Starting Chemo July 2012
Comments
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I'm starting chemo July 20th - 4 sessions of AC and another 4 of Taxol
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I am to begin TC (Taxotere/Cytoxan) on July 18. Really nervous. Going to miss my hair!
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I just had my second round of chemo today (taxotere/Cytoxan), the first round SE were not too bad a few days of flu like systems....so will see what this session will be like......half way there, only two more to go.. My hair started falling out about day 14 and it is almost all gone now.
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Had my port installed this morning. I could hear the OR team chatting through the entire procedure but don't recall a word. My shoulder is a bit sore, and the modified anesthesia has me a little wiped, but I'm OK. So glad I didn't make plans because it was only an outpatient procedure. More than happy to sleep away my day with an occasional foray on the internet. I'm so sorry that folks are struggling and sending you best wishes for a quick recovery over the weekend.
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It seems there are a bunch of us starting next week.
Ellendou--It's good to hear that you didn't have a lot of side effects; that's an encouraging example for those of us who haven't started yet!
Melroserose-- I've heard about icing the nails. I'll discuss it with the doc. I'm sure nail polish is a good idea; I'll have to buy some over the weekend. The doc did mention sucking on ice to help prevent mouth problems.
I hope everyone has a calm weekend. I know I could use a chance to get some extra sleep....
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I hope you don't mind me putting my two cents in here....will let you know as the days go on about the SE....started my first treatment on the 22 of June....so today was my second and only have two more to go
When I am having the Taxotere, they give me big frozen mitts and also big thick frozen slippers, and I was told if I wanted to use nailpolish it had to be clear, so they can check my nails.
I also suck on ice and drink lots of cold water during the treatment.
Just tired and think I am worn out tonight, it is a one hour drive each way for my Chemo and then we met DD and DS for lunch, and wanted to stop at a shoe store, hat store and craft store, so guess that is why I am wiped.
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For nail strength, I take 5000 mcg of biotin daily (approved by MO) and also use Nail Magic Nail Strengthener, which you can get at Sally's. I had nails that peeled, but after using that polish regularly, my nails are really strong! I hope it helps during treatment too. If you decide to try it, note that they first and second times you use it, it may burn a little. It's got some pretty strong ingredients that can cause that - but it goes away and you acclimate to it.
Well, I had my port placed yesterday afternoon, and the site is very sore. The little tube from the port runs upward into my neck - that's how my surgeon prefers to do it. The procedure was a breeze compared to my BMX, and all went well.
Today was my first treatment of Taxol/Herceptin (do I abbreviate to T/H?). It went very well. The nurse used some numbing spray, and it burned a little! I'm trying Lidocain next time. I got my pre-meds (anti-nausea and Benadryl) each took about 15 minutes, then I had a 30-minute wait period. Then she started me on the Herceptin- she took 1 hr 15 min for it. No SEs, no issues at all. The came the Taxol - can cause allergic reactions, but I had none. It was a low dose, so that may have been the reason. She stretched it to 1 hr 45 min. I slept through a lot of the tx, and also played Words with Friends and watched soap operas on my cell phone. I arrived at the office at 7:20 - started with labs, and then a lot of waiting (so sick of waiting rooms!), and was out at like 2 PM. Right now I feel fine, no SEs or issues to note. I assume after the steroids fade away, I will have the common side effects I've read about.
Does anyone know, when they say you feel the SEs on "Day 3," does that count treatment day as Day 1? So for me, treatment day was today (Friday), so my Day 3 would be Sunday? This is what I hope for, so I can go back to work feeling well on Monday (I work from home for a software company, so not a huge deal, but still, I'd rather feel well and not want to take naps, etc on a work day!).
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Two weeks out and feeling SOOO much better. Actually really good. The hospital stay knocked me for a bit of a loop, but I'll get neupogen next time so the counts shouldn't go so low. I finished one antibiotic tonight, metronidazole, and I finish the cipro tomorrow. I started back on a bit of solid food yesterday which really helped too. In 5 days, my blood counts will be measured again and I'll find out if I'm allowed to leave the house and go back to work. In a way, the rough start has been good. I live alone, my closest family is about 1500 miles away and I'm pretty independent. I have been tremendously blessed by friends who have run errands for me, gone grocery shopping, called, etc. and I've learned to rely on others a bit more.
