2012 sisters

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  • liefie
    liefie Member Posts: 2,440
    edited August 2012

    Lostinmo, it really sucks when things change like this, and one has to come to terms with yet another new reality. Then on the other hand, there is me who has been declared 'cured' last week, and I am struggling so hard to believe it. There's this little voice . . . . you all know what I mean. Cancer is a bitch.

    Jpmom, enjoy the car buying. We need to be exceptionally good to ourselves. If that means retail therapy, go for it!

    Tracy, you have received very good advice here. The walking every day is important. I did not do it enough because I thought I was too weak, but I just should have tried harder. Now I am going to have to pay a personal trainer to get me back into shape. Oh well, I'm currently not spending any money at the hairdresser, so I won't feel too guilty. Lol!

  • June56
    June56 Member Posts: 158
    edited August 2012

    Beth-In-TN: Welcome to another TN girl! Sorry you have had to join us, but this is the best place in the world to be. Women of like mind.....and boobs. I hope you can find the answers to your questions so that you can ease your mind a bit. Hugs to you!

  • liefie
    liefie Member Posts: 2,440
    edited August 2012

    Beth-in-Ten, I cannot give any advice on an IMLN as I did not have one, but welcome here. You will find encouragement and support here. Hopefully someone will come along soon who will have an answer for you about the ILMN.

    Tazzy, it's none of my business, and pardon my curiosity, but did you get a TE as well? If you don't want to discuss that, I will understand. Hope you are doing well.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    jpmom - great news about the surgery; fingers crossed for clear margins. And good for you about the car. I was proud that I splurged on an kinda expensive medical alert bracelet... I'm gonna have to take a page from your book! Wink

    lostinmo - sorry to hear unexpected news is coming your way. I don't know much about triple negative, except that I think I initially (at the time of my diagnosis) spoke to someone who was triple negative and she perhaps has to go for more frequent scans and checks now that she is out of treatments. But I don't know what type of cancer she had - might not have been IDC... Hopefully you'll get some answers soon. Big hugs!

    I am greatly enjoying being out of my house and at the office today - although my concentration level leaves a lot to be desired (obviously - as I am posting here). But I think this will be a tiring day by the time I get home, and I'll be happy to be cocooned in my home office for the rest of the week. 

  • liefie
    liefie Member Posts: 2,440
    edited August 2012

    Tina Jason, good for you on coloring your hair! If it makes you feel better, go for it. As for me, I decided to go grey. Had been struggling with the going-grey issue for a long time, because I had been coloring my hair for about 20 years. I did not know how to go about going grey, because I had dark hair. My husband and sons would not hear about grey either. The last few years I had to have my hair colored every three weeks because it grows so fast, and it was getting very expensive. I guess the decision to go grey has been made for me when I lost my hair, and I am actually relieved. My goal is an elegant bob - think Meryl Streep in The Devil wears Prada. My family will just have to deal with my 'blondness', and I will spend the money on a personal trainer. It is my hair and my choice, not theirs. Maybe a sexy new body will make up for the grey hair?

  • June56
    June56 Member Posts: 158
    edited August 2012

    Ramols: take it slow and easy today. Congrats on one giant step toward normal. I washed my hair on my own today and that thought crossed my mind. One step closer.



    Lostinmo: I think there is a discussion board on bco for triple neg. a girl in my support group is triple neg. she has mentioned that everyone in her family has some sort of cancer. If I remember, I will ask her some questions.

  • Soyaandpepper
    Soyaandpepper Member Posts: 368
    edited August 2012

    Beth-Welcome and sorry you have to be here but you came to the right place for support. 

    lostinmo-Sorry about the change in your receptors to Triple Negative,it sucks to be settling in your treatment and then finds out that it has changed. Regardless of the type, you're going to beat it. I know a lady who was TN as well and went through BMX and exchange and chemo and now she'll be coming up to her 5 year mark very soon. BIG ((((((((((((((HUG))))))))))))))))))))))

  • teeballmom
    teeballmom Member Posts: 322
    edited August 2012

    Welcome to everyone who is new here!  Wish I could individually welcome everyone, but I have a 6 and 4 year old next to me who keep asking if they can watch a cartoon on Hulu so I'm trying to hurry.  I know, but it means I get a little over an hour of quiet time for me, so I'm a little excited about that.

