Here's what cheezed me off today

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  • NancyD
    NancyD Member Posts: 3,562
    edited July 2012

    I was playing Words with Friends with a former co-worker. She was pulling out all these 30 pointers...crazy things like zeolite, nertz, and vatu. I KNOW she is not that smart...I worked with her for over 14 years and dang it, she couldn't even pronounce words, let alone what they meant. So in the chat area, I casually asked about "nertz" when she played it, and she 'fessed up she uses a word-cheat app.



    Now, what kind of game is it when all your skill means nothing? The only play is the luck of the draw of your letters. It really cheezed me off that I was playing with my brain and she was using the cheat app, and won, of course.



    She tried to start a new game but I declined to play. What's the point?

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  • scuttlers
    scuttlers Member Posts: 1,658
    edited July 2012

    I agree, using a cheat app should be a felony offense!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2012

    I swear I'm gonna smack the next person who says "Well, you look good." I look like something the cat threw up. I own a mirror. Sorry! Having one of those days!

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  • chabba
    chabba Member Posts: 5,065
    edited July 2012

    I always want to say "did I really look that bad he last time I saw you?"

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  • macatacmv
    macatacmv Member Posts: 1,386
    edited July 2012

    I have been saying at least I got that right. I look good even tho I feel like crap. Thats the important part the looking good!

    So I called my onc nurse yesterday to tell her how bad I feel, and ask for a pulmonary spec. referral. She said they would send me to the same person my PCP sent me to, who just perscribed more meds. So she admitted that if my lung issue is from rads it will take a long time to resolve. And I should tell my drs how bad I feel, and I can't take it anymore. What do these drs think, I have been telling them for months I don't feel well, I can't breathe. The nurse said you have an appt on the 30th just make sure you tell her how bad you feel!!!! Agggghhhhhhhh!!!!!!!! 

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  • Rockym
    Rockym Member Posts: 1,261
    edited July 2012

    rohanna, I'm with you.  I HATE the "you look great" comments.  I've got the in-between hair growing out stage every few days, my left breast has swelled and I feel like Quasi Moto only hunching to the left.  When will this crap end!  I've got a PT calling my breast lymphedema (which means an incurable chronic condition) and then my BS says it will subside.  The RO's office hasn't figured out what I should do.  It's been 8 weeks of this.  They treat us and then they seem to not know what to do when all is said and done.

    Having one of those years!  Is it 2013 yet? :-)

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2012

    I know what you mean ladies. I get so tired of telling doctors my symptoms and they tell me they can't find anything and oh noooooooooo it has nothing to do with my bc treatment. I had to find out on the BC site that I'm supposed to avoid anything with soy in it because of the kind of cancer I have. You'd think someone in a dr.'s office would have mentioned it. I'm trying to come up with a pithy ( or maybe pissy) answer to the looking good comment. Chabba, you made me laugh. Maybe I should say, " Man, you have really low standards!" Mac, doctors are uncaring idiots. I just don't know what to do. Rocky, I'm so sorry you're having to put up with all the s*&%! I'm with you. I thought 2011 sucked but 2012 is sucking like a Dyson. I may even celebrate New Year's for a change. STOP THE S%#@!

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  • coraleliz
    coraleliz Member Posts: 1,523
    edited July 2012

    I posted last night but decided not to hit the submit button. I reread it & it wasn't coherant.

    Macatacmv-Why did the oncology nurse think you called in the first place? Lonely & need someone to talk to? And then just to tell you to wait for your appt at the end of the month & "be sure and tell the doctor......"Yell Wouldn't occur to them to bring you in sooner & get to the bottom of this.........

    I had an appt on Monday & I'm still in a pissy mood. My appts consist of me filling out a questionaire regarding my side effects. The doctor or PA reviews what I answered yes to & asks me about maybe 3 of them. Types something in the computer & sends me on my way. After my 5 year sentence on Tamox, I'm out there! Maybe sooner if I jump ship. It's no wonder "non-adherence/non-compliance" is so high with these drugs.

    Now for my asshole neighbor rant. I heard a noice in the backyard & decided it was raccoons fighting/playing, never really sure. Then I notice a flashlight beam as I looked to my window. I wake my husband up because someone is in the backyard with a flashlight. We turn on the light in hopes that whoever is in our backyard will flee. It turns out is was my neighbor shining a flashlight over the 6 foot fence, checking out the raccoon fight.

