2012 sisters

I hope you all make your decision soon. But I know you will all make the right decision for you. Much love.

Aruba; I has the same agonizing decision to make. My Oncotype was 22. I AGONIZED over it. Pursued, screamed, cried.... I thought that with 0 nodes at surgery I was "home free". So the word Oncotype and what it meant shook me. Yet another twist provided by or friend BC! ARGH!!!! In the end my choice was to do it because I'm 44 so I forget how my BS put it but it was something like, unless you want to be here in 15 years with mets in your liver or bones, just suck it up and do it. if I were you, I would do it. it took two weeks for me to get OK with it and I'm still dreading finishing this chemo and losing my hair (which will go any day), but I Donny ever want to go through this again. wish my Oncotype was 2 instead of 22... But then again, I wish my annual mamo had be clear like it had been the prior 3 years. Point is; for ME.... Wishing just don't make it so, but action should makes this bitch die.



Ramols; cry away please?! I have grown to relish in the ability to release ask the pain and anger. There is enough stuff that is carcinogenic in my body right now; chemo drugs, TE, fucking cancer... I might as well expel what I can instead of adding to that part... Emotional pain I can release if possible because I have no constructive use for it. it works against me in fact and makes everything else more difficult.



Websister; I was indeed busy and feeling a bit better. I went and picked a different wig with my friend/ hair dresser to accompany me. After cutting and wearing my hair in a similar way to my wig ordered for three weeks, and still with every new compliment on my NEW HAIRCUT I would say thank you and think, 'thank good its going to fall out so I don't have to look at it anymore!'... I finally realized that maybe I should reconsider my wig selection. they didn't charge me a dime to exchange it for a longer one. When I put it on I finally felt like the me I've known for the past twenty years. ah relief......



I still can't seem to get on a sleep schedule without sleeping pills. Thats not in with me. No pill and I'm awake until 4! I canny go back to work like this.



My port its still super tender and raw. It sticks up so much that everything hits it or rubs it. The line from the port its even more tender of an area. it doesn't help with sleep at all.



Meanwhile my Crohns disease has reared its ugly little head and lets just say food is ripping through me in a rather viscous manner. I'm eating the right fits and taking my meds for it, but it seems that adding poison to my body that changes how my cells in my intestinal tract replicate is not making my Crohns submissive. I doing which will become the most uncomfortable: chemo or Crohns?!



On that note, my ambian has kicked in and I an finally ready for sleep.



2fried; please gives us a link to three photo forum you were looking at. You've 'peeked' out curiosity!



Tazzy.... Glad you made out from the shed, but what exactly were you doing back there? Do tell! :-o



mcook, glad you're feeling a little less apprehensive about surgery, well tomorrow now that its almost 3 am.



Cindy; keep us posted on your results. I'm sure you'll fly through with no issues.



Jpmom; get some rest! Your schedule is making ME tired (not tired enough to SLEEP of course!!)



Wish me luck ladies that sleep takes me when I turn out my lights.



(((hugs)))

I love it. On the exchange post bcavenger who has been thru alot says " When it rains it POURS but then you put on a poncho and get on with it!" Isn't that the truth.

Firestorm...you are very brave! I'm day 15 into my chemo and there is hair EVERYWHERE, but can't bear to shave it. I cut it really short but can't take the next step. I'll do it today or tomorrow. You are doing the right things. Good luck with the port.

Good morning to all- Just diagnosed with IDC early August, Mastectomy scheduled for Sept 20th, but have a question. My doc did all the usual tests, mammo and ultrasound to right breast where the BC is, mammo done on left, but nothing could be seen, no ultasound on the left.

This morning, I woke up to shooting pain from the outer of my breast to the nipple. I also see some changes to this breast that are new. Can IDC, grade 2 spread that quickly?!? My doctors and breast surgeon told me they saw nothing to indicate IDC in the left... my gut tells me they are wrong. Any thoughts? 

Hi, Gals,

I just dropped in to visit; I'm a member of the 2004 IDC club. Just wanted to give everyone a ((hug)) for all that you're going through. I found BCO in the middle of a very dark sleepless night, and what an awesome group of women come here.

I remember that my cohorts and I frequently reminded each other that cancer research is always miles ahead of what you can read about online, and wow! It's really true. Since I was away for years, I'm amazed. There are SO many newer approaches and extra diagnostic tests to inform your choices today than there were in 2004. I'm going to have to read all the BCO information pages to catch up on what you're talking about.

