Starting Chemo July 2012

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  • FeelingtheMagic
    FeelingtheMagic Member Posts: 155
    edited July 2012

    Round two.. being honest. Round 2. Day 6.  Yay for anti-nausea pills and sleep. Perking up after a couple of not so fun days.  but still do-able. All food and drinks taste awful.  Blatantly honest.. runs and hemorrhoids, but this time mouth isn't as sore, heart isn't racing as much, and I'm sleeping well. (I think that's the anti-nausea pills whom I currently am completely in love with) (Yes, Sue49, this from the anti-med gal of the past) 

    So my thoughts right now.. who knows what to expect, so have no expectations, honor ourselves with questions like "what do I need right now?"  "What would make me feel good?"  and ask for help to make those things happen if needed. You and I deserve whatever it takes to heal, because we rock, right?

  • virginiab
    virginiab Member Posts: 205
    edited July 2012

    Feeling blah, constipated, belching like crazy -- three days after my first chemo. I looked up the Zofran I'm taking for nausea and see that it suppresses serotonin -- well, that certainly explains the blah feeling! I couldn't even manage a walk today. Ugh. I hope tomorrow is easier!

  • _Ann_
    _Ann_ Member Posts: 769
    edited July 2012

    Hi, just checking in, this thread's gone kind of quiet, I hope that means everyone is resting or enjoying their weekend.  I'm still feeling well, just a bit of fatigue.   I discovered that if I let up on the fluid intake I get bladder pain, so I've been swilling the fluid nonstop again.  Plain water is not good right now so I add a quarter glass or less of ginger ale or juice.  I got sick to death of the taste of sweet liquid so I tried unsweetened 100% cranberry juice as my water-addition instead.  It's a nice break from sweet, and it's so concentrated I don't need to use much.

  • Lifeonitsside
    Lifeonitsside Member Posts: 250
    edited July 2012

    Day three after my cheno and the only real SE's I'm having are fatigue and bad bone ache. But it's tolerable, just frustrating. Tried to teach two art classes today but only managed to get through one. Been basically sleeping all day. Getting lots of good advice from a friend who's gone through this before me. Hoping tomorrow is better but really can't complain. Expected a lot worse.



    Sending love to the rest of you.

  • juneaubugg
    juneaubugg Member Posts: 951
    edited July 2012

    Can anyone tell me what their Oncotype and if there was even an option?



    I have Crohns Disease and ACx4 will be really tough on it. I'm starting to lean back toward not doing, chemo. I'm scheduled to start Thursday .

  • curveball
    curveball Member Posts: 3,040
    edited July 2012

    @juneaubugg, my oncotype score is 28. For those with clear nodes, that is close to the top of the gray area where benefit of chemo is uncertain. I did have an option, but since I had a 1 mm micromet in one sentinel node, I decided to do chemo, and started 6 months of CMF last week. Have you asked your oncologist about other options? Maybe a different chemo regimen would be appropriate for you and not so tough on your Crohn's Disease.

  • PinkyWI
    PinkyWI Member Posts: 73
    edited July 2012

    Hello all you lovely ladies!  I will be starting chemo this Thursday, 7/26, and am getting quite anxious.  I've only read the first two pages of this thread but wanted to join in -- now I will go back to read the other 11 pages.  I think I am as prepared as I can be but am getting quite concerned about keeping up with my house, laundry etc.  I am unemployed so I do not have a job to go to like some of you, and my two sons are 31 and 23 (on the 26th, what a birthday gift!) so I do not have small children to care for either.  My husband has turned out to be a rock for me but he is battling his own demons with prostate cancer -- doing active surveillance.  So, his plate is quite full.  He also works full time and needs to continue to do so for the insurance. 

    See look!  I'm already rambling.  Maybe some of my questions will be answered in the pages I have left to read.  

    Anyway,  good luck to each and every one of you!  Talk to you soon!

  • Moonwillow1010
    Moonwillow1010 Member Posts: 25
    edited July 2012

    Junebug...my onco score was also 28 doctor said chemo would drop my recurrence percentage down 13%. I am currently on day 11 post first of four treatments of T/C.

    PinkyWI...I am not lessening the treatment whatsoever, but I found and I've read on here that the hype of the treatment is a lot easier to deal with once you get in there. It's more hype than hurt. Just remember to drink at least a gallon of water the day before, the day of, and at least the day after. It seemed to have made it a lot easier for me. Hang in there sister! Don't sweat the small stuff...like house cleaning, laundry etc. It will manage to get done. Spend your precious energy thinking positive and getting well!

    Hope everyone has a manageable and positive attitude day! God bless... 

