Has anyone started a Dec 2011 group?
Comments
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Rachel have a nice trip! My hair is coming in ok. I just wish the top would magically grow faster.
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Is there anybody in Canada knowing where to buy Nioxin and Rogaine for ladies?
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Try online maybe? Ive seen it at the drugstore I use. Big national chain. I have not tried it because my hair seems to be coming in ok. Full coverage now but I still need some length. Ive started going topless around friends but not at work yet. Cant wait until I can ditch the wig. Oh, and Ive got chemo curl but only right behind my ears! Strange.
I started Tamoxifen this past Thursday. No side effects at all so im going to assume I wont have any.
Cheers to all!
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Mardibra, thanks for the info, I ordered it online. I have full coverage still it is short so you see alot of scalp. I am glad there are be se's with the tamox for you. All I have are night sweats and hit flashes during the day.
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The night sweats are the worst!
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Mardibra you ate getting the night sweats I assume. How old are you?
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ive been getting night sweats since I started chemo. Im not sure if they are more severe recently because of tamoxifen or because its just so darn hot out. Im 45.
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Mardibra, I turn 45 in August For me the night sweats increased with tamox. I had some while in chemo but I have hot flashes throughout the day (3-5) and my night sweats can wake me up. What about your period?, I haven't had mine since Feb. We are going through menopause rather early.:(. A Mom on my sons hockey team did chemo for non hodgkins and I
noticed the one time she was red and sweaty. She looked pretty uncomfortable. So I wonder if it throws all women into menopause?irregardless to the type of cancer? I didn't think non- hodgkins was hormonal. -
Have not had my period since last November. MO told me that if I didnt get my period back by November 2012 I probably wouldnt and she would test me to see if im in official menopause. Not sure if it happens to all who take chemo or not. Hmmmm.
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Mardibra - I am 45 too and had hot flashes during chemo. They did increase when I first started the Tamoxifen. I have been on it since May 1st and they seem to be calming down. It was bad at first, like several a night that would wake me up. Now I don't wake up from them. Give it a little time. If not, Effexor at low dose can help, ask your MO.
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Im going to ride the tamoxifen ride for the next 6 months and if im still experiencing hot flashes, I will try the Effexor. Seems like many people find that any SE's they have calm down after 6 months. I still have vivid visions of the 4 bazillion script bottles in the bathroom during chemo. I have managed to get rid of all but two (Prilosec and Tamoxifen) and im not looking to add more if I can help it.
Thanks ladies....enjoy the day!
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Ahhhhh....the 4 bazillion script bottles!!!! I found one the other day that I didn't even know was prescribed for me!!! Prilosec...who knew??? LOL!!!
How is everyone's hair coming along??? I feel like mine should be a lot farther along!!! I will say, though, in the back, it is longer that the depth of my finger!!! I'm actually thinking of getting it shaped up around my ears a bit. I shot a wedding on Saturday with a hat on...too hot for the wig and I have too much hair to be able to tape it down and I didn't want to worry about the sides blowing up. I seriously considered going topless for it, but thought that would bring more attention than the hat. Oh, well.
Has anyone else hit the emotional wall yet?? I sure have!!! Oh my word!!!! I spent several weeks living in the "what ifs". My MO reassured me that it was completely normal (which I already knew) but with underlying anxiety disorder, it was taking me to some pretty scary places. After talking with him and my therapist and taking an ativan at night when needed, I'm feeling much, much better!!!! I needed to stay off of here because I was reading things that I didn't need to be reading and feeling so much worse! Definitely starting to feel like my old self again!!!!
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Mardibra, I hear you on the prescription bottles. My mo offered another prescription for the hit flashes but I said no. I am taking turmeric, vit d, a low dose aspirin and am on the Metforim trial ( although I think I have the placebo). Prior to this is had one pill bottle (synthroid), it is almost embarrassing so see the bottles I have now. I have gotten rid of coffee, bought a juicer, reduced my alcohol and am on the treadmill every second day to accomplish 3 miles for that day. Oh I also drink that crappy green tea! Jeez that stuff is yucky. Increased my fruit and vitamin intake immensely. My thought is the healthier our bodies the least receptive our cells will be to deceive us.
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I haven't really hit the emotional wall yet. I think it's because I'm still getting herceptin so I'm still going to infusion center every 3 weeks. I had an intern today working with my onc. She was not friendly at all. I felt like telling her she should work on her people skills or work in research.
