Early Stage Natural Girls!

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  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited July 2012

    Rock on zuvart! My doctors just couldn't seem to get this. They thought I didn't want chemo and rads out of fear of sickness, hair loss, and burns. They never could grasp this, but I guess it is hard to disentangle one's mind from the lies their lives are built on. I'm pretty sure they have good hearts, but those who financed their schools and who run their professional organizations do not.

  • graced
    graced Member Posts: 104
    edited July 2012

    Zuvart, thank you for your excellent post!  I saw the documentary Pink Ribbons Inc last month and was shocked and yet not at all shocked to learn that the same company that makes Tamoxifen makes Atrazine.  Talk about double-dipping.  I start radiation next week so I'm a few weeks out from the tamoxifen but I am very leary about it and really leaning towards not taking it.  I know my oncologist and surgeon are going to stroke out if I say I don't want to do it.  Don't know yet how to handle it - present them with a bunch of research on why not or tell them I'm taking it and don't. Hmmm.  A few more weeks to come up with a plan.  

    Grace

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2012

    My onc that I am going to so I can get thorough tests isn't tlaking to me much.  But hhis colleague that I had to see about infection and LE, he tried bullying me about how I am not taking the drugs for hormones and that NOW I am taking the consequences of not taking chemo or rads.  I was hot.  I am still hot.  he did not get away with it but I wa ssubdued in response bcz I still want something from their clinic, then I am gone.  Ticked off at the way we are treated for straddling the fence that is in their ideals, not mine.  Treatment is a choice and IF I AM the MAIN ONE IN THE TEAM, then why are my words, choices, questions treated as not so important and disrespected?  The ? for my new and nearly ex-onc.

  • candygurl
    candygurl Member Posts: 130
    edited July 2012

    Graced, be sure to shop around for a really good naturopathic oncologist.  Unlike medical oncologists, they have advanced therapies which are not only aimed at eliminating the cancer, but changing the biochemistry of the body to a state of health which doesn't enable cancer to grow. Given the damage Tamoxifen can do to the body, it is not uncommon for a lot of people to decline it.  Therefore, if you present your research well and show your MO what your Naturopathic Onc recommends as an alternative and why,  s/he is more likely to respect your opinion and decisions.  If s/he is unreasonably narrow-minded, then maybe seriously consider letting that person go and finding a real professional.  That's what I had to do.

    -------------------------------------------------

    Dunesleeper, I think that most MDs enter the profession with good intentions.  But just imagine spending all those long years in medical school only to realize that your job is pretty much to be the pharmaceutical industry's b*tch-just follow their cookie-cutter protocols and prescribe medications that aren't fit for human consumption.  Their hands are tied, so to get around addressing our questions, fears and concerns, they use arrogance to compensate for their inadequacies .  This article just really says it all. Harvard Medical School in Ethics Quandary - NY Times .com  http://www.nytimes.com/2009/03/03/business/03medschool.html.  It discusses a full-blown movement by more than 200 Harvard Medical School students and sympathetic faculty, intent on exposing and curtailing the pharmaceutical industry's influence in their classrooms and laboratories, as well as in affiliated teaching  hospitals and institutes.
  • graced
    graced Member Posts: 104
    edited July 2012

    Thanks zuvart!  I didn't even realize there was such a thing as naturpathic oncologists.  I will look into that.  So much to research and consider.

  • DianaNM
    DianaNM Member Posts: 281
    edited July 2012

    So frustrated on the Integrative/Naturopathic oncologist front. We have ONE practice in my town that is on my insurance. They are associated with the big cancer center at the University. Started off with an appointment at the end of May, which got rescheduled until July 20. Got a call yesterday rescheduling me to September! 

    Was really hoping to get some help with the whole hormone/thyroid thing. Guess I will keep doing what I am doing and rely on you guys for help!

    I am supposed to see my MO again before that appointment in September. That's when I will be telling her I am not taking the Femara, but oh, I'd really like a prescription for a sonocine of my remaining breast. Wonder how that will go over.

    Maybe get the Femara Rx filled and tell her I couldn't tolerate it? That's pretty much the truth. 

  • purple32
    purple32 Member Posts: 3,188
    edited July 2012

    Integrative/Naturopathic oncologist

    Dont feel too bad, Diana...I have only 1 in my state and is not on my ins.,

    I made an appt with her, but after talking to her on the phone, I honestly felt she would be telling me no more than I could discover on this site, AND she could not do lab tests of any kind.

    So....no thanks .

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2012

    http://www.nytimes.com/2009/03/03/business/03medschool.html

    Goodpost, Zuvart, fixed the llliink. but it won't oppen in a new window.