(Oh, and just in case anyone wonders - no, I'm NOT back because of recurrance.) I am at another crossroads in life, and one of my go-forward choices was to "volunteer" in cancer support - so I've returned to the discussion boards. Since treatment keeps changing & improving I'll probably mostly just be hanging out listening.

But I can tell you that there comes a month when you realize "I didn't have to go to a single doctor's appointment." and in time, there come days and weeks where you don't even think about your cancer experience.

((hugs)) all around!

mrskimber47 Welcome to our group but so sorry you have to be here. The worst part once you've gotten a diagnosis is the waiting, worrying and doubting.  For your peace of mind, why don't you ask the BS about getting an MRI just to be sure there is nothing else on either side. Altho it's probably not a common thing, my BC was not seen on a mammo or an ultrasound. Fortunately since I had a fibroadenoma biopsied that showed precancerous cells in my left breast, my BS did an MRI to see if there was anything else hiding out. In my case they found a very small lump in my left breast which on excisional biopsy turned out to be IDC. I think about it all the time and am so grateful that I had that MRi.  Hopefully this will not be the case for you but you will atleast have peace of mind.

Liefie.... I agree with everyone DO NOT allow BC/LE stop you/us from living. Go fly ! OK just caught up.. you are flying.

Websister.... Once I got used to being bald, really I found it quite liberating.

Cindy... how did the appt go for the mammo?

Tpoly - way to go.... .when I did my chemo I counted down... didn't seem half as bad so I went from 8....7....6... and so on.

Aruba - I wish you well with your decision. I wasn't given any choice re chemo. Juneau has great advice on this subject.

Juneau... sorry you are going through the wringer - hang in there sister. What was I doing behind the shed? Smoking mcook's wacky backy .... Did everyone else leave me .... I never noticed - ha ha!!

Firestorm... you ROCK that do. Take your teddy to chemo with pride... what will you call him?

Mrskimber - go with your gut. I know that my IDC was very aggressive and grew quickly... but our BC is like our fingerprints... individual to us. I'd call my doc and get an appt soon. We know our bodies better than anyone.

Sending wishes to everyone for a calming peaceful minimal SE day.

I will report back when I return from the BS - not there until 2.45 pacific time.

Juneaubug, hang in there. We love you. Pinky, my hair never all fell out, and I still shaved it. So much was falling out it was a mess. I had handfuls every day. I think you also have another type of chemo coming in your tx, and I think that one takes hair hostage too. It was at least easy to keep up with. Silly Mama, thanks for the encouraging words. It helps to realize things get better. Thanks for stopping by. Mskimber, if you read my profile you will see they found my IDC in the breast I told them to take as a precaution. So go with your gut, get an MRI on the other side. My IDC did not show on mammos or US.

Cindyl that's great bet you can breath alot easier now

Hi everyone.



Firestorm: I do not have a stuffed animal but I take a little blanket with me and snuggle with it. In fact I'm in the big girl chair now snuggling with it.



Kimberly: please go with your gut feeling. I had 3 tests done over a 6 month period that said I just had a cyst. It took changing doctors before it was finally confirmed I had BC. In that time my tumor had grown from 2.5 cm to 5 cm. I'm not telling you this to scare you but to encourage you to go with your gut feeling. PLEASE.



Well, I am getting my last AC right now and I'm SO excited.



Take care everyone.

YAY CINDY!!!!! Now we can all breath with you.



Firestorm: love the hair.



Mrskimber: welcome. Keep coming. If you read some older posts you might find some additional answers. We have covered most of them here.



So I just spoke to HR at work. My boss had left a message to see if i would indeed be back on Monday. (they of course do not know I already have a new position elsewhere starting November 5th). Anyway, I basically told them I won't be back and understand they legally have the right to terminate or replace me. I feel a weight has lifted. I don't have to try to push myself to feel better then I do. Between the damn Crohns disease and chemo I'm not exactly at 100%. Shit I'm not at 75%.



Ok ladies. Off to buy some new shirts for my new and improved chest size!

Cindy: Yay!!



Juneaubug: I am still working on that list for you. First week of school for our little ones has kept me super busy and tired.



CharlotteNYC: congrats on the 41 years. You will be with us a long time and can't wait to hear about your Portugal trip next year!

Teeball: no worries on that list. ...I'm jealous; wish I were where you are, coming out the other side of the txs. BUT still very happy for YOU. Snuggle up and rest sister. And maybe I'll come meet you for one of those support groups. I'm not too far from you. About an hour.