Too early for April 2012 mastectomy?

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  • CookieMonster
    CookieMonster Member Posts: 1,035
    edited July 2012

    Good luck tomorrow Lisamarie - hope you feel better with the squishies.

    We have a July surgery group if you want to come hang there too.

  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited July 2012

    July surgery for exchange or any surgery ? ty everyone for the wishes

  • CookieMonster
    CookieMonster Member Posts: 1,035
    edited July 2012

    Any surgery - I just had a lift & reduction on the non cancer side this morning, maybe soon I'll have a mostly matched set again.

    There are lots of TE placements and at least one other exchange.

    ETA - Thread title is: Anyone having surgery in July 2012 - Want to wait together?

  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited July 2012

    ty I found you , i hope all went well for you and u are resting comfortably . :)

  • CookieMonster
    CookieMonster Member Posts: 1,035
    edited July 2012

    Thanks - So far so good - twinges here and there but currently sitting on my butt taking it easy - snoozed most of the afternoon away after getting home from surgery.

  • Dianarose
    Dianarose Member Posts: 2,407
    edited July 2012

    Good luck Lisamarie Cool You were one of the last ones for your bmx and now you are the first for the exchange.

    I can't sleep because of the dam steriods they gave me during the infusion yesterday. Totall sucks when I have a long day of work ahead of me.

    Valerie- sorry about your job. I hope you weren't the insurance carrier.

    I have to tell you a funny chemo brain story. I went to get a script filled for some numbing cream for my arm to use before the stick of the IV so I handed the guy the script the other day at CVS pharmacy. He looked at me like I had 3 heads and after about 15 minutes trying to enter it into the computer he said it was not listed. He then went over to the head pharmacist and came back and said I had to go to a medical supply store for it. I said, just for some numbing cream. He said, that is not what it writtern here. He handed it back to me and I finally got the old glasses out to read it. I had given him an old script for 2 mastectomy bra's that I had never filled. I started laughing, but still felt like and ass. My friends think it is so funny.

    Have a great day everyone. I might as well go in early and get some work done ahead of time.

  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited July 2012

    Dianarose .. funny story , 

    Ladies I am home from hospital now have my new Foobs .. ahhhh Instant relief .. I cannot believe how good it feels cannot wait till u all have squishys ...surgery went great ... I am very tired now though . I worked the night shift last night and went straight to surgerry this am .. but all is well 

    Hugs sweet friends  

  • Dianarose
    Dianarose Member Posts: 2,407
    edited July 2012

    Lisa Marie- How do they look? Are they as you anticipated? I can't wait for my turn. I am ok for now with the expanders though. Not much I can do about it for quite some time. I am glad you feel relief.

  • markat
    markat Member Posts: 909
    edited July 2012

    Glad you are feeling better Lisamarie! My exchange is August 6th.



    Valerie so sorry about your job.



    I hope all of you going through chemo right now are doing ok. I have made peace with my TEs also. They are still really uncomfortable but meds help. So far so good on the tamoxifen.

  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited July 2012

    Dianarose , I finally took my top off , lots of brusing from what I can see undercoming from top of bandages . I am sore today . I got silicone implants 400 cc in each . I am not too happy with the look as my right side (cancer side ) looks smaller still from left . I call today PS for my post op appt . I will ask why ? maybe its due to trauma from my surgery and the swelling and stuff maybe it just needs time to settle in . the good part is it is  really soft to touch . the bandages stay on for 2 days then i can take off and shower . I dont know . maybe i was expecting a different look . I am also still high up . but these are ?s today for PS . plus my diflucan needs to be called in as I am on keflex . do not need yeast infection from antibiotics. much Love and Hugs to u all 

  • Dianarose
    Dianarose Member Posts: 2,407
    edited July 2012

    Lisa Marie- At least with this one there are no nasty drain tubes. I think everyones are high up and then they adjust. I can't go to 400 cc's due to dam radiation. I am happy where I am at. I just hope the implants are as perky as the TE's are. I am glad it's done with for you and I hope everything even's out.

  • longislandmom
    longislandmom Member Posts: 248
    edited July 2012

    glad surgery went well, Lisamarie.  congrats on the squishies! 

  • VeganGal
    VeganGal Member Posts: 154
    edited July 2012

    Hi Ladies . . .

    Val - so sorry about your job . . . that totally sucks the big one! Not sure if you liked your job or not . . . but who knows . . . maybe this is a wonderful opportunity to "rethink" . . . best wishes to you.

    Yeah . . . these TE's are crazy uncomfortable. I have not had a full night's sleep since April 25th. They wake me up all night. Loved some of the comments about bumping into things and not feeling them!!! LOL. I'm wondering . . . once the squishies are in . . . do you need to wear a bra? Are they forever perky? Also . . . I've heard different stories about how long they last - 15 years? Ug.

    Lisamarie . . . please let us know how they feel!!!!! I need the "inside" scoop!!!

