2012 sisters
Comments
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Thanks ladies Tazzy and 2friedeggs - I need that today! and of course my dog would decided to have an major accident on my white carpet so guess I have no choice but to get motivated to clean up that mess! For the love of pete and yuk! my house smells like .... I am going to need a big ole bottle of wine after today! ok maybe a glass but dreaming about the bottle! any dam tips on how to get this out of my carpet LOL
Chrissera - I had a friends who had to do that a few times during chemo to boost REC and they did not say anything negative about it but sorry I don't have much experience. I am sorry to hear you have to go through this.
Juneaubugg - trying to make that appointment to cut my hair was the hardest part but glad you are going to make it an event with friends as it helped me a lot to do that. Sorry to hear about you being scared for chemo and understand as it is not fun but I am a big weeny so if I can do it so can you:) I had never in my life had an IV till this journey and needles scared the heck out of me and still do more than some of the other stuff. depending on your treatment decision - Tazzy has some good advice on chemo above.
Lots of love to all!
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McCook accident #1 or #2? what did you do so far lol. love our dogs. Theycan always manage to take our minds off of what we were thinking about; might not be better but something different!
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chrissera, I had a transfusion last Monday. I had shortness of breath and I was just exhausted. I actually dropped to my knees at the grocery checkout the day before. I went in for my normal neupogen shot and when they checked my counts, they kept me right there and did the transfusion right away. I slept through the whole thing! They offered me a bed or recliner and due to exhaustion, I chose the bed! I walked out of there a different person. My nurse said I might not feel better until the next day, but it was almost immediate for me. Please don't be afraid. The hardest part is the IV or being stuck in your port.
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2friedeggs - not to go into to much detail but it was #2 +++ - I am taking breaks inbetween cleaning as it hot as heck in that room as I shut off the air since it is my spare bdroom. Also - I realize I don't not have the energy to go full blow so it will have to be what it is until I can get someone to come clean it professionally and yep that bad. I even own a pretty good carpet cleaner but that is no match for this mess! I love my dogs but right now I think they are suffering as I don't have the time or energy to run them like I used to but they do keep me company:) Right now I am thinking of putting one of them on the grill tonight! totally kidding! I guess things happen for a reason because def taking my mind off of worrying about BC today:) Sneaky tip from above I guess!
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Juneau - totally missed your post (4 hours ago) as we must've posted at the same time. Good for you on the hair cutting party - keeps you in control.
Chrissera: good luck tomorrow. Please keep us posted.
Mcook... oh! dear naughty doggie. Have you tried that Oxi-Clean or stain remover at all? I'll happily share that bottle of wine with you
Hope you can all manage to enjoy your Friday's and weekends. DH & I are off out tonight with friends for Music in the Park (local bands) and dinner. Then tomorrow off to a friends for a bbq - I am doing dessert, strawberry layered cheesecake.
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Tazzy, I hear you and the others about waiting for a surgery date. It is so hard. You want the cancer to be gone from your body asap, and you want your life back, but you're at the mercy of the admin staff scheduling these surgeries. I also had to wait for long weeks to get the Feb. 7 date for the mastectomy. Not even my physician husband could inspire them to move faster. For me it was crucial to get it done as soon as possible, because I still had to fit in the 4 chemo treatments as well as 25 rads before my only daughter's wedding on July 5. The wedding date was set long before cancer came calling . . . I just wanted to be done with the treatments, feel well enough to help her, and share in all the fun. During the week of the wedding I was still finishing the last few rads. Fortunately I had almost no side effects from that, and had the strength and energy to fully participate and share in my daughter's joy. On the morning of the two of us still did some baking together, because we made all the desserts ourselves. It was a wonderful and joyous celebration in glorious weather for which I am eternally grateful. I feel almost normal now having finished chemo on May 7 and rads on July 6. The only effects that I still seem to have is numbness in some of my toes, and I get tired a little sooner than before. I guess what I'm trying to say is that this ordeal eventually comes to an end, and it leaves us wiser and more appreciative of life and what we have. It uncovers amazing strength and tenacity that we ladies did not know we possess, and we learn what really matters. My thoughts and prayers are with all of you who still face treatments and surgeries. It is a very difficult journey that nobody but us can understand. Be patient, stay away from self-pity, and be very good to yourselves. I sincerely wish all of you the best from my heart. Hugs to you all!
