May 2012 radiation

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  • BLinthedesert
    BLinthedesert Member Posts: 678
    edited June 2012

    oh Neeners, I am sorry you were so uncomfortable.   I was a little taken aback the first time I had two male techs (and the female was nowhere around) -- but, just like yours, the males ended up being more empathetic and kind than the female was!!  In the end, I did not mind anymore ...  and even teased them about it - naughty me.

  • schatzi14
    schatzi14 Member Posts: 1,647
    edited June 2012

    The dude I had was a student and he OVER explained everything everytime! You would think that after a few treatments, they would assume you know the routine. I found it annoying...just do it and let me outta here!

  • Mopsy
    Mopsy Member Posts: 49
    edited June 2012

    Today is my last day.  Peeling skin in front, and large irritation under arm.

    So bummed out that MO said I have to start AI in two weeks.  Everyone seems to have difficult problems with them.  She said "14% increase in survival" over tamox.  So many women on this forum have experienced severe bone loss; MO said it is "very rare".  Who do I believe? 

  • Cindyl
    Cindyl Member Posts: 1,194
    edited June 2012

    Neeners... I had mostly male techs.  They seem to have a crew of about 8 techs (3 women and 5 men) working two rooms and work four days a week so there is an ever shifting crew, but I only had one treatment where it was just the "girls" usually had 3 or even 4 buzzing around (3 techs and a student) anyway, the "boys" were, without exception, kinder, gentler and more considerate than the girls.  Not that the girls were unkind, but the little courtesy's, help with the robe, a steadying hand as you got off the table, always the guys.  They were also funnier.  One of the real youngsters, a student, could maybe have been 21, had expressed some concern on a Friday about redness and swelling, and had flagged down a nurse to look me over.  The next time he saw me he glanced down said "Wow! Your breast looks great!  Er ahm ur skin!  Skin! Skin! Your skin looks great!"  He turned so red.  I just about died laughing.  I'm old enough to be your mom, son and I've had so many people looking at me that it doesn't bother me, just hope it doesn't warp you for life.

    I will also say they only drew on me at the two set ups before rads and the day they did set ups for boosts, so I didn't have to put up with that.  I just about cried when they were setting up the boosts. I was so sore that the sharpie was stinging like crazy and I knew I would just have to live with those marks as I couldn't scrub them off... but they peeled off fairly shortly, so it was all good.

  • Neeners815
    Neeners815 Member Posts: 358
    edited June 2012

    Cindy - omg I just cracked up laughing at your story!  hahaha.  I can just see his red face in my mind!  I do hate being drawn on and I am literally drawn on every single day.  I'm not sure exactly why I hate it as much as I do - definitely a mental thing.  Think it makes me feel like a human white board.

  • Goodie
    Goodie Member Posts: 244
    edited June 2012

    Neeners - sorry you were uncomfortable.  I don't even think about my male tech being male.  He's just doing his job and he seems pretty pleasant.  Sorry you get drawn on all the time.  That would bother me too! 

    Yes, the grey is very weird. 

    Cindy - your story is very funny. 

    Congrats Mopsy for being done today!  :)

    Got my treatment in today!  Yea.  I guess they fixed the machine???  There was just a tiny delay getting me back there but the first person could have been late since they called us yesterday afternoon to say there may be a problem.  Whatever.  I got my treatment and a tiny wait doesn't bother me at all.  I just play solitaire on my phone while I wait!  LOL  I miss my friend who was after me. 

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited June 2012

    I have two techs all the time.  One male, one female.  They're both the nicest, most considerate, gentle people on the planet.  I make goodies for them all the time and I'll sincerely miss them when radiation is finished. 

    The blisters seemed to die down, and nothing else has popped open, so I'm a happy girl.  Last night's bike ride netted one rattlesnake, so it's Katy eight, Jerry seven.  The winner at the end of the year buys the massages.

    Today is #26, but yesterday my RO waffled about how many boosts to expect after my 30 regular zaps.  Maybe TEN if my skin is holding it together.  I guess if my ribs are sticking out through my dunuded skin, like a skeleton in the sand at the beach, he'll change his mind.

  • Dizzy215
    Dizzy215 Member Posts: 74
    edited June 2012

    I have mostly female techs and they are so kind and compassionate.  Occasionally there is a male student (i think i've seen him about 3 times in all my 29 treatments, but I still feel a little uncomfortable when he's there).

