2012 sisters

Options
14748505253184

Comments

  • juneaubugg
    juneaubugg Member Posts: 951
    edited August 2012

    Moonf... JP read my mind.



    JP: hope you're pain free soon.



    Tazzy: careful. Those happy pills make it easy to overdo it and slow recovery. But enjoy the fresh air.



    Beth: welcome.



    Lostinmo: (((hugs)))



    My TE hurts tonight... I wonder if I hit my conconut on another door frame and it shifted?! Seriously!



    I found out about port insertion today; which is scheduled for Thursday afternoon. Since its 24 hours before my first treatment they have to leave the needle in overnight!!!! WTF!!! Why didn't my MO offer me a port and tell me these things!!? Fuck me... I must have missed a question. I would t even be GETTING a port if I didn't ask the nurse during my orientation last week. I'm hurting today. My arm cording, my TE. I want to run.



    Instead I have P/T in the morning and swimming with a friend all day. Then into the city (New York City) Wednesday with a friend to relax, have dinner and walk around the village while I still feel/look like everyone else.



    So tired of the pain though...

  • mcook301
    mcook301 Member Posts: 509
    edited August 2012

    Hello LadieS,

    Man I have been off a week and I just spent the last hour reading and trying to catch up! Lots of hugs and love to all who are new to here! 

    I don't know what is going on with me lately...I have a not heard back on my surgery date yet and no calls from my doctor on updates since last Monday. I have almost been done with my chemo for a month now and I am in never never land trying to ignore that I don't have a date yet. I need someone to kick my ass and take charge of this, but it is so nice to feel some what normal for a bit and forget about this shit! I have energy and my hair is slowing growing back. I am working full force again and just want to ignore the fact I still have surgery and radation. I am not sure where I starting ignoring the fact that no one has called me about a date.  Tazzy and others I have read your post about surgery and although very encouraging I am so worried about how this will change me and how my life will be afterward! I am trying to remain strong but it scares me.  Time flies so fast right now and I don't know if I just keep going 100 mph so I don't have to think about this!  My family is concerned I don't have a date yet and I know I should be but I just wanted a few more weeks of feeling myself(ok without hair) before I pushed the issue.  I think it is good for me to write this out to all of you because I am tearing up and realizing that I can not put this off anymore and I need to take charge again.  

    I want to just get on a plane and go to Italy for a week and forget about cancer! Anyone want to fly away with me :)

    Thanks for letting me vent and I wish I had time to respond to all of you tonight! Thanks for posting!

  • Tazzy
    Tazzy Member Posts: 2,546
    edited August 2012

    Moonflwr... funny story about the cane... maybe the cats just didn't shut the pantry door.. but put the cane on the inside Laughing  Oh! how many times I walk into another room and think to myself 'why am I here?'\

    Dakota... I hope your cloud lifts soon - but in the meantime a voodoo doll sounds a pretty good way to get rid of certain frustrations.

    Ramols: good to hear you had a good ‘normal' day in the office.

    Mimi.... Hang in there honey - chemo is hard but it does work. I also had neo-adjuvant chemo and it shrunk my tumour so that when they operated they didn't need to take so much healthy tissue around the breast. Its ok to be scared - we all are.

    Soya... good for you on returning to the exercise regime. I am still only managing walks but I am ok with that. Ouch on the shots.

    Goodnight lovely ladies - chat tomorrow.   Wishing you all a restful night with peaceful sleep.

  • tina_jason
    tina_jason Member Posts: 147
    edited August 2012

    Soy- I was just wondering how you felt after your first cardio.  I can't wait to start running again!  Good for you!

    JP- I was wondering why you have to have a mammo?  Just curious?  I haven't had to have one since before my dx last December.  I have had an MRI, several ultrasounds, a PET scan and 2 CT scans but haven't had to have a mammo.  It seems like post op it would be painful.  Hope it wasn't too bad for you.  Do you have a date yet for your re-excision?

  • PinkyWI
    PinkyWI Member Posts: 73
    edited August 2012

    Liefie – I too have decided not to color my hair when it comes back in (I actually haven’t lost it yet – having it shaved off Wednesday, day 13 after first AC treatment.  I too did not know how not to make the transition, sure didn’t plan on BC to do that for me though.  I actually like my grey hair but being in job search, I chose to keep it colored – no more.  I am hoping it comes back curly though.  Wink

     

    Moonflwr – So sorry to hear about your job, and good luck with surgery on Monday.

