2012 sisters
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NC beaches are great! I havent been able to get out east with all this crap going on but will be back to the beaches next year!
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Shaved the hair a little while ago. DH and our 2 boys did it for me. I lost it emotionally when my 4 year old said, "mommy, you're hair is white but you're so beautiful". Then my 6 year old told me how beautiful I was. No coaxing from DH. Coulnd't help it. Been crying ever since. Everyone keeps telling me how pretty I look and that they love me. I'm so lucky to have my DH and 2 little men.
It really brings it down to reality to me that chemo has started. The shaving today was my choice. Didn't want chemo or cancer determining when that happened. Still hard, but at least SE's are doable so far. I'm Day 4 out from treatment day and just feeling loopy and sad (about the hair). Oh yeah, things aren't tasting so great, but not awful.
Take care.
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I have swelling in armpit area. SN biopsy was April. Surgeon called it a seroma. It's better than it was but it flared up either because of doctor examining the area or because of housework. Either way, does anyone know what I can do? Not sure how to elevate my armpit :-/, seems like ice or heat would feel good. Any advice is appreciated.
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Good morning all!
teeballmom-your boys sound so sweet! My DS had his hair shaved to same day I did. Wish mine was growing as fast as his.
Beckers- hope you get your question answered.
I think I'm ready for my surgery on Thurs. Still have to find a place to send my DS for a few days. Because we drive 2 hours to get to the hospital we are going up the night before. I don't see the need for him to be stuck sitting in a hospital with us. I was really nervous when it got scheduled but now I'm fine and ready to get it over with so I can get healed up and get to the rads.
I hope everyone is having a good weekend. It finally cooled off some here so I can actually go outside!
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Hey everyone, Pj I know what you mean about the beach, everyone around me has gone this year but me.
I just had my reinsertion (second surgery) on July 9th. Due to the margins not being clear. No Chemo onoc score was 16. I have to 33 rounds of radiation and take Tamox...
Becker... When I had surgery my nodes looked big and just did look right so my BS took them all out. Come to find out they were all negative.
Hope everyone has a great Sunday, I pulled a muscle or pinched a nerve bc my back is hurting today:(
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Good Morning Ladies,
I finally got to go out to a local winery with a friend. It was perfect weather and I might have overdone it a bit because I am a little tired today but I am used to this and it was worth it. I was celebrating being done with chemo! I still get hercepton but no real side effect with that so I am saying I am done. I am trying to plan a short vacation once I get my surgery date this week but not sure where.
Teeballmom- Your story today brought tears to my eyes how your boys responded:) I am sure you look beautiful! I remember the day I cut my hair, I called another family member who is a cancer survivor and she told me to remember it was temporary and it will come back. I miss it but this summer it has been way easier not to deal with it:) One thing I found is in the beginning I was embarrashed to go out in public but now I love the compassion I get from people and especially when survivors come up to me and tell me their stories like my 80 yr neighbor who came over one day and said I had BC 20 years ago and I am still here:) I will be thinking of you as you start your next journey with Chemo. hugs!
lostinmo - I also will be thinking of you on Thursday and wish you a quick recovery. I find out this week my plans for surgery dates and I am very nervous but I have been reading a lot about others journey and it helps so much to be brave. There was a really good utube video from a women called postively pat that I watch yesterday. I hadn't seen anything from her before but this video showed her going through prep and after surgery. It was actually a good video for me to watched. I need to get off my computer this weekend and take a break from BC research:)
I hope everyone enjoys their day! Hugs to all!
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Lostinmo good luck on prepping for surgery, hope you can find someone fun to watch your son. That's wise not to risk taking him with you though.
Amy, hope the back win eases up fast, healing thoughts to you!
Mcook, glad you had some fun, we all need to do that every once in a while and forget BC for a while.
I have never worn a wig, just scarves in public and at work. I am working up to be brave enough to go out topless soon. I have had lots of kind people come up to me and have heard lots of inspiring survivor stories because I am not hiding it, it was hard to get used to at first but I liked it in a way after a while.
