For those starting chemo in June
Comments
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Well, yes and no to the water thing. I got it all out, but I have to put the pumps back on for about 15 minutes out of every hour because it keeps raining and water just keeps going into my basement. I had to have it on for a couple of hours tonight because I went to work today and was gone from 6 am til 7 pm and it had about a foot again. SIGH!! Guess what I did for additional fun tonight??? I tried to light my hot water heater and singed my eyelashes and eyebrows. What a dork!! They weren't that thick and great in the first place and now they look really goofy. Double SIGH. I don't think the Herceptin affected my hair because it really, really grows fast and I need to get a second haircut. I can put the stuff in the back into a little pony tail. I chopped the stuff in the front off because it kept getting in my eyes and I didn't like the way it stuck out on the sides when I plopped a hat on. It's just stupidly turning into those Pollyanna ringlets again in the back so I'm going to get it chopped off. I forgot to go to sleep last night. Actually, it got too late to take an AmbienCR so I bagged it and just stayed up. Tonight I'm tired and am going to sign off and go to bed. It promises to be 60 degrees tomorrow. Keep your fingers crossed. Night all. Life is Good--Smiles--NancyLee
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Hi girls
My Mom passed away early this morning. We were called around 11 p.m. last night. Someone from the hospital said we should come right away...she had been admitted and probably would not make it. We were not able to get here in time before she died. The kids and I are in TN. The visitation and funeral is Thursday. I am going to miss her. She was my rock....always supported me no matter what. -
Oh, Janie, I'm so terribly sorry. I'm not sure what to say. I lost my dad 21 years ago and I still miss him. She obviously raised an amazing woman, so she must have been one herself. My prayers and much love are with you.
Paula -
Hi Girls, hope all is well with everyone and Janie has my thoughts and prayers. I have been in mucho pain in the neck and shoulders. I haven't slept much because it gets really bad at night. I was talking to my oldest daughter(the one here in town) and she was leaving work to go to class as she is working on her Masters. I figured she can't get away and she has about a half hour traveltime so I decided to tell her just how bad I hurt and how sick I was of treatment and the crap that goes with it and how I was going to say heck with the last 3. I then came out of my drama attach and said who am I kidding? I will drag my butt in there and finish, so anyhow I am done so call me later. I hung up and thought "I hope my family appreciates how much I am going through for them," and I suddenly realized I am doing all this for them, I have to be here for them.....they need me.....(and I need them). I have a grandson as it is my daughters class night so I better get. I need to lay down and rest or get a lot of sleep to make up for the last 2 nights of no sleep. Hubby called and had he not screwed up on miles he would be home by now but he will be home by 4a.m.maybe. His trainer showed him something wrong about hours not driving. Poor man, he can screw up enough on his own he doesn't need help. He banged up a door on his truck, scratched the side on a pole and blew up a truck. He is doing good. Hugs, Mary
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Janie,
You have may deepest sympathy. You are a rock also and we will be here for you.
Renee -
Thanks everyone.
I am back home. Started back to work today.
I tried to reply a few minutes ago and there was no reply button. Then I realized I was not logged in. I couldn't find the password in my index file, so I tried a bunch of them before getting in. Wonder what they did during maintenance. I missed you guys.
Janie -
Glad you are back Janie, I was going to call but didn't want to bother you while you were with family. Still freeking packing and moving to storage. Mom-In-Law put a guilt trip on me today about running off when she has a year or less to live. #*^* I guess I may wait until winter. I better get some rest. I am 60% packed and moved to storage. Later, Mary
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Hey Mary,
Hope you get the other 40% out of the way soon and know where you are going to light.
An old friend phoned me this afternoon. She is in private practice and her partner is retiring. We are going to meet this summer about my possibly working with her. I am already under contract with the school for next year, but I could do some things on the side and maybe work something out the following year.
I get to go get my boobs mashed flat again in the morning. Those mammos sure do come around fast these days.
Well, almost time for American Idol. Later ya'll. -
Janie, Nathan wants to watch American Idol (we've never seen it). I guess thekids at school must talk about it. Isn't it on Tuesday and Wednesday?
The possibility of the job with your friend sounds enticing.