     

    Dakota – I truly hope that your black cloud does go away.  Enough is enough!

     

    Mimi -- it’s okay to be scared – for each of us, in our own way, this is uncharted water.

     

    Soya – So sorry you were not prepared for your ovary suppression injection – does not sound like fun at all.

     

    Juneaubugg – good luck with your port implant.  Can’t imagine leaving the needle in overnight!  However, you will be glad you have it…I think the port implant was scarier for me than the lumpectomy and SNB.  Have a good time swimming on Tuesday and fun in the city on Wednesday.

     

    McCook – Good luck with taking charge and getting an appointment – it would be so easy to ignore this and move on as though we weren’t in this crucible together.  Oh, I’d love to go to Italy with you!  Heck I would have been happy going to Festa Italiana to escape reality.

     

    Tazzy – so glad you are doing well!

     

    Well, we have just had the weekend from hell -- nothing to do with BC. Got a 5am call from our oldest son Saturday morning letting us know that his apartment building was on fire.  Everyone made it out okay, including pets but there are now 40+ homeless people at the moment.  Still not sure of the total damages to his stuff as they can only go in at certain times with an escort.   On Saturday afternoon, the kids (most of the tenants are college students) to get a few personal items and another mom came over by me and told me that her daughter grabbed box that she had gotten form her grandmother who had recently passed away...from BC...at the age of  62, my age.  UGH!

     I went for my Look Good...Feel Good session today -- a fun time.  They also showed us how to tie scarfs which I am in desperate need of learning.  Getting my hair cut off on Wednesday.  I figure that after my 2nd treatment on Thursday, it won't be to long before it starts falling out and I won't have the energy then to go get it cut OR clean it up *sigh*

     Sorry about the length of this -- but want to join in with my "Sisters"!

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited August 2012

    Ramols-

    Good for u for going to work today. Hope u had a restful night ;)

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited August 2012

    Soya~

    Sorry that was so painful for you. It's the least they can do to warn you about the pain. Feel better. 😃

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited August 2012

    Juneau -

    Have so much fun with ur friend. So lucky to live where u live!!! Sounds like a blast to me. ;)

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited August 2012

    Pinky-

    So glad everyone is safe.



    McCook-

    Good luck with the appointment. It would be easy to stop. Keep going it will pay off.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Junueabugg...got my port yesterday and start chemo today. They also left the needle in me. I wouldn't even have known if they hadn't told me. I'm not on any pain meds and have most motion in my arm. (it's a little sore to brush my hair) I slept just fine. I know everyone has different experiences but mine was good and I'm ready to kick this tumor in the butt today!!!! (also I was told the nurse will take the needle out today)



    Praying for everyone. ALL THIS SHIT WE ARE GOING THROUGH WILL WORK!!!!

  • Aruba
    Aruba Member Posts: 543
    edited August 2012

    Pinky..glad everyone is safe. Everyone heading back to college. My son leaves end of week.

    Mcook.. Hang in there and book me seat too! Gelato sounds good!

    Soy.. Way to go on cardio. I am walking( never was a runner) but moving is good

    JP.. Can you describe your symptoms underarm? I had snb over 2 weeks ago ang still feeling achy there .. Feels sort of bruised about inch under incision but everthing looks good and i have full range of motion. No more appt with BS and he on vacation this week anyway.

    Hope everyone has a day of sunshine!

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited August 2012

    Tpolychron-

    So glad it went well and u got some sleep!!!! Good luck today !!!

  • Tazzy
    Tazzy Member Posts: 2,546
    edited August 2012

    Pinky - happy everyone got out safely. If you go to U-tube and type in "how to tie headscarves" you will get thousands of different clips on this subject - who would've thought eh? Happy tying. Cannot remember if anyone mentioned to you... but your scalp becomes very tender before it starts to fall out. Soon as you have it cut short/shaved the tenderness is not as bad. Good luck.