    Started my boosts, I'm on to #4 of 7 and almost immediately I have a red welt below my armpit.  The therapist told me that I am getting a slightly higher dose than I had for the whole breast rads and the rays don't penetrate nearly as deep, so there is usually a more angry skin reaction.  The sore spot is right where my bras sit, of course, and I couldn't face going totally braless everywhere, so today I took one of my soft sports bras and cut a section out under the arm, so that it doesn't touch the sore area. Sorted!!

    One of the stickers was peeling off yesterday and the skin was sore underneath. I said to my techs that I didn't want another sticker there and I fully expected them to say 'we need to put it back' but they are so great, they said not to worry, we have a photo and can go by that, we don't want to make your skin worse. They are so lovely - I'm going to miss them, in a funny sort of way.

  • Neeners815
    Neeners815 Member Posts: 358
    edited June 2012

    I am so envious of all of your techs!

    A question re: the boosts - do they do the boosts from both sides?  Right now for my regular treatment I get two zaps, one on each side, about 25-35 seconds each. 

  • etherize
    etherize Member Posts: 423
    edited June 2012

    YAY BL, Elaine and Mopsy!  Big congrats on finishing!  Mopsy, I'm taking an AI -- generic Arimidex -- and so far, so good.  I don't think the bone loss is severe, but it is nervous-making.  More incentive to keep walking, and doing weight-bearing exercises.

    mckenna and sbelizabeth, I'm so sorry to hear about the continuing skin reactions and blisters.  What a drag!

    Neeners, I sure know who you feel with the male tech!  I did have a couple of nice ones (nicer than the females, actually), but I never got comfortable around them.  My boosts were only on one side.

  • Dizzy215
    Dizzy215 Member Posts: 74
    edited June 2012

    Neeners, the boosts are to the tumor site, so they have me lying on my left side with my right arm up above me head. The machine comes in really close from directly above me. Takes about 11 secs to deliver the rads.

  • mckenna
    mckenna Member Posts: 413
    edited June 2012

    Just to gross you all out. I have a sleeveless pj top on. I went to wash my 7year old's hair. She started freaking out and said is that peanut butter under your arm. No that is just burnt dead skin sloughing off :) then she didn't want me touching her. Too bad she has curly hair down to her butt and would never be able to wash it by herself so peanut butter arm will have to do the job :)

  • Neeners815
    Neeners815 Member Posts: 358
    edited June 2012

    Thanks for the info on the boosts, everyone.

    McKenna - ICK!  New nickname: peanut butter pit...

  • BLinthedesert
    BLinthedesert Member Posts: 678
    edited June 2012

    EWWWW ... mckenna, that is pretty gross sounding, poor child Wink oh, and poor you.  I hope it looks worse than it feels?

    Congratulations Mopsy!!  yippee. 

  • Neeners815
    Neeners815 Member Posts: 358
    edited June 2012
    Congratulations, Mopsy!  I lifted a drink in your honor last  night Laughing
  • mckenna
    mckenna Member Posts: 413
    edited June 2012

    Congrats. Joanne

    Excited for your last day.

  • BLinthedesert
    BLinthedesert Member Posts: 678
    edited June 2012
    Way to go Joanne!!  It has been a long road for you! 
  • Goodie
    Goodie Member Posts: 244
    edited June 2012

    Congrats Joanne!  Enjoy your day!  What a great feeling!  :)

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited June 2012

    Today is #27.  The days are clicking by!

    I got my lab results yesterday, and my WBC count is down to 2.4.  A little low, but not in the basement.  I hope it hangs in there; if it goes too low my RO will delay treatments a few days to let it recover, and I want to be finished ASAP. 

    Overslept this morning and got to work 1/2 hour late.  Jerry says "you should take Wednesdays off to just sleep!"  I said, ok, I'll take next Wednesday off (July 4th!).  Maybe I'll bring a pillow and blankey to work and nap under my desk.

    Have a great Wednesday, everyone. 

  • mckenna
    mckenna Member Posts: 413
    edited June 2012

    i think you should take next wed,thur & friday off like me :)  and then every wed off.  if you need sleep you need sleep.  can extra sleep help with your counts?  are you getting counts checked because of haveing chemo prior to rads?

    2 more days until 2 days off!!!

