Has anyone started a Dec 2011 group?

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  • Jen78
    Jen78 Member Posts: 102
    edited July 2012

    Thanks, Markat! I have the issue with neck hair, too. It's really hard to part with any of my new hair, but it's starting to look kind of weird!

  • rachelvk
    rachelvk Member Posts: 1,411
    edited July 2012

    Jen - Welcome!

  • Tskaiser75
    Tskaiser75 Member Posts: 32
    edited July 2012

    Hi everyone, haven't been here for a while. I have been checking out the Arimidex post since I started that a couple of weeks ago. I get my port out on the 17th. Really looking forward to that, it didn't work very good only one time that I didn't have trouble I will be glad to get it out. Didn't think about scar tissue but what else is new It is what it is and will just have to deal with whatever happens will be glad to have it out. I know what you mean about feeling old and having a time getting started when getting up. Sometimes I feel like an 80 yr old women(no offense to anyone-hope I am here at 80). Sometimes people will tell me to sit down and rest and I tell them not sure if I can get back up its easier to stand. I also am loosing my two big toenails, my son in law wants to pull them off I won't let him near my feet! I just try to keep polish on them so they don't look so bad. Enough of the negatives, I hope everyone has an awesome 4th of July! Take care and keep going.

  • naan1004
    naan1004 Member Posts: 520
    edited July 2012

    Happy 4th everyone!

  • rachelvk
    rachelvk Member Posts: 1,411
    edited July 2012

    Happy 4th! I hope everyone has great plans.

  • Kelloggs
    Kelloggs Member Posts: 965
    edited July 2012

    Wow...I've been off radar for a little while and always have alot to catch up on.  I hope everyone had a wonderful 4th.  Mine was good except it felt like we live near the gates of hell!  It was 98 degrees yesterday...in Ohio!

    I had scans on Tuesday and so I was not able to relax fully for the holiday.  Today I saw my MO and got my Herceptin.  My scans are clear....still NED!  She said she has never seen a response like this before.  I am so elated!  Going on vacation in 2 weeks and I am going to celebrate!

  • Whatashocker3
    Whatashocker3 Member Posts: 209
    edited July 2012

    Wow Kelly! I am so happy for you. You have a great vacation and celebrate your scans. You deserve some good times.

  • rachelvk
    rachelvk Member Posts: 1,411
    edited July 2012

    Yay Kelly! Keep it up, girl! Have a wonderful trip.

    The heat is driving me crazy, too, and usually I'm more of a heat person than a cold person. The AC in my apartment sucks; glad I'm moving - they have real ACs in the windows, not the 'blown air' style I deal with now.

    Keep cool everyone. 

  • Mardibra
    Mardibra Member Posts: 1,111
    edited July 2012

    Loving my central air these past few days. Freaking hot!



    Congrats on being NED Kelly!

  • markat
    markat Member Posts: 909
    edited July 2012

    Congrats Kelly! I'm so happy for you!



    This heat has to stop. It's been 100 or close to it for over a week. Monday it's supposed to be a chilly 85, yay!

  • Kelloggs
    Kelloggs Member Posts: 965
    edited July 2012

    Thanks ladies!  It's supposed to be 101 today and tomorrow here in Ohio. Can you believe I am looking forward to a vacation in Florida and Mississippi???  Usually the heat there is overwhelming this time of year but I'm thinking not so much this year.  My poor DH is a cement mason and has to work outside in this...in jeans.  I am very thankful for my air-conditioned desk job!

  • naan1004
    naan1004 Member Posts: 520
    edited July 2012

    Wow, it's been weird weather in CA too, we have been in the low 70's all week and starting this weekend low 80's then back down to mid 70's, wish u all can share our weather!



    I have some bad news, my onc wants me to have more chemo, I can't believe this is happening to me, ugh!!!!!

  • markat
    markat Member Posts: 909
    edited July 2012

    Julie I'm so sorry. Did your onc tell you why? I can't remember how many rounds you had. Are they telling you a mx would be better?

  • naan1004
    naan1004 Member Posts: 520
    edited July 2012

    Markat, my onc said to decrease my chance for recurrence, since I don't qualify for rads nor hormone treatments.

  • rachelvk
    rachelvk Member Posts: 1,411
    edited July 2012

    Julie - I'm sorry to hear you have to go through that again! It's strikes me as odd, since you did the recommended treatment through. Were there any scans or newer tests that suggest you have a higher risk? I forget what your pathology was after your lx. I'm wondering if I should ask my MO (though I had a bmx, but I'm worried about the possibility of what's circulating around elsewhere).

    We'll help you get through this. Keep us posted.

    My AC (blown air unit in the apartment) decided to die toward the end of the week. Lost electricity last night for a few hours after a severe storm. Not happy, but at least I have a fan and it seems to be cooling off. 

  • Kelloggs
    Kelloggs Member Posts: 965
    edited July 2012

    Oh Julie, I'm so sorry. I can't remember how many rounds you had either but this seems unusual.  What did your MO suggest this time?

  • Baileybump
    Baileybump Member Posts: 172
    edited July 2012

    Julie, so sorry to hear you have to have more chemo.  As Rachel said, we'll all be here for you and help you through this.  Why were you not eligible for radiation?  My heart goes out to you, but you did it once, you can do it again.  You are surrounded by warrior sisters!

