Calling all TNs

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  • OBXK
    OBXK Member Posts: 791
    edited July 2012

    Hi Lovies!

    Lory - how the smoke is better and that you get great CT results.

    Minxie - woo hoo on finishing rads.

    Loretta - great news!

    Inmate - damn and blast!!! Loved your description of your nephew as having a cat on his head.

    Hope - so glad you checked in. Wow, what a lot you have through!

    I hope you get great results. Rest well.

    KS - hope your labs come back with all good news! Sorry you didn't get felt up. And is it just me, but whenever I see someone in a white coat, I almost take my shirt off :0



    I am 14 months post treatment and I just can't seem to get my energy back. Bloodwork is good, thyroid good... I'm in bed 14 hours a day. I hope I get my grove back soon!

    Decided against camping in Maine, booked a room. I just don't think my old bones could take it, if it rained.

    Wishing everyone sweet dreams...

    PS - I emailed Annie and asked her to check in.



  • onvacation
    onvacation Member Posts: 1,344
    edited July 2012

    Hope - wow, you have been through a lot - thanks for checking in, sending healing vibes your way!

    Inmate -FC!  you will kick it's ass this time!  Oh such a cute picture! 

  • Luah
    Luah Member Posts: 1,541
    edited July 2012

    I've been missing HeidiToo too. Hope her cough and aches cleared up finally. Maybe she's been busy with her horses, dogs and other critters....  

  • Hope60
    Hope60 Member Posts: 223
    edited July 2012

    Hi again ladies - I should be sleeping but I can't . Maybe I have too much to process or something.  My brain still feels like swiss cheese but i hope writing will help.i was so sorry to have to post my news here because I didn't want to scare anyone. I just never thought I would be in this position. Really I ran to the doc with every ache and pain....but nobody ever warned me about brain mets! So July 4 weekend I was at the beach with friends and I started feeling like my right arm was slightly weeker than my left, and everyone was laughing at me. Left the beach a day early because it was too hot, not unusual for me. By the time I giot home I was walking a little funny on my left foot but it never occurred to me that it was an onc emergency.  Went to my internist and she sent me over for an mri, and the next thing I knew I was in the ER with a neurosurgeon telling me I had "many" mets and he was going in asap to get a big one close to the surface. Then spent a few days in the neuro unit and then rehab and now on to brain radiation. It's almost too much to take in!Can I still post here among friends or sholud I move over to the mets foruum? Like I said I don't want to freak anyone out! Things arent making much sense yet but Inmate did  read something about new skin mets? Crap! And is  Cocker mia??More crap...need that humor about now! Well I think its bedtime...goodnite all thanks for istening and stay well. More tomorrow if I can.

  • inmate4232010
    inmate4232010 Member Posts: 310
    edited July 2012

    Oh Hope honey, I am so sorry.  This disease just sneaks up on ya.  Just when you think you can relax a bit....BAM!  Don't you dare leave us for the mets forum.  Say it with me....Hell no, we won't go!  This is your family and we want to care for you like a loving family should.

    Sleep tight my dear.  Love to you. 

  • OBXK
    OBXK Member Posts: 791
    edited July 2012

    Hope - don't jump ship! We love having you here! We can take it. My girlfriend had brain mets about 8 years ago. Before going to see her the day after her surgery, my dad, who was a MD, warned me that she may not be able to walk or her speech may be off. I walked in, she was sitting up in bed, visiting with friends and begged me to go buy her a cheeseburger - I was gobsmacked! She had rads and has been doing well, ever since.

  • bak94
    bak94 Member Posts: 1,846
    edited July 2012

    Hope-So glad you are posting here!!! Sorry you have to go through this, but we are here for you. I am so glad your treatment is moving forward and it better kick cancer a$$.

    Inmate-You and your nephew are both so beautiful! I can't believe you have to start chemo again. This cancer crap just plain sucks.

    OBXK-What a wonderful story about your friend, so glad she is doing so well!

    I have my 6 month bone scan next week. Whaaaa! I don't wanna do it!!!!!! I guess it is for my own good. If there is something going on it is going on whether I have a scan or not, right? Better to know than not know I guess. Sometimes I just want to stick my head in the sand and not go through the stressful scans.

    We bought a new car! I was tired of driving our suv gas guzzler, so we got a cute little fun economy car that is great on gas, it took a lil over $30 to fill er up instead of $85 like my other car. It is so fun to drive, hope I don't get a speeding ticket, as it is a turbo, and it is quick! At least it kept my mind off my upcoming scans for a bit...