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Hi everyone I thought I would jump in here . I started chemo in June just had my 2nd treatment of taxotere and cytoxan of 4. I asked my onco about cold caps and she said no because she doesn/t agree with it due to the cold slows circulation of the blood in the scalp and she feels this could have an adverse affect of the chemo to head and scalp that could mean any rogue cancer cells might survive. I too took control of losing my hair by shaving. My hair begano to fall out on day 14 after first treatment. My thinking is if this is the worst side effect then I could deal with it. So far during my chemo I have experienced very little side effects. I also take claritan for Nulasta shot and take tylenol extra strenght for bone pain. I have no problems with the shot. I start my claritan 3 days prior to the shot and stay on the claritan for 10 days. This helps a great deal. My chemo is on Tues, I feel great on Wed then slow down on Thurs and Fri and feel fairly well on the weekend. By seven days following the chemo I feel like my old self and feel good. My treatments are every three weeks, so two of those weeks are good. We will all get through this thing if we stay active and remain positive and know this nightmare will be over and will enjoy a long life after. Hang in there all and prayers to all.
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Hi everyone I thought I would jump in here . I started chemo in June just had my 2nd treatment of taxotere and cytoxan of 4. I asked my onco about cold caps and she said no because she doesn/t agree with it due to the cold slows circulation of the blood in the scalp and she feels this could have an adverse affect of the chemo to head and scalp that could mean any rogue cancer cells might survive. I too took control of losing my hair by shaving. My hair begano to fall out on day 14 after first treatment. My thinking is if this is the worst side effect then I could deal with it. So far during my chemo I have experienced very little side effects. I also take claritan for Nulasta shot and take tylenol extra strenght for bone pain. I have no problems with the shot. I start my claritan 3 days prior to the shot and stay on the claritan for 10 days. This helps a great deal. My chemo is on Tues, I feel great on Wed then slow down on Thurs and Fri and feel fairly well on the weekend. By seven days following the chemo I feel like my old self and feel good. My treatments are every three weeks, so two of those weeks are good. We will all get through this thing if we stay active and remain positive and know this nightmare will be over and will enjoy a long life after. Hang in there all and prayers to all.
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Thanks rita65 your post cheered me up. I'm on day 2 after first AC infusion and feeling kinda hammered.
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I too am meeting with my MO on Monday, and don't know where to begin with the questions. Any chance you could send your list to me as well? Thanks!
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Well, its Day 4 for me after my first AC treatment. The only way I can describe how I'm feeling is loopy and I can't spell/type with a darn. Not tired, but if I lay down I'm out for a while. Moving around in slow motion. I think my SE's have been minor. I rinse with Bioteen a couple times a day and also rinse with a combination of 1/2 t of sea salt with 1 1/2 T of baking soda in 2 cups of water several times a day. I am loosing my sense of taste but doable. My ONC said to keep things bland so I have been having a bowl of organic broth with pieces of kale and a scrabbled egg for morning. Helps get all of the medication/supplements down. Lunch I make myself a fruit smoothing to help get more supplements down. Dinner is ususally what the family eats or I make my organic broth mixture but add a handful of organic spiral noodles in it for a litte more texture and it helps get the rest of my supplements down. Last night it was a little heavy on my stomach but knocked me out for a couple of hours. I'm definitely sleeping a lot, although strange how I'm not feeling tired but apparently my body feels otherwisee. Tomorrow should be the real question as to how I feel. Her protocol for my meds stop tomorrow and I only have 1 medication to take and only if I begin to get nauseaous. Hope that doesn't come on. I've been drinking lots of green tea and ginger tea and I keep my sea bands on for naseau. So far the SE's are doable but my little guys are keeping me pretty occupied so I may not be realizing some of them.
Keeping everyone in my thoughts!!! We're getting through this girls!!!!!!'
Take care!
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Teeball-sounds like you are pushing through and staying strong. Picked up meds from pharmacy today, including anti-nausea patch, steroids,etc, which were called in by Nurse Practitioner, plus the other over the counter stuff we were out of (Immodium, etc etc). Assembling water bottles and other 'day of' items. sounds like you are braving your 1st treatment-I hope it's not too rough in the days ahead. Stay positive and take it 1 day at a time-it's all we can do, in conjunction with being responsive to and collaborative with our docs. Lets go July peeps!
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Rita65 - My onc also said no to cold caps. She said there's no proof they actually work since some chemo drugs don't cause hair loss. And she also cited the same reason you mentioned - the cold may prevent chemo drugs from doing their jobs, and I'd rather lose my hair then risk leaving behind some rogue cells.
She also said no to supplements, antioxidants, etc. She said these protect cells, and they may protect bad cells as well as good ones.
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O.K. getting ready to go down to the garage. My DH and my two little boys are going to shave my head. Chemo and Cancer will not decide when my hair goes away. That power is staying with me. Hopefully I don't cry my eyes out. Wish me luck!
