2012 sisters
Comments
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Thanks Soya! Appreciate the happy dance! Wish you were here I'd share -I only share my dark chocolate with my DH and very special people!
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I just drove for the first time since surgery - nice to be part of the human race again. Only grocery shopping but normalcy is a good thing in my life at the mo. Must say I think I preferred telling DH what to put in the cart when we went last week... although didn't miss his whining of "why do we have that? are we nearly finished?".
Welcome back 2 Fried.... bring your chocolate behind the shed
Happy you are back on the September schedule. jojo.. you've landed in a great place. Crappy you have to be here, but this is a great band of sisters as I am sure you've noticed.
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Hey Tazzy I'll bring the chocolate but I better bring some chips, brownies and other snacks too don't you think? lol Hey did your parents ever get their flower money back or get that straightened out? Glad you're driving again. Poor DH sounds like yet another situation where you took advantage of the poor guy ;( Yea feels great to be on the schedule again even if I dont end up being the size I was dreaming of lol. At this point I just want it done.
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The more snacks the better I say. Yes they did get their money back... thanks for asking. Also the BBB are looking into my complaint as well. Gotta get some positives from this crap and taking advantage of DH is a good positive in my mind
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Ahhhh, I should have been posting in this thread all along.
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cottontail... welcome to our group
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Welcome Cottontail!
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Twofriedeggs, your husband offering to be a brow donor made me laugh. Sweet.
Back at work, 8 days post exchange surgery, healing well i think.
mostly meetings no students yet. I do fine till about 2:00 and then suddenly run out of gas big time. Still can't drive so DH or DS pick me up.
I was looking at my path report. Funny how it says "ER positive- favorable. PR negative-unfavorable. HR negative, favorable. K167' unfavorable " bla bla bla. Sometimes it seems like a bunch of voodoo. -
Thanks to all of you who reminded me that this mommy business is a tough job and it's ok to have some off days. Today was a good day with my boys! And as for my happy today - guess that is now, as I have some peace and quiet with the kids in bed and my hubby out of the house for the evening. I think after I finish catching up with you ladies - I might go sit on the couch and read a book. What a novel idea!
Websister - Thanks for the herceptin info. Hope your SEs ease up. Enjoy your class (and please feel free to share any good tips you pick up!).
Juneaubugg - Hope you're coming along a bit better and finding some sunshine. Homemade chicken soup usually does the trick - especially if it includes matzoh balls!
Tazzy - glad you found the strength to turn that frown upside down today!
Mcook - hope the consult and everything goes well tomorrow and you get the support you need. I think one of the most important and hardest lessons to learn in this shitbag of cancer is to ask for help and support when you need it. Not a very easy thing for us strong, independent ladies to do... And remember - the surgery is a good thing. They cut that f'ing cancer right out of you!!!
2fried - have missed you and your sense of humor. Sorry there has been some gloominess on your end - but glad your surgery got bumped back to September. Dark chocolate - mmm... You're nice to share it with your hubby - I hoard mine all for myself!
Jojo - sorry you're here but glad you found us. Come here to rant, whine, cry and share successes. We are all here for you!
Cottontail - sorry it took you so long to find us, but glad you are here now (love me a fellow Tori Amos fan!)
And in line with CKO's quest to learn how to say FU cancer in 50 languages, found this fight song I wanted to share with you all:
THE CANCER CHANT, I WILL RANT.
A poem contributed by a visitor of Healing Cancer NaturallyCancer I did not give you the right,
To invade my body and take a bite.
This is my body and with all my might,
I will prevail with one hell of a fight.
To the cancer inside, I will battle and kill.
For that is my body's God given will.
To my cancer, these words I do send.
Your life is short and near the end.
J Joens, 10/13/05 -
Jojo, welcome to our group. These women are amazing, and you will find ears to listen and shoulders to cry on. It seems like you have a tough time ahead, but you can count on us.
