Calling all TNs

15615625645665671198

Comments

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited August 2012

    "Don't walk in front of me, I may not follow.
    Don't walk behind me, I may not lead.
    Walk beside me and be my friend."

      

  • mags20487
    mags20487 Member Posts: 1,591
    edited August 2012
  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited August 2012

    Yes, Bernie, a beautiful thought to start my day.

    Inmate - glad things went OK with your sister. I live within 20 minutes of my sister and she doesn't call or visit. She's toxic, insists that we can have a relationship only if we can get together so she can tell me about all the "bad things" that have happened in our past. Most of them have nothing to do with me. I told her that it was time to let go of the past and live in the here and now. She refuses, I told her I didn't have time or energy to waste rehashing old crap. So it's an impasse and so be it. She'll probably show up when I'm on my deathbed.

    Riley - sorry you had to deal with such crappy experiences.  Having a friend with alcohol abuse is so difficult to deal with.

    Fern - hope you're doing OK with that rash. 

    Mags - congrats on all your good news!!!

    Dgcote - hang in there!

    Bak - I agree, this is a great thread.

    I am still waiting for the "official" word on my scans from Monday.  I think the delay is that my local MO is consulting with my Dana Farber Boston MO about where we go next.  Not sure if I mentioned there was some progression in an axilla node, not sure about the lung mets.  Xeloda doesn't seem to be working so well for me.  It's early in the game and there are plenty of other options, as Inmate can attest to.  Optimism prevails!

  • ksmatthews
    ksmatthews Member Posts: 812
    edited August 2012

    So sad we lost another sister to this horrible disease!!!

    (((group hug)))

  • NavyMom
    NavyMom Member Posts: 1,099
    edited August 2012

    So stunned at the loss of Beccad.  Yes group hug indeed.

  • inmate4232010
    inmate4232010 Member Posts: 310
    edited August 2012

    Doreen....thanks for the reminder.  just got a little panicky for a moment.  I don't want to leave anyone behind.

    Yes, Bernie....thanks for that.  good start to the day.

    Thanks Luv........I am fortunate to have a several sisters, one of which is my best friend.  we speak every day.  She is the grandma to that wonderful little man, Baker, that I posted the pic of before.  And I am sure as my little sister matures she will begin to make healthier choices that she is proud to be honest an open about.  Until then, I will continue to love her, from a safe stress free distance.  

    Please let us know when you get the results.  We could use more good news! 

    Bak.....funny story about tattoos.  My sister and I as well another good friend have all gone to get tattoos over the years.  Each time I let them go first so I can decide what and where. So far they are 3 and I am 0.  I could never decide and still to this day I am a tattoo virgin.  My sister advises you to make me go first.  You just let me know when you are ready.  

    Have a wonderful day ladies!  Love to you all! 

  • DorMac
    DorMac Member Posts: 155
    edited August 2012
    I had 2 sisters, 1 older and 1 younger as well as 2 older brothers. My younger sister and I were the very best friends - unfortunately I lost her to TNBC 6 years ago. On the other hand, my older sister, who lives in the same city, has not even called me the entire time I have been going through this nightmare. I called her because I thought maybe she was ill or something but no, she was fine. Just doesn't care, I guess. My 2 brothers call every week. I miss my younger sister so much but am so grateful that I had her in my life!
  • inmate4232010
    inmate4232010 Member Posts: 310
    edited August 2012

    Dor....so sorry to hear you lost your sister and best friend.  I worry about leaving my sister behind.  She is my strength, support and unconditional love and I hers.  We are 2 1/2 years apart but many people ask if we are twins.  I usually say yes, but she's the older twin.

    here's to sisters:  (of course I picked one of us when we were young and wrinkle free - also includes my BIL)

     

  • JAN69
    JAN69 Member Posts: 947
    edited August 2012

    Damm!  I logged in to post something intelligent, and I can't remember what it was!  A touch of Alzhiemers and 6 doses of chemo equals ?

  • DorMac
    DorMac Member Posts: 155
    edited August 2012

    Chemo brain! - It's a valid excuse. I intend to use it for the next 4 years!

  • Tazzy
    Tazzy Member Posts: 2,546
    edited August 2012

    dormac I'm with you - intend using chemo brain for as long as possible... although when I told my family that, they said "how will we ever know the difference" Laughing

  • christina1961
    christina1961 Member Posts: 736
    edited August 2012

    Inmate, love that photo! You all look like you are having a great time!  Makes me want to go to the beach right now.

    My favorite photo of my sister is one where she is hugging a pit bull.  I am a big animal person and she has been afraid of dogs ever since a large one scared her as a child.  She is very afraid of big dogs. We have discussed dogs such as pit bulls many times and she has had an unfavorable opinion of them based on what she has read in the media.   One day on our way back from a oncology consultation in North Carolina, we stopped at a vegetarian cafe in the mountains at the NC/TN state line along the river.  There is a female pit bull who belongs to one of the guys who works at the zip line place there.  "River" is a "regular" in the outside patio area of the cafe.  She likes to jump from tabletop to tabletop and pose for photos.  My sister was so impressed with River's calm and friendly demeanor that she made friends with her, petted her, and posed with her arm around her for a photo. 

    Tazzy, that's so funny! I don't know how my family would know the difference either and I come by my absent mindedness honestly.  We used to joke in my family that we knew when dinner was ready when we could smell it burning (my mom would invariably forget to check the oven or burn the toast.)  We ate a lot of scraped toast when I was a kid. Mom never had chemo.

