B C Charity Overstates Value of Mammograms: Res.
Excerpt:
The organization in question is the Susan G. Komen for the Cure, which stated
in a 2011 advertisement that the five-year survival rate for breast cancer when caught early is
98 percent, while it is only 23 percent if not caught early.
"The survival statistics they present are eye-catching and compelling. They
imply that a woman would be crazy and irresponsible if they didn't go for
screening," said Dr. Steve Woloshin, co-author of
the article challenging the charity. "But the statistics are deceptive."
According to Woloshin's commentary, which appears online Aug. 2 in the
BMJ, a woman in her 50s who goes for regular mammograms for 10 years
will only cut her chance of dying by a fraction of a percentage point -- for
every 10,000 women who are screened 7 deaths will be prevented."
Comments
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This is long overdue, IMO.
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Also interesting to note coauthor of the article Woloshin, is also the coauthor of book published in January, 2011 with the title Overdiagnosed: Making People Sick in the Pursuit of Health, so he's definitely approaching the statistics with a particular point of view. Several have defended the use of mammograms for detection, as my bc was found on a mammogram, I'm more interested in what this doctor says, rather than what Woloshin ( not an oncologist, or surgeon): "Dr. Stephanie Bernik, chief of surgical oncology at Lenox Hill Hospital in New York City, supports the charity's push for breast cancer screening." Also influencing me, is the sense it's the women least able to afford it, with less access to regular screening, who would be most effected if it weren't made available for them.
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Agreed!
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What a load of rubbish.
Im glad Dr Woloshin doesnt have any real power and personally I hope he never has. I had no suspicion whatsoever of having BC when I went along for my first mammo at age 42 just cause it was available for free. Had 3 large clusters of dcis found and am very happy to say that I was clearly overtreated with a masectomy (at least according to some). The wonderful overtreatment of my dcis via masectomy found 2 idc's and a micromet in a lymph on the outskirts of the initial lymph clearance. Think Id be in a world of hurt now nearly 4 years later if reports like this had received any validity and made me hesitate to have a mammogram. And what if I hadnt gone along at 42 for one? If Woloshin had his way I wouldnt have been popping in for one at 50 even if I was still alive as saving 7 out of 10000 women doesnt seem to be worthwhile to him.
Im curious as to what age of woman he would believe is worthy of saving? I personally believe women from the age of 40 should be having mammograms every 2 years in the hope of detecting BC early as it does save lives. And who is going to act as god and decide at which age women's lives are no longer worth saving? Are women 50 and over not worth saving because in his opinion they are only saving 7 in 10000? Would hate to be one of those poor 7 women not getting their mammos if that the case.
What eactly does Woloshin want? Us to go back to the dark ages and not have mammos at all?
I dont know anything about Komen as Im an australian, but if they promote mammo's from the age of 40 then they are doing womenkind a big favour and should be applauded for their efforts. Unneccesary biopsies? Well Im proof that biopsies dont tell the whole story. If it did I would have simply had dcis only.
Many of us dislike the pinkification of BC, but you have to admit, its been effective and the word is out to women in most countries to get mammograms (generally from the age of 50) and there are plenty of women on these forus who can attest to the fact that early detection does save lives.
Editted to add no offence intended to other posters. We are all entitled to our own opinions. I just personally feel very strongly when aspersions are cast on the validity of early detection saving lives as you can tell lol. Id rather overtreat the 10000 50 year olds so that the 7 allegedly with BC are saved or have their lives extended.
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Linda, I agree with you. Without a doubt we need better screening methods so that we have fewer unnecessary biopsies, but to reduce or restrict mammo screening before we have a better option is foolhardy, in my opinion.
One of the points that infuriates me about this argument is that it is based solely on survival stats. Over the long-term mammos don't save many lives, so why do them? What about the other benefits of early detection? My BC was detected at an early stage and I didn't need chemo - for me, that's a huge benefit but it's one that's never considered in this discussion.
