Starting Chemo July 2012

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  • TAB55
    TAB55 Member Posts: 198
    edited June 2012

    Waist length hair!?  Wow, losing your hair must have been tough for you.  I'm very impressed that you cut it yourself.  I just had a haircut last week.  My hair has been short for decades, but I had her cut it even shorter.  

    I'm half Italian and very hairy, so I'm looking forward to the hair on my legs falling off.  A silver lining to the bald cloud.

    Thanks again for sharing.  I think it's time for me to contact the ACS about a wig... 

  • TAB55
    TAB55 Member Posts: 198
    edited June 2012

    teeballmom: Hope you get a good night's sleep, and we're all rooting for a healthy happy thyroid for you.

  • swimmom01
    swimmom01 Member Posts: 58
    edited June 2012

    Wow thanks for the hair tips! I had kinda decided to just shave my head a few days after my first treatment in order to take control of the situation. But now I may just wait and see what happens. I already have short hair so it shouldn't be much of an annoyance and the thought that it may not all fall out.......I would be be so upset if I made it worse than it needed to be!

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2012

    TAB55- When I met with my onco before I started chemo, she told me that I may not lose my leg hair and not to get too excited about not shaving.  Well, it definitely thinned out but stll have leg hair.  I also have all of my eyebrows, eyelashes and sparse hair down south.  I know that the brows and lashes may go once I finish chemo since that is what usually happens with my chemo regimen.  Oh well, it's just hair.

    Swimmom01- There are some advantages to having less head hair-- less time to wash hair, no hair brushing, save on shampoo anc haircut costs.  So much cooler in the summer, especially this hot one we are having now!!!! 

    I still wear hats, caps, bandanas when I go out because I don't want a sunburned head and I think it is more frightening to others to see a female without head hair.  I get so used to not having anything on my head while at home that sometimes I forget and go outside to get mail/newspaper without a head covering!!!!  I know one of these days, I'm going to drive off to go to the store and no cap in the car!!!!

    My wig I got from the American Cancer Society is sitting in a plastic ziploc bag and is probably having abandonment issues.  It is way too hot to wear and plus I'm not sure I'm a wig girl to begin with.

  • FLSUNMOM
    FLSUNMOM Member Posts: 11
    edited June 2012

    Hello Ladies,

     I will be having my chemo class this Friday.  I'll be sure to post any helpful hints I am told. 

  • planetbananas
    planetbananas Member Posts: 206
    edited June 2012

    Thank you for the welcome, teeballmom I hope the thyroid biopsy is clear.

    Tab55 you are right about the holidays! I think seeing the room threw me a little but I am ok today.

    Melrosemelrose those questions are awesome, thank you. I am going to print them out and take them with me on Tues. I didn't realize that some people had their ports inserted that many weeks before chemo.

    getting my drains and stitches out tomorrrow,  VERY excited! It is already weird to not have a bra (I was a D-DD) I think I am going to feel very free....weird, but free Smile

  • mebmarj
    mebmarj Member Posts: 380
    edited June 2012

    A year ago I'd just had my second round of taxotere and carboplatin. Not fun stuff, but I did 6 rounds, finished up the end of September. My hair has come back, thicker than before, go figure! I feel pretty good and am doing reconstruction.

    Some things to have on hand, just in case...

    Anti diarrhea meds. Constipation meds. Wet wipes. Nausea meds. Maalox or mylanta for heartburn. Comfort foods that are bland. Drinks that are nonacidic to keep hydrated.

    Chemo regimens are different and so are people, so of course ask your doc their advice on what you need and can take based on your situation.

    Best wishes to you!

  • lilypad
    lilypad Member Posts: 23
    edited June 2012

    Hey Ladies...!! 

    I am joining your cohort, for July chemo! I get my port on tuesday. My onc and I are still deciding between ddAC*4 +T*4  or TC*6. I need to pick the one i am comfortable with by monday.

    Tiesday I get the port in my upper arm, and Wed July 4 (since I am not in the US), is my first chemo!! Like many others I want wed so that the worst SE are over weekends , and my lovely Bf is home. 

    I have been going through all the tips here and hope its all good for us !! :)  

  • mebmarj
    mebmarj Member Posts: 380
    edited June 2012

    Ports are wonderful!!! Easy to access, get labs drawn off them. The nurses do have to be specially trained to access them, lab personnel usually can not access them without special training either. Oh, if you forget to ask for EMLA or numbing cream, they usually have lidocaine available. Yes, it is a little shot, goes just below the skin with a small needle. Not bad at all.

  • Moderators
    Moderators Member Posts: 25,912
    edited June 2012

    Hi July crew!

    Stopping in here to provide some great information from the main Breastcancer.org site on Chemotherapy, including what to expect, types of chemo meds, and side effect management.