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liefie... thank you for your wise words. Its just so frustrating eh? After my chemo finished I just feel as though I've been left hanging. I know I haven't, or any of us have. Its just that for the past six months my life has been every 3 weeks chemo and knowing how it will pan out...now I just sit and wait.
And as I wait, I bake or garden or read... although I find reading hard as my concentration for that wanders terribly now. Gardening is good, the baking not so much - least for my butt.
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Tazzy, you can worry about your butt later. If baking is what takes your mind off the waiting, then so be it. My saving grace was that I had to fit into a sleek figure-hugging dress for the wedding, so I have been very good about my diet. That restriction is gone now, and I have been indulging these last two weeks - LOL! Whatever. I am celebrating, after all?! A wonderful weekend to you.
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And that is what I keep telling myself liefie - there will be time to diet when all this is over.... just as I finish making a plum pie. The wedding sounds wonderful and so happy you were able to enjoy yourself to the fullest. Indulging is good therapy
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I had mentioned a while back that the friend who has been my rock thru all this cancer stuff these last five months...had her own cancer scare. She got the pathology report today and everything is b9 so YAYYYY! I'm so happy for her.
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Cindyl: Doing the happy dance for your friend... and you of course. Group hugs. What wonderful news.
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Thanks for the info vballmom. I am.also.extremely fatigued and short of breath the last few days. I hope it will be a breeze.
Does anyone have suggestions for no appetite? Lately I only eat because I know I have too. If someone asks me what I want I say nothing because I am not hungry. This is new for me. Before on my good days I would actually crave foods. Any suggestions would help. Thanks and hugs to all! -
Vballmom1 - your thread just reached 1002 posts - woo hoo and thank you so much for starting.
chrissera : for now have you tried protein drinks like boost or ensure? Also if you have access to one through your cancer centre ask to speak to your cancer nutritionist. Still try and drink plenty of fluids. good luck.
Happy weekend all xx
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Just stopping in to day hi.
Back home from surgery and not feeling to bad. These drains are a pain in the rear and weird looking. They are bigger than I expected. I haven't been brave enough to look at the incision yet. I think the underarm where they took the nodes out is more bothersome than the mx part of things. The whole underside of my arm is numb. I didn't see the BS after surgery I will go one day this week. Find out more about what went on in surgery then.
Tazzy if I was closer to you I would make the sacrifice and eat the things you want to bake so you don't have to.
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Welcome back lostinmo...... glad you are home. Everyone says the same that they have more issues with their underarm than the actual mx - and the drains. Rest up and check in when you can.
Thanks for offering to make that sacrifice - I should find another distraction really, but unlikely to happen.
I am trying to get some pictures of my garden on here...but they wont seem to copy over... I'll keep trying.
Take care and positive vibes for a good recovery.
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I just found this thread today and read lots of the posts. I noticed a discoloration on my left breast on 05.10.12. Went to the doctor on Monday 05.14.12, mammogram, ultrasound, biopsy, and diagnosis by Friday 05.18.12. Didn't really need any of that..I already knew. Despite no hx of breast cancer in my family, the sense of dread I felt when I saw the weirdness on the breast told me it is cancer.
I had bmx with te's on 06.15.12. I will be completely expanded to 600cc's and begin chemo on 08.14.12, followed by radiation. BMX was not a tough decision for me. I wanted them off and quickly. I just felt like they were trying to kill me! The pain has been the hardest for me to overcome....and at this point it is finally better. Some spasms with expansions, but other than that it's tolerable.
I wonder if I am crazy, because as I look through these posts I cannot find a single post where anyone talks about eyebrows...and ladies I am here to tell you I am obsessed with eyebrows! Will I lose them? Will it be all at once or in clumps? Will they come back? I hear hair often comes back looking different....Do eyebrows? I will be big time pissed if I end up with Captain Kangaroo eyebrows or Groucho Marx eyebrows! I do not want a dark, curly, unibrow! I obsess about this stuff! Maybe so I don't have to be so freaked out about the beast growing in my body.