I freaked out this morning. I am 3 weeks PFC. My hair started growing about 7-8 weeks ago while still on taxol. All of it started growing... Head and elsewhere. The legs never stopped. I was hoping now that I am done with chemo that it would take off, havent noticed that yet but this week I noticed that my armpit hair wasn't growing much. This morning I noticed that it had fallen out completely. I am scared out of my brains that my head hair is going to fall out again. DH is making light of it, which is probably the right thing to do but I am near panic. I don't want to be bald again after feeling like I have started the recovery process. Has anyone had this happen? Hs anyone lost head hair after it started growing again? I am not taking any more chemo, this shouldn't be happening. I have been tugging at my head hair gently to see if it is starting to fall out, a couple strands came out once and I bawled. -
jp - I also have not had my hair grow back under my arms yet but a little on my head and more and more each week. I hope the same that it does not come back out. I only have a little growth every where else right now. same as you it started growing back when I started taxol so maybe it just take a little to grow in certain places? remember we lose hair everyday when we had a full head so maybe that is what you are experiencing? Hope so:) I haven't heard of this but maybe check out the blog on hair? I would be pissed off and sad too but hang in there:)
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I was diagnosed with IDC on 5/8/2012. I am 36 years old divorced mom of 2. A 9 year old girl and a 6 year old little boy. I found a lump back in Feb of 2012 but put off going to the doc(mistake). I went for my annual in April and gyno said he was almost 99% sure it was a cyst but did schedule me for my first mammogram. Well I am stage III with some lymph node involvement. I have already had 4 rounds of AC and on the 26th I will start weekly treatments of Herceptin and Taxol. Will have mastectomy after chemo is completed. Trying to stay positive and work through all of this but I do get down at times when I feel horrible. Glad for any support I can get.
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Mcook, you are right we do lose hair in cycles so the couple of strands that come loose from my head when I ws worrying with it is probly just that. I haven't gotten anymore to come out. I just hope it stops at the armpits and doesn't affect more. I will just be happy to have all this behind me and be able to run my finger through my hair again. This is all just so painfully slow.
Jennbell, I am so sorry you are in this situation but so glad you found this group. I hope you will find as much comfort and support here as I have. This is a great bunch of women. You have already made it through the worst by having that AC behind you. The taxol is nothing compared to that. I worked the whole time through chemo and I finished about 3 weeks ago. I am waiting to have my surgery in a week. Best wishes! -
Jen bell, I'm so sorry to hear that you are going through this! This site is so helpful. I wish I would have found it sooner, as I've been on this journey since Feb. Hang in there and you are in a great place for receiving support.
{{ hugs}} -
I forgot to mention that I am ER PR and HER + and I have 12 weeks of weekly treatments. my mass was 5-6 CM but now can not be felt from the doc so it has shrunk with Chemo. I am also in NC
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Jenn, you can go into the Profile and add all of your details so they print at bottom.
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Jenbell- Hi! sorry to meet you this way. I agree with beckers and jp as this site has lots of great women and tons of support. Great news about your tumor shrinking! I also put off a few months bf I went in to get checked so understand thinking, " it can't be anything" Big hugs! Hang in there and we are all here to share and support.
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Ramols: so great to hear you are recovering so well... inspiration for all of us awaiting surgery.
Welcome annde - things will start making sense eventually. There is so much info to take in. Do you have someone you can take with you to the doctor appts. Write down any answers beforehand and make sure you write down the answers.
Mcook... oh! I hear you about getting comfy with chemo. Since January until June I knew exactly what would be happening, when and how I`d likely feel. Then chemo stops and suddenly I`m in that waiting pattern again and I don't like it. I just want my scan and surgery dates too.... Holding your hand. I was advised to buy some button up pj`s... also big t-shirts for home so that you can pin the drains to them.. if you haven't bought a postop camisole. There was advice on this board from someone about what to use in the shower for the drains. You know those cards you get at the casino (if you go) with the stringy twirly cords that are attached to them (for the life of me I cannot remember what they are called - chemo brain still) anyway they are really good for attaching the drains to in the shower. Not sure if you can do drains on your own - I`d ask my BS or and RN.
Welcome back 2Fried.. you were missed. DH did survive our weekend `just` - ha ha ... all that fresh air did something. I know my DH will for sure help with the drains and will keep perfect track too... that`s what he does. I have heard that lots of people just pin their drains to old tshirts... do you just pin them with big diaper pins... so many questions? I know that I`ll be seeing my nurse navigator before... but I don't like not knowing either.
DianaPrince... good luck tomorrow - let us know how it goes. Great news on the nodes and happy the NA`s were great.
Teeballmom... aaawww...from the mouths of babes. Try to keep telling yourself that yeah chemo has started but it's the thing that will kick that cancer into touch.
Beckers - sorry no experience with a seroma... if its housework that caused it, let someone else clean
Lostinmo... happy to hear you are more than ready for the surgery. We`re there with ya, holding your hand.
