha!!

  • chrissera
    chrissera Member Posts: 79
    edited August 2012

    Jpmom that is great. I have only recently gone our a few times with the.bald look and had someone ask me what charity I shaved my head for... You should have Seen her face when I said "my own... I have cancer.. would u like to donate?? " she turned as red as a cherry as a cherry and walked away in silence! I am changing my avatars today to the new look... I haven't lost All of it but almost. My 3 mo old great nephew has more than me! :)

  • RoulaG
    RoulaG Member Posts: 239
    edited August 2012

    Ok ladies - I have decided to forgo radiation and get rid of the trouble makers (my boobs). I figure it will save me from the SEs of rads and give me a little more peace of mind.



    I hope everyone has a wonderful weekend with minimal SEs.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    jPmom......lol!!!

    , Chrissera!......I can just picture the look on her face!!

    RoulaG: making the decision gets you to a whole different place in this journey. I'm glad you made a decision that gives you peace.

  • Moonflwr912
    Moonflwr912 Member Posts: 6,856
    edited August 2012

    Roulag, yep once the decision is made the hardest part is the waiting. So hang in there.

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