  • Jan24
    Jan24 Member Posts: 64
    edited June 2012
    Neeners you take your purse into radiation?  (we had lockers to put our things in).  I had this strange thought in my head that nothing could be in the room and of course there are all kinds of things in the room.  It's funny the things one conjures upSurprised 
  • schatzi14
    schatzi14 Member Posts: 1,647
    edited June 2012

    sb...are you taking Neulasta after your chemo each time? It sure helped my WBC.

  • mckenna
    mckenna Member Posts: 413
    edited June 2012

    jan, i kept my phone and keys in my pockets during rads.  once i even brought a soda in the room :)

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited June 2012

    Schiatzi, I took neulasta after each chemo, but I finished my last chemo the end of March.  The radiation tends to kill of the white blood cells, but not nearly to the extent that chemo does.  I have a call into my MO to see if she wants to talk to my RO about a neulasta shot.  I know they cost a billion dollars each, but that's why I have health insurance! Laughing

    As far as bringing things into the room, before I get all settled in for the treatment, I put my iPOD in my ears and have the techs turn it on just before they leave.  My iPOD isn't glowing yet, so I suppose it's OK!

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited June 2012

    Jan24, I think you're thinking of the MRI room, where you can't bring anything in.

    When I was a flight nurse, I once took a patient into an MRI room and my trauma scissors came FLYING out of my flight suit pocket and were sucked right into the tunnel.  It was like they were demon-possessed.

    Boy...was the MRI guy MAD...

  • Neeners815
    Neeners815 Member Posts: 358
    edited June 2012

    Jan - yep, I bring my purse.  We do have lockers in the changing closet (you can't count those two things rooms - only 3 lockers in each), but there isn't a lock.  I could just hand my purse to hubby to watch, but I just got into the habit of taking it into the treatment room for some reason.

    SB - wow, you listen to your ipod during treatment?  I've never asked about that.  They have the radio on every morning and it's a game now to me to determine the significance between the song and what's going on with me ;)  Hey, it keeps me distracted!

    #17 is over.  I felt a zing in my nipple, which hopefully was just all in my head!  I think it looks a little darker.  Please no black nipple syndrome.  *starts cheering righty on again*

    I cannot wait to have a day off in the middle of the week next week!  God Bless America! 

  • mckenna
    mckenna Member Posts: 413
    edited June 2012

    sb, if i was the one getting the mri, i would have peed in my pants ;) are they checking your blood because of rads?  i never had my blood checked during rads so i was just curious if it was because you had chemo first or something your facility does routinly with rads.  it is amazing to me how different facilities can be.

    my nipple and peanut butter pit seem to be feeling better (pit still looks gross but doesn't hurt that much) now it is the underneath boob that is hurting, rashy and peeling.  good news there really isn't any other part of my boob left to get any worse so i think this will be the last of it.  ironically the actual incision site looks fine and the skin near it is practically back to it's normal color???

    neeners, hope the zing was nothing, did you have the male tech again, maybe that was the zing you were feeling Surprised

    i am glad those still in treatment only have a 4 day zap week next week.  an extra day off really is a gift during all this.

  • Goodie
    Goodie Member Posts: 244
    edited June 2012

    SB - How often do they take your blood work? every week?  I haven't had blood work done since chemo.  Well, that's not true.  I'm on the metformin trial so I had a bunch done before that started last month but that was like early May.  OMG - Those neulasta shots are soooooooooo expensive.  Thank goodness insurance is willing to pay for them!  I wonder how much that affects our fatigue.  I bet a lot! 

    I leave my purse locked in my trunk and I only take my coffee, iphone, keys, miaderm, and that lovely orange "charge" card in for treatment.  I leave everything but the "charge" card in the dressing room with my clothes.  They play music in the room most days.   

    Happy hump day!  :) 

  • Neeners815
    Neeners815 Member Posts: 358
    edited June 2012

    McKenna - I burst out laughing at your comment about the male tech.  Nope, didn't have him today - and honestly he looks like Mr. Magoo, so if he's making me zing I have more problems than just being treated for cancer!

    I get my blood taken every other week.  Goodie - what charge card are you talking about?  Are you doing online shopping during your treatments? ;) 

  • Goodie
    Goodie Member Posts: 244
    edited June 2012

    mckenna - I hope you are feeling better.  RO told me that I should expect it to get worse next week before it gets better.  My pit is the worse looking.  It looks like a big bruise right now.  Is that how yours started?

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