    There are some really helpful key threads here in the Chemo forum too!

    Great tips and practical advice on the following discussion board threads:

    Hope you find this helpful!

    --Your Mods

  • planetbananas
    planetbananas Member Posts: 206
    edited June 2012

    Lilypad, my tuesday port sister! Smile

    I am one who cut off all my hair, a week prior to my surgery. It is about 2 -3" at the moment. My hair has always been long, and I knew it was thick and took a lot of product and hot irons to make it straight, what I didn't know is that my hair is SO thick that it is unmanageable at 2" - it sticks straight up and out lol.... Tomorrow I am getting a real buzz and maybe a faux-hawk for fun. Losing my hair is one thing, I am dreading the eyelashes/brows the most.

    My friend has dared me to show up for chemo wearing one of those hats that hold beers on either side of your head and have tube straws attached....I wouldn't dare but the mental image sent me into major giggles so I thought I would share....

    Thank you mebmarj and moderators for all the tips, they are so helpful. 

    Also, on my blog I started a page where I am documenting my resonstruction with photos at each stage. The link to my blog is in my profile (I am not selling anything, just a blog). My blog might not be for all tastes, the reconstruction page can be accessed seperately from all writing. For some reason, I have no shame about showing the results/progress and I would have loved to see what you can really expect from this process before hand. Mods, if this is inappropriate, please delete, not sure what the rules are. 

  • teeballmom
    teeballmom Member Posts: 322
    edited June 2012

    Hi everyone!

    Feeling really tired and unmotivated today.  I think I was so tense from the thyroid biopsy that it's just done me in.  I was so tense during the procedure yesterday the radiologist asked if I was in pain, I said no, and then he said he was just wondering because I had this grimace on my face.  Well, I didn't want to mention that the grimace was there because I was originally facing the ultrasound image and saw the needle in my thyroid when he put it in so that left a wonderful image burned into my memory banks.  I seem to do this during my procedures, etc...  You'd think I would have learned by now considering I was grossed out when my BS was pulling out my pain pump after my BMX and my eyes were fixated on what he was doing before my brain said "close your eyes".  I shouldn't complain.....  I do it to myself all of the time.  I'm going to claim pre-chemo brain fog for my delayed reaction to closing my eyes.  I'm close enough to my first chemo date that I'm going to start taking advantage of that now.  LOL.  

    Monday I have my appt with my BS to find out when he's going to put my port in.  My ONC wants it in before my first infusion so he only has until 7/10.  

    I heard from a "grandma" who is a BC survivor that I wrote to.  I've been following her blog for years and who would have thought I'd be writing to her for advice about her journey years ago.  It's amazing how you become connected to those who have walked in your shoes before you.  Her blog is hilarious and makes me laugh.  She has this alter ego that is just too much fun and she is the sweetest woman.  If anyone would like a fun blog to read that is just for enjoyment (a great distraction when you just need a few moments of not thinking about breast cancer), pm me and I'll give you the link.  I'm just not sure if I'm allowed to post it here in my message.  You'll love her!

    Take care everyone!!!!!!

  • mssunshine71
    mssunshine71 Member Posts: 162
    edited June 2012

    Hi everyone.

    I will start my first chemo treatment July 19.  8 rounds and herceptin and radiation as well.  Chemo class is on tuesday.  Port goes in on the 11th.  Things are happening so quick for me, I'm kinda numb.  I wasn't expecting this.  I thought at first DCIS with radiation, then IDC with some chemo, Now its treatment for a year.  Still have to take it all in.

    So nice to have a group of people to go through treatment with.  Everyone understands each other. :) 

  • Moonflwr912
    Moonflwr912 Member Posts: 6,856
    edited June 2012

    Hi all! I just jumped in this thread to wish you all well when you sit in the BGC (big girls chair) . I just finished my TCH x 6 and have 6 more months of Herceptin. But though it seems like it is impossible to get through, you will. I just remembered my fear before my first tx, and wanted to reassure you it isn't bad. You will have some SEs, but don't scare yourselves, wait and see how you react. If you do have bad SEs, be sure to call your mo, there are things they can give you or things they can adjust to help. So, good luck, and small SEs. Much love.

  • TAB55
    TAB55 Member Posts: 198
    edited June 2012

    lilypad: Welcome!  I picked Wednesday for my chemo, because I thought the worst days would be Wed & Fri, and I wouldn't ruin my weekends.  Now I think I made a mistake!