  • boobzilla
    boobzilla Member Posts: 58
    edited July 2012

    Hey guys-4 days out from  1st treatment. 1st few days I was nauseus but Sancuso patch and hydration + steroids really helped-no reversing. Yesterday was my last day of steroids and I am relieved as they made my ankles swell and I was very jittery. However, I have found tricking my water with slicing any kind of fresh fruit, lemon slices, and lacing in some Getorade, low sugar apple juice, or white grape juice has really helped me get more hydration. I just make pitchers of it with ice, or let it get it warm a bit.  Today (day 4) I feel achy and very tired (a bit weird as I am 36 and ordinarily very active), but eating small meals with protein, carbs and as much nutrious food as possible has really helped me. In addition, my Allegra is keeping the bone pain at bay.  Once in a while I just put on my MP3 player and take a few walks around the house, just to get movement-and only for a few minutes. Also, doing some memory exercises and other 'brain' intensive things, to the extend that you can, really helps me. I am pretty wiped out physically, but trying to stay positive-good luck everyone-we can do this-see the big picture and stay positive!

  • swimmom01
    swimmom01 Member Posts: 58
    edited July 2012

    Hi-Day 5 from my first taxotere, Carboplatin and herceptin. All in all it was doable, I kept waiting for the ceiling to fall but it didn't. So far the worst has to be the major headache, still fighting that. The day after was super, I was able to go see my Daughter swim at the stat swim meet. Then the shot kicked in late Friday and Saturday. Those days are a blur of sleeping and pain but I made it through by taking my meds and lots of fluids. There is light at the end and today I have more energy just wish the hradache would stop but I have a call in to the MO to see what if anything I can do. I know everyone is different and so will be the SE best of luck to all.

    One question, I have been told 2 weeks from first treatment hair will really starting coming out. Is it 2 weeks from initial treatment or the actual 2nd treatment. Just want to be prepared. Thank you all for sharing, I love to read your journeys and will add when I can.

  • mamabr
    mamabr Member Posts: 83
    edited July 2012

    Woke up this morning feeling super anxious.  Felt pretty good over the weekend, only lingering se was taste, but I know with upcoming 2nd treatment, I am going to be knocked down again. I am just dreading the rollercoaster. I'll do something positive to try and get my mind off it all. Thanks and have a peaceful week.

  • CityFi
    CityFi Member Posts: 95
    edited July 2012

    Anyone else suffering from a runny nose and watery eyes? I've been so grateful to have been tolerating chemo very well, but this particular side effect has me very distraught because my eye burns. If it were just running, I'd wipe and go, but it's uncomfortable and make it difficult to see, read, write, etc. and that's what has me incredibly frustrated and emotional. Thanks for induldging my vent. 

    Oh, and I noticed a day or two ago that my tastes buds have dulled. Food is blander. But then again, with these damned steriod-induced carb cravings, that might be a blessing!   

    Last note: only my left eye and nostril are running - the side where I had the tumor!  

  • virginiab
    virginiab Member Posts: 205
    edited July 2012

    CityFi--

    I don't know about other drugs but I know the nuse explained that teary eyes were a common side effect of Taxotere.

    I hope you bounce back pretty fast.

  • Lifeonitsside
    Lifeonitsside Member Posts: 250
    edited July 2012

    Took myself out to my favorite coffee shop to try and draw and get myself back to some semblance of normal. Enjoying spending the morning in the shade, kicking back, relaxing.

  • mamabr
    mamabr Member Posts: 83
    edited July 2012

    Coffee sounds so good! I am still wasting my day away, but coffee is a good idea. 

  • _Ann_
    _Ann_ Member Posts: 769
    edited July 2012

    mamabr, I feel the same way.  Just bouncing back and it's discouraging to think of 3 more times.  But on the other hand, we survived the first one, so we can do it again, right?

    PinkyWI, I've been able to keep up with chores pretty well.  I'm also working half time.  The hubby is helping out, but I still have several hours of energy each day.  I'd say I'm 75% of what I was.  You can make up the difference by prioritizing.  Just postpone stuff that doesn't need to be done yet.  You can also drop any non-essential stuff.  I quit one hobby I used to do every Sunday afternoon.  Just don't have the time to spare.  Also, take advantage when friends and family offer to help.  Ask them to come over and help you clean or do laundry or whatever you need.  They may be glad to have something to do to for you now.