Saw my rad onc today. She was happy with me, and said that she hoped never to see me again! The feeling is so mutual.
Also saw my PS today. I was hoping for an implant once the TE comes out, but she strongly advised against it because I had radiation, and 30 - 40% of people who's had radiation, develop capsular contraction around the implant. Not too happy. An implant would have been the quickest, least invasive procedure. Now I have to start thinking about either lat flap or diep flap, which was what she suggested. Lat flap - I will not be able to swim properly ever again. Diep flap - I may not be able to do tummy exercises/leg lifts again. This is also a serious 4 - 5 hour long surgery, drains everywhere, the whole nine yards. Oh well, I still have about nine months to think about it. Just when you think you've got it down pat, the apple cart gets upset all over again. Then there is still the healthy breast which apparently will also need some overhauling to go with its new counterpart . . . sigh!!! This morning I was lying half naked on the bed under the overhead fan, because it is so hot here. I am also fired up from within by the Tamoxifen which I started taking 14 days ago. My DH looked over and said, 'We'll have to do something about that poor raisin too', that raisin being the unaffected breast . . .
Yesterday a friend and I polished off a whole big white Lindt chocolate as well as some other candy for lunch. It was lovely.
Also getting a compression sleeve for lymphedema tomorrow as a precaution. No lymphedema, but I'm flying next week, and don't want to take any chances. Just hope the darn thing is not too hot.
Good night everybody, hope you are all doing well.
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Ramols, I love that poem!
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Hi ladies, just catching up on everything. I went to work yesterday for the first time in four weeks. I am one week post op from my re do lumpectomy and 7 weeks pfc. I had to work 12 hours. It was good to be back but I was really sore and really tired by the end of the day, even writing hurt my half-boob by the end of the day.
2 fried I am glad that I am not the only one that is really tired after surgery, I know I didn't have as big a surgery as a lot of you but I have been more fatigued than I was during my taxol treatments. Like you I felt ok for a week or two but am feeling surprisingly wiped out now. Not sure why. Maybe from not sleeping great. Maybe just from the cumulative effect of 5 months of chemo and two surgeries and stress and and and...
Ramols your experience with your kids the other day touched my heart. I have had more than a few days where I really hated my reactions to their antics. No mom of the year awards for me either. If you have the ability to have your DH or mom or friend or whoever take them out for a few hours of fun while you do mommy time, I recommend it highly. It rejuvenated me to have an afternoon to myself and they got some fun. My kids' energy has been wonderful and irritating as hell on the same day depending on my mood and energy levels. I am glad you had a good day with them since!
Juneau, websister and others doing chemo, kill cancer. Juneau I know you are feeling like poo but your posts still let your humor come through. More power to you ladies!
Healing vibes to those recovering from surgeries .
Welcome to you new ladies. This is the best thread on this whole site!
Just finished my post op appt and off to Costco to blow a wad of dough. Trying to figure out how to lift a 40 pound bag of cat litter... -
JPmom my husband always laughed at me because I would never let him get rid of my sons skateboard. When he was recouperating from a fall I put the skate board under the front of a dresser and then I pushed slightly lifted it an pushed it to another bedroom. Because it's low and I can get stuff on it easily, I used the old skateboard many times to move many things recently too -I just kind of flopped a big bag of potting soil on it stood it up and guided it to where I wanted it-the wheels just rolled and the bag was too heavy for the board to slip out from underneath-so if you have a skateboard around try flopping the cat food on it and see if you can pull it or push it easily lol
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JPmom Oh I was thinking you needed to move it at home- you better ask for help at costco-lol
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Good morning, everyone.