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Markat, you are to funny. My radiologist seems to be the mire personable between him and the mo. He told me not to worry that I will be fine when talking about recurrence. He also said that he would tell me that but I probably won't listen because that "c" stuff is all over the place. Newspapers, tv, etc and that they only publicize the bad stuff. The bed side manner makes a world of difference and I do believe helps us in our recovery.
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No emotional wall for me yet. Although I figure it has to be coming sometime soon. There are certain threads I stay away from....too scary!
My hair is coming along nicely. Went out this weekend topless looking like a marine. But, it was just too freaking hot to wear Esmarelda! I figure I can ditch her by the end of the summer. Anyone else with chemo curl?
Markat, I would have paid money to see her reaction if you told her to work on her people skills. Some people just suck. -
I've noticed the night sweats/hot flashes have gone away. Still no period. I really hope it comes back - I'm just not ready for menopause yet, because my family has a history of osteoporosis and I'm barely 4'8 as it is. I hope things get better for all of you with lingering night sweats.
I've kept my emotions in check for the most part, but that doesn't mean I don't spend several days a week wondering what's down the road. I think part of me is resigned to hearing bad news down the line, and I just push it to the back of my mind and move on. But then I worry about my choices. Like sitting out in the sun today. I slathered the sunscreen on, sat in a chair for about 20 minutes, stood in the water, then sat under the umbrella, then laid out to give my back a little sun - freaking out the whole time that I shouldn't, since brca carries a higher risk of melanoma. Still less than 5%, but.... And the glass of wine with dinner - my PT actually read me the riot act on alcohol, though he ended with 'well, moderation in everything.' So...??!?!?
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My hair is coming along too. I went to work last week without the wig....wore my hat but took it off in the office. I'm still not real comfortable without being covered although it feels fabulous! This heat sucks!
Lori - I haven't hit the emotional wall yet but oh my, look out when I do! I am actually wishing I would because I think it will be a combination of the BC stuff and the loss of my Mom, which is alot to deal with. I really need to get it out. I have been seeing a counselor once every 2 weeks and she is great, but I still haven't hit that wall.
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Hello ladies, my hair is coming in slow of course except for the leg hair of course. I had my port removed yesterday was so glad to get rid of it although having more pain than when it was put in. But its gone so its ok. I too hate the pill bottles, I have a hard time keeping up with vitamins so having to take all the pills was really hard. I am down to 3 pills plus pain meds when it gets to bad to handle. I started Arimidex about a month ago and am having the bone/joint pain but mo says it could be from the chemo and/or the arimidex. I wish I would have waited a couple of months in between so I could feel normal for a while but I guess it just means I will be finished earlier. Thanks to everyone who posts here and shares it really does make a difference.
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Teresa - Glad to hear your port is out. I hope the pain does go down.
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Teresa - congrats on getting de-ported!
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Congrats Teresa!
Well ladies, I dyed my hair with a semi permanent dye yesterday! I haven't washed my hair yet so I don't know if it will all wash out lol. I also shaved my neck. That may have been a bad decision because I have razor burn nowOh well.
Just read the news about the shooting in Colorado. My heart breaks for the families of the victims. So so sad. -
Congrats, Teresa!
I don't think I hit an emotional wall, but I can certainly get emotional in a snap! So maybe my wall is low and I just keep bumping into it.
My hair is coming in nicely but it sure is curly! My hair is typically straight with maybe a slight wave, but it's perm-curly, which I haven't had done since the early 90s. Some people who didn't know about my BC think I cut my hair and got a perm. . . funny.
I'm 44 and haven't had a period since December, right after starting chemo. Sometimes I think I feel crampy, but nothing going on. I have an acne breakout on my chin area and the dermatologist said it's likely hormonal. I figure all of my hormones are up there in my chin, trying to bust out of my body. . .
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I have some crazy perm curly hair going on too. Too bad its just behind my ears! Cant wait to see how this is going to look as it gets longer.
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Mine was curly before chemo...it is coming in STICK STRAIGHT!!!!!! uugghh!!!! It's still super short, but, I think maybe next week I will go topless...We are getting there!!!!!
I think I am going to start C25K tomorrow...we shall see!!!!
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Lori, what is c25k?
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OH...it is "Couch to 5K"....basically a running/walking program that will get you to "running" a 5K in 8 weeks.
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Hello all, long time no post. In my dilemma of not knowing whether to have more chemo or not, got some really great news. It turns out that my old onc accidentally put that I had a mx on my records when I actually had a Lx, which means I need rads not more chemo. My new onc agrees with me in that I've had more than enough chemo and agrees that rads would be the next step! Thank u all for your support through the confusion!
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clap clap clap! great news!
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YAY Julie!!!!
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