As far as supplements go, everyone needs to do what their ONCs say. If your ONC says no, that means NO. Some of mine were a definite DOUBLE NO and some are not, but I have a pharmacist who is part of my team and I wouldn't be taking any if he wasn't on board. Supplements during treatment are not to be treated lightly (just my opinion) because some can make some chemo not as effective.
Take care.
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teeballmom - good luck with the hair, I had mine shaved last Saturday,out on the deck, with lots of tears shed....but am adjusting now. big Hugs
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My onc told me about a former patient who was drinking tea made from some type of bark and she never mentioned it to anyone. The combo of that tea and chemo drugs made her go into renal failure. So I'm def scared of taking anything without talking to docs now
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Shaved the hair. I lost it emotionally when my 4 year old said, "mommy, you're hair is white but you're so beautiful". Then my 6 year old told me how beautiful I was. No coaxing from DH. Coulnd't help it. Been crying ever since. Everyone keeps telling me how pretty I look and that they love me. I'm so lucky to have my DH and 2 little men.
Take care.
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teeball - such a touching story...made me weepy here at my computer! Thank you for sharing!
It is the day after my 1st treatment, and I woke up looking like I had a sunburn on my face and neck/chest. I assume this is from the steriods. Feeling OK today.
Take care everyone!
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Lauren I get that for a day or two after my Chemo treatment also, had my treatment yesterday and it has happened to me twice today, I was told I could take Antiihistamine..it helped but made me more sleepy.
I a feeling not too bad today, wonder what tomorrow will bring.
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Ellendou - I just noticed that you are from Alberta. I grew up in Calgary and lived there until I was 25. I have a job in CA and I actually miss the snow. I fly up every Christmas to see my parents and ski/snowshoe/play in the snow. Hope you continue to do well tomorrow.
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Hi Cyano had a son that lived just outside Calgary, so did spend some time visiting there...usually go down at least once a year for meetings with Hubby. Where in Ca do you live, we usually talke a trip or two to Palm Springs in the winter, to get away from the white stuff.
Am surprised I am having quite a good day, just lazy and tired but no other SE's today.....hope none show up tomorrow.
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I'm in San Luis Obispo which is near the coast 1/2 way between LA and San. Fran. No complaints about the weather.
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I hope everyone's weekend is going well. It was good to log in and see that some folks are managing fine and that others who weren't are recovering. Rita65, thanks for the promising note and wishing you that it remains that way or gets better. :-)
I just had my port installed on Friday, and I was curious about others who have them. Where did your surgeon place it, how many "incisions" do you have and where are they located? My BS placed the port under my arm precisely so I wouldn't have another score on my chest, but I also have a bandage beneath my collar bone so I'm wondering why. Didn't have an opportunity to ask him yet and since I'm having my second AC infusion tomorrow, the onc folks will tend to the followup care. I have the
The shoulder area is really been the sore spot, not the port itself. Someone posted that it made her arm feel like she had overdone a workout, and I can attest that's exactly what it felt like right after the surgery. Like I had thrown a thousand pitches the day before lol! I dug into the rixocet I had left after my UMX and slept on my back that first night. That did the trick. Will ask for numbing spray or lidocaine tomorrow when we break in the port. :-)
Hugs to all.
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Hi CityFi. I had my port installed on weds. One incision is just above my collarbone where they fed the catheter down the artery to attach to the port which is on my chest. They normally place it on the affected side but my lumpectomy scar was so high they had to place it on the left.
Hope this helps clear up the 2nd incision question.
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mssunshine71, yes, that was so helpful, thank you!
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teeballmom, that's wonderful. Good tears are always welcomed on this journey Thank you so much for sharing your story.
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Sending lots of hugs and tissue
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Hi ladies,
I wanted to introduce myself. My name is jennifer and I was diagnosed with idc stage 2 grade 2 er/pr+ her2+ brac - on June 22, 2012
Had a port put in on 6/292012...placed in chest...surgeon did great. Almost no scar. Very comfortable.
Started chemo...7/2/2012 (6 rounds) 18 weeks. TCH. Have not lost my hair yet. But my scalp feels weird. So I know that it is coming.
I cut my hair into a pixie when my onc confirmed there was no way around hair loss. I thought it would ease my 2 year old into things a bit.
Then surgery. Maybe the end of November. Not sure what kind yet...probably a bilateral mastectomy.
I hate it that we are all here...it brings me to tears when I read how many women are on here. Overwhelms me.
But, I am glad we are finding strength in each other. It means so much.
Jennifer
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