How often for colonoscopy?

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Marple
Marple Member Posts: 19,143
edited June 2014 in Lymphedema

This isn't a LE question but I couldn't find a suitable place to post it so I thought I'd try where I post most often.  If someone could direct me to a more suitable Forum it's much appreciated.

After a b.c. dx. should we be screened by colonoscopy more often than every 10 years?  (Assuming the previous colonoscopy was fine.)

Comments

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited June 2012

    Only if you enjoyed the first one, Marple!

    Seriously, if you had no polyps, nothing, then you should be o.k. going  ten years apart.  The risk for a B/C woman is supposed to be a bit higher, I think, but not astronomically.  Another factor might be if it runs in your family or not.  Don't forget, you can get those take-home kits for Fecal Occult Blood, and do one of those yearly or every two years; which could lead to early detection if something is developing.  

  • coraleliz
    coraleliz Member Posts: 1,523
    edited June 2012

    I wouldn't say I enjoyed it but I prefer it to breast biopsies. They do give you good drugs(w/colonoscopy).

    I was told 10yrs & that's with a family history of colon cancer & personal history of colon polyp(benign-ish) at age 32........... long story for why they even went looking at age 32.

  • Kicks
    Kicks Member Posts: 4,131
    edited June 2012

    I've had 1 colonoscopy and the Dr who tried to do it said I should never have another. If a scan is needed to have a barium enema.



    For me it was horrible - not while done as I was totally 'knocked out' but after. It was weeks before I was pain free. They werte never able to go very far before they ran into a "jumble" (Dr's term) that they could not to 'open up with all the air rhey pumped in. Hubby was going nuts as they took about 3 times as long as he had been tiold they would and then I was in recovery a long time - unusual for me. When I finally got to get dressed I was so bloated that my jeans would not come close to fastening. It was winter so I had a big jacket that went down low enough it wasn't visiable.



    What is sort of funny/good is that because of Hubby having to take me back to ER/UC the next morning because of the pain he got fired. The company said that I should have driven myself to ER/UC and he should have been there to do their installations. Well - he was already looking for another job but them firing him gave he time to find one on UnEmployment. He did find a great job (very different than anything he's done before) that he loves with a great owner.



    I hate telling negative because some like to dwell on it - I choose not to but it is always a possiblity.

  • Marple
    Marple Member Posts: 19,143
    edited June 2012

    I had a colonoscopy 5 years ago.  All was fine.  The Dr. then said because I have b.c. he'll see me in five year.  So booked an appt. with another Dr. (closer to home so more convenient) and she was questioning b.c. making any difference.  I just wondered if anyone else was told because of b.c. 5 years instead of 10 would be the frequency.

    Thank you those who have replied.

  • pupmom
    pupmom Member Posts: 5,068
    edited June 2012

    What I've been wondering is if the CTs and PETs we get every year would catch something in the colon. I get the impression they see anything significant.

  • YramAL
    YramAL Member Posts: 1,651
    edited June 2012

    I had a colonoscopy almost 2 years ago now, and I had polyps, which were removed and found to be benign. Because of those polyps, and because of my BC history, I was told to come back in 2 years(this October). If I have no polyps this time, it will go to 5 years for the next one.

    Mary 

  • jacee
    jacee Member Posts: 1,384
    edited June 2012

    While a Ct scan can detect a mass, it doesn't tell you if it is cancerous. It might be scar tissue or radiation scarring. A PET scan can actually tell if it is cancer due to the glucose uptake of the mass. I think they are both useful for detection.

  • pupmom
    pupmom Member Posts: 5,068
    edited June 2012

    Thanks jacee! I didn't know that PET can distinguish between benign and cancer. 

  • Kicks
    Kicks Member Posts: 4,131
    edited June 2012

    jacee - a PET can not tell you that an area that lits up is cancer. It shows an area of concern. I had an area lit up on my PET that was biopsied and was nothing. Dr said it 's not that unusual.



    yorkiesmom - not all of us get yearly CT and/or PET. Many Drs do not order scans unless there is a reason/something going on.



    Marple - my chemo Dr said that it's not a worry. That anything can' happen but not expected. My PA says she's seen info that says IBC 'likes' to met to colon - so she ordered it. My chemo, surgery, and rads were out-sourced to the local Cncer Center (I still see Chemo Dr twice a yr.) but all my other care is through VA.

  • jacee
    jacee Member Posts: 1,384
    edited June 2012

    Kicks...I got the info from the Univ of Maryland Med. Center website....

    "A PET scan can identify whether the mass is cancerous because it will pick up the radioactive glucose and be seen on the scan results. If, however, the mass is scarring caused by the radiation treatments, no glucose uptake will be seen in the area of the mass.



    PET can be used to image tumor response to therapy and to detect recurrence in successfully treated lesions. After surgery and other treatments, PET is an extremely important tool in monitoring whether any cancer cells have returned and if treatment should be re-started.

    Colorectal cancer rarely recurs after 5 years; thus most patients who live 5 years without recurrence are considered cured. In the interim, however, make sure that PET is a part of your regular testing."



    I guess as always with bc, there are exceptions....as in your case.

  • Kicks
    Kicks Member Posts: 4,131
    edited June 2012

    As with everything - there is nothing that 100%. PET does work/show, as you say, cancer in the vast majority of cases. BUT they also will 'hit' on other sites. It is not common - but does happen at times. I know of several others who have had false positives from PET scans that biopsies proved wrong. Know several others who also got 'false positives' (areas that lit up) - not all were BC. Is it common - NO - but does happen.