We were going to watch it tonight, but had a stray dog show up so we had to tend to it (until it heads to the animal shelter tomorrow). It's cute, but its coat is a mess and it's missing a lot of hair. Hoping it doesn't have mange. It's separated from our dogs, but still....
Not much else up here except the temperature.
Mary, where will you be staying for the time being?
Paula -
Yes, It usually comes on at 8 on Tuesdays when they sing and 9:00 on Wednesdays when one gets voted off.
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So who's going to get booted tomorrow? I just hope Chris stays. I like the bald guy. I went and got my hair cut REALLY short today. It's either my summer haircut or my here we go again haircut. I went and had my mammo on April 6th and when I went for my pap, CBE, etc last Friday--The doctor told me that they wanted me to come up on May day--yesterday and have further tests. Yesterday I went and had an uneventful ultrasound followed by another visit to the torture chamber where I had 3 regular squishes of lefty, 2 squishes with a small clear cone thingy and 3 more with magnification. That's *8* smasheroonies. OWWW. I was SO sore when she got done because the lesion that they're looking at is lying really close to my chest wall so she kept pulling me literally right into that stupid machine. I couldn't have been leaning any further in without becoming part of it. Now I'm waiting to find out what else they think they need to do. I see my oncologist on the 12th for my 3 month checkup. I'm gonna chew his A-- if I took 52 weeks of that stupid "no side-effect" Herceptin and it didn't work. This better just be scar tissue from one of the catheters that they had poked in on that side. Well, gonna go get my stuff together for the morning trip to the house in town for a shower. I'm still without hot water out here at the ranch so I drive to town at 5:30 in the morning and shower and then open the daycare at 6:30. Tonight I didn't get out of there till 7 pm because we had 51 kids and I saved all the pots and pans till after the last of the really little babies was gone. When I came home tonight, I ate Chip & Mint ice cream and watched American Idol. Ah, comfort food!!!! Life is Good--Smiles--NancyLee
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OK, well, I just want to see people get voted off anyway. I'm a Survivor fan. It's my favorite part....
Nancy, when do you find out results? Surely it'll just be scar tissue. You've been through a lot. (Plus you have to deal with that horrible weather...)
Hasta luego,
Paula
P.S. - Mary, for when you move to Phoenix and if you don't already know, that means see you later. Perhaps you can teach it to the chihuahua... -
Hi All,
Well, I got squashed pretty good too Nancy....two left, two right, two magnifications, come back in and do two right and one more left...... however, I have good news. The radiologist reads it while I am there and the results were good!!!!!!!!! No signs of recurrence, just scar tissue and calcifications. Each time I get good news, I feel a little more secure. Nancy,from looking at this board, it appears that none of us who are stage III or less on Herceptin have recurred. I think that is very promising. Since we are the guinea pigs, I guess only time will tell long-term, but we have already beaten so many odds. Like you say, life is good. -
Hi girls, I am sooo tired and just a little more to go. Did I say how much I hate the pack rat in hubby????well I haven't said it enough!!!!I have 2 storage places the size of a garage and crap at my daughters and sons and in my suv. Never again and I mean it. I will boot the hubby out instead. Hubby is somewhere on his way to Texas again, he spends a lot of time there. They had him sign papers for selling house and did not have him sign a power of att. and now they need it so I can sign and boy!!!! Daughter is running papers to Mo. 5 hours one way otherwise we could not close until 2 more wks. She is a notary public so we are safe, our whatever-can happen-will crap. Glad you are clear Janie and rooting for good news for Nancy Lee. My tumor was close to the chest wall and they almost pull my back muscles through my chest when they mammo me. I hear I get a different kind now with the implant and it should be easier. I will see in June or July. I have to check on that. Hey I have to get. P.J., just throw those Spanish words at me cause I need to concentrate on learning the language so I can understand my dog. She is barking in Spanish right now and I have no idea what she is upset about.I bought her a fake diamond collar and now she has "bling", she thinks she is "hot". Later girlfriends, hugs, Mary
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¿Hola María, Cómo lo va? Yo no sé español en todo tan hago bien. Utilizo un sitio web que traduce inglés a español. Vea si el perro puede leer esto.