    Well.... this Wednesday is AC #3 for me.  I can hardly wait to get AC over with.  It'll be 3 down and 1 to go after Wednesday and I've already been scheduled for my 12 Taxol & Herceptin and my tentative graduation date for that is Nov 21, 2012.  I will continue Herceptin every 3 weeks after that for a year, but at least the weekly stuff will be over by then. I already see that faint light in the distance having that date now (and hopefully I don't have any infusion dates pushed back during that time), and hopefully during Christmas, I will be able to eat a tasty dinner.  Hoping that is the case with Thanksgiving, but since the 12th infusion is the day before, well....... you know.

    I am not going to miss the nasty taste in my mouth. DH went and purchased me some ginger ale last night because I just couldn't drink any more water.  So right now, it's all kinds of iced tea, ginger ale and the occassional snatch of grape juice from the 2 little guys in my life.  

    The hair is gone in patches on my head, and what's left is the little bit of fuzz from when my DH shaved my head again a couple of weeks ago.  Being Asian I have that coarse hair and it's like little needles on my head when I run my fingers over it.  My two little ones said that my hair was cutting them the other day when I rubbed it against their cheeks by accident. Ouch!!!

    Hoping everyone who is getting a treatment this week has minimal or non-existent SE's.  Take care everyone!!!
  • Nkb
    Nkb Member Posts: 1,436
    edited August 2012

    Teeballmom- congrats on getting to number 3 soon. Water tastes nasty to me also, but sparking soda does not for some reason. I bought a soda steam at BB&B and make it myself, so i dont have to lug the huge bottles home, i occasionally add an ounce or two of juice to give it flavor.

  • June56
    June56 Member Posts: 158
    edited August 2012

    How long after mx with TE did you rest up before light walking with sweating?(I live in TN, a sweat pronged area). It will be 3weeks this coming Wed and I am going crazy!!! The PS told me I could not sweat.

  • Tazzy
    Tazzy Member Posts: 2,546
    edited August 2012

    Lostinmo... sorry about your new dx. Check out the Triple negative forum.. calling all TN's. I will see you there. It means that our cancers cannot be blocked by hormones -yet. They are doing some great research work in this field. You may want to check out this website http://www.tnbcfoundation.org/

    Ramols: hope that you enjoyed your day back at work.

    Jpmom... happy you are OK... well more than OK - nice to have good news. More good news hopefully. Do let us know what car you decide on - good for you doing that - so exciting.

    Welcome Beth-in-Ten. Crapy you have to be here, but a great home to find yourself in. See message to Lost too about being a TN.

    Liefie... like you I coloured my hair for longer than I care to remember it is now coming back grey with black patches... how attractive eh? I am thinking I will see what the grey actually looks like before colouring again.

    Teeball... sending you good vibes for Wednesday tx - hang in there.. remember chemo kicks cancer's butt.

    Tracy... rinsing my mouth out after most meals with a solution of 1 tsp baking soda and cup warm water kept mouth sores at bay. Walking daily is also great advice.

    Juneau - I hope you get to love your hair soon.

    Sorry if I have missed anyone... I'm blaming these happy pills which makes a change from chemo brain Wink  I still feel as if I am gaining strength each and every day.  this morning I went into my garden and did some light weeding - it amazes me how we adjust and I can do so much more with my left hand than I ever thought. 

    I still feel the need to nap in the afternoon so do so.  I am being very kind to myself.

    Wishing you all minimal SE days with love and laughter.

    Take care

    Hugs to you all xxxxx

  • Tazzy
    Tazzy Member Posts: 2,546
    edited August 2012

    Did someone on this thread ask me a question about my surgery and recon?   If you did, can you repost as I thought I saw somthing, then was distracted and for the life of me cannot see anything now???   Guess these pain meds are pretty strong.. ha ha !!

