Calling all TNs

15655665685705711198

Comments

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Inmate Hun  ((((HUGS))))  as I read your words, they bring tears to my eyes.. Your the tuffy in my eyes..

  • Lady_Miz
    Lady_Miz Member Posts: 62
    edited August 2012

    Inmate - I'm brokenhearted to read those words from you. You have as much right as the rest of us to have down days but please don't say this might be the beginning of the end for you. You have been such a source of inspiration & light for me since I first started reading this thread, though I don't speak up much myself. Stay strong & when you feel weak, let the rest if us carry you with our positivity & fight for a while but even in weak moments...never, ever give up!



    Much love & many blessings to you...

  • LRM216
    LRM216 Member Posts: 2,115
    edited August 2012

    Inmate:

    I'm calling for a cyber circle of all of our arms around each other with you in the center, so that we can all infuse you with extra strength and fortitude.  You are on a very strong, nasty chemo, perhaps it's an ugly side effect from the drug?  Have you alerted your onc to the pain and what has he said? Sometimes muscle spasms can feel like knives cutting through you, and, while I hate that you are in pain, I'm hoping it's something such as that, and maybe a muscle relaxant might help. Please know that you are in my prayers.

    Annie - still holding Mandy in my prayers as well for a completely non-cancer resolution.  Such a shame that she even has to go through this, not to mention what you are going through.  When something happens to one of our children - everything - even time - seems to stand still as you are gripped with fear. 

    Tif: - I can well imagine how busy you are too with the two little ones.  Hope you get to take some deep breaths once school starts!

    Sending gentle hugs to all,

    Linda 

  • JazzyJ
    JazzyJ Member Posts: 126
    edited August 2012

    Inmate - Vent away! We are here for you as you have been for us....Huge hugs xoxoxo

  • onvacation
    onvacation Member Posts: 1,344
    edited August 2012

    Inmate - ((HUGS)) I wish I had words of wisdom - but you are a strong woman and a survivor.  sending healing thoughts your way.

  • inmate4232010
    inmate4232010 Member Posts: 310
    edited August 2012

    Thanks so much ladies,  I am at chemo right now and so far so good.  I spoke to Dr K and carefulyy explained all my symptons and then asked for a scan.  I will have a CT scan on Wednesday morning.  Then we will know.  I am gonna do a little test.  I feel I can pinpoint exactly where there is an issue.  So Tomorrow I am going to mark on my body the exacst spot and compare it to the scan.  It may sound weird, but each time I was re-diagnosed I felt something wasn't right.  This should be interesting.  It's like a small trial of that freakin little voice we all have.  Huh!  What do you think, ladies?  I know some of you are bettin ladies.

  • inmate4232010
    inmate4232010 Member Posts: 310
    edited August 2012

    Cocker....thinking of you and Mandy

    Hope.....how are you doing today?

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited August 2012

    (((Inmate))) - please go check out the Ixempra thread in the Stage IV forum.  I've heard some buzz about the chest/lung problems.  I am thinking Ixempra is one nasty chemo drug.  I hope it is the one for you and evicts the FC, once and for all.

    I am beyond tired tonight...we moved my mom into a new assisted living facility which is just 9 minutes from our house, door to door.  She was very emotional this afternoon and it was hard to console her as she has dementia and she wanted to go "home" to a place she lived in 3 years ago.  Meanwhile, I had unpacked everything and put everything in its place so it looked, as much as possible, like the room she slept in last night.  But she recognized there was a change and she was not happy at all.  Eventually she may realize that I can go see her way more often because she's so close.  Right now, she's not a happy camper.  I'm not sure which is worse, dementia or FC!

    Cocker - sending positive thoughts for a benign result for Mandy.

    Hugs to everyone tonight!

