Calling all TNs

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  • JazzyJ
    JazzyJ Member Posts: 126
    edited June 2012

    Hello to all!

    Cocker and Bernie - A huge thank for the morning chuckles. The Hubby and I are drinking coffe and he almost choked when I read these to him. What a great way to start the day, with laughter and high spirits!



    And "Grace", caught that :-). Hope your leg feels better..........

  • Fighter_34
    Fighter_34 Member Posts: 834
    edited June 2012

    Julie my cycle came back shortly after 6 months. Heavy at first, then light, and now unpredictable. Gotta love this stuff right!!!???

    I am so hungry!! I want a bacon, egg and cheese sammich or an omelet.

    Hi ladies, we are going to get through this one step at a time. In about a month I go for my Metformin update visit (I have been in the study for a year now!!). I sincerely hope the near future brings some break throughs for us because it has been awhile since we have any attention. I will question my study nurse about TN's and see what I can get.

    Titan- maybe your friend is dealing with accepting the fact that she has to fight this beast. That is not an easy pill to swallow.

  • Tazzy
    Tazzy Member Posts: 2,546
    edited June 2012

    Morning Ladies.

    I thought that being the last tx and knowing I dont have to have anymore, mentally it would make the SE's more bearable.... Well in the words of Annie.. that is bollocks Yell  But today is a better day and one day closer to having no se's.  This time in a week eh?  

    Annie I sure hope that you heal soon and although its likely a double edged sword not having the taxol - means its just been delayed one eh?   Sorry you are going through this.   And still, you manage to send a joke and make me laugh.

    OBXK - here's to healing soon - since I've been on taxotere I've noticed my balance and ability to walk in a straight line is not like it used to be... but I note you haven't been on chemo for a while eh?   And in the past I blamed the booze Wink

    As for the periods... I am 52 and haven't had a period for 12 years (had the iud fitted).  MO reckons they wont return... for which I am truly grateful.

    To any ladies I have missed hello and thinking of you.

    May you all have good minimal se days with lots of smiles.

  • kathyrnn
    kathyrnn Member Posts: 393
    edited June 2012

    Cocker & Bernie - great jokes!



    OBXK - *Sings Amazing Grace for you*. Keep icing and feel better.



    Titan - sorry to hear about your friend. I really hope she joins here. Please give her a message from me that my BEST medical advice came from here, not from the medical staff. (looking back in hindsight, would have been screwed without this thread)



    McCrimmon - weren't you having a family visit this weekend?



    Fighter - Amen to some new breakthroughs.



    Tazzy - "and in the past I blamed the booze". *gigglesnort*



    Cocker - one of those good news/bad news situations, but I'm glad you at least got a mini-break. You mentioned you'd see your onc. next week. One great thing I'll say about DF is that even though I didn't see her before every visit, their offices are about 100ft away from the infusion room, and you saw them immediately if there was any problem that had come up.



    I'm so excited. I'm going on a kayak run Sat. Last one I took was last year when I was 8 weeks into Chemo. This one should be a little better if I convince my back and leg to cooperate, and if they don't I'll medicate the little shit into oblivion!!!

  • riley702
    riley702 Member Posts: 1,600
    edited June 2012

    Annie and Tazzy - is "bloody" really considered cursing, or worse than saying "bollocks"? I always took it as something mild like "dang it!"

    A neat thing happened yesterday. I had an appt. with my oncologist. It should have been a simple exam and "Your blood results are fine. See you in 3 months." But my doc was running late. I chatted with a nice family from Terre Haute (a little over an hour away) in the waiting room. Finally, I got called back. Where I sat. And sat. My 2:30 appt. turned into a 3:45 appt. Then I had to wait again setting up my next appt. I was irritated when I finally left the building.

    As I stepped out the door into a nearly empty parking lot, the family from Terre Haute were talking with a man who was telling them that, no, he didn't have jumper cables. "I do!" I said. They were surprised. "You went in before us! We figured you'd already be gone." If I hadn't been delayed, I would have been. Instead, I got their car jump-started and we both went on our way smiling. Serendipity, or God in control? I believe the latter.

  • Lovelyface
    Lovelyface Member Posts: 674
    edited June 2012

    Riley - I also believe it was definitely the latter, God in control.  How lovely to hear such stories.

  • melissa119
    melissa119 Member Posts: 172
    edited June 2012

    Well ladies. Tomorrow is it. First AC treatment. I am trying to hold it together but it's not working! Anyway I could take all the prayers you have and I will check in after to let u know how it goes....

  • Tazzy
    Tazzy Member Posts: 2,546
    edited June 2012

    Wonderful story riley.   "bloody" is like a dang it kind of word... whereas 'bollocks' full blown curse.   I always like to say how easy it is for 'bollocks' to roll off the tongue... but that sounds kind of peverted.  Wink

    Lots of deep breaths Melissa - once the first one is out of the way, you will find the anxiety gets less.   We are holding your hand.  Keep us posted.

  • NavyMom
    NavyMom Member Posts: 1,099
    edited June 2012

    Good story, Riley.  Thanks for sharing it.  Amazing how something so simple can chnage your whole outlook.  