    Mcook. Phone them daily until you get a date... that's what I did. Yes, its great to feel normal after chemo and before surgery...but the waiting adds to the stress levels. I have my passport and toothbrush ready to fly to Italy.

    Tpoly - thinking of you in the BGC today - let us know how it treated you.

    Off to get my dressing changed now.  I will be having a restful day on my return as I didn't sleep too good and spent a couple of hours in the garden yesterday morning wore me out more than I thought.   You are so right Juneau about the happy pills..... they mask what is really going on.

    Wishing each and everyone of you strong ladies a relatively stress free day with laughter and sunshine and positive thought. Hugs xx

  • Moonflwr912
    Moonflwr912 Member Posts: 6,856
    edited August 2012

    Pinky, glad everyone made it out safe. Juneau, I had my port put in two DT before my first Chemo, no problem, the left it in too. Much love to all.

  • jpmomof3
    jpmomof3 Member Posts: 643
    edited August 2012

    Juneau, you will be glad (eventually) about having the port. That sucks about having the needle in overnight but I bet that isn't as bad as it sounds. Sending healing thoughts to you hope your pain improves.



    Mcook, If you havent already, go push your doctors about getting a surgery date. They usually like to do the surgery about four weeks after chemo. Its time. They are busy and sometimes things fall through the cracks. Start getting noisy.



    Wow what I wouldn't do for a trip away from here. Sign me up for that trip to Italy.



    Mimi, your story sounds almost exactly like mine. I had a fibroadenoma when I was 23 and was sure that the lump I started feeling in December was just that and didn't get worried at all. It was in the same exact spot. I finally got in for a mammo in late January and that's when my world changed, I got a BIRADs 4 on the mammo and They said there were some abnormal looking nodes. I knew right then that I had cancer, the biopsy confirmed it. Having cancer in the nodes is very scary. Unfortunately it puts us into a different category, the cancer has moved out of the breast. But take heart in knowing that even if it is in the nodes for you that it is very treatable. We don't want it there, and it means probably chemo and radiation but the chemo and the radiation really work. I am so sorry you are in this situation. We are here for you as you start this journey.



    Tina, I did the post op mammo because I had a positive margin and will need more surgery. My cancer is forming calcifications that they can see easily on mammo. The surgeon wanted to see if there were any calcs left behind for planning the next surgery. It is not otherwise common to have one so soon afterwards.



    Pinky, I wanted to do those feel good sessions too, the timing didn't work out. I am glad you did them. I think using what you learn there to enhance parts of your beauty while the hair and brows change is a great idea. Sorry to hear about your sons ordeal. The same thing happened to me when I was a medical student in San Fransico. What a mess.



    Aruba, the seroma feels like a hard knot under the incision. It gives me a lot of pressure when I put my arm down and is visibly swollen. When I got my mammo yesterday I told them about the trouble I was having and they ultrasounded it for me and confirmed that is what it was. I am looking forward to gettng it drained.



    Later ladies! Off to the surgeons yet again!

  • juneaubugg
    juneaubugg Member Posts: 951
    edited August 2012

    Tpolychron: thanks for easing my mind...



    I love all of you for sharing your experience, strength and hope do freely.



    xxoo

  • jpmomof3
    jpmomof3 Member Posts: 643
    edited August 2012

    Wow, they don't mess around here. My re excision is scheduled for tomorrow. Will hopefully get the seroma drained then too. Praying for clear margins this time...

  • Tazzy
    Tazzy Member Posts: 2,546
    edited August 2012

    Thinking of you for tomorrow jpmom.   Everything crossed for clear margins.   Least that doesn't give you too much time to think about it.

  • teeballmom
    teeballmom Member Posts: 322
    edited August 2012

    Jpmomof3:  will be thinking of you tomorrow!!

    Hoping everyone is doing great this week!

    Take care!

  • Whatashocker3
    Whatashocker3 Member Posts: 209
    edited August 2012

    Jpmomof3, positive thoughts for you tonight for clear margins. You have some good news coming down the road.

  • Soyaandpepper
    Soyaandpepper Member Posts: 368
    edited August 2012

    tina_jason-I felt really good after my first cardio! It was an hour of spin on Sunday and I did really good, was able to do the whole hour and the sweat was GOOD! Then last night I did 15 minutes of running for about 2 miles and that was really good as well. I made sure I was wearing sports bras with good supports.