    Michelle

  • mags20487
    mags20487 Member Posts: 1,591
    edited August 2012

    Inmate...I am so sorry that you are feeling down.  This is your safe place where you can share anything with all of us and we will be here to listen to help and to support in any way that we possibly can.  You have inspired so many of us here without even knowing how much you have touched us all.  May your scan prove you wrong!  Chin up darling.  XOXO

    Mags

  • TifJ
    TifJ Member Posts: 1,568
    edited August 2012

    Inmate- we need you here. I don't usually say I am praying for anyone so I don't possibly offend anyone, but I AM praying for you (whether you like it or not- LOL!), sending good vibes and good ju-ju to you.

    Linda- Thanks! I don't get much of a break- I work in the elementary school!

  • Titan
    Titan Member Posts: 2,956
    edited August 2012

    Big hug for you Inmate...can you feel it...I hug really really hard!  crap...I know all about the feeling that something isn't right..you just know...but I hope it is an se or a pulled muscle or something like that....

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited August 2012

    (((((((Inmate))))))))

    CS - I know it's tough right now but the good news is the specialist doesn't think it's cancer. I'm sending good vibes across the world from Canada for you and Mandy!!

  • DorMac
    DorMac Member Posts: 155
    edited August 2012

    Inmate - I join everyone else on here wrapping our strong arms around you so you can lean on us for a while!{{{ BIG,BIG HUGS}}}

    Luv & Hope - putting you ladies in the center of that circle too as you fight against the beast! and CS and Mandy for a clean bill of health! {{{MORE BIG, BIG HUGS}}}

    I hope I don't offend anyone but to answer Luv's question about which is worse FC or dementia? - Definitely it is dementia! I lost my Mom to Alzheimers 3 years ago and it is a disease I would not wish on anyone. Unlike FC, there isn't any hope to recover - it just gets worse and worse until the person you knew is no longer there. Mom had BC (not TN) 10 years before she died and she breezed through the mastectomy, chemo and radiation. Three months later, she was diagnosed with Alzheimers. While we had many, many enjoyable times after that, I almost wish the FC had taken her. She did NOT deserve to go through that damn disease!

    Doreen 

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited August 2012

    Doreen - my thoughts, exactly.  My grandmother had dementia and lived with it for more than ten years because, just like my mom, she was otherwise healthy as a horse.  It just dragged out the agony and depleted every penny she had saved. 

  • ksmatthews
    ksmatthews Member Posts: 812
    edited August 2012

    Inmate (((hugs)))

  • DorMac
    DorMac Member Posts: 155
    edited August 2012

    So you've been through this before and now you're facing it with your Mom? I wish you the best.

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited August 2012

    Yes, and my husband's dad, too. 

  • DorMac
    DorMac Member Posts: 155
    edited August 2012

    oh, crap - that's awful!

  • kathyrnn
    kathyrnn Member Posts: 393
    edited August 2012

    *joins circle with all the sisters*



    Inmate, Luv, Hope, cocker, I'm praying for peace and strength for all of you. Just think of it as me sending you positive, healing energy .

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited August 2012

    Hi Kathy!  And thanks!

    Labs tomorrow, onc visit on Wednesday...maybe a decision about what's next.  One of my labs is testing for an enzyme necessary to process one of the chemos in a clinical trial...lab rat, I will probably be!

  • JAN69
    JAN69 Member Posts: 947
    edited August 2012

    Inmate--Also joining the circle of sisters wishing you the courage, strength, optimisim to plough thru the crap that's been thrown your way once again.  Holding your hand with love.

    Jan

  • borntosurvive
    borntosurvive Member Posts: 213
    edited August 2012

    Joining the circle tonight for all of you.  Holding hands, pouring wine and finding comfort in knowing you all get it!!! 

    Keep us posted Inmate.  I sure hope and pray it's the chemo drug SE or a pulled muscle from all that coughing. 

    Hope: I hope you are healing well and doing okay. 

  • whaevah
    whaevah Member Posts: 354
    edited August 2012

    I too would like to send healing thoughts and cyber hugs to Inmate and LuvRving.

    I read this thread and have  so much respect for your strength and contributions. You are inspirational to us just starting out in treatment. Also a wealth of information, thank you all for that.

