Meeting my onc for the first time, getting nervous

nibbana · June 2012

Going to see an oncologist tomorrow. My breast surgeon is confident I won't get the trip to Chemoland, but she is the surgeon. She does the surgery, that's it.

I'm afraid if I go in and hear the word chemotherapy they will hear my screams throughout the entire building.

I did tell my surgeon I wanted a pit bull who will knock the crap out of this. Now, I'm thinking I want more of a "black ops" type. Instead of blasting every bad and healthy cell in my body, go in like a SEAL team. Silent, under cover of darkness, look for the shot, take the shot, threat over.

Any words of wisdom here? What things do I look for in a good oncologist? What questions should I ask?

DeborahC · June 2012

Will you be getting the Oncotype DX test? That was the deciding factor for me and my oncologist in skipping chemo.

nibbana · June 2012

Asked the surgeon if she could pull the trigger and order the test, but she said that is oncology's call to order it. She said they can kind of "pre-score" you, and if chemo will give you a 1% benefit, why order the test?

I think I'll still push for the test.

Hipline · June 2012

I agree that you should ask for the Oncotype DX test. Everyone is unique and this test will give you a better understanding of your particular makeup. My insurance did not cover it but the company that makes the test contested and fought for me and ended up getting it paid. Even if insurance won't pay they will work with you. It's dang expensive. Also check out cancermath.net

Hipline · June 2012

I agree that you should ask for the Oncotype DX test. Everyone is unique and this test will give you a better understanding of your particular makeup. My insurance did not cover it but the company that makes the test contested and fought for me and ended up getting it paid. Even if insurance won't pay they will work with you. It's dang expensive. Also check out cancermath.net

C-squared · June 2012

nibbana~ IF you do end up needing chemo, you want an oncologist who has "got your back" and is knowlegable. If he/she is compassionate, collaborative, patient (tolerates questions), and truly genuine in his/her support for you. You will know. I questioned the match between my first oncologist and myself. I should've followed my instincts much sooner and moved on. What's important is that I did change and I found an oncologist that I truly love and respect that I am 100% confident has my back!! Good luck!

Soyaandpepper · July 2012

Can someone give me an idea as to how much is the oncotype DX test?

etherize · July 2012

Soyaandpepper, I think the Oncotype is something like $3,000. Not cheap, so you have to ask for it; they won't automatically do it.

nibbana, I would also get the Oncotype test if I were you. You don't have lymph node involvement and it's only grade 1 so that's definitely in your favor to not do chemo. But the tumor's a little big. So the test could give you peace of mind.

As far as what to look for: a good oncologist doesn't let his or her ego get in the way of the relationship; she listens to your concerns without interrupting; she takes you seriously and is open to different ideas, and finally a good oncologist takes the time to thoroughly explain your situation and options.

Write down your questions and the MO's answers. Bring a friend for another pair of ears, somebody who can also take notes.

And remember, most women find that chemo is not as bad as they fear. It's changed a lot from the days of constant throwing up, etc.

Meeting my onc for the first time, getting nervous

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