The article says: "Komen also minimizes the harms that can come from over-screening, according to the article. For every woman whose life is saved by mammography, between two and 10 women are overdiagnosed, meaning they are told they have cancer when they do not and end up going through unnecessary treatment." Really? 2 to 10 women are misdiagnosed and told they have breast cancer when they don't? I've never seen any numbers that suggest this to be true.... unless of course they are talking about women diagnosed with DCIS and they consider DCIS to not be breast cancer. And that leads to the debate as to whether it's better to diagnose and treat BC at the earliest possible stage, when it is not life-threatening and when the most toxic treatments are not required, or whether it's better to let the BC develop to a point where it is life-threatening and no one can argue about the legitimacy of treatment. I don't think I need to say which side of that debate I'm on!
The article also says: "And up to half of women who are screened every year for a decade receive at least one false positive, meaning they have to undergo a biopsy and experience the fear of thinking they have breast cancer, if only temporarily." Another one of my favorite arguments. Yup, we want to reduce and restrict mammos so that we subject fewer women to the fear of a false positive and a callback or unnecessary biopsy. Of course by doing that we will be subjecting women who are eventually diagnosed with breast cancer to more toxic treatments that have significant and possibly life-long side effects, but that's okay. The judgement is being made that the short-term and temporary emotional reaction of women who get a false positive is a greater concern than the emotional and physical pain of women who are diagnosed later than they otherwise would have been. I couldn't disagree more.
I don't know what the best screening approach is. But what I do know is that the arguments that are made to reduce and restrict mammogram screening are, to my way of thinking, very narrowly focused and seem to intentionally ignore some of the major benefits of screening and early detection. Improved mortality rates (which admittedly are minimal) are not the only benefit for most of us who were diagnosed at an early stage.
Edited to clarify the last sentence.
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My goodness, why am I not surprised at these reactions. Shows how strong the "rah, rah, rah" movement is. Even Brinker has admitted that Komen puts a rosy picture on things. And THAT - NOT this - is a load of rubbish.
Beesie, you say:
The judgement is being made that the short-term and temporary emotional reaction of women who get a false positive is a greater concern than the emotional and physical pain of women who are diagnosed later than they otherwise would have been.
I disagree that he is presenting this either/or scenario or that he is privileging short-term anxiety over long term health problems.
The point is, and one cannot be reminded of this enough, statistics are for groups, NOT for individuals, so anything said is about groups. For individual women, case by case, life by life, the colors are very different.
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Linda,
You are an individual case, and none of this information is intended to apply to people individually. My favorite internet saying is "YBMV" -your brain (or body) may vary. Never assume that statistics or studies will necessarily mirror your case. Your individual decisions, whatever they are, need to be made based on YOU and YOUR medical history.
This article really discusses public health; epidemiology. It is not intended --and the BMJ article does not intend-- to constitute advice to individual women.
I take this article (and many others like it) to serve as cautionary notes to Ms Hairspray Brinker and her ilk, that before they go and tell woman a load of bullshit about how early detection an frequent screening equals a cure, they need to understand just how misleading their statistics are.
I had no known risk factors for BC - no family hx of any cancer, for one. And yet all you hear on the press about the silly BRCA tests and genetics. So imagine my fury when I got BC and was told that I was at brisk as long as I was a woman. I now learn that they can't reliably assess risk at all.
But I am just an individual, not a group, right. My statement abover holds true. Except that I M in the majority this time, because 70-80 percent of women dx'd with BC have no hisotry of bc.
So when you have these girlie cheerleaders like Komen saying, "early detection equals cure" and others pretending that it's all about genes, I realized what bullshit the bc movement served us. Oh, maybe Komen didn't exactly say "early detection leads to a cure" but they made damned sure everyone got that message. It's a lie, a travesty, and a public disservice. Farces like that should go out of business, women need to man up, fight for the truth...
and I'm getting off this thread before I have to read posts by people I have on ignore or by people who will them get praised to Kingdom come for saying what everyone wants to hear.
Who died and made us cancer experts? We're patients, not experts. We are only experts on ourselves.
I am so sick of the resistance to non- "rah, rah, rah" crap.
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Athena, I hate the "rah, rah, rah" crap too. And I'm definitely not a fan of Ms. Brinker.
But that doesn't mean that I have to disagree with everything that comes of out of Komen. Nor does it mean that I have to agree with everyone who speaks out against them.