Add my welcome, JoJo - jp is right, this is the best thread on the site, wonderful ladies
Liefie - I read an inspiring story the other day, can't remember where ;(, about a lady who had bc and reconstruction - bilateral lat flaps, she was told she would not be able to play tennis again, but refused to believe it and is back in competition, first in doubles but planning to try single competition. Swimming may not be out of the question. Love then Lindt white chocolate binge. Think we should add some to the 'back of the shed' party
jpmomof3 - I like what you said to Ramols, I remember how the energy of my boys could be energizing to me or frustrating. My husband used to give me Mom time on Saturday mornings and I lived for it. I hope you are able to get some rest and don't have to work too soon again, 12 hour shifts are difficult when feeling good. Ask for help at Costco.
2Fried - I did like the skateboard idea for moving things around the house, having had four boys, 17 year old still around and a long-boarder I will definitely try it.
Tired this a.m., a little depressed - post steroid?, still taking anti-nauseants and Tylenol as needed but they are working. Plan to try Costco myself this afternoon, but not too big a buy to make.
Take care, everyone -
Oh man, the skate board! There is a children's song about a boy buying his mom a skateboard for her birthday, I wish I could post links! It's by Joe Scruggs and it is so cute. It is called I got mom a skateboard for her birthday. If anyone can post the link, that would be awesome. He wrote another one that was my anthem when the kids were growing up, oh, by the way! As in oh by the way, ineed an Orange juice can, four cotton balls and six rubber bands, and by the way I'm an angel in the play, I'm gonna sing and I need some wings. It's my favorite kiddy song of all time.
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Thank you, Websister. One keeps forgetting that these surgeons always sketch the worst case scenarios, and that people are defying the odds all the time. However, for now I'm going to do what Scarlett O'Hara did in Gone With The Wind: I will think about it 'tomorrow'. At the moment my life is back to normal, and I don't want to be bothered. Kudo's for raising four boys. Two was enough for me. Costco, oh Costco - I try to go there as little as possible, because I always blow way more than I intend to, but they have such good stuff. You hang in there with the chemo, sister!
Jpmom and 2friedeggs, surgery and chemo suck the life out of you, so be kind to yourself. Working under these circumstances must be hard, but it takes the mind off this 'crazy situation' as Juneaubugg called it. Where are you, Juneau? Are you feeling better today?
To everybody doing chemo or just had surgery, here is something that I received during treatment.
WHAT CANCER CANNOT DO
It cannot cripple Love.
It cannot shatter Hope.
It cannot corrode Faith.
It cannot destroy Peace.
It cannot kill Friendship.
It cannot suppress Memories.
It cannot silence Courage.
It cannot invade the Soul.
It cannot steal Eternal Life.
It cannot conquer the Spirit.
Author unknown.
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I am loving these poems. My fridge will soon have no space left
Liefie: I hear ya about moving the gateposts with this bc crap... just when you think you have a plan eh?
Off to the Docs this afternoon - really hope to have these drains pulled.
Hoping you are all managing happy days with minimal SE's if you are in tx. -
Hi gang, sounds like everyone is doing their part to KCA
I went back to BS today The line/indentation on left side of breast starting at end of snb incision is mondor's cord. Heat and motrin and he says pain should go away but still may feel cord. Could take a few weeks. Asked if this any precursor to lymphedema. He strongly said no. Meet MO first time next week for onco score and will tell her about mondor. Wonder if chemo or rads could make this worse? A big heap of ice cream with lots of hot fudge to you all! -
Cool advice on the skate board. Who woulda guess they could be so useful!
I lifted the damn litter with my left (non surgical side ) arm out of the cart and into the car. Probably shouldn't of but I was too embarrassed to ask for help. Got the babysitter to do it at home though. Nothing fell off yet. Hope I didn't do anything!
Liefie great poem!
Tazzy hope the drains go bye bye!
Just got back from a walk, now off to the pool with the kids. I will hide in the shade and get keep the big hook nearby in case I need to fish a kid out of the pool. Luckily my one non swimmer doesn't like to get off the steps. Mostly he just plays with the shower.
Got another 12 hour shift tomorrow. So am going to plop my butt down and not move for a while!
KCA -
Welcome to our group newcomers but sorry you had to join us.