Janie -
Hi Girls, Janie, you sound like my dog and I don't know what you are saying either so you can see why we have a communication problem. I would like to speak other languages but that would more than likely take time and I am just brain lazy. Oh!!!!Onkie said I only have one more treatment left. I told him about the finger tips being tender and it was traveling up into my palms and he said neurop. doesn't happen with hercept. He doesn't think Hercept. has sides. Well tomorrow is the last day here. I turn over the keys at 4p.m. and No More Stairs to climb a hundred times a day. I won't miss them. I will stay with my daughter a day or two and get into a new place Mon. Later, exausted. Hugs Mary
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Geez, Janie, you REALLY know spanish. I'm impressed. All I know is a few phrases. Plus you know all the fancy accents. Wow.
Mary, yeah, that finger stuff is all in your head.... man... doctors can be so dense...
Glad you're almost in your new digs.
Renee, OK, I'm ready to start hopping like a bunny. How many times did you say you jump around a day? 200? And just on the floor?
Hi to Nancy Lee. Hope you're not having a May blizzard.
Paula -
OK, I'm about tired of tornadoes now. This is 2 weekends in a row we've had horrible storms. No damage here but a few limbs down, and the primary damage in town was to businesses. But still. Spring in Texas.
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OK, I confess. I do not speak Spanish either. I went to English to Spanish website, wrote what I wanted to say, pushed the translation button and cut and pasted it here. I only took Latin in school.
Mary, lots of oncs say Hercept has no sides. Tell that to the hundreds of us ladies who have had the same identical effects. It is so new, they assume bunches of stuff. I had an allergic rash, nausea, neuropathy, a little breaking out, and yada yada yada. I have read oodles of messages from others who have experienced side effects as well.
PJ, may the tornadoes will end soon. Hi to Renee and Nancy Lee.
I just got back from a brief trip to the mountains. It was good too get away from the madding crowd.
Later -
Hi to all of you too. I just now got back from Glendive. I went for the Montana Child Care Association STATE meeting. They held it in Eastern Montana for the first time ever so I had to attend. I got to go to this really cool sign language seminar. We sign in the daycare to this little autistic girl so it's always fun to learn new things. Besides I used the time in between sessions to get further updates at the hospital about my "not so great" mammo results. Now they sent my films to Billings and I have to go up there soon to have a Stereotactic breast biopsy. They don't have the machines to do that in Glendive. This is all because the "little rascal" as the radiologist calls it cannot be felt by anyone including me. It does however show up on the ultrasounds and mammograms quite clearly. SIGH!! Well, enough of that. On the home front, the plumber never showed up while I was gone so I still have no hot water. I'm packing up all my dirty clothes and taking them in to my house in town to wash. I feel like I'm back in college taking dirty laundry home. The weather is beautiful--in the 70s. On Thursday when I left for Glendive, it was snowing. I just don't understand why we don't all have pneumonia from all the fluctuations in temperature. One day it's so cold you can see your breath and the next it's sunburn weather. At least the weather's not boring. Well, gonna truck into town with my clothes so I have something to wear next week. Hope you all had a blessed Sabbath. Life is Good--Smiles--NancyLee
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Hey Girls, I am soooo tired I can't write but wanted to say the place is looking up. 2/3 of stuff in and what is left in storage is basement stuff so I now have to put it all away. I have to paint a little and paper a little and it will look pretty good. Its home for now. Hugs, Mary
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Oh; hubby told me on the phone his "carpenter" days are over. Oh Gosh, Oh Gee,I am totally blown away by the news. What a shock. What ever will I do? When I said the sink leaks he said leave it alone and I will fix it when I get home. Its just the grommit. Apparently he is suffering from dementia. Mary
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Welcome Home Mary,
I hope you get all snug and cozy in you new digs.....and keep Tim the Toolman from "helping" too much. You are sort of like the mother who says "Sorry Honey, Mom doesn't have time for you to help today." -
I just called the plumber again and he said that he had been out here at the ranch the next day after I called, but I wasn't home and he didn't think to leave a message or anything!!!! Anyway, he says that I need a new hot water heater and maybe I should think of putting it upstairs away from the water problem. Well, NO DUH. I've already got a place picked out for it. Now I just need to get someone out here to put it in for me--Maybe I should borrow your handyman, Mary. Just kidding. My brother in law should be here next week and he's really good at stuff like this. I guess if I've gone this long w/o hot water a week isn't going to make much difference. Maybe I'll be in Billings for part of that time anyway. It was beautiful today. I only worked 10 hours at the daycare and then came home and took a walk with Dash the maniac border collie. I checked us both for ticks when I got back home and we were both clear. The paper says that ticks are bad this year. So far I haven't had any problems. Knock on wood. Well, another Monday almost over..Hope yours were eventful or calm or whatever you wanted. Life is Good--Smiles--NancyLee
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Hi ladies,
It's been busy here. Took Josh to Kansas to find a place to live, meet his profs, etc, and then drive back. Next mom and dad were up from Arkansas for nephews confirmation and stayed here a few days. Now we are off to Galveston for Ry's graduation!! and some fun in the sun. when we get back it is Justin's graduation. Then back to Kansas with a van load. But I will check in on occasion to make sure you guys are behaving.
