My Mum doesn't want to try???? What should I do???

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Helena79
Helena79 Member Posts: 2

My mums breast cancer has returned and now spread to her sternam. Her doctor said she won't last more than a yr. She says she doesn't want to do chemo, radiation or anything else, her theory is that she has lived a full life and if it's her time to go, then she is content with that.

Of course as her daughter the thought of her not fighting or even trying anything just doen't make sense to me.

What is my role now, do I support her in her decision and let her do things her way, or do I push her to try. She's an extremelly stubborn women and I don't want to spend time fighting her on her choices, but it's very hard to sit back and respect her decision without trying absolutley every little thing we can.

Anyones input would be great, it's obviously a very emottional time, as many of you well understand, I just want to make sure I do the right thing by her, and right now I don't know what that is xx

Comments

  • chrissyb
    chrissyb Member Posts: 16,818
    edited August 2012

    Hi Helena I am sorry to hear that your mom has been diagnosed with Breast Cancer again but I do understand her wish to spend what time she has drug free.

    I know you do not want to lose your mom as she is precious to you. It is her decision to let nature take it's course and if you value her please value her decision on this as difficult as it will be.   Just be there for her, laugh with her and cry with her and create as many memories as you possibly can.  

    Love n hugs.   Chrissy 

  • Cindy-Rose
    Cindy-Rose Member Posts: 361
    edited August 2012

    Helena79, Please let your mother do whatever she wants and on her own terms. I know it's hard to know that she might die without treatment but it is her body. Remember she didn't ask to have cancer and we all have the right to decide what we will and will not do in the face of having such a terrible desease. No matter what she decides to do or not do it's the right choice for her. I don't think any of us want to have someone interfere with what we decide. it's probably the most important chioce we will ever have to make so please respect her wishes. She isn't trying to hurt anyone by not chosing to fight this she only wants to deal with it in her own terms. i know because I'm not doing treatments eather and the last thing I want is to hurt my children by dieing. Nothing in your life can prepare you or your mom for this but if she has made a decision and is ok with it then please, please let her go on her own terms. Sometimes we just won't live through cancer no matter what we do, so having treatment may not help her at all. It's really all up to her now. I'm so sorry that you have to ask this question but the fact that your asking it means that you love her very much and only want to help her. Just hear her when she talks and be there for her...sometimes that's the best we can do. I hope you can find peace with her decisions no matter what they are. Because they are hers.

    All my love, cin

  • ohio4me
    ohio4me Member Posts: 491
    edited August 2012

    Helena - I am a patient (breast cancer) and a caregiver (of sorts) for my elderly parents. We are going through some difficult decisions with my parents. Here are my thots:

    1) Wearing my caregiver hat, the ultimate decision belongs to the patient. I, too, want to have every possible day with my parents but they need to make the final decision of what treatment/tests they want to pursue. Somedays I feel more selfish and want to push but I don't want to be the one causing them more stress. If they are comfortable with the decision then I just need to accept that and enjoy every moment I have. I'm adding to the good memories.

    2) Wearing my patient hat, you can help by ensuring your mother has all the information to make an informed decision. Maybe she already has that info, if not, gather the info and review the facts and then give her time to ponder and decide. Sometimes it is easy to miss details when you are on information overload. My sisters were my advocates helping me to make the best decisions for me. It's okay to be open about you think but you need to listen closely to how she feels. Once the decision is made - then accept it and work on making good memories.

    As I faced my battle with cancer this year, I learned to live life without regrets. Make good decisions and if you think you should call/send a card/stop by then do it - don't wait til the time is past. The inpromptu stuff is fun and none of us have a promise of tomorrow.

    Life is all about people - and family comes first. Give lots of hugs.

    Hugs to you as walk this path with your mom.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited August 2012

    Helena,

    I can't say it any better than the ladies before me have. I am very close to both of my daughters. We have had some discussion, painful as it is to them, on this subject. I have been very clear that honoring my wishes is about me, not them nor is it a measure of ones love. The most loving and compassionate thing they can do is to let me live and die as I choose. My thoughts are with you, your mom and family. Caryn

  • Helena79
    Helena79 Member Posts: 2
    edited August 2012

    Thank you so much everyone for your advice, you don't now how much it has helped. It's helped me to resolve within myself that this is her journey and the best I can do is support, love and care for her in anyway I can. Thanks again means the world xxxx

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2012

    Helena, I don't know if you're still reading, but thought I'd add in some thoughts. If she has already had treatment for her first cancer, she knows what is ahead of her. Quality of life becomes more important at some point than quantity. My Dad was diganosed with lung cancer and all of us 4 kids and the grandchildren urged him to put up the fight of his life. He went through multiple surgeries, chemo and rads and looking back at it all, he didn't gain that time living, it just took him 2 1/2 years to die!!! I asked him, when he was near the end, if he was glad he had gone through the treatments he had so that he got those extra years. He said NO! Not if he was going to just die in the end, anyway!!

    Your Mom is now stage iv. She will die of breast cancer. Let her die with dignity and grace. That's what we all hope for ourselves when our time comes. 

  • FilterLady
    FilterLady Member Posts: 407
    edited August 2012

    Hi Helena,  I'd like to add that I've seen this from both sides.

