VERY discouraged

Notself, thanks! I followed the links and it leads to a company selling "special" water.

Sorry, Momine,

 I should have checked the information more carefully.  I was just trying to find water filters that will filter out contaminents.  I guess I messed up. 

I am not sure what happened in Dr Noreen's post - but I assume it was related to water? Why was her post deleted? 

The link to the water system didn't bother me.  She had suggested that people Google "water quality report city state" and check to see if there was a warning about cancer that appeared in the report.  I did so and saw the warning but it didn't apply to my city's water and it was interesting. It's nice to know how clean my local water supply is.

People with poor quality municipal water should do research on getting appropriate filters.  Most bottled water is municipal water that has had some contaminant removed but not all.  For this reason, her link to a water filtration system didn't concern me.

What did concern me was her statement that people should try to adjust the pH of their urine to make it alkaline.  Serious kidney, liver, and heart damage can result by mucking about with pH. My local Walgreen's wont sell pH test strips without a prescription because there is all sorts of false information about pH floating about.  Although I didn't report her post, I was watching to see if she posted again.  I assumed that she was posting sincerely thinking it was good information.  She may have asked to have her posts removed after I made my comments.

@. The water she is flogging is supposedly extremely alkaline.

Yes, sorry about that, notself. I looked up the actual machine that Dr. Noreen is trying to sell. It attaches to your faucet and turns your water alkaline. It costs, areyou ready? 4000 US dollars. I am truly disgusted by the way people will try to take advantage of cancer patients.



By the way, that dire warning about city water and cancer is probably pretty simple. In some places there may be problems with the cleanliness of the water supply. For most people this poses no problem, but could be a problem for those with compromised immune systems, like chemo patients.

Yes, agreed, Angel.

Purple and AMP, I don't believe you are talking about the same post that was removed. Purple, one of AMP's post was removed on another thread and she has no way of reaching the moderators other than posting somewhere and she thought because you are like-minded sisters, she could post on your thread.  AMP, I'm most grateful for the info you posted and I hope you continue doing so. Peace Sisters 

Ruby your very welcome.  Purple32 thanks for the PI.  

I appreciate both your perceptions on new breast cancer research.  As said by some famous person,  the whole is the sum of its parts, this study is one of the very vital parts.  

 

This is my first post after reading a number of the threads on alternative and holistic approaches....and I have to admit that I'm a bit confused.  Nowhere does anyone mention anything about Artemisinin or Bindweed as possible treatments.  Are these supplements unknown to this site?  Or did I miss information on them in another forum?

Purple32, I'm in Stage IV with Invasive Micropapillary Ductal Carcinoma that metastasized to my lymphatic system, and three months ago I began taking Artemix (a blend of Artemisinin, Artesunate, and Artemether), which has been studied recently all over the world.  Most recently, the University of Washington completed its clinical trials, though they have not yet published their findings.  The researchers have indicated, though, that the results were astonishingly positive.  I'm currently working with one of the lead researchers at the University of Washington and am following the protocol that was used in clinical studies in India.  Nine days after taking Artemix, all of my symptoms went away.  It is able to cross the blood-brain barrier to kill cancer cells in the brain, and it also treats all cancers, including lung cancer.  The way it works is that it seeks out cells that have an abnormally high amount of iron, and cancer cells accumulate iron, and then (through a peroxide action) causes those cells to explode.  Many people have gone into remission, but even though I don't believe I will be one of them due to malabsorption problems (I have celiac disease), I think that it will help prolong my life....with a good quality of life.

As for Bindweed, it is the natural equivalent of Faslodex, which prevents the formation of abnormal blood vessels.  When tumors can't establish a blood vessel network to nourish them, they die.  I use AngioBlock twice a day, and I believe that it's doing "something" because I had abnormal blood vessel networks in my right calf, called matting, from failed schlerotherapy that I had done 20 years ago.  The matting was unsightly, but now I can finally wear shorts again--thanks to the AngioBlock, which faded it almost completely after only three days.