    PinkyWl-Sorry about your son and the fire. Hope everything will work out in the long run!

    Dakota212-Thanks, I wish he warned me before hand!

    Tpolychron-Good to know that your experience was not bad and you feel fine after the port and chemo.

    jpmomof3-Praying for clear margins for you tomorrow.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Juneaubug...having the needles today was rather convenient. We just started. It stung a bit when they took the needle out, but nothing major. You can do this!!!!!



    Everyone...finished my first chemo today. I feel pretty good. But nurse said I won't feel nauseous until tonight and to take meds at dinner. My tummy is actually upset already. Should I wait or take my meds now. Thoughts? Not sure if it's anxiety or today's chemo. Thanks for the advice.

  • Whatashocker3
    Whatashocker3 Member Posts: 209
    edited August 2012

    Take the meds now before it gets worse. That is what the cancer centre always said.

  • Nkb
    Nkb Member Posts: 1,436
    edited August 2012

    Tpoly- I'm not sure which chemo you got today- was it AC? On my first AC which was infused around 10AM I started to feel "yucky" around 2:30PM and did fluids, graham crackers, part of a bar and then finally took Ativan around 4:30 since I thought I might puke. I repeated that when I woke up at 12:30 AM. I was also given decadron to take for the next two mornings after the infusion and zofran to take twice per day for 2 more days after the chemo with the instructions that I could take the zofran three times per day. I found zofran so constipating that I only used in twice daily. Although I felt yucky with the other three AC chemos I didn't need the Ativan as much.

    If you took a different chemo maybe someone else will chime in with their experience.

    Also take a walk, even if it is only around the block at a snails pace- it helped my nausea.



    You will feel better soon!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Thanks akb...I'm on AC. Started at 10:30 and I feel car sick if that makes sense. My dr only gave me zofran. I'm trying to hold out until dinner

  • Mini1
    Mini1 Member Posts: 1,836
    edited August 2012

    I just realized that I never added this to my favs. :-( Took awhile to get through everything.  You ladies totally rock, btw. Love the spirit.

  • jpmomof3
    jpmomof3 Member Posts: 643
    edited August 2012

    Thanks ladies! I am glad it's tomorrow, no time to get worried about it. I am taking some vitamin A. (Ambien) tonight to help me through the night.

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited August 2012

    Jpmom-

    Prayers and lots of them for clear margins.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    tpolychron - glad you made it through day one; good luck with the nightime and tomorrow. Will be thinking of you.

    jpmom - how fantastic that you don't have to wait at all. Hope that Ambien does the trick for you tonight and you get some rest. Here's to clear margins!!

    soyaandpepper - your excercise success is impressive and inspiring...

    tazzy - rest up and be kind to your body. The urge to do things is powerful but we have to allow for some healing time too!

    mccook - nice to hear from you. Glad you've gotten some time for "normalcy." Good luck getting that surgery date lined up!

    juneau - hope that cording eases up on you and you get a bit more comfy. Enjoy your City day (or if it was today - hope it was great). 

    As for me - got fill #2 today and am happy with how I'm starting to fill out a shirt a bit more. I will say though, that I felt the needle go in on the right side this time - deep in the muscle. Ouch! She said sometimes if the TE has shifted and the opening is far enough away from the incision site where the numbness all stems from - you can feel it a bit. But it was over soon enough and I was a bit bustier when all was said and done. No pain, no gain - right? Oh - and I finally got all my BRCA results back - negative, yeah!!! So now I just wait and pretend life is normal until i meet with the MO on the 17th.

    Hope you're all feeling good and get some peaceful rest tonight. Hugs to all!

  • Moonflwr912
    Moonflwr912 Member Posts: 6,856
    edited August 2012

    Jpmom, prayers, happy you got in so fast. Tpoly, hope the meds work on your nausea quickly. Ramols, happy you are, um, growing up! LOL Soy, I went to doctor today, visited my friends at work. And a bit of grocery shopping. I am WIPED! so count me in as impressed with your exercise. Tazzy, juneau,Mccook, hope you all heal well and get some rest. Dakota, mini, Nkb, and everyone, much love.

Categories