    PET (and all the other scans/tests) are great tools - but they are not perfect.

  • jenn333
    jenn333 Member Posts: 178
    edited February 2013

    I know this thread is old but came across it because I was searching for posts on frequency of colonoscopies for BC patients (I had my first today and was put on the 5 year schedule due to BC - no other risk factors).

    I just wanted to comment on the posts that suggest that scans etc. would pick up colon cancer and so it isn't necessary to have a colonoscopy if you're being scanned regularly as a result of your BC diagnosis.  The beauty of a colonoscopy is that it is preventative - not just diagnostic.  Precancerous polyps are removed and therefore don't ripen into cancer.  By the time a mass is detected (or blood is present in a fecal sample), cancer may already be present.

  • fredntan
    fredntan Member Posts: 1,821
    edited February 2013

    I'm also wondering when I should start having them. I'm 46. I have no issues with having one now-well not now as I'm going to get nipples next month. lol.

  • purple32
    purple32 Member Posts: 3,188
    edited March 2013

    My husband had stage 4 colon cancer and just had a bill rejected  by our INS co after having a 2yr  follow up (they said @ 5 yrs was normal for ' regular' ppl!)

    This is no joke ladies- I am just warning you to get pre approval before you have them done on a more regular basis.

  • cinnamonsmiles
    cinnamonsmiles Member Posts: 779
    edited March 2013

    Actually.....Thanks for posting this topic!!Smile 

    I do realize that BC is related to colon cancer (rectal too?). My maternal grandpa died of colon cancer. We are sure that my paternal grandfather had some kind of cancer, but he was end stage dementia and it was decided to just let him die in peace without a bunch of tests. It wouldn't be treated anyway because he was dying.

    I am only 44 but I think I should bring this up with my family doctor.

    Recently while hospitalized with an appendectomy, the radiologist found calcifications on my right kidney. I am not overly alarmed because more than likely it's not cancer, but there is always that little devil in the background saying maybe it is.

    Again, thank you so much for posting this. 

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited March 2013

    My paternal grandmother & aunt had colon cancer. I've had ovarian cancer & I did have polyps on my first colonoscopy last year. They said return in five years. My PCP says we may talk about repeat in three.

  • Summer2recover
    Summer2recover Member Posts: 171
    edited March 2013

    I am on the 5 year plan but it's because of family history of colon cancer.

  • Outfield
    Outfield Member Posts: 1,109
    edited March 2013

    Lots of misconceptions.

    Colon cancer screening, once you get past the basics, is actually a little tricky and individualized.  What the endoscopists ar looking for are cancers or adematous polyps.  There are also hyperplastic polyps, which really in the colon cancer screening world don't count as polyps.  There are folds that look like polyps but are nothing.  

    What matters is the procedure report and the pathology, those fall into three general categories:  

            1)  Normal, which can mean that no polyps were seen so no biopsies were done, OR that a "polyp" was seen but it              didn't turn out to be "adenomatous."  People with normal colonoscopies are generally told to have another in 7 -10 years, unless there is some other unusual circumstance.  Doctors don't refer to people who have had a non-adenomatous pathology result as having the problem of "colonic polyps," but often patients get confused, which is understandable.

            2) Adenomatous polyps, which are always benign.  If they were not benign, they would be called cancer.  How soon a person needs another colonoscopy after this finding really varies.  Some of it is based on algorithms, but some if it is physician judgement.  How many polyps were there?  Was it a good prep, or did stool obscure a lot of what the endoscopist was looking at?  Did the endoscopist suspect a polyp may not have been removed entirely?  Was a polyp severely dysplastic?  Follow-up intervals can range from one month to 5 years.   This is why Melissa's doctors are giving her different numbers - one doctor is clearly more concerned by her overall history and the flexibility after a finding of uncomplicated polyps allows for follow-up between 3 and 5 years.

            3) Cancer

    The other thing to remember is that in fee-for-service settings, endoscopists tend to bring patients back sooner than public instititions or managed care organizations.  Makes sense, they get more money.  

    I'm not aware of special recommendations for breast cancer patients by any of the major GI societies.  An increased risk of cancer has to be increased enough to justify the expense and the risk of increased procedures.  Colonoscopy definitely has some risks, but at this point it's the only screening modality that can both identify and treat polyps.    

    On to PET scans.

    A PET scan cannot diagnose cancer.  What it measures if the uptake of 5-FDG, a glucose molecule with a tracer stuck to it.  Cells that are metabolically active, meaning they're burning up a lot of energy, take up FDG more than cells that aren't burning much energy.  Cancer cells tend to take up FDG, but if a tumor is tiny the hot spot can be too small to see on the scan.  The resolution isn't great on PET scan images.  There are also other things that are FDG-avid:  infections (white blood cells burn up a heck of a lot of energy), areas of inflammation other than infection, healing wounds.  If something is known to be a cancer, PET's are very useful for tracking it's size, and if, say in a woman with many known bone mets, more FDG avid lesions are seen, they can be fairly safely assumed to be more bone mets.  I'm really surprised the UMD patient ed site says what it does, because it's simply not true:  PET's are helpful, but they are not diagnostic, meaning they don't give the final answer about what something is.  They change the level of concern that something is cancer, either up or down, and sometimes it's enough that docs feel comfortable making an assumption, but it's not equivalent to a biopsy.

  • carol57
    carol57 Member Posts: 3,567
    edited March 2013

    Outfield, sincere thanks for sharing your knowledge on this. I learned a lot from your post.

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