    Moonflwr912, mebmarj & moderators:  Thanks for all the encouragement, tips and links.  There's lots of good information there. 

    teeballmom: I know what you mean about feeling tired and unmotivated some days!  This really is a rollercoaster.  On Thursday I felt great about my workout and optimistic that I was getting back in shape.  On Friday, one of the weight machines made me cry out in pain when I did just ONE rep at the same weight I used two days earlier!  I had to cut the weight in half to do the reps, and then I spent a lot of the day worrying that I had injured myself and would get lymphedema.  I read some of the lymphedema boards, and that was extremely depressing.  I won't read them again unless I have to deal with that.  Although I do recommend this position paper by the National Lymphedema Network. It was updated in May, so it's the latest theory on the subject. Although they don't know why some people get it, and others with the same risk factors don't.  I'm wearing a compression sleeve and glove when I fly, and when I exercise.  I hope it works.  I'm in better spirits today.  My natural optimisim kicks in every morning.  I can get through this with all the support I'm getting from family, friends, neighbors and my breastcancer org sisters.  Thanks to everyone for sharing.

  • TAB55
    TAB55 Member Posts: 198
    edited June 2012

    Teeballmom: can you send me the link to that blog.  I love to laugh!

  • Jane64
    Jane64 Member Posts: 29
    edited June 2012

    Hi all i just had my first tx yest. Im having tch x6 and herceptin x12 and then radiation. Had my port in on june 26. Port is still sore but def manageable. The infusion through the port was easy and glad i had it. I was scared but there was no need. The first treatment is a really long day so be prepared. This is my first post online and reading the other posts have really helped. Im just waiting now for the se to appear. Be strong everyone. I have good days and days i want to cry all day. Oh well enjoy the weekend

  • Moonwillow1010
    Moonwillow1010 Member Posts: 25
    edited June 2012

    Hi all,

    I had my appointment all ready to get my "tattoos" for radiation when I got the oncotype dx results. Needless to say chemo class is July 9th, I'm having T/C x 4 beginning July 13th. I'm scared but reading your posts is helpful. I really am trying to make peace with this. It's something that has to be done to get me to the finish line. I'm grateful my cancer was found early, small and non-aggressive unfortunately my oncotype dx test put me on the border of med/high.

    I'm actually going for a hair cut today. I have very thick hair and its heavy so I'll get it cut shorter and thinned out a little so the weight plays less of a factor in the loss of it.

    I have a self-worth/self-esteem issue that I work on; I have a hard enough time looking in the mirror now. I can only imagine how I'm going to feel about myself with little to no hair. BUT on the positive side, maybe there is a lesson to learn in this. Maybe this will give me (or anyone else struggling with it) the ability to see my inner beauty. Others see it...hopefully I will too.

    I pray that God gives all of you the strength and that we all realize the blessing in this.

  • TAB55
    TAB55 Member Posts: 198
    edited June 2012
    Moonwillow1: So sorry that your OncoType DX gave you bad news.  I hope you find chemo to be much easier than you fear.  Maybe you'll be one of the lucky ones who doesn't lose much hair.  I'm rooting for you.
  • cyano
    cyano Member Posts: 67
    edited June 2012

    I started T/C on Thursday. I have good arm veins from rock climbing so no port for now. (Onco said no climbing - too high of risk of infectionTongue out ). A few hours of  nausea Thursday night and yesterday in the periods between when the Kytril wore off and when I could take the next dose. A bit tired  and dry eyes but otherwise feeling good. Slept in a bit in the morning yesterday and went to work late. Got in a short hike to a viewpoint looking out at the mountains after work which refreshed the spirits. I'm sure the next few days will be harder, but it's been a good start. Also, I don't think I'll wear my contacts to the next appointment.

    One bonus with chemo is that I also have colitis that has never gone into remission even after trying many different treatments. The steroids given with the chemo are at a much higher dose than my gastro will give and for the first time in 8 years I have have no D, no cramping and the mouth sores have mostly disappeared. This might not last, but I'll enjoy it while it's here.

  • TAB55
    TAB55 Member Posts: 198
    edited July 2012
    cyano: Thanks for sharing your experience.  I'm so happy to hear that you felt well enough to work and take a hike the day after your chemo.  You are an inspiration!  Congrats on the colitis being wiped out by the steroids.  That's a very nice silver lining Laughing
  • Fredig2
    Fredig2 Member Posts: 3
    edited July 2012

    Hi All,  I had my first of 4 t/c treatments yesterday. Began with blood work and vitals, exam and discussion with med onc and then to the infusion area where I met the nurse practitioner who will be attending to me each time.  She was just super!!  Very informative and calming, paced the delivery of info into manageable portions and so helpful and kind, as is the entire staff I've had the opportunity to meet so far.  My daughter flew in to spend the day with me and then we flew to her home in FL where she can be on hand to help me as needed and so she will not worry from so far away. 

