Long term mbc her2

bhd1

I am looking for her 2 w mets who r long timers. Any out there? Can u thll me your story? What tx u r on?

Lauriesh

Hi Barb, I am only two years out, but on the hersupport.org site there are many women who are long term survivors. Check out the "calling all stage 4 survivors" thread. Lots of inspiring stories.





Laurie

bhd1

calling all stage 4 survivors on the her 2 forum?

redwolf8812

Try this link:

http://her2support.org/vbulletin/showthread.php?t=48453

I highly recommend it - so inspiring! 

sarahlou1967

 Hi I already posted this one the thread underneath and feel it would be appropriate to re-post on this thread, hope this gives you some inspiration.xMy herceptin nurse told me this heart warming story of another BC patient here in england. The patient had extensive spread to liver,lungs, spine she had done all the chemo, rads, surgery prior to secondary dx, she has been on herceptin for 12 years (administered once every 3 weeks by IV like myself) and at her last scan this year, no mets anywhere!!!! she is now classed as NED. This story goes to show how effective herceptin really is and as long as your heart scans come out on top you can have it for a very long time. I was particularly encouraged by this story as I have lung mets (dx from the start) and am HER2+ so will be on herceptin indefiantely, I am only 44 (42 at dx) and am looking for as long as possible on this wonder drug. Really hope this gives some hope to you ladies on here.Love and light to you allsarahlou196

bhd1

thank you so much ladies.  redwolf thanks for the link.  it really helps to know that many are doing well.    love to all for sharing and hope you continue to fight like a girl!!

leggo

Going on seven years metastatic and seventeen altogether...still vertical. And I agree with Redwolf....it's a very good site.