  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited July 2012

    Vegan , The inside scoop on the implants .. hmmm dont know what to say . I got silicone round implants 400 cc each .i look lopsided but they tell me to wait for swelling to go down . my left side still under my arm a bit . im not too happy with the look yet , but its only been 3 days since surgery . ( im inpatient) i have to wear a sports bra all time it makes it feel okay . the pain is nothing compared to BMX . cant sleep on sides yet . they feel nice and soft compared to hard TE's . today my bandages come off and i can shower , I am afraid to look .. mine are still high too , I think i look funny , so guessing perky for life , my PS says saline drops after time but silicone will stay perky forever .. its very comfortable now though ...dont know if i answerd u ... :) also the biggest thing is the instant relief from the TE's ... as soon as u awake u feel amazing :) i wish u all the best in ur squishy journey Hugs 

  • Dianarose
    Dianarose Member Posts: 2,407
    edited July 2012

    Lisamarie- How long do you have to wait to do the nipples? I saw some photo's last time I was at the PS and they looked amazing. I still have a long road to get to that point, but it's something to look forward to. I am glad you are not in pain anymore.

  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited July 2012

    Dianarose if i were doing nipples , I would wait 1 month then they reconstruct the nipple , then one more month after that the tattoo the areola on .. I am not getting mine done . I have 28 tattoo's so i am a wierdo and I am adding to my cllection gonna get something pretty tattoed over my scars . :)

  • Dianarose
    Dianarose Member Posts: 2,407
    edited July 2012

    Lisamarie- My scars on both on the left sides and have really healed nicely. They will barley show. When the PS does the exchange she is going to make the incision under them and she said it won't even be an inch long. I want nipples back. It's just for my own personal need I guess. They might make me wait longer due to rads. I should be done with them by Christmas. Hoping to have everything done in May. I will just have to wait and see. Want the dam ovaries out at the same time. I thought I was in the clear because I didn't have a period since May, but got one this week. I am so done with it at my age. Have a great day.

  • valerie0118
    valerie0118 Member Posts: 126
    edited July 2012

    Hope everything went smoothly LisaMarie.  I got a call today and they are going to let me get the exchange in August....probably near the end.  Now you can fill me in on everything that happens! 

  • longislandmom
    longislandmom Member Posts: 248
    edited August 2012

    Hi, Ladies.  nothing new to report! just wanted to reach across the cyber airwaves and say hello and hope everyone is feeling well.  hugs

  • valerie0118
    valerie0118 Member Posts: 126
    edited August 2012

    I'm scheduled for my exchange on August 22!  New foobs here I come.  I will be excited to get rid of the one TE one old girl look, lol.

    Hope all are doing great!  LisaMarie, How are you doing now that you got rid of those darned TEs?

  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited August 2012

    Valerie, good luck with the exchange . I found it to be a very easy surgery , I am a little over a month post exchange and dont like them at all. they dont feel good . sleeping feels funny. one bigger than the other . they are very high, my PS gave me a strap to wear along top to help them drop. he also says that i still am swollen and it takes 3 to 4 months to go away, I am scheduled to go back October . I have moderate profile gel implants each 400 cc ... if u have any ?s feel free to ask away ... xoxo 

  • keonghi
    keonghi Member Posts: 111
    edited August 2012

    Hi ladies,  I always check this site to see if anyone popped in but I haven't really had anything to say until now.  NO CHEMO AND NO RADIATION NEEDED!!  I am so relieved!  My margin was within 1mm but they said a clear margin is a clear margin.  My oncotype on the left was 6 and on the right it was 16 so since they are both low, chemo would not be beneficial.  Now, I can get on with the rest of healing.  After my ALND I have had a lot of pain from the nerve damage so my exchange will likely not be for another six months as my body tries to heal.  Other than that, my energy is back to normal and I am resuming life once again (as I assume most of you are).  You all are always close to my heart and my prayers.  Good luck with all the exchanges and happy healing.

    Kristi

  • 2FriedEggs
    2FriedEggs Member Posts: 640
    edited August 2012

    Kristi that is wonderful news about the chemo and radiation as I remember what a loop you were thrown into after your pathology. Glad to hear you are doing so good and getting back into the swing of things again.

  • Dianarose
    Dianarose Member Posts: 2,407
    edited August 2012

    kristi- so glad you don't need chemo or rads. My Onco score was a 6 also, but with 17 positive nodes it really didn't matter if the score was a 0. Halfway through chemo. I am tired, emotional, bitchy, having hot flashes from Hell, but other than that I am doing ok I guess. I am totally sick of the wig and miss my dam eye lashes. Went to the store the other day and looked in the rearview mirror and I had wiped on of my eye brows off. It is a pain in the ass to say the least. I will be done chemo 11/5 and then rads start in December. The RO said I need to deflate the left boob prior too. It just sucks.

    I did try to do some normal things this week. I entered a decorated cake contest and made a treasure chest. It was fun. I have a pie contest on Friday and a King Author muffin contest on Saturday. It's a lot of fun.

    Hope everyone is doing ok.

