When will my mom need me the most?
My name is Nicole, I'm a 25yo medical student living in Florida for school. My parents live back in Buffalo, NY. Today I called to tell my dad about my awesome board scores, and after I shared the good news, he shared the bad news. My mom was diagnosed with invasive ductal carcinoma on 6/27 and received her first chemo treatment on 7/5. Because of the holiday and then the weekend, they didn't get her staging results (CT of brain, chest,abd,pelvis,bone scan,PET) but we should know very soon...prob tomorrow. All day I've felt like I've been socked in the gut.
Scared doesn't even begin to describe how I'm feeling. My mom was always healthy. I am kicking myself for not calling her and reminding her about getting mammograms, but I thought she was getting them yearly. I've always worried about my dad since moving down here, but I didn't worry about her. I should have been reminding her and getting on her about it. The tumor is behind her nipple and she noticed her nipple starting to invert. The lymph node biopsy was inconclusive but from what I understand the doctor can palpate an enlarged node so I'm sure there is cancer there.
She's having neoadjuvant chemo to shrink the tumor before surgery. I'm not really clear on how long the chemo will be, she said she thinks it's going to be several months. She's doing ok for now, luckily, no terrible side effects. I want to be there for her but I promised my parents I wouldn't screw up my education. I am a third year student so I am doing clinical rotations. I have an elective coming up for the month of Sept, so I could arrange a rotation in Buffalo for that month. I also have a vacation in February, and I MAY be able to switch that around with something else.
So when do you think she will need me the most? I only have one vacation month - should I try to schedule it around her surgery? Or will chemo be the worst part? Is she going to get much worse on chemo?
I'll take any advice you could offer. I'm going to have someone come to clean the house (because she's the kind of person that complains about not being able to clean the house when she has something like cancer and chemotherapy to worry about) and I sent her a care basket, and I'm planning to order some relevant books for her. What else can I do?
Comments
-
Sending a cleaning service in is a great idea. Chemo varies a lot from person to person, hard to say if she'll breeze through it relatively speaking or if she's going to need a lot of help. It also makes a difference what kind of surgery is she having? MX or Lumpectomy... I had a lumpectomy and only missed 2 days of work, and really didn't need a lot of help after that. Other people have a devil of a time recovering, just depends. If you could arrange for visiting angels, comfort keepers, or similar to be on call if she needs them, that would be good too. I didn't have chemo, but I have to say the biggest burden that I've had is trying to cook stuff that I and my family can stand to eat. Finding a way to make sure stuff that tastes good for Mom is available when she feels like eating is something to look into, and making sure Dad is fed so Mom doesn't worry about that... Call her, send her actual paper get well cards...
-
It depends on what type of surgery she has. I had a lumpectomy first and was fine. I had a bilateral mastectomy with reconstruction and I needed someone to care for me post OP. I had drains in and was on pain pills. I also could not drive at that time. If you think she will have a mastectomy, I would schedule time off post surgery. My best friend is a nurse for a breast surgeon and she came and took care of me for a few days after I got home from the hospital. This was a great help to my husband since she knew how to take care of my drains and show my husband what to do. I think cleaning and meals would help your mom and dad while she is going through chemo. I am sorry about your mom's diagnosis. I hope she responds well to treatment.
Good luck!
-
Nicole, I am sorry you found your way here, but I would like to welcome you and say that the beginning is the worst part. So many options will beavailable after the test results are in. Once a treatment plan is in place and that numb feeling of getting hit by a train will lessen and hopefully things will settle down to a new normal. You sound like a wonderful daughter who wants to know how to help your mom. Hang in there and wait just a bit until you get the test results and she and her onc/treatment team will discuss the options. All my best and good luck.
-
I agree that there are a lot of variables that will contribute to when your mom might need you the most. Mostly, I want you to stop kicking yourself about mammograms. I got mine religiously each year and still got IDC. Mammos are good but far from perfect at detecting bc. You will find more than a few women who got regular mammos and did self exams but still got bc. I know this is very upsetting ( I watched my own two dd's go through this), but there is lots of reason for optimism even though there may be rough times ahead. Caryn
-
Nicole It sounds like you've done everything you can to make your Mom's life easier for right now. I agree that you shouldn't kick yourself about the mammograms. Unfortunately, you do have to hang on until you get the diagnosis. My only suggestion, if you don't already do it, is to do SKYpe or g-mail chat with your mom. It makes such a difference to actually be able to see each other. My daughter is across the country, but when I see her to talk to her, it's like she's here.
-
Nicole,
Just talking on the phone to her as often as you can will help the both of you. I'm sure she is going to be worried about you and your studies. Keep her involved in what you're doing and you can keep up with how she's doing, how she sounds, and know what she might really need at the time. The rotation in Buffalo sounds like a good idea. You'll be closer and can see her more often. Staying in touch through the treatments will give her great comfort and support.
-
and Skype is even better!!!
-
Nicole - My mom was dx'd with BC when I was in my early 30's. I felt guilty for a long time, thinking that there should have been something I could have done to prevent it. Maybe even if I had been a better daughter.....and I wasn't even a medical student!
Believe me, crap just happens.
As it turns out, my mom had a radical mastectomy and lived a long, healthy life, passing from other causes at the age of 87.
Lots of suggestions have been made about care, cleaning, meals, etc. Just remember, you don't need to be the one DOING all of that.
It's time to call in the troops. Does your mom have many friends who live close? A church group she belongs to? There are agencies who will provide four months of cleaning for women undergoing chemo. Those are all things that can be ARRANGED.