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited July 2012
  • borntosurvive
    borntosurvive Member Posts: 213
    edited July 2012

    Hope: don't go.  Please keep us updated.  It is scary to hear that people are suffering but it could be any of us so please stay.  You're an inspiration to all of us xoxo

  • christina1961
    christina1961 Member Posts: 736
    edited July 2012

    Hope, stay here with us- or better yet, post in both forums because I also don't want you to miss any information you might find useful in the brain mets forum. I am so sorry you are dealing with this.

  • christina1961
    christina1961 Member Posts: 736
    edited July 2012

    Karen, What part of Maine do you go to?  I went to Baxter State Park when I was 19 and have never forgotten it.  I still want to go back but it is such a long drive from Tennessee. It was the most beautiful place I have ever seen.

  • Fighter_34
    Fighter_34 Member Posts: 834
    edited July 2012

    Hope60-I am over here in tears. Our fears just never seem to stop. I feel sometimes that we live on a roller coaster. Please don't stop posting!!! Stay right here with us. Life is just not FAIR and I HATE that we have live our lives this way!!

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited July 2012

    (((Hope))) we're here for love and support, the brain mets sisters can help with specifics about treatment, side effects, etc.  If you can handle it, post in both forums.

    Karen - coming from NH, I have camped in Maine dozens of times.  Where are you going?  One of our most favorite vacations was Acadia National Park in Bar Harbor.  We also like camping on the ocean - there's a great campground called Hermit Island on Casco Bay - just spectacular!  Here's a link to one of our favorite areas of this campground:

    http://www.hermitisland.com/campsitesbyroad/joeshead/12njoeshead.html

  • LM50
    LM50 Member Posts: 18
    edited July 2012
    Hope60:  Welcome back.  You can tell if you scroll through the posts that you missed that we were all thinking about you and hoping for the best for you.  I am so sorry this happened to you.  You know you can always come to this group for love and suppport.  All the best.
  • OBXK
    OBXK Member Posts: 791
    edited July 2012

    We stay in Boothbay, ME. There is a nice campground in nearby Southport, which has tent sites with water & power, but they were booked on my dates, the other campground was primitive.

    I just can't take the chance of it being in the 50's at night along with rain. My old bones would hurt too much.

  • Tazzy
    Tazzy Member Posts: 2,546
    edited July 2012

    Hope - thinking of you and sending hugs.   Happy you will still post here.

    So much chatting going on I am not even going to try and catch up - but wish you all the best and thinking of you.

    Finally have my surgery date of August 2nd - one week away.

    To all those MIA - please check in soon.

  • DorMac
    DorMac Member Posts: 155
    edited July 2012
    On the first day, God created the dog and said, "Sit all day by the door of your house and bark at anyone who comes in or walks past. For this, I will give you a life span of twenty years."

    The dog said, "That's a long time to be barking. How about only ten years and I'll give you back the other ten?"

    So God saw it was good.

    On the second day, God created the monkey and said, "Entertain people, do tricks, and make them laugh. For this, I'll give you a twenty-year life span."

    The monkey said, "Monkey tricks for twenty years? That's a pretty long time to perform. How about I give you back ten like the dog did?"

    And God, again saw it was good.

    On the third day, God created the cow and said, "You must go into the field with the farmer all day long and suffer under the sun, have calves and give milk to support the farmer's family. For this, I will give you a life span of sixty years."

    The cow said, "That's kind of a tough life you want me to live for sixty years. How about twenty and I'll give b ack the other forty?"

    And God agreed it was good.

    On the fourth day, God created humans and said, "Eat, sleep, play, marry and enjoy your life. For this, I'll give you twenty years."

    But the human said, "Only twenty years? Could you possibly give me my twenty, the forty the cow gave back, the ten the monkey gave back, and the ten the dog gave back; that makes eighty, okay?"

    "Okay," said God. "You asked for it.."

    So that is why for our first twenty years, we eat, sleep, play and enjoy ourselves. For the next forty years, we slave in the sun to support our family.. For the next ten years, we do monkey tricks to entertain the grandchildren. And for the last ten years, we sit on the front porch and bark at everyone.

    Life has now been explained to you.

    There is no need to thank me for this valuable information. I'm doing it as a public service. If you are looking for me I will be on the front porch.

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited July 2012
  • Tazzy
    Tazzy Member Posts: 2,546
    edited July 2012

    ha ha haha.... great joke.  Thanks for the explanation.

  • borntosurvive
    borntosurvive Member Posts: 213
    edited July 2012
    Good luck with your surgery Tazzy.  What are you having done?  Sorry if you posted that already, I can't always keep up with our chatty group.  Wink
  • mags20487
    mags20487 Member Posts: 1,591
    edited July 2012

    where is our beloved Cocker Spaniel???  We miss you love

    Maggie

  • Tazzy
    Tazzy Member Posts: 2,546
    edited July 2012
    Hi Born... I am having mx to righty, SNB and ALND.  SNB is for research purposes only - they are taking my nodes (not sure how many yet - BS estimates between 10 and 20) regardless Cry.   I was hoping for an immediate recon but BS advised against it as I have a high % rate of recurrence.CryCry
  • TifJ
    TifJ Member Posts: 1,568
    edited July 2012

    Was Cocker starting rads this week? I know she had to go away during the week to get this done- perhaps she doesn't have internet access while she is away? I sure hope that's all it is!

