Long term mbc her2

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bhd1
bhd1 Member Posts: 3,874
edited June 2014 in HER2+ (Positive) Breast Cancer

I am looking for her 2 w mets who r long timers. Any out there? Can u thll me your story? What tx u r on?













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  • Lauriesh
    Lauriesh Member Posts: 692
    edited August 2012

    Hi Barb, I am only two years out, but on the hersupport.org site there are many women who are long term survivors. Check out the "calling all stage 4 survivors" thread. Lots of inspiring stories.





    Laurie

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  • bhd1
    bhd1 Member Posts: 3,874
    edited August 2012

    calling all stage 4 survivors on the her 2 forum?

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  • redwolf8812
    redwolf8812 Member Posts: 2,463
    edited August 2012

    Try this link:

    http://her2support.org/vbulletin/showthread.php?t=48453

    I highly recommend it - so inspiring! 

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  • sarahlou1967
    sarahlou1967 Member Posts: 153
    edited August 2012
     Hi I already posted this one the thread underneath and feel it would be appropriate to re-post on this thread, hope this gives you some inspiration.xMy herceptin nurse told me this heart warming story of another BC patient here in england. The patient had extensive spread to liver,lungs, spine she had done all the chemo, rads, surgery prior to secondary dx, she has been on herceptin for 12 years (administered once every 3 weeks by IV like myself) and at her last scan this year, no mets anywhere!!!! she is now classed as NED. This story goes to show how effective herceptin really is and as long as your heart scans come out on top you can have it for a very long time. I was particularly encouraged by this story as I have lung mets (dx from the start) and am HER2+ so will be on herceptin indefiantely, I am only 44 (42 at dx) and am looking for as long as possible on this wonder drug. Really hope this gives some hope to you ladies on here.Love and light to you allsarahlou196
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  • bhd1
    bhd1 Member Posts: 3,874
    edited August 2012

    thank you so much ladies.  redwolf thanks for the link.  it really helps to know that many are doing well.    love to all for sharing and hope you continue to fight like a girl!!

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  • leggo
    leggo Member Posts: 3,293
    edited August 2012

    Going on seven years metastatic and seventeen altogether...still vertical. And I agree with Redwolf....it's a very good site.

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