Calling all TNs

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  • CatWhispurrer
    CatWhispurrer Member Posts: 263
    edited August 2012

    Kim - thank you for the thoughts you shared with us about Suz.  I had only been on here for a few months before she was gone but she was one of the first to welcome me.  I'll always remember her, especially now through your words.  We are a small, loving family and each loss is great.

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  • borntosurvive
    borntosurvive Member Posts: 213
    edited August 2012

    Kim: Thank you for allowing us into your feelings, thoughts and memories of Suz.  I was not fortunate to have "met" her as I think I came on here after she had passed away.  But the way you speak of her, I can feel what an amazing person and friend she was to you and so many others here. 

    I have been SO thankful to have such a supportive and amazing group of sisters in our TN group.  When I have been having a bad day and feeling like giving up it's you ladies I know I can turn to.  Being young it was hard for me to find anyone who understood and truly got what I was feeling.  It's you ladies who "get" me.  Thank you to everyone, I know it has been a rough few months with the passing of our sisters and the return of cancer for some of our other sisters.  But we have each other and we can get through anything.  HUGS to you all ladies xoxo

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  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited August 2012

    Kim,

    Thank you, that was so beautiful. I don't have words, just, thank you.   

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  • Paintingmywaythru
    Paintingmywaythru Member Posts: 317
    edited August 2012

    Kim..your post on Susan is so touching. She was a remarkable woman who I only had the opportunity to lunch with once. She was so practical and resilient-it was hard to imagine her not beating this beast. She supported us so much and was a wealth of information and kindness to us all. We all loved and cared for Susan, LauraJane and Mary and I am still so sad at their loss. I think of these wonderful women often and pray that their families are able to cope with such trememdous loss. Thank you for sharing your story.

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  • Paintingmywaythru
    Paintingmywaythru Member Posts: 317
    edited August 2012

    Inmate....I hate f.....ing cancer and I so hope you are able to get into a trial that will work for you. Ativan is a good pal right about now. Big hugs to you and your husband.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Kim- Thank you for the beautiful words. As with others that have posted here- Just being diagnosed and searching for some advise from these great ladies not more than 10 months ago,meant so much to me. I read your words and wiped tears..Thamk you again for sharing your story with us!

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  • kathyrnn
    kathyrnn Member Posts: 393
    edited August 2012

    Kiim - thank you so much for sharing about Suze, and LJ and Mary. It made me cry, but in a good way, to know that they are still in our hearts. You were so lucky to have such a wonderful friend, as was she to have you.

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  • Nuan
    Nuan Member Posts: 19
    edited August 2012

    Kim -- Truely appreciated! Your letters makes my eyes wet. Even I haven't met "sisters" in person but I can feel here is home for us, tnbc fighters too.

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  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited August 2012

    Lovely and so touching - Kim

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  • Paintingmywaythru
    Paintingmywaythru Member Posts: 317
    edited August 2012

    I am wondering if anyone has pain in their chest, feels like my ribs going up toward my clavicle. I notice it when I swim and it gets worse the more I swim. I am thinking maybe it is  weakness in the bones from radiation but I wonder if anyone else experiences this. I don't know if I should email the oncologist. It has worsened from swimming I think.

    Thanks all and have a fabulous day.

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  • Luah
    Luah Member Posts: 1,541
    edited August 2012

    born: Beautiful avatar photo.  

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  • borntosurvive
    borntosurvive Member Posts: 213
    edited August 2012

    Painting: I am just wondering does it only happen when you're swimming?  If so I would tend to think it was a muscle thing.  I just returned to the gym this week, did a basic yoga class and couldn't walk for a few days.  I never had radiation but did chemo and cannot believe how weak I am.  You can always just air on the side of caution and contact your MO and let her know for your peace of mind. 

    Luah: Thanks!  I had professional pics of my bald head, I wanted to capture the moment in time.  I figure (and hope) I am never bald again!!!  

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  • Fighter_34
    Fighter_34 Member Posts: 834
    edited August 2012

    Can some one pass the tissue?? We miss them so dearly and I HATE what CANCER has taken from all of us. I may not post everyday, but my heart is always here and to answer your question YES we are FAMILY!! Maybe not by blood but definitely in spirit.

    RIP LJ, Suze35 and MBJ.....

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  • NavyMom
    NavyMom Member Posts: 1,099
    edited August 2012

    Just feel the need to add....Pauldingmom, Jenn3, Blonde lawyer and Beccad.

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  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited August 2012
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  • mags20487
    mags20487 Member Posts: 1,591
    edited August 2012

    painting--- do you have trouble with sleeping on your side too?  it could be inflammation from rads.  i actually had it bad on my side and ribs,  felt like it was bruised for months.  As someone else said it could also be a muscle thing.  i am trying to stretch out the stiffness leftover in my chest from the BMX.  It is going on a yr since it was done and still have trouble.  Hope it clears up for you soon or go see that Doc.

    Maggie

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  • gillyone
    gillyone Member Posts: 1,727
    edited August 2012

    Thanks for adding those names to remind us Navy.

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  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited August 2012

    I'm going to do this to my hair when it finally comes back!!!

    <3 Hit Share if You Like this.. !!

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  • Tazzy
    Tazzy Member Posts: 2,546
    edited August 2012

    Cocker... that would take some patience eh?  How are the rads going?