  • Whatashocker3
    Whatashocker3 Member Posts: 209
    edited July 2012

    Julie, I too am sorry to hear about you having to do more chemo. On the positive side your MO appears to be deligent with your care and that is important. I am assuming it is heart troubles stopping you from the rads? We stand beside you with the next couple of rounds of chemo and we won't let you alone until you ate done. We are with you.

  • Mardibra
    Mardibra Member Posts: 1,111
    edited July 2012

    As a group we are not done until each one of us is done.

  • naan1004
    naan1004 Member Posts: 520
    edited July 2012

    Thanks all for your support, my pathology after my lx was nodes all clear, margins all clear, thus I'm not eligible for rads according to my BS and onc. I already had 4 AC every 3 wks and 12 Taxol weekly, he wants me to have 4 more rounds of AT every 2-3 wks or 12 weekly. I finally got a second opinion from an onc collegue of my BS and they r with me in saying I don't need more chemo, so I trust my BS more so I'm going with her suggestion. My onc is in the process of moving his practice elsewhere, tomorrow is his last day at the current location. He really hasn't impressed me much, especially when he tried to give me hormone treatments when I had to remind him that I'm TN and can't have any.

  • Whatashocker3
    Whatashocker3 Member Posts: 209
    edited July 2012

    Wow Julie! He wanted to give you another three months worth? I had never heard of that. The second opinion makes you feel more comfortable with your decision I assume. Did you have a lumpectomy or a mastectomy?

  • Kelloggs
    Kelloggs Member Posts: 965
    edited July 2012

    Julie - unbelievable!  Why would they want to subject you to another 4 rounds of chemo when your pathology was negative nodes and clear margins?  Doesn't make sense and I would go with the second opinion as well.  I was under the impression that rads are given even if you are node negative and have clear margins.  I would fight for the rads more than the chemo for sure.  It was explained to me that when a lumpectomy and rads are done it gives you the same outcome (chance of recurrence) as having a mastectomy.

  • rachelvk
    rachelvk Member Posts: 1,411
    edited July 2012

    Julie - Well, I'm glad you don't have to go through that again. How strange that he would have suggested it. It's nice to think that maybe there's something else that we can be doing (especially for us TNs....), but that seemed like overkill.

    It's been so nice to get back and start exercising a little. It took me longer than I would have liked (laziness) and I still have a ways to go, but now with my exchange behind me, I've been cleared to get back to most exercising, except no upper body weights above 10 lbs (!!!!). Just lots of reps if I want. Made it to the gym Wed, Sat and Sun, and took a good hard walk for 30 minutes tonight. Hoping to lose the stomach and thigh flab that's snuck up on me this past year. 

  • naan1004
    naan1004 Member Posts: 520
    edited July 2012

    Whata I had a partial mastectomy or lumpectomy, my tumor was 3.5cm and my surgeon took out big margins so I lost 1/3 of my rt breast. Couldn't tell the difference with the swelling, but now that the swelling is gone it looks like I got a reduction/lift on rt side, definitely can see the size difference.

  • markat
    markat Member Posts: 909
    edited July 2012

    Julie I'm glad you got a second opinion!



  • naan1004
    naan1004 Member Posts: 520
    edited July 2012

    Markat, me too!

  • Baileybump
    Baileybump Member Posts: 172
    edited July 2012

    Julie - I had a lumpectomy, no node involvement and clear margins, but like Kelly said, I was told that lumpectomy plus radiation is equivalent to mastectomy.  Maybe you could talk to your doc again about radiation.  Did you have an oncotype test done?  I'm so glad you got a second opinion.  I did the same thing when I met my original MO.  I was uncomfortable with him, personally. 

  • Whatashocker3
    Whatashocker3 Member Posts: 209
    edited July 2012

    Yes the radiation comment I thought was a bit odd. I know quite a few women that have had rads with lumpectomies and no

    nodes? Why did they say you couldn't have rads?



    Good to see you Bailey. How has the hair growth been? I have been thinking my eyebrows aren't going to come back. The top of my head hair is coming along. I do not have any spots where there is not coverage it is just that it is not thick enough. I am feeling like a hermit as I really don't want to be about until I can ditch that damn wig.



    I have tried biotin, olive oil and a hair growing system. I try to spend quite a bit of time outside in the sun and wind as well. It's coming, just not soon enough. I think mentally I will progress further once I am able to go into the public without my disguise. :)

  • rachelvk
    rachelvk Member Posts: 1,411
    edited July 2012

    I've been going wigless for a few weeks, but I usually still wear one of two caps (one baseball, one similar but not quite). I've gone without, but it's funny - I feel 'naked' without something on my head now. Maybe it's because the station gets cold... My hair is now just 'long' enough to get a little mussed up - and I had cute semi-curls on the back that a co-worker flipped. But we're still talking less than a half inch. But it feels luck a plush rug, not a wirebrush.

    Heading to the shore tomorrow for a few days. The last time I was there, I kept peering at my right boob and praying the lump would go away... Well, it did, but I had to go through a hell of a lot to get rid of it. 

  • Whatashocker3
    Whatashocker3 Member Posts: 209
    edited July 2012

    Rachel, have a good time at the shore. You deserve a peaceful rest. I remember praying that in the morning it will have gone away. But it didn't. This year will be a better year for us all.

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