  • graced
    graced Member Posts: 104
    edited July 2012

    you can right-click on the link and select 'open in new tab' to get it to open in a new one and keep this one intact.

    i've read a whole bunch of books about cancer the past few months and one of the best ones I read is called "Waking the Warrior Goddess" by Christine Horner.  You may already know about it but just in case you didn't I thought I'd share.  Among other things she talks about flax seed, green tea, turmeric, and maitake mushroom.  You may have discussed books earlier in this thread but I think I joined midway though so sorry if I am repeating.

    Cool 

    Grace

  • purple32
    purple32 Member Posts: 3,188
    edited July 2012

    THX Grace

    I just recent enjoyed ANTI CANCER:  A  New way of Life.

    It was written by a Dr who had brain cancer!

  • graced
    graced Member Posts: 104
    edited July 2012

    purple32 - I read that one too!  That was great also.  Christine's book is a little more specific to breast cancer and goes into more details on the studies of each of the things she recommends.  I learned a lot from the anti cancer book too!

  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited July 2012

    Where do you get maitake mushrooms? They do seem to be the most recommended type of mushroom for anti-cancer benefits.

  • purple32
    purple32 Member Posts: 3,188
    edited July 2012

    RE: The maitake

    Good question, dunesleeper. I would like to know as well!  I have read that sucker is very effective.  In another place, I read that our most common white button mushroom does nothing at all.Undecided

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2012

    I'm going through same dilemna, to tell my onc next week or not that I'm not taking any AI after quitting Tamox.  Reading Diane's story, I'm more inclined than ever to take the script, run with it, not fill it, and just play it by ear.  I am pretty sure (99.9%) that if I tell him I'm using natural meds, i.e. DIM he won't be testing me anymore.  So I'll continue with follow-ups as if I was taking the AI and get routine testing.  I told my gyn I was no longer on Tamox and will be taking AIs....and he told me there was no point getting hormone panel results Frown so will have to consult with ND for monitoring of hormones.

    Thanks Grace, I'll move up that book on my priority list which is huge !

    Re mushrooms, I don't know if fresh maitake is readily available where you live but it can be obtained in a supp.  For anyone shopping at Costco, I found the Gourmet Mix Mushrooms from the Wild Mushroom Co, it's a dry mix, huge = 454 g, and contains Porcini, Shiitake, Yellow boletes and Oyster mushrooms Tongue out

    Zuvart, love your story ! those med students are paving the way for a more humane practice and will be taking their oaths to heart, hope to live long enough to see this happening 

    "In a speech to health journalists, Dr. Brawley (ACS, Chief Medical Officer) called the current system "a subtle form of corruption" and admitted that doctors routinely lie about the success rates of both screenings and treatments alike -- including PSA exams, bone marrow transplants, and chemotherapy.

    He even 'fessed up to the dirtiest secret of the cancer industry (and yes, make no mistake it IS an industry): The system is set up to steer patients not toward the best or most effective treatments -- just the most profitable ones.

    "Twenty-five years after graduating from medical school, I concluded that a lot of doctors are out to make a buck and a lot of doctors are out making stuff up as they go along" he admitted" 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2012
  • graced
    graced Member Posts: 104
    edited July 2012

    They sell fresh maitake mushrooms at the grocery by my house but honestly, they don't look too appetizing, and I don't think you could eat enough to get the benefits.  I did some research and bought a brand by Host Defense called Maitake Dietary Supplement.  It's grown in the U.S. and certified organic and Dr. Weil endorses them. Vitacost has them.

  • DianaNM
    DianaNM Member Posts: 281
    edited July 2012

    Maud, there's another really good documentary called Food Inc. Lots of weird things have happened to our food supply in the last 30 years.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2012

    Thanks Diana, will look for free version..., have been able to watch "Food Matters" for free Tongue out

    I LOVE fresh portobella mushrooms, also get them at Costco for cheap

    "maitake (MT, Grifola frondosa), crimini (CRIM, Agaricus bisporus), portabella (PORT, Agaricus bisporus), oyster (OYS, Pleurotus ostreatus) and white button (WB, Agaricus bisporus) 

    Our results clearly indicate that all test mushrooms (MT, CRIM, PORT, OYS and WB) could significantly inhibit to a similar magnitude the cellular proliferation of human breast cancer cells.

    Clearly, research focusing on the pharmacological value and identification of mechanisms of action of dietary mushrooms against breast cancer is warranted'

    http://ebm.rsmjournals.com/content/235/11/1306.full

  • purple32
    purple32 Member Posts: 3,188
    edited July 2012

    Maud

    That is good to see ...  I heard the white button offered no help!
    THX

  • graced
    graced Member Posts: 104
    edited July 2012

    I saw Dr. Joel Fuhrman speak a few weeks ago and his topic was 'winning the war on cancer' and he too said that all mushrooms, including white button, were beneficial. Though he said they need to be cooked, not raw.  He has a new book out called Super Immunity where he goes through cancer fighting properties of various foods.  He said the equiavalent of even just one or two white mushrooms a day had a benefit.  I guess I'll eat them when I can but still take the supplement too.