Anyway blessings to all of you.
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Welcome ckolendar - sorry you have to be here, but you've landed at a great spot with lots of support and comfort.
Cant help you on the TE's I'm afraid. I lost my brows and lashes (all other hair went with A/C except them) when I was on taxotere... didn't notice them going, just suddenly they were gone. I am 4 weeks PFC and they haven't grown back yet. I am assured by all my health team that they will return - no timelines as everyone is different. I did have to chuckle at your post though with the Cptn. Kangaroo and Groucho Marx brows. I dont know how they grow back... I'll keep you posted when mine start.
Maybe someone else will come along and let you know.
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Thanks Tazzy for you support. This journey is crazy. The TE's are quite an experience. I have these flat, wide, boobs...cleavage is beginning to appear though. PS said the TE boobs don't look as good as the finished product. Yesterday he told me a lot of times they are kind of pointy like Madonna's! Great! haha
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its one heck of a roller coaster ride for sure. Hang in there - we're in this together, no holds barred either. Whatever you are feeling share and we'll be there for you.
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Welcome ckolendar, sorry your joining us but glad you found us for the support.
Had to laugh at Tazzy on the eyebrows just being gone. Most of mine are gone, I have maybe 4 on each side. I didn't notice they were going, I think that was due to wearing glasses you can't really see the brows. Very few lashes left either. I don't worry about those as much as I am the head. Ready for it to grow back, but unlike most I would take the curls. Never had any body in my hair at all so wouldn't mind seeing what curls were like. Hair fell out with A/C, brows and lashed with Taxol.
I've only had to take pain pills once in my life and that was when I had my wisdom teeth extracted. Took my percocet for the pain and now I feel like I could go do something.
Maybe I will just go find ice cream.
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welcome back Lostimo yep the underarm and numbness of the back of arm from the nodes was the worst for me too; not bad but just worse than the other surgery. I still have some occasional arm numbness and its been 5 months since my node surgery. Aren't the drains a nuisance; they are just bulky too made me feel real thick around the waist and with 2 fried effs for fooobs the thick waist didn't help my figure. lol Now I see you talking about icecream since you had to go mention it.lol (that won't do much for my figure either, oh well)
mccook301 ohhhh stinky. Yea that's tough. My dog did that once and my son called me while I was out and told me about it. I said just get some tissue and pick it up. He said Mom you never saw anything like it. I was so aggravated with him for saying he couldn't clean it up until I got home and saw what he meant. I never saw anything like it. It took me forever to clean it and get it up with my floor scrubber. It bothered me for a while just knowing it had been there so I eventually got hardwood lol. The dog never had another accident since-guess he doesn't like wood!
ckolendar glad you found our group but sorry how and why. Boy you move fast which is really a blessing in disguise. I have gone thru testing, biopsies, mris, lumpectomies and nsdmx since last September. It wasn't until my lumpectomy the end of January that they found my idc. I can't help you at all hairwise as I didn't have chemo but your comment about the unibrow cracked me up. Heck some people have SO many brows, wild and unruly, it's a shame they can't donate some for the cause. I do however know exactly what you mean by the odd shape of the expanders. I had a nsdmx so I thought mine reminded me of 2 fried eggs (hence my name). I have had several fills since though, and now they are the twin peaks; SOOOO hard and heavy. They make it nearly impossible to sleep with now; I'm afraid they are going to crush my ribs while I'm sleeping. lol I am having a few healing issues but hopefully I will have my exchange in September. I can't wait. So I will have pointy madonna boobs to look forward to? I read in the exchange posts about a "drop and fluff" period before the implants look like they are supposed to. So I guess we have yet another time to look weird. I hope mine don't drop too far but that they get real fluffy. ofcourse I have no idea what fluffy boobs look like so I better watch what I ask for right?
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Hi Tazzy I missed you! I'm sure you can those garden pics up altho you havent had any luck with the bull parts . However, you did do such a great job with the eggs. Enjoy the weekend and give the poor DH some rest.