You say: "I disagree that he is presenting this either/or scenario or that he is privileging short-term anxiety over long term health problems. " Okay, so tell me where Dr. Woloshin or anyone on the 'let's reduce the number of screening mammograms' bandwagon factors in the benefits of early detection in terms of reducing long term health problems. Show me any discussions on this topic that mention any screening benefits other than the mortality figures. And let me repeat the quote you included in your original post, "According to Woloshin's commentary, which appears online Aug. 2 in the BMJ, a woman in her 50s who goes for regular mammograms for 10 years will only cut her chance of dying by a fraction of a percentage point -- for very 10,000 women who are screened 7 deaths will be prevented." How exactly is he not presenting this as a either/or scenario? It seems to me that's exactly what's he's doing.
I would actually be very interested in the discussion and would be much more open to the idea of reducing the frequency of screening mammograms if someone could show me that only a fraction of a percent of women benefit from earlier detection by being able to pass on more toxic treatments. If 99% of women would get the same treatment regardless of when they were diagnosed, and if mortality rates barely differ, that's a much more compelling argument to suggest that the number and frequency of mammos could be reduced. The problem is that nobody ever presents the data on the impact of early detection on treatment, and I suspect that if they did, it would make a compelling case in favor of maintaining or increasing the number and frequency of mammos (and other screenings).
And yes, I do understand that statistics are for groups and not individuals. But policy decisions that are made for groups end up affecting individuals. It is disingenuous for anyone to push to change the screening policy or to argue against the societal value of screenings, but then to say that "every woman should make good decisions for herself".
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The article didn't mention how many cancers are missed by mammograms. Both my cancers (in 1982 and 2010) were missed - I found them myself---I was told mammograms miss cancers in 15 percent of the cases.
All the more reason to check yourself on a monthly basis.
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Athena, I understood the study and the intent behind it which is why I responded here. To me Woloshin is treading in very dangerous waters, because Beesie, you and I and an unknown number of other women are living proof that early detection does save or extend lives. We wont know which applies to us until our autopsies which are hopefully not for another 50 years lol. If we die of something else, were our lives saved? If we die of BC in 20 years I guess its safe to say they were extended.
In my eyes I guess what it comes down to Athena, are we better off knowing as early as possible as to whether we have BC or are we better off living our lives and then if and when we get sick, we die fairly quickly. Thats what I meant when I asked as to whether Woloshin wants us to to go back to the dark ages. There are probably plenty of women out there who dont want to know if they have something wrong with them, and those women most likely do not turn up every year or two for their mammo's and thats their choice and Im fine with that. But for the rest of the population who would want to know, early and regular screening is the only answer/hope we have.
I still dont know anything about Koman (and theres no need for me to learn because they do not operate in australia), but over here I think its safe to safe the average woman believes early detection MAY save their life or extend it. We all know there is no such thing as a cure at the present time. We are told to examine our breasts by the television ads and by our doctors and I doubt there is many women here that dont self examine on a fairly regular basis, just as a matter of course. We go along for mammos every 2 years with the hope that if BC developed between mammo's it would still be caught early enough to be a less aggressive form, but thats just a crapshoot as we all know. I know I went for my mammo without a care in the world and with no expectation of a call back.
When I was in my early 20's I remember having a philosophical discussion with my friends and we all said we'd rather not know and just die quickly if we had something wrong with us. (Im going to call that Option A and the equivelent of not screening regularly for the sake of this discussion.) Lmao, we were bullet proof back then. I also personally remember thinking 30 was ancient and hoped I never got that old and decrepit lol. Now at 46 I think 20 yo's are kids who have a hell of a lot to learn lmao. And as we have aged, my friends and I have discovered that life is precious and a gift and after I was dx'd those same friends lined up for mammos and thankfully were given the all clear. Our perspective on life changes over the years. Because of the widespread advice to women to self examine and have regular screening from a certain age, we can choose option B (screening) and are not stuck with our option A (not knowing till its too late). I hope that makes sense lol
What is the answer if we dont get screening early? Until medical science can work out exactly what causes cancer, mammos and us's are the only thing we have available for the average person like you and I who dont have a family history of BC or any of the known risk factors. And for you and I being in the same boat, theres another however many hundred thousand women just like us. Our cases are not unique.
Lastly I think its great that we can have this discussion without the vitriol that turns up so often when contraversial matters are discussed on these forums. I appreciate that we can offer our differing opinions without each of us attempting to bash the other into submission
Apologies for the paragraphs being out of order. Cut and paste just isnt working for me and Im to lazy to retype everything lol
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