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  • JAN69
    JAN69 Member Posts: 947
    edited August 2012

    Cocker - I've got some strange hair growing back on my bowling ball, but I think I'll join you at the hair salon for one of those do's.  I'm aiming for that young body, too.  We could sit on a bar stool at your hubby's cafe and flirt with all the young dudes.  Let me know when.  Also, I miss hearing from you these days.

    JAN

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  • christina1961
    christina1961 Member Posts: 736
    edited August 2012

    Thanks, Navymom.

    Annie, I don't think I ever had that much hair! Amazing...

    Painting, I have had rib pain on and off since the first chemo (TAC).  I had a bone scan then and it cleared up after about a month post chemo then in PT one day the therapist was moving me and pulled up on my lower rib.  I felt a pop and for three weeks I was in quite a bit of pain.  I think that is when I had the second bone scan - last October - all clear.  Then a few weeks ago, I bent over in my desk chair to pick something up and the arm of the chair went into the lower ribs and I felt something shift and I had pain for three weeks - it is not noticeable now unless I push on it or pull my stomach in tightly.  I had recently been to the allergist for asthma so he called for a chest xray due to the rib pain and the asthma just to be on the safe side.  Thankfully it was clear, too.

     The PT said that there are "joints" between the ribs and I believe he said overall there are 135 different junctures in the overall thoracic area that are all interdependent.  I think my problems may be from the tightness of the scar tissue and radiated tissue pulling on my ribs - and also the chemo and Neulasta causing general inflammation.  When I recently went bicycling and rode 11 miles Sat and again on Sunday, I could really feel a burn on my masectomy side the first day as the muscle got used to supporting my head and shoulders again.  My masectomy was in July 2011 and I am six months from my last chemo (I had neo and adjuvant chemos). Of course, I always mention things like this at my check up, but I am much less concerned since it has gone away each time.

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  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited August 2012
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  • Fighter_34
    Fighter_34 Member Posts: 834
    edited August 2012

    Thanks Navymom! Morning lovely ladies. 

    Just chimming in on the stretching and massaging, I use vick's vapor rub to massage my breast area it gives it that nice warm fuzzy feeling. Its great for relieving head colds so I figured it would work great on relieving and decreasing inflammation in that area as well. After I walk on the weekends I rub down with it after I get out of the shower. It really makes you feel so relaxed. Just a thought.

    Felt a nice cool breeze in the air this morning could FALL be on the way...?? Considering it was so HOT this summer. Yes. Yes.

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  • Fighter_34
    Fighter_34 Member Posts: 834
    edited August 2012

    Cocker those styles are really pretty.

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  • Wrenwood47
    Wrenwood47 Member Posts: 73
    edited August 2012

    Just checking in....Has anyone heard from Inmate?

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  • Tazzy
    Tazzy Member Posts: 2,546
    edited August 2012

    Bernie.... Love Mrs. Brown (I'm an ex-pat)... she can make you pee your pants... so funny.

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  • the5owens
    the5owens Member Posts: 99
    edited August 2012

    Ok friends....I got some of my results from the test they did last week. Need encouragment...info...advice. Pet Scan was normal...Chest Xray was normal...Blood work normal. Genetic testing not back yet. Breast MRI showed a suspicious area in my left breast. My cancer is in the right. I am having a biopsy on Monday 8/27. How likely is it that I have cancer in both breasts? Mammos and US showed nothing in my left breast. I am starting to freak out again. I think she said something about a lymph node in my left breast but I must admit I spaced out after biopsy. This waiting is terrible I thought I was close to surgery but now another week of waiting for results. I was thinking lumpectomy but now with something suspicious should I be thinking Mastectomy. I just don't know....

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  • Luah
    Luah Member Posts: 1,541
    edited August 2012

    Hi: 5owens - first congrats on the clear PET, xray and bloodwork. As for the MRI, try not to get ahead of yourself. MRIs are quite notorious for lighting up all kinds of things and resulting in false positives - the biopsy will tell you one way or the other. Fingers crossed it's nothing to worry about. And if not, you can go through the pros and cons of surgical options with your docs. I know it will seem like a long week - try and stay busy! 

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  • ksmatthews
    ksmatthews Member Posts: 812
    edited August 2012

    Was popping in to check on inmate?  Inmate where are you?  I hope you are feeling well and just out enjoying yourself!

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  • OBXK
    OBXK Member Posts: 791
    edited August 2012

    Susan - for me, radiation is the gift that keeps on giving. I had rads in 2004, and I still have rib pain - not all the time, but when I over-do.



    Annie - love that hair!



    Bernie - loved it!



    5Owens - I had a recurrence in my right breast after lumpectomy. Decided to have them both removed, so I wouldn't walk in circles :0 They found cancer on my left side nodes ( they just caught the node tail while taking the good boob) - but not a tumor when they went back through the breast. Sorry you ate in waiting hell, try to enjoy the other great news!!!



    Today I am very fatigued. I describe it to my husband, as someone sucking out my life force. Luckily a good, old friend is visiting from New Mexico, she is making me a batch of "bad fudge" as I rest. Bad fudge is crunchy. Then she is making crab cakes for dinner. I love friends, who come and take over your kitchen - husband happily shops.

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