     So far, I have only been very tired...took all the recommended anti-nausea meds, have been drinking and eating without any side effects yet...just tending to be somewhat cautious.  Haven't taken Claritin yet, but considering it.  My daughter created a basket of all kinds of "goodies" that she read or heard would be helpful for me:  tylenol, sucking candies, thermometer, claritin  biotene spray, lip balm, a thermos cup with straw in case of mouth sore pain, plastic plates and utensils in case I have a sensitivity to metallic things...even a sleep mask!  I am beeing well-cared for and taking it slow and easy and just enjoying some down time, hopefully without much ado! 

    I wish you all a manageable chemo time...and will keep you posted on mine. 

    I try not to dwell on this too much in the hope that by looking forward to September when my last treatment will be  behind me, I will be able to settle into a post-chemo lifestyle that will help me believe that this time is just another bump on my road to work through and put behind me as I keep on truckin'!!! 

  • Lifeonitsside
    Lifeonitsside Member Posts: 250
    edited July 2012

    Fredig2. - glad it's going well. Gives me some comfort that hopefully mine will go as well.

  • TAB55
    TAB55 Member Posts: 198
    edited July 2012
    Fredig2: Sounds like you're getting the care you deserve.  Thanks for sharing your experience.  I'm delighted that you haven't experienced many side effects.
  • Lisa614
    Lisa614 Member Posts: 42
    edited July 2012

    Moonwillow...I also had an Onco score in the medium range and had the "option" of chemo.   I chose to do chemo because I want to be as aggressive as I can in fighting a recurrence.   I start TC x 4 on July 5th and it is rapidily approaching.   A friend of mine gave me some meditation tapes which I've downloaded to my iphone.   I think I will plug in during my first treatment and try to use it to keep calm.   Initially I was as frightened as I could be of this but now I feel I am getting the tools I need to make it through.  I think being prepared is helping...finding that staying in THIS moment helps.   

    I wish you well in your journey.   

  • Lisa614
    Lisa614 Member Posts: 42
    edited July 2012

    Thanks for sharing Fredig2.   So helpful to know what's ahead.  I start TC x 4 on Thursday.  

    Here's to continued good feelings and manageable SE's!! 

  • CityFi
    CityFi Member Posts: 95
    edited July 2012

    I was initially in the May/June chemo hangout since my mastectomy was in late April, but I'm only beginning tomorrow so I thought it best to post here (although I do recommend we all look to the preceding sisters for some advice.) I'm on deck for AC x 4 every other week followed by Taxol weekly x 12. I'm also in the B-47 study which means if I'm randomized to the study arm, I'll be receiving Herceptin after chemo for about 8 mos even though I'm Her2-.  Getting two chemo kits ready - one to take to infusions and the other to leave at home. Wishing everyone on this phase in their healing journey only what I call NSE - negligible side effects.  Cancer or no cancer, we deserve to have fun during the summer, too. 

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited July 2012

    CityFi- Glad to hear from you again!!!!  You are more than welcomed to keep posting on the April/May 2012 chemo hangout since we leave no one behind there!!!!!  Wonderful that you decided to volunteer for the B-47 Herceptin clinical trial.  Maybe you will be one of the ones randomized to receive the Herceptin, like me!!!!  I've been receiving the Herceptin since the beginning of my chemo  (April 24th) and will keep receiving it until April 2013.  Wishing you the best of luck with your chemo!!!!

  • TAB55
    TAB55 Member Posts: 198
    edited July 2012
    CityFi: We are on the same chemo regime, so we'll have to compare notes!  Mine starts July 11, so I consider you my personal trailblazer.  Hope it goes smoothly for you on Monday.  I'll be thinking about you.  Take care of yourself.
  • Truffles
    Truffles Member Posts: 13
    edited July 2012

    Hello everyone, and welcome to all who have joined! I just got back from vacation and will be starting AC x 4 tomorrow, with T on deck after that. We decided that if people get baby-moons before a baby comes, we'd take a chemo-moon to enjoy the last week before it starts Tongue out I highly recommend it.

    Based on the wonderful advice on these boards, the house is stocked with lots of nonacidic sports drinks, meds (constipation/diarrhea, Claritin, Advil, plus rx from MO), supplements for Taxol (glutamine and L-carnitine), kleenex, wet wipes, mouthwash, soft toothbrushes and toothbrush covers, and comfy clothes. Already had my dental checkup and cleaning two weeks ago, and Neulasta is already in the fridge to self-administer after chemo.

    I have an echo tomorrow morning first thing, followed by an appointment to order a wig from the hospital store. Will then come home and pack a chemo kit for my afternoon onco appointment and first infusion. So far I'm planning to bring Ipad, book, blanket, travel pillow, drinks, and handwarmers to help my veins pop out since I don't have a port. I'll let you all know if there are other things I wished I had brought!

    Wishing a good night's sleep and the best possible course of chemo to all... reading your posts makes me feel like I can face this tomorrow.

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