  • Moonflwr912
    Moonflwr912 Member Posts: 6,856
    edited August 2012

    Good luck to all who are in the BGC today for the first time. Beth, sorry you have to be here. Tazzy, I am glad you are being good to yourself. Teeball, I could drink iced tea even when I hated the taste of everything else. Nkb, good idea on the soda stream, they have really come down on price too. Lomo, kind of strange to have your Dx change on you! gotta change your mindset to match, that's got to be hard. June, glad you could add one more thing you can do yourself. liefie, stay gray and see how it goes, you can always color later. Jpmom, have fun testdriving fun cars. If I've missed you, sorry, much love. I just found out they are no longer holding my job and I have to reapply when I do go back. Of course, just as I am getting to the point of actually being strong enough to actually go back. Sigh, it always happens that way. Oh well, I suspected it was going to happen, so I will get through it. Besides I have my TE replacement surgery next Monday, and won't be able to drive for at least a weak. I squeezed in my cardiac doctor appointment tomorrow, and pacemaker check, so one more thing to check off. Much love to all.

  • jpmomof3
    jpmomof3 Member Posts: 643
    edited August 2012

    Moonflwr. Sorry to hear about the job, hope its not too hard to get it back.



    Tee ball you will be fine for thanksgiving dinner, the taxol didn't bother my taste at all. Seems to be much less of a problem for most. Turkey day will be tasty!



    Ramols, glad you are back to work so soon. Hope it went well and not to tiring. Getting back to normal is a good thing.



    I am quite sore now. That mammogram roughed me up a bit. Very achey. I got my surgeons appointment moved up to tomorrow to get my seroma drained, it is really bothering me now, will also get the date for my next surgery earlier too.



    Best wishes all!

  • Nkb
    Nkb Member Posts: 1,436
    edited August 2012

    Moonflwr- is it legal to not hang onto your job while you are out on disability? I don't think it is legal in California! We once had someone out for a year with neck pain and kept paying all her benefits until she quit at the end of a year. Hope it works out for you.

  • Moonflwr912
    Moonflwr912 Member Posts: 6,856
    edited August 2012

    NKB, I HAVE EXHAUSTED FMLA leave, and discretionary leave is up to the supervisor. She had to move some second shift people up to cover me, and I don't think she wants to tell them to go back to second. And the job iis only protected for the 12 weeks of FMLA. And I am way past that. So, no it is legal. I have to reapply and only if there are openings will I get a job. The good thing is its corporate wide, the bad thing is the only openings are going to be pm shift, and maybe not on my floor. Oh well, I made it through a BMX, infection, renal failure, 4 other surgeries, chemo, and other fun minor things like constant diarrhea, I will make it through this to! LOL

  • jpmomof3
    jpmomof3 Member Posts: 643
    edited August 2012

    Wow moonflwr, that sounds like shit icing on a crap cake. Good luck with all that job stuff. Sorry you are having to deal with that on top of everything else.

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited August 2012

    Moonflwr~

    U r right. U will make it thru. U r very positive. I wish I could think like that all the time ;)

  • Moonflwr912
    Moonflwr912 Member Posts: 6,856
    edited August 2012

    Thanks JP, And Dakota, what makes you think I am positive ALL the time, um, I am sure there are a lot of people on these boards who could tell you otherwise! LOL! We all have down moments, that's why we come here. And mostly every one gets down on different days, and there are people who help pull you out of the mud. Just had a bad thought, Can you imagine tis board with all of us hitting bottom at once, wow! That would be LOUD! LOL. So, if you're feeling a bit down today, take my hand, even though I am not as up as normal, I can offer you what I got.! ((((Hugs))))))

  • Tazzy
    Tazzy Member Posts: 2,546
    edited August 2012

    Thinking of you moonflwr.   One door closes and another opens... who knows what opportunities this will offer up... although I did like jpmom's description of your situation.

  • Moonflwr912
    Moonflwr912 Member Posts: 6,856
    edited August 2012

    Tazzy, and JP, I didn't say, but I liked that description too!