Jpmom... if my head of hair looked as good as yours does now... I`d walk out tall and proud. I haven`t heard of anyone`s head hair coming out after chemo has stopped, but have read lots about rest of hair on body growing back then falling out again.. just not on our heads. Can only imagine how stressed out that must be making you. Sure there must be a thread on this site about it... otherwise put the word out yourself and see what comes back. Hang in there.
Jennbell - sorry you have to be here - but you will definitely get the support, love and laughs you need here. This can be your place to be you, no matter what your mood. Woo hoo on the tumour shrinking. Shows that chemos a bitch, but boy it works.
Sorry if I missed any of you. I am so enjoying my PFC time - went to DH`s company bbq yesterday, spent a day in the garden and nursery today. And had a lovely walk around one of our lakes this morning. Thinking of you all and hoping you had great weekends with minimal SE`s and fears. -
I just saw this quotation and thought of all of us:
When something bad happens you have 3 choices:
1. You can let it define you:
2. You can let it destroy you:
3. You can let it strengthen you:I know from all our posts we have chosen #3.
Stay strong ladies.
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Thanks Tazzy for reminding us all of that. I have been saying it to myself every day for almost two weeks now. My new mantra!
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Funny, today I had a meltdown and burst into tears in a big shopping mall. My eyes were taxotere -watering like full-on crying. My nails with lots of purple pink and brown. All the people looked so healthy with
Lots of hair and and regular breasts in tank tops etc. I just felt
" I have been destroyed, I am not the same and never will be ." I won't be defined by it but I am
Not feeling stronger. Today I felt Ike I was being tested and not doing well. Sorry for gloom. Better now after wine tasting with DH- wine started to taste good after 3 months! -
Hi Everyone, Just want to say hello and know that by reading your posts, I feel like I can step in and be fortunate to have this club of gals to join in. I was just diagnosed on Thurs and have surgery coming up on Friday. They will do lumpectomy and SNB. I think I am more worried about the SNB incision for recoup. I have to get to a store and buy something button down since I don't own any button down tops. I just pray all goes well for all of us. What a difference a few weeks make. No history of BC in the family and this found on routine mamm. Hugs to all!!
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Lisa... meltdowns become part of our daily lives - least they have mine. Hey and nothing like a wine tasting afternoon to make us feel better
Please never apologise for gloom, that's why we are here - bitch and w(h)ine all you want.
Welcome Aruba, you've found a great place to land. Go shopping, the best therapy ever -even if it is for button down pj's or tops
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Thanks, Tazzy.
Aruba, welcome! Wow, your diagnosis and surgery are happening fast . We are here to back you up as this unfolds. -
Aruba, that was fast, sorry! Already got your pathology report, I think mine took two weeks.
My big meltdown was at a restaurant. It was their fault, really, we had a bottle of wine and their portions were really tiny. I remember crying on my daughter's shoulder, poor thing. At least I don't think I made a lot of noise.
And I still tear up a little almost every time I talk to someone outside of my immediate family about it. That's why I haven't told a lot of people. Anyone else do that?
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Good morning ladies!
Tazzy thanks for the reassurance, I have calmed down. I didnt wake up bald like I was afraid I would. My head hair is fine. I am sure it would be. I just freaked out. I fact I have a play date set up for my son. They are coming here and I am not going to wear anything... I am not quite ready to do it at work but I only have one more shift left until I am off three weeks for surgery. I don't plan on wearing anything on my head when I go back.
Lisa, I so understand meltdowns. I had a big one yesterday. I go for walks on a greenway path here and I find myself very jealous of all the young twenty something's with their perfect bodies and perfect boobs and reflect hair, I wanna punch them sometimes for being so perfect.
Aruba, your head must be spinning. Welcome and good luck this week. We are here for you! -
Hi everyone.
Just popping in for a few minutes.
I will say that I had a crummy weekend, but not how you'd think. Had my first treatment last Weds. Side effects are manageable, and I slept most of the weekend away anyway. I'd say I was just going to shut my eyes and be out for 2 hours at a time. One time I woke up 4 hours later.
I probably should have thought the whole idea of shaving my head the same weekend as my first treatment a little more. Too much to take in too quickly, but I'm o.k. today and am sporting a t-shirt turban on my head (it's god awful pink but I bought a bunch of pink t-shirts before my diagnosis and it felt good cutting one up - already sick of pink). The hardest thing this weekend was facing my 6 and 4 year old boys with my shaved head and my 4 year old son when he looked at me and said "Mommy, when are you not going to be sick anymore?" O.K. I lost it and had to rush upstairs. My poor husband was trying to console me (and it was his birthday that day) but it made me feel like a failure as a mom. I know I'm not and I'll be stronger when I'm done, but boy, doesn't that hurt when you unintentionally must be hurting your kids somehow?