What your mom probably needs from you is to be reassured that you are not stressed out, fearful, or in danger of - as you say - screwing up your education.
What she probably needs more is to know that you love her, you will always be there for her if she needs you, and that she can talk to you without you breaking down.
There will always be time for tears. But Moms want to protect their kids (and yes, you are a "kid" for the rest of your life) from hurt.
If it were me, I would want to be there for her surgery. Like others have said, she may not need that much in the way of help during her recovery. But to see your smiling face before she goes in, and when she comes out, I think would be helpful.
But find other ways to stay in touch as you return to school. Find a few minutes to call every day. Email every day. Skype every day. Send her cards and letters. Or however you can work out your communication with her...just stay in touch.
Allow her to feel what she needs to feel, and express her thoughts without saying "Oh, Mom, you shouldn't feel that way!" or "Don't talk like that!"
If you can help with the "medicalese" then do so. Help her be an active participant on her medical team.
And most importantly, ASK her what she needs from you, and what she thinks would be most helpful. Tell her that no matter what it is, she should ask, and if there is a way you can make it happen, you will. But that it's o.k. to ask.
Wishing your mom (and you) the best....
-
Thank you all so much for your advice and kind words. I am taking it all to heart. We are still waiting for her staging results. I just don't know what I'll do if they show mets, I can barely wrap my head around that possibility. Today was better than yesterday, though, I'm trying to do everything I can from here. She will be having a mastectomy so I'm planning to arrange my vacation around that time.
Thanks again. -
Nicole... I echo what everyone else has said.. in addition, stay positive... be optimistic... I think that is one thing that really helped me. And just take it all one day at a time. This unknown time is very difficult... but do know that many scans can show 'something" that turns out to be nothing... a lot of false positives, so if one of her scans shows something, don't jump to conclusions about mets.
-
I'm happy to say that no distant mets were found! The PET scan did show 3 positive axillary nodes, but I was prepared for that. All things considered, today is a good day.
Since my mom's diagnosis, I have discovered other relatives on my mom's side of the family who have or had breast cancer. I'm on an OB/GYN rotation right now, and the physician I am working with offered to order a BRCA test for me. So I'm going to have blood drawn tomorrow, right at the office. I'll most likely be having a mammogram too.
-
for the $3500 BRCA test to be covered you have to show just cause, and I think just mentioning your mom's BC is not enough... Make sure you cover your bases.
Glad to hear no mets!!!!
-
Since my mom's diagnosis, some relatives on her side of that family who we haven't talked to in a while have volunteered more information regarding medical histories. My mom's cousin also has BC and hadn't told anyone yet. My mom's uncle told her that her grandmother died with cancer, not sure which one, and that her aunt died of breast cancer. My mom's mom died due to complications of scleroderma at the age of 62 or 63, and she never had a mammo. So I'm hoping that will be enough, the doctor said it would. I'm planning to call my ins company on Monday just to be sure.
Thanks for all the kind words here
It helps so much.
-
Nicole - go home when you can, call her often, send cards of encouragement. You can't fix it but you can show her how much you care. Not your fault it happened. No one could see it coming.
Ask her when is the best time to come home. Maybe she would rather have you home when you can do things together as opposed to taking care of her.
You can't change the past - you don't have control over tomorrow - today you can pick up the phone and give her a call. It's called love.
Hugs to you - I saw how difficult it was on my family when I was diagnosed and loved the way they supported me but let me be independent also.
-
Yes, Nicole... take the lead from your Mom..... If she doesn't feel like "talking" to long lost relatives, that's okay too. Are you very far from her?
My oldest Daughter lives in Orlando with our 2 Grand-sons, that just graduated from Florida state...And honestly, sometimes I just didn't want to talk about all the stuff that was going on with me. As her Daughter, you might want to make sure you are doing the BEST thing for her, but maybe just ASK her what she wants. My Daughter was pretty insistent that I should have a mastectomy....but my surgeon said it wasn't necessary.... I'm almost 3 years out now, and doing fine...
And no matter what everyone in your immediate family had, doesn't make much difference. We are always trying to find "something" that caused this, or blame it on what we did wrong. But there are no answers... It just happened... They have found breast cancer in Egyptian mummies. WAY before the pill, or saccharin, or everything else that we blame it on.
Your Mom's team will deal with her own type of cancer, depending on the final path report....And soooooo many of the women on these boards have gone through tough times, but have come through, and are doing well!
So just be there for her... and let her lean on you... but her thoughts are all tangled up in this too, and sometimes she might want to just "take a break from it all." I didn't want to hear that "concern" in everyone's voices, because it scared me.
I loved when my Daughter's and Husband went shopping, having lunch, and having a fun time, during my surgery! My surgeon had to call them to ask if they were ready to come get me!
So we found fun things to do, and laugh about while my Daughter was in town! Going to radiation was the same. Find happy and fun things to do with her.... The BEST was when I was walking through those automatic doors at a store, and the bells went off from the nuclear dye still in my system...Ha! This was the day after my surgery, while I was still peeing blue! But if you can't laugh, ya gotta' cry.... so it's always better to be happy.... somehow.
-
Nicole, I am not sure where everything stands with your mom at this point but when my mom went through the surgery, she actually preferred that we not see her pain if possible. What we did was when she did chemo is rotate and go with her and sit with her during the treatments. It would take her mind off what was going on and it also cheered up others that were going through it alone. As it was already mentioned, take your mom's lead and make sure when you come is when she is ready. I wish you and your mom all the best. Alison
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team