Aruba I had mondors cord after my MX and the heat and advil did the trick. It did seem to go down and then reappear a couple of days later sore as heck but after a couple weeks it was totally gone.
Juneau oh Juneau -where art thou and your coconut shell? Hope all is ok and your se's are getting fewer.
Lisa2012 I have to say I cracked up when I looked at my hubbys brows this am. He would be a great donor but if he caught me laughing he would tell you that I am just jealous because he has eyelashes that are SO long and thick--I don't know why I couldn't have them instead. lol
TAZZY good luck with getting the drains out. That definitely makes you feel human again.
liefie Did your ps expand your TE? When I had mine put in after mx she said if I needed rads, she would try to get my TE fully expanded prior, then play it by ear afterwards as far as the implants . She said rads definitely make it tougher but that she definitely would not rule them out because alot more people are able to get them with todays rads than in earlier days. So maybe you are wise to just not think about it until you see how your tissue is. You might be able to still get an implant. As far as exhaustion, I didn't have chemo so I'm sure that exhaustion has to be way worse than what I had after surgery, but I had several biopsies then the lumpectomies, then a snb op, then the dmx. I think the whole thing from the diagnosis to the dmx stressed me out to the max then right after the dmx I was on a high because it wasn't near as bad as I had anticipated. Then a couple weeks later it all hit me like a truck and I was so tired. I don't know about anyone else but I think the continuous ups and downs of all this on my emotions wears me down- Same thing just happened; I am so anxious for my exchange because it represents the light at the end of the tunnel after almost a year of hectic bc crap. So, I was so happy when I got my exchange date last month, then so bummed when it got moved to Oct last week then so happy again when it got moved back to the original date yesterday. You'd think that I would feel great today but instead I'm whipped after another little spin on the emotional rollercoaster (granted this rollercoaster was definitely like one in kiddie land compared to the adult BC coaster-lol). I think I'll do like JPmom and websister and head out to Costco-maybe that will wake me up.
Thanks for the poems ramols and liefie
Websister I attribute an occasional downturn in my emotions to the continuous ups and downs that go with tests, treatments and for me skin issues that one day are ok and the next day I'm back into the gauze etc. (4 sons as lovable as they are- that's enough right there to wear me out thinking about it lol)
Jpmom your descriptions crack me up- yesterday it was the nethers and today your half-boob (you'll have to excuse me-I never would have thought of a half boob or in my case having boobs that looked like fried eggs as being funny before bc , but after going thru all this stuff myself, I find humor in darker places now lol.)
Well get your chocolates and other snacks together just incase Tazzy decides to tell us how to get to that shed sometime.
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jpmom - thanks for your note. I have never been good at taking mommy time. Not sure why. Maybe I'm too much of a control freak... Anyhow - maybe I'll get better at that. I do have brunch plans with a friend just the two of us on Saturday - so that is a start. And yes - their energy is amazing and frustrating all wrapped into one puzzling bundle. I always try to remind myself that no parent really knows what they are doing. We all jump into it and make the best go of it we can. I'm sure they'll turn out just fine - even if I snap at them here and there. Thanks for the reminder! Hopefully you have a fun time at the pool today with your kiddies and don't need to fish anyone out! You amaze me with those 12 hour shifts. I'm back to 2 cups of coffee a day again for my measly 9-5 work days. Oh well - I'm assuming chemo will help me break that habit again once I start up.
Feeling an odd mixture of anxiety and relief about tomorrow's meeting with the MO. Want to get this show on the road already. Hoping she'll tell me I start sooner rather than later. Have a nice list of questions thanks to all of you and your informative posts! Also have a meeting with the nurse tomorrow to get my 3rd fill (which I am sure will make me bigger than I have ever been in the past - but likely still not big enough for my hubby
, as well as getting checked for cording. Pretty sure that is what is going on... argh!Otherwise - hope you're all doing well today. And Tazzy - I hope you get those drains out! I'm gonna wrap up my work day in a bit and then see if I can remember to find my happy for the day! Hugs to all!
