Has anyone started a Dec 2011 group?

Options
1565759616268

Comments

  • Mardibra
    Mardibra Member Posts: 1,111
    edited June 2012

    I get my Tamoxifen script tomorrow.  My fingernails are fine but my toenails are a mess.  My left big toenail is gone and the right should be gone soon.  Just in time for summer....bummer!

  • Kelloggs
    Kelloggs Member Posts: 965
    edited June 2012

    I've been on Tamoxifen since May 1st and so far so good.  The only real SE I've had is hot flashes at night but they are subsiding.  Markat - that sucks about getting your period back. I haven't had one since December either and I hope it stays that way!  I hope everyone had a good weekend!

  • Whatashocker3
    Whatashocker3 Member Posts: 209
    edited June 2012

    Mardibra, I have the same tamox se's as Kelly and that is it. Don't believe what you have been reading about it be harder than that. My fingernails on my infusion side are pretty bad and I have one toenail on the cancer side which is lifted but I don't think will come off. As for head hair it is coming alond but a distance away from going

    topless. Underarm hair is mia and I am quite happy about that. Leg hair is back:(. As for my period?, I hope never to see it again pls.

  • Mardibra
    Mardibra Member Posts: 1,111
    edited June 2012

    Ya, I figured that people who have bad SEs write about it and people who don't, don't. I'm hoping I have nothing to write about!

  • rachelvk
    rachelvk Member Posts: 1,411
    edited June 2012

    Good luck for those of you starting on Tamoxifen. One thing I don't have to worry about (oh, right, I'm TN, no worries there!). I hope SEs stay away.

    I think I'm ready to go topless tomorrow. I 'flashed' a few co-workers Friday and they all said how great I look. I'll just keep the hat on when I'm in public (outside of work). Let hair is growing in like crazy (just shaved on Thursday and it looks like I'll have to by Wednesday if I want to wear shorts/skirt); eyebrows are pretty much fully restored; eyelashes are GORGEOUS - double layer, almost; underarm hair is back, but less so on my SNB side, oddly enough; oh, then there's the chin hair. AAAGGHH!!!! No period back yet. I sort of hope mine comes back; I'm not ready to hit menopause yet, because my family has such a strong history of osteoporosis. I've taken calcium for years, but I'd rather put it off a few years.

    I hope everyone has a great week. 

  • naan1004
    naan1004 Member Posts: 520
    edited June 2012

    Rachel, wish I could go topless, I hope by fall, crossing my fingers and toes!

  • Kelloggs
    Kelloggs Member Posts: 965
    edited June 2012

    I'm with you Julie.  I colored mine over the weekend thinking if I at least got rid of the grey I would feel comfortable enough to go topless.  It looks different, but I still can't ditch the wig.

  • Whatashocker3
    Whatashocker3 Member Posts: 209
    edited June 2012

    Kelly you are not alone. The regrowth I have experienced to this point is consistent but slow. I have to go back to work in Sept so I am hoping to get a spurt.

  • markat
    markat Member Posts: 909
    edited June 2012

    I went in for my Herceptin today and I almost went topless but then threw on my scarf. I mean, if I can't go to the stupid infusion center without covering my head, then I'm obviously not ready :) I look like I'm growing a mullet. It's longer and curling up in the back, but still really short and thin in the front. On my way to the plastic surgeon for a TE fill. I'm definitely not going topless there, wouldn't want to scare the ladies getting their botox ;)

  • Whatashocker3
    Whatashocker3 Member Posts: 209
    edited June 2012

    Markat, that is funny. I probably wouldn't be able to go to the infusion room bald either. It is ironic though as we aren't fooling anyone there. Lol. Couple more months, is what I am telling myself:). Everyone seems to grow hair at a different level just like they had se's at different levels. This I do know!!.........it is growing.



    Have a great night. Nice to hear from you.

  • Baileybump
    Baileybump Member Posts: 172
    edited June 2012

    Whata - yes, I do have some good hair growth.  It's coming in nice and thick. . . still very short, but also chemo curls (I'm just happy to have some hair)!  I've been working throughout treatment.  My employer is so supportive and wonderful.  I couldn't imagine NOT working through treatment. . . I needed my people!  There is another group of ladies on here - Taxotere/Cytoxan December - planning a get together in Willow Valley PA in July.  The women on this BO site are truly amazing!  I could have NEVER done this without all of your support!

    Kelly - I agree with Whatashocker and her posting about living life.  I truly believe that our minds will play tricks on us for the rest of our lives.  Hopefully the games will lessen as time goes on, but for now the wounds are fresh.  The smallest ting will set me off and I think, wow, it truly is still VERY close to the surface.  Some of the ladies in the other group had been posting information on PTSD as it relates to diseases.  I believe we all have some post traumatic stress in our lives from this diagnosis. 

    Markat - bummer about your period coming back!  I, too, haven't had one since December.  I'm 44 years old and am hoping it WON'T come back.  I've been taking Tamoxifen since May 29th and have pretty much SE-free.

  • Mardibra
    Mardibra Member Posts: 1,111
    edited June 2012

    Baily - I start Tamoxifen on the 12th. Hoping to be like you, SE free!

  • Whatashocker3
    Whatashocker3 Member Posts: 209
    edited June 2012

    Mardibra, how you doing with the hair growth. I have been on tamox for about 6 wks with my side effects being night sweats and hot flashes. I hope you have the same or less in terms of se. Did you go on your holiday to your brothers home?