    Aww...Melissa.  You will do fine.  Get a little bag together with some lite snacks and maybe bring the most comfy blanket you own.  And start hydrating right now and keep the fluids going.  Take your premeds and remember to take post meds as directed, too.  We'll be here waiting for you to check in and let us know how you are doing.

    Hugs to all in TX.  Hang in there.

  • riley702
    riley702 Member Posts: 1,600
    edited June 2012

    Oh, Tazzy! Bollocks rolling off the tongue. I just about died laughing! :)

  • melissa119
    melissa119 Member Posts: 172
    edited June 2012

    Navymom

    You said take premeds?? I don't have any meds except for the nausea meds. I thought I was supposed to take them after treatment? I feel so lost!

  • melissa119
    melissa119 Member Posts: 172
    edited June 2012

    Oh and another thing. I don't have a port. Any suggestions on helping finding a vein easily??? On top of everything I hate needles! Ugh! Is it over yet?

  • riley702
    riley702 Member Posts: 1,600
    edited June 2012

    Melissa, I had a port and loved the convenience of it. I know sometimes they apply a warm pack for a few minutes to encourage the veins to pop up, but otherwise, I don't know. As for pre-meds, I got steroids I was supposed to take the day before, the day of and the day after chemo to help with SEs. I took the anti-nausea pills starting the evening before chemo and on schedule after that, whether I felt nauseated or not. I would take them the day of chemo and 3 days after. I also had a different anti-nausea pill I could take in between the scheduled pills if I needed to. Good luck! It'll be over soon. Just keep telling yourself that. Hang in there a little longer!

  • KSteve
    KSteve Member Posts: 486
    edited June 2012

    Melissa - My premeds were given to me in the IV just prior to getting the chemo.  So I didn't have anything to take at home before.  If they haven't given you any, then I bet they are doing it that way too.  I had a port so I can't help you with the vein issue.  But those nurses are good at what they do, so remember, they will help you through everything.  And they're great on your first day especially.  They'll explain everything as they go.  I know you're scared . . . we all were.  Just think, starting tomorrow you're killing those cancer cells.  My sister-in-law told me that she visualized the old pacman game, the pacman guys was eating those bad cells.  Remember, hydrate, hydrate, hydrate! I'll be thinking of you!

    Hugs,

    Kathy

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited June 2012

    Melissa - I didn't have any premed for AC, either.  Some oncs give a bunch of steroids before treatment.  I am diabetic and didn't want them.  Don't worry if you didn't get any.  Every onc is different.  I am giving you a link to my blog with pictures of my first AC treatment.  Maybe it will help calm your fears - knowledge is power, for sure.

    http://mch-breastcancer.blogspot.com/2011/06/first-chemo-day-one-down-seven-to-go.html

    The most important thing you can do for yourself is drink...today, tomorrow during treatment and every day through treatment.  I aimed for 96 ounces every day.  And I ate a ton of watermelon.  It tasted good, it helped with hydration, and it's full of good minerals and vitamins.   Really, any fruit will do but watermelon just worked best for me.  And with no port, hydration will plump up your veins and make them easier to access.  I'm actually surprised that you're having AC without a port. 

    I think everyone will agree that the anticipation is worse than the treatment.  And if you take your anti-nausea meds as prescribed, you may be surprised at how little nausea you may experience.

    Sending hugs and warm thoughts for the best experience possible, under the circumstances.

  • Tazzy
    Tazzy Member Posts: 2,546
    edited June 2012

    Hey Melissa... I didn't have a port - I have really good veins and they gave me the choice..   If they dont do it, ask them to warm up your arm before the do the IV... that helps.  Plus agreeing with what everyone else has said, hydrate, hydrate, hydrate and then some more.  

    And as Michelle said the anticipation really is far worse.   Good luck, thinking of you and check in and let us know how you are when you feel up to it.

  • kathyrnn
    kathyrnn Member Posts: 393
    edited June 2012

    Riley - great story! Vote for God in Control.



    Tazzy - I officially have my new swear. I can use instead of F*#k, and no one around here will have a clue that it's just as bad.



    Melissa - everyone has already given you the info you need. Pack a small bag (I used a small rolling suitcase) with things that will amuse you. I had books and my laptop. We even made a thermos of Piña Colada smoothies to toast with. Like everyone said, hydration is your best friend. I had A/C without a port, and it was infused slowly by a nurse, not given in a drip IV (you will still have the IV running to hydrate you). One problem I had with both chemos is that sometimes they made the vein have an aching feeling. If that happens tell them right away and have them get a warm blanket or hot pack for your arm. (it opens up the vein and stops the ache). It truely is not as bad as you're imagining. There wasn't one treatment I had that I didn't stop for dinner on the way home if a friend had come with me. Take your nusea meds as ordered, even if your not sick . Also keep small amounts of food in your belly. I know it sounds counterintuitive, but your more apt to get nauseous if you have an empty stomach. If the nausea meds aren't controlling it, TELL THEM. Honestly, I think I only got queasy once during all my treatments (and yes I had no food in my stomach) Never vomited once. Deep breaths Melissa, it really is doable.