  • Moonflwr912
    Moonflwr912 Member Posts: 6,856
    edited August 2012

    LOL, chemo brain! I just came in from a short errand. I was looking for my cane. I know I took it with me, so I went back to the car. Hmmm, not there. Looked all over the house, couldn't find it. Went out to the car to get my emergency cane, looked all over, still couldn't find it. I know it has to be in the car or house, cause I never left the car. So one more look through the kitchen and Lo and behold, it is hooked on the INSIDE of the pantry door. I never hang it in the pantry. Usually on the other side of the kitchen. Also I think the cats closed the pantry door just to confuse me. LOL. What a waste of 20 minutes. LOL.

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited August 2012

    Moonflwr~

    Ur right we all have our moments..... This was the third thing recently in my life that has been very negative. Even my dr called to say.... I don't even know what to say to you anymore. I am trying to be positive and think.... Ok everything happens in three's I am done now ,... Black cloud go away.... Maybe I should try the voodoo doll after all...lol... It has to get better.

  • Moonflwr912
    Moonflwr912 Member Posts: 6,856
    edited August 2012

    I like the sound of the voodoo doll, Dakota. LOL

  • Soyaandpepper
    Soyaandpepper Member Posts: 368
    edited August 2012

    Moomfler912-Sorry to hear about your job and hope everything works out for you when you're ready to go back to work! This cancer sucks all round. Good luck with exchange!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Moonflwr - sorry about the job. Jpmom said it best. But tazzy is right. There is a reason for everything if we look hard enough (or so I tell myself when the "why me" creeps up on me...).



    Tazzy - so glad you got out in your garden today. Good for you!



    Jpmom - good luck with that seroma and your surgery date.



    Dakota - hang in there!



    As for me - I'm tuckered out but so glad I pushed myself and went into the office. It felt good. Normal life is refreshing. Although I found myself looking at everyone I passed on the street and wondering if they have ever dealt with cancer. Odd... Anyhow - off to bed. Hugs to all!

  • Moonflwr912
    Moonflwr912 Member Posts: 6,856
    edited August 2012

    Thx, soy. But I am not ready for Exchange yet. They still have to replace my left TE that was removed for infection shortly before chemo. Almost 7 months ago. So, I will need fills in both TEs, then wait for the Exchange. And you are right, this cancer sucks.

  • Soyaandpepper
    Soyaandpepper Member Posts: 368
    edited August 2012
    Moonflwr912-Sorry I mis-understood about your exhange. So you're getting new TEfor left side put in next week? Did I get that right? Well, good luck with that surgery and hope that everything will turn out OK this time. Smile
  • mimi1973
    mimi1973 Member Posts: 2
    edited August 2012

    Hello, heading in on Wednesday for my 3rd chemo, I seem to be handling it well although mentally I'm not doing so good.  I found my lump over a year ago and dismissed it as another fibroadanoma, something that runs in the women in my family, not cancer not one person on either side.  I told my doctor on my bi yearly physical and he said he was certain it was nothing to worry about!!! Wrong!!!!!!

     My surgeon recommended chemo before surgery(mastectomy) because of the size of the cancer. What worries me the most is lymp node involvement.  My nodes on ultra sound "appear uninvolved".  I wont know till after chemo is done and surgery.  I'm just scared of everything right now

  • Soyaandpepper
    Soyaandpepper Member Posts: 368
    edited August 2012
    So I started back all forms of cardio (Running and spinning), got cleared by my doctor and it felt really good today in the gym. It made me feel somewhat like it was before this stupid cancer told over my life. I went for my 1st ovaries suppression monthly injection last Friday and ouch!!!!!! He had to give me a local before the injection in my stomach area, I thought it was going to be like a flu shot but it wasn't and after he put the needle of the local in, he moved it around a little bit which I felt every bit of! He could've warned me about the local, I would've mentally prepared for it. And now uptil today, there's still a BIG bruise by my stomach, so much for the beach! Have to time it every month and NOT looking forward to it now that I know what it entails. I took a pic of my bruise to show him when next I go for the injection! Its even worst than my 2 biopsies I did! Yell

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