TRIPLE POSITIVE GROUP

Hi all! No, I had to stop the chemo. Only got 1 dose of AC and 1.5 doses of TCH, twelve of Herceptin before the MO said no more. We also tried Abraxane, not sure of that number, pretty out of it. Most everything else happened after the chemo attempt was done. The last 4 Herceptin doses were done in the hospital in a procedure called rapid-desensitization, to no avail. I hope that was enough. I am kind of leary telling people all of this as it would scare the beejeezes out of me. I have to emphasize that THIS IS NOT THE NORM. My MO said she only had one other case in 25 yrs of practice that this happened with and not nearly to my extreme. My immunologist brought my case before a convention board and no one else there had had this much trouble. My MO said I should consider a Mastectomy, but I cannot even be considered for reconstruction for being allergic to everything. I've lost enough at this point, not going there.

Jackboo - Deep breath. Scars are funny things, and tend to change a lot. Being observant is all we can do. Let us know. Thoughts with you...

I agree Jackboo:  DEEP breath!  Try to get a few hours sleep and then see the onc tomorrow.  Do keep us posted!

Thank you Arlene. Maybe some Benadryl will help. Thumping stress headache now. I hope to be in the position of feeling silly tomorrow if I'm given the all clear.

Jackboo - I had a BMX and just had a small nodule evaluated last week (benign, thankfully) AND the doc found another nodule that I missed that now needs further follow-up.  So a BMX is not fool proof for not having post-tx scares - don't beat yourself up.  I know how scary this is - hugs to you - hoping you can get it checked out ASAP so you don't make yourself sick with worry.   My mantra I say to myself is "worrying isn't going to change the outcome".  That helps me refocus.   

Thanks Jenn and dance tracer. Have got up again having failed to go to sleep. My mind keeps going to what ifs. If its a new lump I presume that's a local reoccurrence. I'm just 2 months post Herceptin and had just booked a reduction surgery for the other breast.

I think there are women who have had a local reoccurrence and gone on to do well.

As you can see I tend to veer towards pessimism!

Jackboo - I hate this stinking disease.  

jackboo - my lumpectomy scar has become slightly indented with time as the scar tissue kindof contracts.  I saw my mammo images from April and could see there is an area of scar tissue where the lump was.

Forgot to mention, on my birthday, last Wed, I was examined by my BS as part of my plans for reduction surgery on the other breast. I had to stand facing him and he marked me up with a pen. He didn't see anything then but it wasn't the same as having a full, Breast examination. My last one of those was July and no lumps were found then.

Jackboo: (((hugs))) and blessings....breathe deeply and know you have the support of an army here!

Just got back from clinic. Ultrasound booked for Thur 9am. Doc thought it felt like hardened scar tissue, but only a diagnostic scan can rule it out. Im a bit calmer but boy has this fear gripped me. Diarrhea this morn, so tired after 3 hours sleep. Thank you all for being there.

Liz

Moni 35% is still a huge reduction compared to not being treated at all. You need to look at it as 75% chance it won't return. Odds are on your side… also remember there is a percentage (40% in my case) that you didn't need chemo at all. You did most of the Herceptin… and they still don't know if only 1/2 that amount is enough.

jackboo there was so much going on at the beginning and we didn't fully understand our disease. The doctors wouldn't have offered you a lumpectomy if it weren't right for you. If you were to have a local recurrence then they would remove it but you can't assume you will.  In these cases you have the same survival chances as if you did the MX from the start. Let us know what your BS says. Like dance says BMX isn't fool proof. They are always checking our scars 2X a year the first 5 years too.

BTW my scar on righty is indented but not on lefty.

soltantio once the nails start there is not much you can do. Mine actually got worse after chemo. You should avoid all trauma though. I did lose several toenails and they grew back just fine. I really got the nail thing badly. Some are still lifted (and probably will never get better) and still a little yellowish… but the Urea treatment is helping a lot especially with flattening them out.

Do you twitter? I'm trying to see if there's any point to it or me. So far i am using it for incoming info mostly medical.....i only have 2 followers and one is Livestrong and they follow everyone! Not loving it tho.

I discovered this site however which you all probably know about already. Can't link on my IPAD but it's called Cancer and Careers. Looks good.

I hear ya Jackboo..we all do loud and clear. Great you come to the forum when you are troubled.There's lots of love and help here. Dance...and probably me...not so much....we're all different. i'm working on it. You dance? Great to vent....

Lago...

I thought it was me . Don't really see the need with all our other communication sources. Too much info to sort through. And going fwd , the word limit would drive me nuts. I see it as a marketing tool. The Kardashian trailer park brigade is tweeting it all the way to the bank!

I was told no push ups but our PSs might have done things differently. I know I don't have any alloderm. I found the band itchy so I wore it over a t shirt. I think I eventually went to nights only.