    Cocker, hoping your daughter is B9, and I have to add, I love your humour.

    Healing thoughts to all TN's and all our sisters in this f'en war.

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited August 2012
    There's a point in every true friendship, where friends stop being friends and become sisters
  • inmate4232010
    inmate4232010 Member Posts: 310
    edited August 2012

    oh ladies,  I can feel the hugs!  Just what I needed and apparently the decadron (sp) doesn't hurt either.  Thank you, thank you, thank you.  I know I will get my groove back and be back to fighting fitness before you know it.  As I said before, sometimes it's just hard to see the light at the end of the tunnel.  In this case I am pretty sure I was looking the wrong way. Thank you all for pointing me in the right direction.  Yes, Bernie, that is what sister friends are for and I am the luckiest girl in the world to have such a fine group of extended family!  I just love you all so very much!

    Smooches all around!

  • inmate4232010
    inmate4232010 Member Posts: 310
    edited August 2012

    Luv honey......that is a very hard thing to do for your Mom.  I know she will come to love her new place and the fact that you can visit much more often.  Big big hugs to both you and your Mom!

    Cocker....sending you and Mandy strength and love.  I hope the next two weeks go quickly so you can get home to the old feller. 

    Love.........dawn 

  • inmate4232010
    inmate4232010 Member Posts: 310
    edited August 2012

    okay ladies.....here's a new pic of the dance party going on on my chest.  I am supposed to start seeing progress after this last session.

     

  • bak94
    bak94 Member Posts: 1,846
    edited August 2012

    Inmate-that looks painful and itchy. Is that area numb where you don't feel the skin mets? Have you noticed the regressing lately? Why did I think you said you are on ac?

    I have a some more questions for you, I hope you don't mind! Your surgery looks like it doesn't feel tight. Does it feel tight across your chest and underarms? I am thinking my bs pulled things too tight, it affects my range of motion and is always uncomfortable. I am sorry to bother you with this, I know you are going through so much more than this, but I am curious. My incisions look like creases across my chest, of course I am not in shape like you are:) Am I making sense? I better go to sleep. I took a couple of benedryl because I am having some weird eye thing going on, practically swelled shut and I don't know why. Sorry if I sound all loopy, cause I am!

  • inmate4232010
    inmate4232010 Member Posts: 310
    edited August 2012

    Sheesh....I need to start doing push ups.  I seem a bit puffy and lumpy.  I wanna a 6 pack!  Not sure if sit ups actually even out the lovely fat wing on my right side.  Those might require the fancy side sit ups, oh joy!

    good night sweet ladies......gonna finish my o'douls (fake beer is really just a test in mindtripping your brain into thinking you are actually drinking) and hit the sheets. A bit disappointing, yet oddly refreshing on a very warm, muggy, manic night.  

  • inmate4232010
    inmate4232010 Member Posts: 310
    edited August 2012

    bak.......It's not painful or itchy.  Most of my chest is still numb from the mx last year and the surgery in April.  Not sure about the A/C.  I did that as my first chemo in 2010.  I don't know if I can do it again, but if I can I'm sure they'll throw it at me again at some point.  So far only progression of the mets.  Regression won't start until at least 3 treatments, which I had today.  

    You can ask me anything, anytime, my dear.  I did feel terribly tight for a few months after surgery.  It turned out the tightness was from the swelling combined with the numbness.  After awhile, I was able to do my stretches and work through the remaining tightness.  The surgery my surgeon did was like a peace sign incision at the location of each nipple.  The theory being when I had reconstruction done the scars would not be seen at all with nipple implants or ones done with tattoos.  I thought that was brilliant.  Also the extra loose looking skin was what was meant to be my spared skin to fit my implant.  If I have to have one more surgery I am going to have him remove the extra skin and just make it look a little less battle field and more beautiful meadow, then I may just tattoo a butterfly bikini top.  What do you guys think of that for my first tattoo?  Go big or Go home, right?! 

      

Categories