Paula, just jump - 200 times and feel the burn!
Mary, did you throw out a ton of stuff too... like his tools since he won't be using them any more?
Very clever Janie, you had us all going with those great speaking skills!
Nancy Lee- You have so much energy, I get tired reading your posts! You go girl!
Renee -
Renee, sweetie, if I really had tons of energy, I'd clean my dang house!!!!! It's a sty. I just do everything, but clean the house. Like surf these boards and read and go for walks and bake and work at the daycare and do sudoku puzzles and talk on the phone--anything but clean. I only worked 6 hours at the daycare today and then came home to just veg out. I have a bit of bronchitis, I think. Coughing and all the good things that go along with this particular ailment. When I got home, I got a visit from the government trapper. He was at my ranch hunting coyotes. He found lots of tracks and one ewe who had been killed this morning by one or more coyotes. She was a new mamma. I HATE coyotes. The trapper had been by the house earlier in the day and pounded on the front door thinking I was at home. I took my pickup to work today and left the jeep parked out front. He was really relieved to see that I was okay when I finally got back home. Kinda nice to know that all sorts of people are looking out for me!! Well, American Idol is coming on so I guess I'll log off and watch that. They're going to sing Elvis songs tonight. I'm not too sure that I'm going to be into that. My Aunt Diane on the other hand is guaranteed to LOVE it. Bye for now--Life is Good--Smiles--NancyLee
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Hi all,
I'm 52. Was diagnosed beginning of April and 1st surgery April 7 - lump. and sentinel node. Had a resection and port put in last Tuesday. Will have my muga (sp) scan on May 22 - got pushed back because of a shortage of the drug for the test. Hope to start chemo that same week. I just want to get it started and finished. No lymph nodes in my arm were positive, there was a positive node in the breast material that the surgeon removed. Surgeon says I don't need to have other nodes removed. Local oncologist agrees, but 2nd opinion doctor says take them out. I'm going with the local docs. The waiting is the hardest of all. I have a wonderful husband who has been with me thru all of this. If I don't remember to ask the question, he does! Thanks to all for the great info! -
HI Roadybe,
You're right, waiting IS the hardest part. And I sympathize with you on wanting to get it done and over with. I was the same way 2 years ago when I was diagnosed. In fact, it's 2 years ago today! But here I am (having already recurred and done chemo AGAIN), and I'm feeling fine and confident of the future. You'll be on the other side of chemo before you know it.
Take care,
Paula -
Roadye,
PJ's right. It is all over with rather quickly it seems. Time passes fast. I did 24 weeks of chemo, 26 rads and 52 weeks of Herceptin. It really did not seem to all that long. I am back to my new normal and feeling good. You will too before you know it.
Nancylee, why clean when you would have it to do again in six months? That is sad about the new Mama getting killed, sort of like Bambi....
Hey to everybody else -- -
Janie--I didn't say I was GOING TO clean--Just that I SHOULD. I like your referral to your life as "the NEW normal". It's very accurate. I will never watch American Idol again. They got rid of the bald guy, Chris. I liked him and his "lack of hair" style. That's the way it usually goes. I opened daycare today and left at 8:00 when the second person came in. I'm taking a NancyLee day and just goofing off. Feels good. Hope you're all having nice Thursdays too. Life is Good--Smiles--NancyLee
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