    Lisamarie- I hope you are getting used to your new girls. I am looking forward to getting mine next May.

  • keonghi
    keonghi Member Posts: 111
    edited August 2012

    Dianarose - so good to hear from you!  Sorry you are going through all that you are and that it will continue for a while.  HANG IN THERE GIRL!  I don't get the oncotype now that I hear you had a six as well but I guess I will just be grateful that I don't need chemo.  Your strength and attitude always amaze me and inspire me.  Take care!

  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited August 2012

    Diana rose , you are such a strong person , and i admire you . stay strong and remember I am always here thinking of u and praying for you .

    Kristi , thats great news for you . I am glad those who post are keeping in touch , I miss everyone .. xoxo

  • ndroby
    ndroby Member Posts: 104
    edited August 2012

    DianaRose,

    I am also needing to wait for exchange surgery (April). I had damage to my uterus from the D&C I had with the mastectomies, and need a total abdominal hysterectomy. I started bleeding heavily at the beginning of June. One doctor thinks its a hematoma from the D&C and the other one says a polyp. I have been on high-dose progesterone to stop bleeding. I have horrible insomnia and cannot believe I have not slept more than 6 hours straight since last December before my breast biopsy. I am exhausted.

    I am a nurse and lost a hysterectomy patient early in my career--a totally preventable death. It has come back to haunt me. I just hope that I live through the hyst. I have no sick pay left and only 5 weeks of FMLA. I am worried about losing my job. 

    Hang in there.  I have not posted in forever, but have been feeling like crap with all this bleeding, trying to work full time and keep up with life in general. No emotional support from my husband. He just says, "You'll be fine." and shuts me down when I try to talk about how I feel. The tables will turn some day, and when he feels worried about a major health condition, that will be my simple response.

    Nancy

  • Dianarose
    Dianarose Member Posts: 2,407
    edited August 2012

    Nancy- sorry about the bleeding. I have been there and it does wear you down. Men just don't f'n get it. Not from the hair falling out to just plain being sick and tired of being sick and tired. Their day will come. I don't get sick pay at all where I work. No benefits at all. Just a pay check when I work. I am dam tired. I get 5-6 hours sleep at the most also and usually I have a bad dream or have to pee sometime during those hours.

    I did however enter a lot of competitions the past several days just to feel normal. I made a treasure chest cake and not only won first but won an additional ribbon for Judges choice from all the exhibits. Usually a gorgous quilt or something gets the award. I was so excited. I won first on my oil painting, first on my yeast bread and won the blue berry pie contest. I now can go on to the state level in January. Today I won 1st in the King Aurthor Flour contest. We all had to make 6 muffins. I couldn't believe I won. I got a beautiful ribbon and a 75.00 gift certificate to their catalog. My son won 1st on 2 of his entries and 2nd in the King Author contest. We really kicked some ass this yr. It made me feel like I can still do the things I used to do.

    Next week I will be back to reality on Tuesday with the beginning of round 4 of chemo. I stay in denial as long as possible.

    Lisamarie- I am looking forward to get rid of the hard as a rock boobs. Something soft and squishy sounds so nice. Are you getting used to your new girls yet? I did buy a strapless dress and my boobs look great and no bra needed. Cool

    Keonghi- trust me, if I didn't have 17 positive nodes I wouldn't be doing this dam chemo either with a score of 6. I think having my overies out is going to be more beneficial than the chemo. I will do that at the time of my exchange. 

    Hope everyone is having a great week end.

  • Mardibra
    Mardibra Member Posts: 1,111
    edited August 2012

    Blueberry pie.....my favorite!

  • ndroby
    ndroby Member Posts: 104
    edited August 2012

    DianaRose:

    Congratulations on your winnings! That's awesome! You rock! So glad that you have found that creative outlet. how wonderful that must make you feel! I would love to see a photo of your treasure chest cake.

    In trying to determine the reason for so much breast cancer in my mother's side of the family, I just had a slew of genetic testing where I work at UT Southwestern, and there is a new 14-test breast cancer panel that was recently approved by the FDA. My insurance covered it at 100%. There was another test that I had done (Killen Methylation) that showed my genes are ok but there is a missing promoter or switch that turns off a defective gene when it should be shut off to prevent the bad cells from multiplying. A very experimental test that is being further developed here. My breast cancer surgeon is a pioneer in breast cancer genetics research....I feel most fortunate from that perspective. This family breast cancer mystery is something that has puzzled me my whole life. Having a daughter has made me really seek answers for her sake.

     I am not looking forward to flash menopause when they remove my 1 remaining ovary. The good thing is that I can do hormone replacement therapy because I have no more breast tissue.

     I am praying for you as you go through your next round of chemo. I have a friend recently diagnosed with triple negative breast cancer. Her sister also had breast cancer, but it was triple positive. She just did chemo round 3 of 4 this past Tuesday. She still thinks I am nuts for having the preventative mastectomies, but with both breasts full of LCIS, I am glad I did the surgery.

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