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Groucho Marx brows! haahaahaaa Great visual on that one!
Tazzy - you're so good at keeping up with all the posts and new people, I'm lucky if I can keep up with what day it is and my chemo hasn't even started yet! ^5's ya
Met with my MO today, she's completely AWESOME! Camp Chemo will run 12 weeks - ACT with Tamoxifen/Femara for 5yrs afterwards. I picked up some head coverings today as wigs have zero appeal to me. It is crazy to be looking forward to NOT having to fuss with my hair for a few months? LOL Now I may opt for fake lashes... and I know I shouldn't have been surprised to see them, but the wig place also had fake eyebrows. Definitely the humorous part of this journey...
Now if I could get my mom to calm down, I'll be good. She wants to know everything but everytime I fill her in, she cries. She cried over my incisions, she cried over the need for a port and I know she's crying over how long I will be involved with Camp Chemo. My mom is normally a very strong person and I know its selfish, but I need her strength right now. Her heartache is breaking mine
It tears me up that I'm making her cry. And not telling her isn't an option, she went off when I tried to withhold info.
*hugs* to all and welcome to the new ladies!
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Tasy, what is the hang up getting you a date???
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I am new to this thread but I had to share this!!!
Tonight was my first time to go out in public with no wig, scarf or hat since the first weekend in February. I did get some stares since there aren't too many women who have crewcuts these days but it felt so liberating. I was so sick of covering my head!!!
My son said "Mom, do you know you don't have anything on your head?" and I told him I knew but that it was OK and that I was ready!!! My bestfriend told me I looked beautiful and my husband said I looked fine! I got through it and it was OK. My one friend said "You look good but I could never pull it off." I wasn't sure how to take that comment because it wasn't so much about looking good or bad but more about being so tired of always having something on my head when I left my house!!!
Anyway, thanks for letting me vent and if I was an encouragement to someone out there who is considering leaving the house without her head covered, then I'm glad I could help!!!
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Morning ladies. Hope you're all feeling well. Figured I'd try to update my signature now that I have my post-op pathology report. Not sure If I got it right... Found out I'm ER+ and HER2+, so in addition to whatever chemo they decide to throw at me, I'll also be getting Herceptin and Tamoxofin. The best news though was that she told me she got all the cancer out. Woo hoo! And now that my dressings are off I'm going to take a real shower this morning - and even see if I can kind of wash my hair by myself. Promises to be oodles of fun! Ok - off I go to deal with the kiddies starting to wake up. Hope you all have a lovely day!
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Hi all. While I have come to the discussion boards quite a bit over the last month, this is my first post. The help and support here is awesome! I just had my JP drain removed yesterday afternoon. My armpit has been sore for a few days and I assumed it was due to the drain; however, last night and this morning it has become painful and tender to the touch and there is some swelling. The area is not warm to the touch and I do not have a temp. Has anyone else experienced this after having a drain removed?
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Aimz Welcome to our board. After I had my last drain removed I had some discomfort and swelling. My bs assured me that it was fluid that would eventually be absorbed by my body. Sure enough it was. I also had a seroma under my armpit but that was pretty much right after surgery itself but it also slowly but surey went away. Hopefully yours is just some fluid that couldn't get out since the drain was removed as well but if it is really bothersome Monday I'd give the bs a call just to make sure.
Ramols congrats on the progress and the good news. That 1st real shower feels amazing.Good luck with the shampoo!
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I took a real shower all by myself just like a big girl!!! I even shaved my legs (the bottom half) and washed my hair (upside down). And I put a real shirt on all by myself. I think we might have to cut it off tonight to get me out of it. But I feel like a real person! Off to a family birthday party later on today nice and clean and in my real clothes. Just look a bit flat chested...
Here's to a lovely day for all of you. Hope some sunshine and happiness comes your way.
jpmom - thinking of you as you prep for surgery, and all others scheduled to go this week.
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ramols- yay on the real shower by yourself! I was told I could take one today, just had to wait 48 hours.
I find it a little scary that I am held together with glue.
For those who have had surgery, were you able to look at the scar? I'm nervous about this.
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