  • vivre
    vivre Member Posts: 2,167
    edited July 2012

    We have had quite a lot of discussions on great books in the past. I have read a pile of great books and I credit reading with getting me on the road to great health. Anti Cancer was one of my favorites too.

    A book I loved that was like a bible to me during treatments was "The Wisdom of Menopause" by Dr. Northrup. When she talked about women needing to listen to that inner voice, and it would help us to make the right decision, it really hit home. I realized my inner voice was telling me to say no to drugs, which is why I was having such a visceral reaction to the idea of taking arimidex, my onc's drug of choice for me. Dr. Northrup even talked about these drugs and said they aren't right for everyone, and we needed to each decide what felt right for us. When I read that, it was the first step to getting my power back and I got the strength to start to question my doctors.

    That book created a monster! I will never look at doctors again the same way. The book is not about cancer, it is about becoming the woman we are meant to be. That is why I loved it so much. Who wants to think of cancer all the time?

    Q-What do they call the person who graduates last in his class from med school?

    A- Doctor

  • purple32
    purple32 Member Posts: 3,188
    edited July 2012
    Has anyone hear discussed BOMBSHELL by S  Somers?
    I have not read it.  I wonder what supplements she takes.  I heard she is on hormones.
  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2012

    Books are always good to recommend and discuss,  thanks for bringing more to llight. 

     

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2012

    Purple, just so you know, S Somers is a persona non grata here on BCO, there's a whole thread trashing her...just the mention of her name will attract ire and insults Frown

    Thank you ladies for the reading recommendations, hope to live to a 100 with so many books on my list !!! 

    Vivre, seeing onco on Monday - I will be saying no to Arimidex or take the script, run with it, not fill it and not tell - thanks for the reinforcement  Wink

  • graced
    graced Member Posts: 104
    edited July 2012
    Sort of a side note - I've been using www.goodreads.com to track all the books that I want to read or have read.  There's also an app for droid & apple that syncs automatically so you can update from your phone or the website. It's free to use.  I was using my amazon wish list and a spreadsheet and handwritten notes but now I can keep it all in one place.  I can prioritze the books on the 'to read' list. You can become friends with people on there and then see each other's reading list but for me the best part is just a central reading list.  Anyway, I am just so happy with it that I had to share!  Happy Friday everyone.
  • purple32
    purple32 Member Posts: 3,188
    edited July 2012

    THX Maud.  Thats interesting though I could care less about Somers one way or the other , actually.

    Graced  . Thx for that info. I appreciate it !

  • purple32
    purple32 Member Posts: 3,188
    edited July 2012

    Getting back to the maitake mushrooms,

    I was looking at Dr Furhmans site and saw an interesting supplement. I was wondering if anybody taking DIM might take  a peek and chk out the mg. and see how this Gentle Care for Woman compares as far as his last ingred ( Crucif vegs ) goes (?)

    http://www.drfuhrman.com/shop/multi_details.aspx

     You will note this does contain soy which may be  a turnoff for some.

    Opinions?

  • vivre
    vivre Member Posts: 2,167
    edited July 2012

    One of the local docs I love went to Japan to learn about mushrooms they use as a form of chemo there. It is called AHCC and is available here. It certainly can't hurt to try, though I am not sure I would buy anything from Japan these days after Fukishima.

    Maud, don't be surprised if your once does not even whince when you say no to armidex. Mine was actually okay with it in the end, after all those weeks of arguing! I later found out my hospital was selected to be part of a study on this drug. Great, make me a guinea pig. They get paid a lot for each person in the study. I guess I cost them some bucks by opting out. lol

    Graced-that looks like a good link. So many books. So little time! Keep reading gals. I have to say that it was the thing that has been my motivation and inspiration. Every time I read another book, it just reinforces what I have learned. You should see my stack! I keep them because I keep going back to them from time to time. 

    Don't forget to check out some of the books about the links to toxic teeth and cancer. Dr. Huggins and Dr. Wentz both have great books on this topic.

    Yes, we did have some heated discussions on Suzanne Somers. I have to say, she is not a great writer, but I loved both Knockout and Breakthrough. It is crazy how some people around here hate her so much. I believe she is heroic. Her life would be easier if she just went away. But she is brave to speak out, because she gets so much flack. I learned a lot from those two books.

    Happy reading.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2012

    Vivre,

     What have you learned from Somers books?  Why do you think she is heroic?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2012

    Wouldn't it be great if the black cats came out on Halloween night only ?

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