    My sweet Momma passed away on 12/31/06 from lung cancer.  Her diagnosis came 9 years earlier.  She fought a good fight and got to spend many more years than if she had not chosen to get treatment.  However, in May of 2006, when we went to see her oncologist to get the results of the latest PET scan, she was told that she had progressed to the point that any further treatments would result in a lower quality of life, she made the brave decision to spend her last days enjoying her family and friends.  It was always her decision and I just wanted to scream "keep fighting" but looking in her eyes and seeing the decision that she made was have been more painful to her than the cancer. That day we all got together and decided that we would honor whatever decisions she made.

    She wanted to die at home and she did so.  We were blessed to have a great hospice team who loved both Momma and us and were there for us so many times when we needed them most.  Momma finally found peace and so did we by knowing she passed away the way SHE wanted to and we all respected that.

    I can only pray that when the Lord decides to call me home, that I am half as brave as my sweet Momma was.  I know she is my special angel and is always by my side.

    The best thing you can do is to respect her decision, no matter how painful it is for you.  She has not made the decision in haste, she wants to do it her way as it should be.

    God bless y'all,

    LaDonna

  • Copper333
    Copper333 Member Posts: 11
    edited August 2012

    Hi Helena. I understand how you feel and I hope what I write will help you in some way.  My mom, Grace, was diagnosed in 2005 with breast cancer. She had both breast removed and had her lymph nodes removed. She went through a hard time going through chemo and radiation. She beat it but she told me she would never go through chemo ever again. I was very angry that she said that because I was being selfish and truly only thinking about myself. However, the cancer returned and I found out in September 2010 as we were called to a family meeting that it was back and it wasn't good. My mom developed bone cancer which was in her phemor and on two of her rib cages. She had signs that something wasn't right and went to the doctors and they told her she was just fatigued and having pain because she was getting older. The cancer spread to her liver and it was a stage 4 right from the beginning. My mom decided to get chemo and take medication because she chose it.  Every time we got news though it wasn't any better and has continued to get worse. I had a different outlook this time because I went through a different form of hell and I knew I had to respect whatever decisions my mother made. It is her body and who am I to tell her what she has to do for my own reasons of trying to keep her here longer. The last thing I want is for my mom to be in pain because she is the best woman i know and she doesn't deserve to die in any kind of pain..I want her to go peacefully but that isn't going to happen. One of my biggest obstacles is that I would ask a question and she wouldn't awnser me or if she did I knew she was not telling me the whole truth because she wanted to protect me. I would assume the worst and I was a complete wreck. through the two years, I have had to learn to look at things in a different way..I try to stay optimistic that just maybe we will get our miracle. I also had to respect the fact that if she wanted to tell me something she would. Even though I am 35, she still wants to protect me and most importantly..she wants to remain in control of her own life. She is stubborn as well.  Just spend time with her and enjoy the moments you have. My mom just turned 55 on July 11th and we had a big celebration for her. I am taking her away on labor day weekend. Also understand that if she needs her rest, she needs to be able to rest. It is hard because I want to spend time with her but she still continues to work, even though I feel she shouldn't be, and when she gets home she sleeps. She wants as much normalcy as she can possibly get and once again..i have to respect that. I am alot like her and I like to fix things and make them better. I can't fix this but the one thing i can do is be there for her. I did research alot of things and what I would do is copy and paste it or print it off and email it to her.. we wouldn't discuss it unless she would bring it up. the one other thing i will recommend for you is to get a book called 'Death and Dying'. I hate the title but my counselor told me to read it. the first two chapters are a little hard to get into but after that it has alot of great information that will assist you and even your mom if she wants the info. It is on the stages that one goes through and has actual stories of cancer patients. It also helps you through other things in your life as well. I am not a big reader but I literally couldn't put the book down. I wanted to give the book to my mom but the title alone..I just couldn't so I am going to copy certain pages out of the book and give to her to read. If she chooses to..its her choice. I asked my mom on Thursday how her cell count was since she goes every week. She didn't really awnser my question and I knew it wasn't good. I saw my dad this morning and he told me that we are going to have a family meeting tonight and I am dreading it. I know she doesn't have long and the news that I so much wanted her to tell me is coming and i am horrified. She is my best friend..she is the one person i know that will always be there for me. What am I going to do without her here? I ask myself that alot. I don't delete any of my messages or emails I get from her. I can't. If you were to ask me if I have accepted the fact she is dying the awnser would be no.  haven't accepted the fact she is dying because I try to fool myself some times. Its the only way I can go through my day.   My mom has brought up conversations on what am I goig to wear on her and I couldn't awnser her. I bawled and walked away. After I talked to my counselor, I knew what I had to do..even if I didn't want to.  I talked to her about it and asked her what she wanted. My mom wants to be in control even when she is in heaven. It is her life and she does have the right to make her decisions. All I can do as her daughter is to be there when she needs me and to do what she asks. Respect when she wants to talk about things and when she doesn't want to talk about things. I normally start out the conversation on..How are you feeling? If she gives me a one sentence explanation - it ends there. If she continues to talk..we talk. This is with everything. Just know you are not alone and I truly do understand how you feel. I will pray for your mom and pray for mine. Embrace the time you have with her.

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2012

    Copper that was a great post with a lot of good info in it. It would be much easier to read if you put in paragraphs as it's hard to track what sentence I was on.

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