  • christina1961
    christina1961 Member Posts: 736
    edited August 2012

    Just saw this on the positives about negatives blog- phase II clinical trial just opened up:

    http://hormonenegative.blogspot.com/

  • ksmatthews
    ksmatthews Member Posts: 812
    edited August 2012

    So happy!!!  Went to see my BS today (which I love), and he looked over all my scans I have done recently and he said you know what the 3 most important letters in alphabet are?  I said no.  He said NED!  Cause you are cancer free!!!  I am so thrilled.  Thanking the good Lord above!!

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited August 2012

    KS - long may you dance with NED!!!!

  • FernMF
    FernMF Member Posts: 349
    edited August 2012

    Worked all day today - I'm high on prednisone for the rash (that is still there, but NOT itching).  I'm the road runner and the energizer bunny in one -  BEEPPPP BEEPPPPP.

    Finally contacted the after hours service and talked to an oncologist I have not met - he thought the rash could be related to the chemo (DUH?) and that prednisone was the only way to go.  So I doubled the antihistamine AND took a sleeping pill - so I got a good nights rest.  Good thing - today has been full speed here at work.

    Now, it's come to my mind that side effects from Chemo "might" hit us at those physical points where we have previous conditions; i.e.  I have skin problems, I'm highly allergic to poison ivy and never touch the stuff, but come down with 1-2-3-4 times per year where I have to take prednisone. (AND, got a S/E skin rash)  Also, I have highly myopic eyes with reading lenses in my -18 lenses plus prisms.  The S/E on day 3 and 4 after chemo was double vision.  Is that what you all have experienced?  THANKS!!! 

  • mags20487
    mags20487 Member Posts: 1,591
    edited August 2012

    ks--that is awesome news!!  thanks for sharing

    Maggie

  • Babs37
    Babs37 Member Posts: 455
    edited August 2012
    KS- WOOOHOOO!!!!! Dance away with NED!!!!!!
  • Tazzy
    Tazzy Member Posts: 2,546
    edited August 2012

    KS - dancing with ya.

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited August 2012

    Well, got the results of my scans and all I can say is that it sucks pretty bad. 

    Progression of metastatic disease in the left supraclavicular region, left

    superior mediastinum, left axilla, left hilum and left lung.

    Slight improvement of left subcarinal lymph node since previous study of

    05/11/2012.

    So my oncs are looking for a clinical trial.  Time to pull out all the stops and stop this crap in its tracks.  Ugh!!!

    So I copied and pasted the results and it gave me the funky html code.  Sorry about that, but you can get the idea.

  • TifJ
    TifJ Member Posts: 1,568
    edited August 2012

    Double crap Luv!! I hope they find something quickly that will kick this to the curb! I am sending all the good vibes I can muster to you!

  • onvacation
    onvacation Member Posts: 1,344
    edited August 2012

    Luv - sorry for your results - hope you get in a clinical trial and you kick cancer to the curb for good!

    KS - woohoo! 

  • inmate4232010
    inmate4232010 Member Posts: 310
    edited August 2012

    ks..... woot woot for you my dear! such good news

  • inmate4232010
    inmate4232010 Member Posts: 310
    edited August 2012

    oh Luv.......my heart is heavy for you. i so wanted better news. f'ing. F. lots of love coming your way!

  • Tazzy
    Tazzy Member Posts: 2,546
    edited August 2012

    ((((((Michelle))))))))

  • christina1961
    christina1961 Member Posts: 736
    edited August 2012

    Luv, I am so sorry for the bad news - I hope the next chemo will be the one to stop any progression.  I posted a new trial that opened up a few entries above - I'm not sure where it is but it opened this week.

    KS, I'm glad you got the very good news!

    Love to all -  

  • Lady_Miz
    Lady_Miz Member Posts: 62
    edited August 2012

    I was absolutely devastated to see earlier that we have lost three sisters in two weeks. I f'ing LOATHE this disease! I found myself just screaming out loud in my car when I got home from work. This has GOT to stop! I just pray their families & friends find peace & comfort.



    Luv - I am so sorry to hear your results. This board is so full of incredible, funny, strong, tenacious women, including yourself, & I just know you can best this! I'm sending you loads of good ju-ju as we speak! (((((Hugs)))))

  • Hope60
    Hope60 Member Posts: 223
    edited August 2012

    Hi ladies - just catching up on my reading here after a few days....

    Melissa - We all understand the need to take a break. You will always be welcomed back if and when you decide to return.

    Luv- Damn! I was hoping for better news for you. Sending you a BIG HUG! Stay strong!

    KS - Great news! Dancing with you!

    Inmate - So happy you cleared the air with your sister.

    Tazzy - Please forgive me, I don't remember exactly what surgery you had....may have been during my hospital daze...Just wanted to tell you that my neighbor had a double mx a few weeks ago. She's normally a very stoic person, but has been having major crying attacks which seem to embarass her.  I told her that sometimes she'll  just have to cry, and that's totally OK.  We all have and we all do on this crappy journey. HUGS TO YOU!

  • Tazzy
    Tazzy Member Posts: 2,546
    edited August 2012

      Thanks Hope... had a mx to right and ALND/SNB.  Best these emotions come out rather than being bottled up...but still its a pisser.  I try to remember we have every right to cry, scream, rant or whatever we want to.

  • mags20487
    mags20487 Member Posts: 1,591
    edited August 2012

    oh LUV...I am sad for your news but as others have said you are such an amazing and strong woman.  I just know they will find the magic bullet for you {{{HUGS}}} to you

    Mags

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