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  • macatacmv
    macatacmv Member Posts: 1,386
    edited July 2012

    coraleliz, the nurse said she would make a note on my chart. I can just imagine what it says: "The patient called sounded cranky and crazy."

    Which is what I feel on a daily basis and why I am now going to mental health provider. Who says I am not crazy, just getting poor health "care". I am working on changing insurance plans and getting new health care providers. But it all takes time. 

    I hear ya about the raccoons in the yard. I have raccoons that come to my bird feeders in the middle of the night. Which wouldn't wake me up, but the dog has to bark and bark and bark. which scares the bejesus out of me.  

    If one more person tells me how bad my cough sounds I am going to slap them upside the head. Just a warning! 

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited July 2012

    cluclk'em all----- SO tired off them>>not getting it. I have a PCP that gets everything. I told her Friday, That she can never retire. She saved me and Dh at the end of 2009. Again the other day for me>> She listens. She keeps up with the journals ------based one her knowledge and my previous experience, it's multiple journals.  I have worked as a nurse since 74 ---you can tell within a short period of time if you(I) keep up with the journals whether the docs are. Regretfully the lay person cannot. It sucks

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  • macatacmv
    macatacmv Member Posts: 1,386
    edited July 2012

    cluck em, you are right sas.

    My life just does not make sense to me anymore! 

    So I bought one of those expensive icomfort beds with the adjustable (moveable) bases and it broke a half hour after it was delivered. The place I bought it from wants me to deal with the 800 # for the mechanics. What happened to customer service?

    Then I have been dealing with my taxes. My father died over a year ago now. I inherited a bunch of money (which is why I don't have to worry about my shop being closed right now). Anyway, I filed an extension in April and paid them some money. I got my taxes filed (by a tax professional) a week or so ago and had to pay more money. Then on Sat. I get a refund check from the state of MA!!!! What is going on??  I call tax professional, they say don't cash check and come in and talk to us. sigh!

    So giving up on the trying to make sense of it all.  

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  • Rockym
    Rockym Member Posts: 1,261
    edited July 2012

    So here it is one year later.  I'm sitting in the same hotel where I took my family vacation last year and had the time of my life.  I guess I should be thankful for last year's experience, but right now I'm not.  I'd considered myself cheezed off at this moment.

    Last year I was joking and typing and feeling stronger then hell.  Well, now that I have actually been to hell, I'm feeling unattractive and burnt out.  I look at everyone's long hair and breasts and feel envy.  I look at my beautiful daughter's hair and feel envy.  I wish there was a magic drug to feel energized and happy and confident.  That is a legal and safe drug :-).

    And that's another thing... before BC, I would never take any meds.  Even taking an Advil for me took some thought.  Now I keep wanting something to take away these feelings.  I've tried anxiety meds... no good.  I've tried anti-depressants... no good.  I drink a little whiskey in the evening, but that doesn't change the daytime mood.  I WANT TO BE HAPPY AGAIN!  I WANT TO FEEL JOY AND FUN!  Okay, that's my cheeze.

    Trying to keep the Nips Up and Carrying On :-)

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited July 2012

    Rocky@ 11pm decided to take a shot --now on my fourth. What book was it that SOMA was the pacifying drug of the populace. Brave New World?  My bad part or ironic thing about the looking good thingy..... My hair came back in curly, but then went straght and it was all these gorgeous colors of gray/white/black/silver---a colorist couldn't come close to creating it. Found a stylist that makes it look great and how to use stuff. I lost 23 lbs with my BC and 30 llbs with my DH's Lymphompha. 53 lbs. it was slow enough that I didn't look all saggy baggy. My hair I had colored for the last decade and all I can say is I called it" a bad hair decade". ----------So, I did look good outside , still crying on the inside. Then I started buying some clothes. No longer prim and proper----I am buying some things that are not what the nuns would approve of, the only thing that it has accomplished is , I'm not included in certain couples groups. Well I'm over that one-----I'm tired of having the nuns in my head when ever I buy something. I've given up on the AI's b/c of s.e's     SO, I may live , I may die, but I am tired of living by all the rules of some 50  some years.  DUH--looking good, wanting normal sex, not looking like a nun. That only blends in to your comment a little---sorry.