Regarding osteoporosis, has no one on this site heard of T-Tapp?  It's an exercise program that works the core and is was originally designed for people trying to recover from chemo.  It boosts bone strength by using the muscles to squeeze the bones--there are testimonials on the T-Tapp site that you can read, and I have met several of the people with osteoporosis who have benefited from this exercise program.  As a person with celiac and who was born with Rickets, I've found this exercise program to be invaluable.  It has truly helped me preserve my bone strength over the years.  Information can be found at www.t-tapp.com.

DianaNM, I am a faithful follower of the primal/paleo diet, too!  Unfortunately, though, because I'm currently taking Artemix, which requires a low-protein diet (to lower my iron levels), I have to follow a diet high in fruits and vegetables and low in meats.  I miss my preferred diet, though!

I know I'm a newcomer here....and I hope I haven't brought up topics that have been covered and discarded, but I'm just curious about why the above information does not seem to appear anywhere on this very knowledgeable site.  Have I missed something? 

 Thanks for bringing this up Rosetapper.  I did a search for Artemisinin and this hasn't been mentioned much in the last few years.  Researchers generally refer to it as having "potent anticancer activity", however it can be toxic and there are differing views about how to take it and in which combination with other supplements or conventional treatments.  The general view seems to be that it may be helped or hindered by different combinations and it's a matter of researchers finding the right combination.  Most research has been at the in vitro and in vivo level though there is one phase 1 trial ongoing since 2008.

Here is a recent open access review article from universities in Colombia and Australia.

Review Article
Antitumor Activity of Artemisinin and Its Derivatives: From a Well-Known Antimalarial Agent to a Potential Anticancer Drug
Journal of Biomedicine and Biotechnology Volume 2012

Here's an explanation of how it works from Wikipedia.

Cancer treatment

Artemisinin is undergoing early research and testing for the treatment of cancer.[23][24] Chinese scientists have shown artemisinin has significant anticancer effects against human hepatoma cells.[25] Artemisinin has a peroxide lactone group in its structure, and it is thought that when the peroxide comes into contact with high iron concentrations (common in cancerous cells), the molecule becomes unstable and releases reactive oxygen species. It has been shown to reduce angiogenesis and the expression of vascular endothelial growth factor in some tissue cultures. Recent pharmacological evidence demonstrates the artemisinin-derivative dihydroartemisinin targets human metastatic melanoma cells with induction of NOXA (phorbol-12-myristate-13-acetate-induced protein 1)-dependent mitochondrial apoptosis that occurs downstream of iron-dependent generation of cytotoxic oxidative stress.[26]

Here's the phase 1 study.   Thanks to Jenrio from the research section of BCO.

Joy, you did a nice job of producing some factual information--thank you!  Because it is so new on the scene, how much and in which way to take it is really something that takes a bit of guesswork.  I'm working with Dr. Narendra Singh, and he promotes the protocol that was followed in a clinical trial in India; namely, that Artemix be taken (the combination of all three derivatives) and that the amount should be based on Artemether and the patient's weight.  This is because Artemether is fat-soluble and is the more toxic derivative.  Its toxicity, however, occurs at much, much higher amounts than is used in the clinical trials.  I would have to take a 1,000 times what I'm taking to make it toxic; however, my oncologist, who is knowledgeable about Artemisinin and its other derivatives, tests me for liver damage and anemia on a regular basis.  If I were to take intramuscular injections, I would have to worry eventually about neurological damage.

Until recently, the Indian protocol seemed to be working for me, but then my cancer marker began to rise.  One of the problems with Artemisinin and its derivatives is that absorption can go down the longer a patient stays on it.  Actually, the absorption can be diminished tremendously after only three days.  Because I have celiac disease and, therefore, have absorption problems already, I believed that I was beginning to experience an absorption problem on the Indian protocol.  At that point, I switched to Dr. Lai's preferred protocol of taking it four days a week and then stopping for three days.  During those three days, I take iron because I've become terribly anemic.  I'm hoping that this protocol will reestablish absorption, and Dr. Singh agrees that it's necessary for me to switch to this protocol.  At this point, it's all guesswork, but the studies thus far have been so positive, I believe that this may be my only hope to prolong my life.

BTW, Joy, my daughter lives in Sydney, and I visit her every year.  You're so lucky to live there!  Australians really understand the needs of people with celiac, and I literally eat my way through Australia every time I'm there.