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okay, i realize i have wayy too much time on my hands but I love the "fuck cancer" in different languages idea and so I went to google translate and translated "fuck breast cancer" into a ton of languages - too many to post here but I'll give you some of the more common ones......
le cancer du sein baise - french;
joder el cancer de mama -spanish;
ficken brustkrebs - German;
neuken brostkanker - dutch;
a fuck ailse chiche - Irish;
scopare il cancro al seno - Italian;
irrumabo pectus cancer - Latin;
knulle brystkreft - Norwegien;
foda-se o cancer de mama - portuguese;
seriem na rakovino prsnika - Slavik;
fan brostcancer - swedish;
meme kanseri lanet - turkish;
ffwcio canser y fron - welsh
I cannot actually vouch for these translations as they all come from plugging in "fuck breast cancer" in english then clicking on the various languages. Maybe google doesn't allow cursing. Don't know but they looked good..... Also, I told you I had way too much time on my hands lol....
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bevg49 You go girl! If cursing away cancer in English doesn't work for us, surely cursing it away in 49 other languages should do it! Funny!
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Even 'fuck you breast cancer' in Italian is sounds sexy ???
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those curses are awesome!
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Thanks for the laugh, but the Irish and welch will need to be.heard to be accurate cause the pronunciations are so different! I could probably.fake most of the others. LOL
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Hello ladies
I hope all of you are having a good day. I had my surgeron consult today and I feel much better. She said My scans showed tumor had responded well. We talked about lymph removals as I was a bit confused on this. Not the greatest news about finding califications on both sides. (I did not know this) I thought my left was clear but there is suspect areas that we will do a biosopy during surgery. Well this shit just keeps on giving me surprises:)
Oh well atleast talking to her calmed me down a lot today. I feel much better today and so glad I switched surgerons because she was a lot more patient with me. I cried a few times from just being over whelmed w all this but she was calming for me.
Tazzy - how did ur appointment go today?
Jp - can't wait till I will be able to ask for help for dog food after surgery I bet you are too!
Ramols - hope ur appointment goes well for you.
Love the fuck cancer in diff lango ! I am going to master it in Italian so it will remind me of my goal to go next summer after this stuff is behind me.
Good to see everyone on here today Websister, 2fried, bev and others! I am hoping to head to the lake this weekend to see some friends so hoping for some mild weather cuz there is no way in heck I am putting on my bikini this year:)
Oh yes they switched my date again from tue to Thursday so get my boobs for two more days:) too bad cancer as well! -
Hello ladies
I hope all of you are having a good day. I had my surgeron consult today and I feel much better. She said My scans showed tumor had responded well. We talked about lymph removals as I was a bit confused on this. Not the greatest news about finding califications on both sides. (I did not know this) I thought my left was clear but there is suspect areas that we will do a biosopy during surgery. Well this shit just keeps on giving me surprises:)
Oh well atleast talking to her calmed me down a lot today. I feel much better today and so glad I switched surgerons because she was a lot more patient with me. I cried a few times from just being over whelmed w all this but she was calming for me.
Tazzy - how did ur appointment go today?
Jp - can't wait till I do not have to ask for help for carrying dog food after surgery I bet you are too! skateboard idea mmm? Might have to consider that one!
Ramols - hope ur appointment goes well for you.
Love the fuck cancer in diff lango ! I am going to master it in Italian so it will remind me of my goal to go next summer after this stuff is behind me.
Good to see everyone on here today Websister, 2fried, bev and others! I am hoping to head to the lake this weekend to see some friends so hoping for some mild weather cuz there is no way in heck I am putting on my bikini this year:)
Oh yes they switched my date again from tue to Thursday so get my boobs for two more days:) too bad cancer as well! -
everyone grab one and chant...."ficken brustkrebs"
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