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  • purple32
    purple32 Member Posts: 3,188
    edited July 2012

    Hi Rocky

    I feel your pain!~

    Although I have not gone through what you have ( hair loss etc ) , I want the joy back!

    My DX and prognosis would look pretty darn good to most people here, but I am sure nobody would envy my copd/ always wondering if I could end up on O2 soon, the thyroid and osteo issues complicating my BC, the health issues complicating my TX choices,  and yadyadyadyad.

    I find myself envying others my age who are healthy, and annoyed by those who copmplain over the tiniest things (" I went from a  size small to a medium and can't lose these last 10 pounds")

      OTOH, I know I dont have to look far ( even on this forum) to find others in worse situations.  Still, there are days like this - where BC and all the other crap that goes with it, is right on the front burner and burning HOT!

    My husband, who went thru  a lot with stage 4 colon cancer in 2009 is very laid back.  Wouldnt envy anybody ...not his " style'.  ( Which make me feel evil!)
    What he tells me is that he believes his life/ MINDSET has been forever changed by cancer. Almost like an innocence taken away.  I personally feel like I will never have the FEELING of being carefree again , with all of my health problems.

     Still, he says  it gets better with each day of NED.

    Anyway, my dear ... know this - you are not alone.

    Sometimes, it just sucks!

    (((HUGS))

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited July 2012

    Well I got to be 62 today, and yesterday I thought I was going to have some really good bawdy sex and damn after him (not me)confirming twice he didn't show up or call. That really is just the pits.

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  • macatacmv
    macatacmv Member Posts: 1,386
    edited July 2012

    Happy bday sas!!!!!!! It is that guy's loss, but it sure stinks to be let down. esp on your special day. I feel for ya!!!!

    I am still feeling crappy. I finally read the insert for that new neb med and it is for kids. WTF!

    My bed is still broken, my pool has a bad leak and my kitchen drawers are falling apart.

    I have an appt in the city with my MO today. So lots of traffic and travel hassels in store for me. I have a good friend driving so that will be good, but people say to me "have a good day off island". Like I'm going shopping or something. I don't have the energy or breath to do much of anything

    Nancy 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Happy Birthday, Sas! That guy may have done you a favor. He sounds pretty insensitive. Hope you had a good day anyway.

    Mac, we all seem to be in the dumps these days. WTF!

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited August 2012

    Thanks for all the Birthday wishesCool

    The guy is a friend with benefits--except he's working so many hours we are having trouble working on the benefit aspect lol. It's okay until benefits are  too rare. Doing the FWB's approach b/c just don't want to work at a real relationship. Don't know any guys, that I'd want to try that with. Besides with my hx who would want to take a chance.

    I wrote a new thread PLEASE contribute--it'll be fun --trust me

    community.breastcancer.org/for...

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited August 2012

    We will be starting a novena Tuesday Aug.14th . I have asked Frank to pick the novena. Please, keep him in your prayers daily as he is being chemo challenged at present. The herceptin has stopped working. We have many members that are having condition changes on the Catholic thread and throughout BCO right now. Please , join us on the 14th.

    A Novena is prayers said daily for 9 days with stating the intention of your prayer. An intention can be for a person , group, or a thought. This will be posted on threads also. You don't need to be Catholic. Prayer is Prayer. If something in the prayer doesn't fit your belief system, substitute or omit that portion. We are an Ecumenical group which means inclusive of all.

    Send your intentions to me by Pm or post on Catholic thread on sunday (preferrably) or monday and I will combine them into a one list. It takes awhile to do the composite list, thats why I ask that intentions be sent on Sunday, Pax Sheila(sassy)

    community.breastcancer.org/for...

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  • macatacmv
    macatacmv Member Posts: 1,386
    edited August 2012

    Ok I was so cheesed off yesterday I could't even post. I waited all day for a doc to call me back before he left for vacation for 2 weeks. He is now fired!!! Got an appt for next week with a new pcp and will look for a new specialist too. I am so done with being poorly treated. 