Sending hugs to everyone!!!
Take care.
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Thanks everyone. My head is spinning.. I am at work this week until surgery on friday. Have no idea how long to tell them i may be out as dr does not yet know if i need a drain etc. Think i will tell them till following weds and update them from there...am i right in guessing that armpit area for SNB will be worst area for recoup?
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DianaNM, I have the same problem as you when I tell someone new, so what I did was write up an email and sent it off to the people I wanted to know. It worked out well for me...I still cry sometimes when I get an email back and it touches me in some way -- most people are so very kind. The unfortunate thing is that one friend forwarded it to some former co-workers, I was not happy about that at all but eh, they probably would have found out at some point anyway. Oh well, I guess that was better than talking behind my back! ;-)
I can't wait to have a meltdown when I lose my hair -- I am an ugly crier to begin with, that will only get worse. :-/
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Jennbell and Aruba: Welcome to this community of women who "get it." I'm just starting this journey myself, but I already know that there are a lot of supportive women here. Visit often to let us know how you're doing.
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Welcome Aruba. Your story sounds like mine, I found out on May 2nd and had lumpectomy on the 25th. When they told me about the lump, all I could think was GET IT OUT! So they did. The day of surgery I told my surgeon to take as much as she wanted... being 45 years old, I am more concerned with being healthy than being 'perfect'. It's a great relief when you wake up and they tell you your margins and nodes were clear, I pray that is your news as well.
Don't worry too much about the SN incision.. it isn't all that bad. Mine was about 4 inches long and she had me sewn up and taped together quite well. All of my pain was manageable with plain old Tylenol. Sometimes if I found myself reaching for something overhead, I would feel a little tug reminding me that I wasn't totally healed yet. Listen to your body, it will let you know what you should and shouldn't be doing. I had scheduled to take off work (secretary) until the day after my post-op checkup.. that would have been 10 days day after surgery.. I think I could have easily just been off the day of surgery along with the long Memorial day weekend and been fine to go back to work in just those 3 days.
I'm 13 days out from 1st TC treatment now and feel almost back to normal! My tastebuds are still out to lunch
teeballmom--I'm still trying to get use to looking at my DH's bald head (shaved it when I had mine done last week.) I keep hoping he will tire of the shaving and go back to having hair, I miss his more than I miss my own! lol
mcook--It has been great to meet survivors and hear how long ago they were diagnosed. It really gave me peace of mind that this disease can be cured.
Do any of you find it odd to be told how "Brave" you are? I'm not brave! I'm scared as hell but doing what has to be done to get the best odds I can of never doing it again!! -
teeballmom-sending you hugs. I understand about feeling like a failed mom. I went through the same thing after my first tx. My DS asked what was for dinner, told him I didn't know and couldn't think about it. He just looked at me and I started crying. I felt like a horrible mom because I didn't have dinner planned. Even though he is 14 and capable of finding food.
Aruba-welcome to our group, sorry youhave to join us though.
lisa-hope your feeling better. I think we all have meltdowns. At least I do. Had the biggest last Tues spent the whole afternoon in tears. But it does get better!
Tazzy-I'm still waiting on garden pics, or did I miss them? Have you got your surgery date yet?
DianaNM- I have trouble talking about it to people to, I usually tear up
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Jpmom: Bold, Bald & Beautiful. Let us know how you felt after. I still don't have a nice buzz of hair yet to be brave enough to face any ‘public'.
Teeball - We don't have kids, can only imagine how heartbreaking that must be.
Pinky - I hope your friend came to realise that it was not her ‘news' to forward onto co-workers. When I was dx'd we had one day of telling friends/family (all family is in the UK) and in the evening we sat down exhausted and really sick of talking about cancer. That point my DH created an email distribution list and after each chemo tx he would send a report out of my progress etc. It was too much otherwise - this way it kept everyone up to date and we didn't have to speak about cancer constantly.
PAeagles: don't you just hate not having tastebuds... unfortunately this never dulled my appetite. Oh! and the ‘brave' comment - yeah we have a lot of choice don't we. I think maybe people say that whilst their inside voice is saying "thank f*ck its not me".
Lostinmo: I will take pics today of the garden. And still NO surgery date... I am getting really antsy about it. I said to DH if I haven't heard by this Weds I will call my Nurse Navigator.... In fact I may call today - beginning of August is only 3 weeks away.
Enjoy your days !
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