  • NavyMom
    NavyMom Member Posts: 1,099
    edited June 2012

    My chemo routine was just like Rileys.  I set my alarm during the night to make sure that i took the meds for nausea.  I did NOT vomit at all with chemo.  I did have a few waves of nausea a few times but overall, I believe that hydrating and taking the meds as directed made all the difference.  Each Onc has their own way of doing things so each of us has a different story to tell.......BUT, anytime you have a question, make that phone call and get an answer.  As it has been said before, knowledge is power and will help you feel in control in a crazy situatiion.  And BC is a very crazy time.  It will get better.  Good luck tomorrow

  • JazzyJ
    JazzyJ Member Posts: 126
    edited June 2012

    Melissa - Like many have stated already, Onc's will treat you based on YOUR needs, they know what they are doing. The nurses deal with roomfuls of people every day, you will learn to trust them. If you have any issues at all, call them. They and we are all here for you...

    Today is day 8, and I feel really great overall. The aches and pains are treatable and they have really great meds today that they didn't have years ago.

    I do not know how you will feel or what, if any SE's you will get. But I can tell you with confidence now that it is not as horrific as we imagine.... Like you, I was scared out of my mind last Monday. Today, I am enjoying life. Hang in ther kiddo and let us know how you do. Hugs!!!

  • Tazzy
    Tazzy Member Posts: 2,546
    edited June 2012

    Jazzy... just want to say I am happy for you that day 8 is treating you well.  

    I was fortunate that I never got sick and the 1 or 2 times I felt a little quesy I drank a glass of flat ginger beer.

  • JazzyJ
    JazzyJ Member Posts: 126
    edited June 2012

    Thanks, Tazzy. Haven't gotten sick once! Nothing wrong with my appetite but I have lost 6 lbs..... Didn't have a very good diet before and liked my wine and craft beer :-).



    I will add, that this site was great medicine for me. Wish everyone going through this had a place like this to go to. Really love, respect and admire all of you in such a short time....

  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited June 2012

    Good luck tomorrow Melissa - You will do fine.  I was freakin terrified, that's about as vulgar as I get on here but that's not the word I want to use.  The actual treatment was a breeze.  Once they hook you up to the iv, I just played on my laptop, phone and ipod.  And I packed lunch.  The whole experience while unpleasant was not nearly as horrific as I had built up in my head.  You will get thru this.  Just take it one step at a time. 

    Annie, I'm so sorry you had to stop your taxol, hope the numbness and rash quickly clears up. 

    I'm going to florida this weekend.  Leave tomorrow night.  Going to start packing after I post this.  I bought the containers to stick the cheesesteaks in, I'll pick them up on the way to the airport and my friend who's taking me to the airport is getting me a dozen soft pretzels.   Can't really think of anything else the hubby would want.  I did buy a container of kettle corn cookies from Trader Joe's (best store ever) as a surprise.  Might sound terrible but they are AWESOME.  Had to hide the container in the back of my closet so I would forget about them and not eat them.  Can't wait to see my babies!  And hubby.

  • JazzyJ
    JazzyJ Member Posts: 126
    edited June 2012

    MCcrimmon32 - Enjoy your time in FL and so glad you will be with your family! Not sure where you are going, but the sun finally came out in SW FL after 7 days of clouds, wind and rain. Today is was so sunny all day (maybe that's why I'm in a great mood?). Enjoy!

  • ksmatthews
    ksmatthews Member Posts: 812
    edited June 2012

    Melissa I ditto everything Kathy said!  good luck tomorrow you will be fine!

  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited June 2012

    Jazzy - I'm going to Punta Gorda, SW Florida.  We lived there for 7 years then after diagnosis I just really wanted to come home to Philly, Pa.  So we are in the process of moving, hubby and babies should be here permanently by Sept 1.  I hope!

  • mags20487
    mags20487 Member Posts: 1,591
    edited June 2012

    we are here for you Melissa...you can do it!!

    Maggie

  • JazzyJ
    JazzyJ Member Posts: 126
    edited June 2012

    mccrimmon32 - can certainly understand why you wanted to go home. I talk to my sisters and mom every day on the phone, but it's not the same... I am the only one living out of state. Small world! We live in Cape Coral near Matlache, right next door to where you are moving from. One of my main office's is in Exton PA, about an hour outside of Philly. Enjoy your time here, have some fun, and good luck with the move. 2 months until you are together full time yeah!

  • TifJ
    TifJ Member Posts: 1,568
    edited June 2012

    Melissa- I hope all goes smoothly for you tomorrow! I can't remember who, but someone here once said about chemo, "you don't have to be brave, you just have to show up!" I really like that piece of advice. Everyone always says how brave we are- we aren't, we're scared to death, we are just doing what we have to to be here for our families and friends in the future!

  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited June 2012

    Jazzyi - it is a small world.  One of these trips we are going to have to meet!

  • JazzyJ
    JazzyJ Member Posts: 126
    edited June 2012

    Would love to! Meeting up would be great!

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