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  • Rockym
    Rockym Member Posts: 1,261
    edited August 2012

    mac, good for you!  Way to go!  It's hard to make a change sometimes, but you gotta do what you gotta do.  Don't let any doctor treat you poorly there are good ones out there.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited August 2012

    Mac--good luck That just sucks re:docs. A letter to the insurance carrier as to why you are changing will trigger a review of what the docs in question are doing. Doesn't help you, but may cause them to clean up their acts if the carrier threatens loss of contract riembursement.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited August 2012

    Novena notification update:I unintentionally made it sound as if the novena was just for Frank. Franks change of condition triggered us to want to do a novena. The novena is for all of us on BCO and others that are added by members. The link below goes to the working copy of the combined list of intentions,If those unfamilar with a novena would like to take a look and see how it's being put together. The next paragraph is the first intention.

    Dear God---May all, of many Faiths, come together in prayer and support of each other. Jesus Christ,Mother Mary , and the Holy Court of Heaven, hear our prayers for all the sisters and brothers of BCO in this there time of need. Strengthen them and their families and let them not despair. Heal them if you will, or guide them to understanding and acceptance of your plan.

    community.breastcancer.org/for...

    So, if you want an intention added for you , or someonelse please PM me any time now. Probably should put this link in your favorites to refer to on Aug 14th. At this point we are leaning towards ST Peregrine Patron saint of Cancer as two members are willing to take the intentions to ST Peregrines shrine near Pheonix Az.

    Sorry for muddling up the first communication. It all seemed logical at the time. It was only after multiple messages received that I realized the problem Thanks for your involvement. SAS

    The prayer that will be added is said once a day and the intentions are said once a day

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    I just found out that you can get the generic Anastrozole at Costco for $21.22 without insurance. This was after I paid $438 for it at Kroger. Guess who's cheezed!!!! And yes, the insurance company booted me. Our healthcare system SUCKS!

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  • Rockym
    Rockym Member Posts: 1,261
    edited August 2012

    rohanna, okay... now I'm pissed off for you!  Can you go buy it at Costco and then go back to Kroger and show them your receipt and make waves?  I have a feeling if you walked in there with the same filled script in your hand and let the cheezed feelings rip, you might be able to get a refund or something.

    I always start off nice and ask for a manager and if nice doesn't work then get louder and ask for the manager's supervisor.  Get names, etc. and tell them that you are sick of getting ripped off because you had BC, etc. etc. etc.

    Okay, I'll stop.  If I lived near you I would go as your back up :-).  Can you see I'm up for a fight these days?  PM me and let me know how it all works out.  I care.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Rohanna -holy cow! I would be beyond cheezed and into the fondue pot!



    Today I'm cheezed because on my Nook tablet the "remove from my favorite topics button" is just below the "back to top" button and of course I hit the wrong one. I keep losing all my faves and have to spend time finding them again. Silly, huh?



    Phyllis

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  • chabba
    chabba Member Posts: 5,065
    edited August 2012

    Phyllis - happens to me too, ad I bet we're not the only ones!

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited August 2012

    Ro that is theivery , Call the consumer help person at the local paper. They may want to take it on as a project and then it will get published. Pretty sure they can do it without your name, but ask. It would be very cool to see it in the paper. Krogers would not like that kind of publicity.      How could the insurance company boot you? Get some coverage before 60's ---there is a law of some sorts that if there is a lapse of 60 + days. Insurance companies can deny coverage and or do pre-existing condition exclusion. You will have to have the "Certificate of Insurability" letter from your old company. Some are not good about getting the letter out,some are. These letters should be kept for multiple years. Very important.  

    Sent you a PM about the other thing.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    OK, so I called Kroger and they said there wasn't anything they could do. So I then called the corporate office and explained the situation. They said they would take it under advisement and let me know in 5 days. But it was only 5 hours. I got a refund of 2/3 from Kroger. I wish there was a way to let everyone know about the $21.22 price at Costco.

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  • Rockym
    Rockym Member Posts: 1,261
    edited August 2012

    rohanna, I'm glad Kroger did at least 2/3 to start.  Usually you would have to write a letter and perhaps cc: a lawyer (even if it's just some lawyer friend you know :-)).  The best way to let people know about the Costco price would be to either start a thread on one of the BCO forums or just post your information in a few of the Hormone Therapy threads.  I'm sure the word would spread quickly.

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