  • PaEaglesFan
    PaEaglesFan Member Posts: 277
    edited July 2012
    Hi gals.  I had my first round of Taxotere/Cytoxan on 7/3 and going for #2 tomorrow.  Yay! I will be halfway home!  I'm in one of the other SE groups but so glad to find this one as we are more on the same schedule.  I had my lumpectomy in May and it went very well as she was able to remove it all and get clear margins all around and no lymph nodes were involved.  
    When I received the diagnosis, no one said a word about chemo then.  It was Lumpectomy and rads and you'll be fine.  And I fell for it.  pffffft.  Now here I am 3 months later and while I no longer have cancer, I no longer have hair either!  (Or tastebuds)  
    Has anyone else tired of the 'cheerleaders' in your life telling you that "You're gonna be ok"?  I am having such a Debbie Downer Day today I want to growl at everyone. I'm sure it's the anticipation of #2 tomorrow.  It might also be that I was dog-tired all weekend and wanted to do nothing but watch the Food Network and nap the whole time.  And I felt guilty doing that WHY??  Oh, yeah... it was my baby's 20th birthday on Saturday.  I did manage to make him a wonderful supper of shrimp fettucine which everyone assured me tasted wonderful.  Not even birthday cake tasted good.  But Sunday was a ME day.  I finally made pancakes for supper.  Another blah meal for me.  You would think this would be a great motivator for weight loss, but oh noooooo.  It seems like I'm always hungry now!  (At least that's what my growling stomach tells me.)
    So sorry to be such a grouch in my 1st posting here, but I KNOW you all understand because we are all in the same boat together.  
  • CityFi
    CityFi Member Posts: 95
    edited July 2012

    Lifeonitsside, you're my shero. Just had to say that. Although I appreciate every posts, yours seem to resonate particularly strong with me. 

    PAEaglesfan, as someone who is usually quite a trooper about this experience, I, too, got to the point where I had to tell folks, "Yeah, that's not helpful." They really say it for themselves, you know.  I finally explained it to my best friend, and doll that she is, she has put others on notice. "Before you tell Sofia she's going to be OK, first acknowledge her struggle even if she seems like she's taking it all in stride." I want people to tell me I'm going to be OK. I want them to believe it. There may be a day when I doubt it and most need to hear it. That said, I also want and need folks to acknowledge that no matter how stiff my upper lip, this s@#t is hard. We're not fighting a bad flu here! 

    virginiab, thank you so much. I'm feeling much better. My hope is that this won't be an ongoing SE simply because it does interfere with my quality of life as someone who loves to read and writes for a living. 

  • Lifeonitsside
    Lifeonitsside Member Posts: 250
    edited July 2012

    Aw, CityFi, I'm flattered! I'm glad I resonate with you. I hope we all resonate for positive things!



    I love the way my amazing BF handled the whole "you're gonna be all right" thing. I had a big break down with him last Monday and he said the tried and true, you're gonna be all right, and I kind of snapped at him. Then he stopped and said, "It's gonna be awful and you're gonna be sick and that's terrible. And I realize that. But you've been through so much more, Midlife, and while it's not gonna be easy, you'll come out healthy and better after all of the shit." That's what I needed to hear. I wish people could acknowledge how tough the journey is but I think they're afraid to scare us more by saying, dude, it's gonna suck. But sometimes, we need that acknowledgement.

  • SusanHG123
    SusanHG123 Member Posts: 414
    edited July 2012

    Joined the new group as New and Terrified a few days ago. Still terrified. In a 72 hour period I got my diagnosis, took a new job, and found out $&%^3 of a husband had a match.com site-was dating-and this week with a new friend. 

    Port placed today. MUGA tomorrow. Chemo Thursday or Friday with adriamycin and Cytoxan dose dense for 8  cycles then 8 dose dense 8 cycles of Taxotere, them surgery, the 33 rounds of radiation, then maybe reconstruction. Or not. Wanting to connect with new chemo group. Am very new @ this. Fingertip lump found mid to late May. Always a lumpy person-so no concerns. Grew. Cut down on coffee. Mammo June 25 was 3x3 no mets. Went for week of work-up. 4.5x5 9 July with fingers and toes and mets. 6x6 13 July. Moving right along....

    Looking for friends  

  • Moonwillow1010
    Moonwillow1010 Member Posts: 25
    edited July 2012

    Welcome SusanHG123...plenty of friendly people here. Hugs and here's to you having a great day and treatment with little to no s/e. Hang in there sunshine!

  • sammy0345
    sammy0345 Member Posts: 10
    edited July 2012

    My husband started chemo on July 11th and di great the first couple days except for the reflux/heartburn but then on day 3/4 extreme bone and muscle pain, got that under control but day 6 got a bowel infection and spent 5 days isolation in the hospital with severe diarrhea, vomitting and pain.....hopefully the next one goes smoother.

  • stayinhappy
    stayinhappy Member Posts: 42
    edited July 2012

    I had my first TC treatment on Wednesday, 7/18.  I am back to my normal self today.  So thankful!  I didn't have any adverse reactions and tolerated it very well. I have worked each day since, though I did leave early due to fatigue Friday.  It went much better than I feared.  I felt tired and headachy all weekend - like I had a major hangover.  Experienced a night of stomach cramps Sunday as things began moving again, but I never got sick. 

