Calling all TNs

When you refer to bone scan, are you talking about the bone density test or the one where they use an IV with some kind of chemical that glows in the dark?  I've had bone density test within last year, but not every the bone scan.  Can someone please clarify this for me.  I thought I've had every test known to man, but not what I think is called bone scan.  Jan

Hugs to the grieving, courage to those facing the unknown, and hi-5s  to those who are completing a treatment stage.  We are in this together.

Hello all, long time no post. In my dilemma of not knowing whether to have more chemo or not, got some really great news. It turns out that my old onc accidentally put that I had a mx on my records when I actually had a Lx, which means I need rads not more chemo. My new onc agrees with me in that I've had more than enough chemo and agrees that rads would be the next step! Thank u all for your support through the confusion!

I too am having a really hard time lately.  I am just starting to process all of this crap I think and I'm TERRIFIED that it's going to come back and that will be it for me.  I am really scared and just don't know anymore.  I hate that my fate is in hands of someone else. It's really making me nuts.

Thanks for the news of blondelawyer. It just breaks my heart.

Good evening ladies!  Question for ya'll - almost 4 weeks PFC and on my 5th radiation, I still have numb toes and a little numbness in my fingers.  I really thought this would start to get better after I finished chemo.  Anyone still have numbess after they finished?  When I mentioned this to my MO around my 4th treatment, he said it would go away.  Guess I should have asked when!

Hope everyone is having a lovely evening!

Onvacation - a lot of women have some neuropathy during and after chemo.  And it can take a few months before it goes away.  Some people lose it within a few weeks, for some it takes longer.  Hang in there!

Titan - that's funny about the divorces from 50 Shades!  Our local news channels have done stories on the upcoming baby boom!

So sorry to her about Blondelawyer.

Hugs to all intreatment.  Great photos, Tooky!  Good luck Tazzy.

Started the best week of my life today.....My 2 year old grandson is staying with DH and me for an entire week.  I don't think I'll be posting much but will try to keep reading just to keep up. 

Cocker/Annie,

I was given the same 50/50 odds but for different reasons - mine was because the neoadjuvant chemo didn't reduce my cancer much and I still had 2 positive nodes after chemo.  I am a little more than a year out of surgery and 543 days out from diagnosis - almost 1.5 years. 

I read a great quote from Michael J Fox (excerpt from his book in Reader's Digest): Writing about Parkinson's - .."So let me make this suggestion. Don't spend a lot of time imagining the worst-case scenario.  It rarely goes down as you imagine it will, and if by some fluke it does, you will have lived it twice."  I've been thinking quite a bit about this advice lately as I've been very anxious about recurrence.  I take tamoxifen - of course 2 out of 3 oncs think it might help but the 3rd doesn't - and I've had some side effects lately such as dizziness and joint pain.  That's all it takes for me to go to the dark side and stay there. What's good, though, is it does get my butt outside walking to try to prevent recurrence -

Onvacation, my onc told me the numb places closest to the brain recover faster than the extremities- for example, I had facial numbness with my chemo and it went away very quickly afterward.  I still have a numb index finger on my left hand - it developed during chemo but onc actually blames it on arthritis in my neck.  The onc said existing problems like that can get exacerbated during chemo.  Also - he told me that often about six months out from the last chemo there is an increase in general inflammation of the joints, etc. - the chemo suppresses it for a time and then it flares up for several months and then subsides. A few days recently due to my workload, I have been at my desk almost non stop for close to 16 hours - when I get up to go to the bathroom, I walk like I am 90 years old- my feet and back hurt so bad.  I am also like that in the mornings.  I have started stretching my calf muscles aggressively and even do stretches in bed before I hit the ground - it seems to have helped quite a bit. Eventually I want to start doing yoga or something other than just walking but I have not really had the time to start.

Hi ladies

You know on reflection 50% is not too bad cause really it's still a - might or might not situation (recurrence). If they said I had a 70% chance it is still only a - might or might not situation. There is only One who can decide when my time is up and it aint no doctor so I am going to do everything I want to do and see what happens.

So sorry to hear about Blondelawyer. Very very sad for her family.

NavyMom - lucky girl. You enjoy that week with your grandson it is one of the best things that can happen to you.

Onvacation/Jan69- I still have the tingling and numbness in my hands. Just cant seem to get rid of it so i hope it eventually goes.

Titan - you just put that book down.  We don't want you getting pregnant lol.  If you can't sleep all night now you won't then.

Naan - great news no more chemo yay.

Christina - thank you for that article it was great news. Michael J Fox was very wise and very right to say that.

Thinking of you Tazzy and hoping all is well. Thinking of Hope and Inmate. Hope you are both having a good day. 

Have a good day ladies.  Kick up your heels if you can and have a ball. Annie

Sorry to intrude but wanted to let you know that Jenn3 passed away on Sunday.  I got a message from her best friend via facebook late last night. 

I am so sorry.

Thanks everyminute for the update on Jenn. My deepeest condolences to Jenn's family and friends.

Thanks for the update on Jenn3.  I had the privilege of meeting her in person when on vacation with my family in New Orleans last year.  She was lovely and went out of her way to help us nagivate our way around her city....even bringing Saints mardi gras beads to our hotel for my 12-year-old. This is indeed sad. RIP Jenn.

This thread seems to get hit hard when ever it gets hit.  I did not communicate much with Jenn but remember her well.  She seemed like such a nice person.  She was dealt a horrible hand with this disease but always stayed positive and true to herself.  I was worried about her since she had not been around lately, but am still shocked and very very sad.  

So sad about Jenn.  Another star in the sky.

Man cancer really sucks.  So sad for the loss of these ladies.