  • minxie
    minxie Member Posts: 484
    edited July 2012

    Inmate - I'm so sorry to hear about the latest skin mets diagnosis. Hope your next chemo kicks this cancer's butt - you've been through enough.

    wrssmith2x - as far as what I had to endure for this local recurrence... basically all I've done was lumpectomy, SNB and rads. The surgeon wanted to be sure she got good margins, though, so I have a huge scar about 5 inches long on the underside of my breast. I did 28 days of rads, 3 of them boosts on the scar, and that whole area is pretty agonizing right now - burned, blistered, open skin plus pain in the ribs. Strange but most of these bad SEs kicked in after rads were done.

    And now the only thing left to do is reconstruct this breast, for the second time, once it's healed. I've decided against further chemo since both my onc and the specialist I consulted can't give me any conclusive data on if any of them help with a strictly local recurrence. I am going to do Metformin, and Letrozole (sp?) since I had 1% ER+.

    Emotionally... I am OK. When I first got the news of the recurrence I was crying, screaming, not eating, throwing up, thinking suicidal thoughts because I knew I couldn't go through it again. I think not having to do chemo once more is what's kept me sane. I am better mentally now. I enjoyed my summer and my STD from work, in spite of the daily rads TX. Got to spend lots of time with my kids, swim, rest, and did neat little day trips like caving and tree climbing. 

    I must confess to taking a lot of drugs, though, to try and keep my mind in a happy place, because once that fear works its way back in I fall apart in a very bad way.

    I am very much in the mindset of trying to find beauty and happiness in the little things around me... the smell of my son's hair, sunflowers blooming in my garden, gorgeous clouds in the sky... because if I thought life was fragile before the recurrence, well now I feel like I'm hanging on by a thread.

    Hang in there, ladies, and we'll keep pushing our way through this together!

  • NavyMom
    NavyMom Member Posts: 1,099
    edited July 2012

    What a heartfelt post, Minxie.  Read it twice.

    Feeling blue today.  My navy son was due to come home in August.  His cheif canceled ALL time off for the entire squadron until further notice.  They are doing pre-depolyment inspections and he is putting in 12 to 14 hr shifts.  :(  

    Sending love and hugs to all.

    Gonna send out a search party for those MIA girls.

  • onvacation
    onvacation Member Posts: 1,344
    edited July 2012

    Hope - ((((hugs))))))

    Tazzy - woohoo to surgery date!

    love this forum, such supportive people

    Hope cocker is ok! 

  • bak94
    bak94 Member Posts: 1,846
    edited July 2012

    Oh, Navymom, that is so disappointing. I really hope they don't keep him too much longer. It sounds like tough shifts, I am sure he needs a break and wants to come home to see you.

    Minxie, I get what you are saying. Once is bad, then twice it's like oh crap, this stuff is serious, I better have fun and enjoy every moment I can while I am here!

    Hi TifJ! I hope you are right, cs just can't visit with us at the moment.

    Tazzy-I had the same news as you, have to wait for reconstruction. I wanted immediate reconstruction also. I have to wait a year because I had rads, now I am thinking I may wait a bit longer, just don't feel like I will be ready for surgery anytime soon.

    Sending love to all!

  • TifJ
    TifJ Member Posts: 1,568
    edited July 2012

    Good to hear from you Bak- how are you feeling?

  • Tazzy
    Tazzy Member Posts: 2,546
    edited July 2012

    Navymom.. that news sucks.  hope you get to see your DS soon.

    Bak.. Bs told me at least a year - I was so pissed at first...now I have my date and will only be in hospital overnight then to home comforts, its OK.  

    Think I've been in a bit of denial about my surgery.  Last chemo was June and although I knew that surgery was next, without a definite date I've been able to not think too much...now reality has hit again and yes I have cancer and yes I need more tx and I've been a real tear drop tilly today.  I know its a good thing to have my surgery... I mean it will get this bloody thing out of me - but I dunno I am really nervous now and I hate this pissing disease.

    Anyway enough ranting and whining - I'm off to have a beer while I can Smile

    Wishing each and every one of you a peaceful evening.

  • browerl
    browerl Member Posts: 126
    edited July 2012

    I must say you ladies impress me, the way you call each other out.  Every since I have started chemo I have a real hard time just focusing long enough to read all the post let a lone who said what.  You ladies rock and if I have not said it to each of you I would like to now THANK YOU!

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