    All in all, it was bearable for sure. I can do this.  I will do this. 

    I am trying the Elasto-Gel Cold Caps to save (I hope) my hair.  Nothing on that yet, but I understand it takes a couple of weeks for the hair loss to begin.  I will post about that over on the Cold Cap Users thread.

    My skin is already super dry.  Anyone have advice on how to combat?  I have lotioned up like you wouldn't believe, and I am drinking tons of water.  Is is safe to take extra fish oil caps?  Would that help?

  • _Ann_
    _Ann_ Member Posts: 769
    edited July 2012
    stayinhappy, I'd reccommend calling the oncology nurse or doctor to get an OK on taking fish oil.  I was advised not to use any blood thinners due to risk of internal bleeding when your blood counts are low.  Fish oil is a blood thinner.  Sorry I don't have any good advice about the dry skin.
  • _Ann_
    _Ann_ Member Posts: 769
    edited July 2012

    I was wondering how everyone's hair is doing?  I had AC on the 11th and was expecting it to start falling already, but it hasn't.  I'm having the tingly feelings and sensitivity though.  I really haven't yet figured out what I'm going to do as far as head coverings.   I'm not liking how I look with scarves and buffs, and the wigs I have are horribly uncomfortable.  I can't find a knit cap anywhere right now due to summer.

  • TAB55
    TAB55 Member Posts: 198
    edited July 2012
    Lifeonitsside: Thought you'd enjoy this article I saw on CNN.
  • emilybrooke
    emilybrooke Member Posts: 98
    edited July 2012

    Just checking in to say Hello

    Had my first chemo streatment yesterday - A/C and went for the Neulasta shot this afternoon. Yesterday I got home at 4, laid on the couch watching a movie, tried to eat and was shocked that just five hours after the infusion that my taste was gone. Hubby made me a peanutbutter, banana and choclate smoothie - that tasted pretty good. I hated the taste of even water last night but tried to keep drinking to flush it out of my system. I slept in 1.5 hour increments all night for a total of 12 hours. The whole night my body was weighted down by a dull pain. After moving around a bit this morning I started to feel better. I've been eating small meals all day and luckily no nausea. I hope to stay on the up and up - off to rest some more. I hope everyone is having a good week - thinking of you all!

  • Lifeonitsside
    Lifeonitsside Member Posts: 250
    edited July 2012

    Anyone having fever? I'm terribly concerned yet but seem to be running around 99.5 when I'm usually 97.3.

  • rita65
    rita65 Member Posts: 23
    edited July 2012

    Hi Susan HG123  Glad you found this site.  We are all here together to help and support each other.  Although I do not post very much I do get on this site to keep up wi th everybody.  Your husband @#@^!  Let me tell you a little story about my sister.  She was diagonsed with lung cancer with a turmor bigger than a basball attached to her chest wall .  The Oncologists gave her little hope of survival and we are talking a few months.  He gave her an option of a very agreesive rounds of chemo that frankly may have killed her.  She wanted to see her children raised.  Guess what her husband did.  He packed up his  clothes and left her with no car and broke/  She got the chemo.  That was in the days when chemo was really devestating.  Her course of action was to take chemo have surgery and rads.  The Radiologist Oncologist said this is impossible.  They will never shrink it enough to have the surgery.  I took her to her chemo then after chemo she was admitted to hospital to have it flushed out.  This went on for months.  I took her  getting multiple blood transfusions and also multiple iron infusions.  This  woman did nothing but vomit throuhout her therapy.But guess what?  Her tumor shrunk and did have the operation.  The RO could not believe his eyes.  That was 21 years ago and she is still here.  Her course of treatment was also written in  a medical journal. 

  • mamabr
    mamabr Member Posts: 83
    edited July 2012

    Ann, I also started chemo on 11th and haven't had hair loss yet. I imagine after tomorrow, 2nd treatment, it should go fairly quickly. I had my daughter cut it shorter, but no tingly sensation at all. I looked in some kid stores for soft little hats, but didn't find any.  There are some ladies on a different forum that are using BeauBeaus.  They look cute, just pricey. I'd rather collect shoes than scarves. I'm not too worried about the hats vs scarves issue, those decisions will be easier than the past 4 months. If you also have your 2nd treatment tomorrow, best wishes. I almost forgot to order my anti-naus meds, that would have been unfortunate. I also don't think I have been running a steady fever, but I definitely have hot flashes. I should probably take my temperature regularly. The hot flashes and ruined taste buds have not gone away. Take care!

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