  • Mardibra
    Mardibra Member Posts: 1,111
    edited June 2012

    Hair is coming in pretty good. Full coverage just short! One of my happiest days was when i had hat head!



    Went to my nephews wedding. Good time. Heading to my brothers beach house in August. Love having relatives with real estate! Just booked my "I don't have cancer anymore" trip...Aruba in November. Can't wait.



    I have hot flashes and night sweats already so hopefully they won't get worse. Glad to hear yours are not too bad.

  • Baileybump
    Baileybump Member Posts: 172
    edited June 2012

    ARUBA?  Oh gosh, that's my favorite.  My mom, dad, hubby and I traveled there a few years ago.  It was my dad's favorite vacation.  Now that he's no longer with us, I hold those memories so near and dear.  Where are you staying?  We stayed at the Tamarijn - low rise.  We literally walked out of our room and onto the beach.  HEAVEN!

    My hubby and I are taking a cruise in November.  We will be on the cruise for the one-year anniversary of my lumpectomy.  I may take something with me and throw it off the balcony.  Shhhhh, don't tell Carnival!  Innocent

  • Mardibra
    Mardibra Member Posts: 1,111
    edited June 2012

    I was in Aruba early last year before BC dx and stayed at the Riu. This year staying at the Marriott. Love love love Aruba.



    A cruise sounds fabulous. Take your wig, scarves, hats, leftover pills, etc and chuck them off the balcony then raise a glass of champagne and toast yourself! You deserve it!

  • markat
    markat Member Posts: 909
    edited June 2012

    I'm jealous of the vacations! We were able to go on a cheap one in February, but I was still getting chemo so not so enjoyable.



    Are you guys shaving your neck hair around the back hairline? Like the hair that would be shaved if you had short hair? It's growing like crazy and I feel like I should. Too bad it's not in the front.

  • Mardibra
    Mardibra Member Posts: 1,111
    edited June 2012

    I now have hair in places i never had hair before!  WTF!  No need to shave the neck hair for me but that would be the one place on my body that doesnt have hair!  I am on my way to the nail salon to have acrylic's put on my two big toes.  The nails on both toes have popped off.  Gross.  I cannot go through the summer without wearing sandles, flip flops, etc.  So, off to the salon I go.  This ought to be interesting!

  • markat
    markat Member Posts: 909
    edited June 2012

    Good luck Mardibra! Let us know how it goes.

  • Whatashocker3
    Whatashocker3 Member Posts: 209
    edited June 2012

    Mardibra, you are not alone my friend. I have a single toenail that went all black. Looks like it will stay however. I had every single finger nail disfigured with dark rings and yellow tips. Yuck. I have had to wear nail polish to cover the ugly but soon all the new growth will be in and I can go commando. Today I tried to dye my 1/4 of hair thinking it would make the overall hair top thicker. Well...... that didn't work :(. Patience. Patience. Patience. This is what I need.



    Have a nice night.

  • Mardibra
    Mardibra Member Posts: 1,111
    edited July 2012

    Well I now have a fake left big toenail. My manicurist is my new hero! However, I thought it was only my big toes that were going to fall off...wrong! She said all of them are going to go and she sees lots of new growth. The smaller nails have less to grow sothey are almost back to normal (after the old ones pop off). The two big toes were so gross....black and yellow. Ewww. The right one is hanging on for dear life...thought it was ready to be popped off but I guess not. Freaking chemo! The gift that keeps on giving. I've had fake nails forever so I've never noticed if they were going....I guess that's a good thing. I bought some drugstore hair dye today for my 1/4 hair. Looks like I should hold off?

  • rachelvk
    rachelvk Member Posts: 1,411
    edited July 2012

    Mardibra - So sorry to hear about the toes. But kudos to your manicurist. Sounds like you're in good hands.

    Chemo does have a way of sticking around. My energy is back, but standing up and taking the first few steps after sitting down is tough. I feel like an old person at those times.

  • Mardibra
    Mardibra Member Posts: 1,111
    edited July 2012

    Omg...me too! Im like an old lady I'm hoping it will subside but I don't think it will. I have my final rads next week. Two on Monday and final on Tuesday. The last 10 days have been killer. The fatigue is bad. Nothing like chemo but not far off either.

  • Whatashocker3
    Whatashocker3 Member Posts: 209
    edited July 2012

    Mardibra, from my experience with the hair dye.... I would hold of. Lol. I really didn't accomplish much but my little fuzzies are now orange. I was hoping the overall appearance would look thicker. That didn't happen.

    Rachel what a great picture!

  • Mardibra
    Mardibra Member Posts: 1,111
    edited July 2012

    Orange...hmmm...not a good color for me. I'm going to make an appointment with my stylist. Have not seen her for ages.

  • rachelvk
    rachelvk Member Posts: 1,411
    edited July 2012

    My stylist called to say she'd be out for a few weeks in July and August and she was hoping I had enough hair that I'd be making an appointment soon. It's not quite long enough to be noticeably uneven, but I have really prominent sideburns (really??!!??) and I assume the back of my neck will need shaving soon.

    One good thing about the short hair - it's a lot easier to get the sweat off than with long hair that matts down. I shpritz like crazy (trying to dry off now after 25 minutes on the bike and a 5 minute walk back). I knew my head sweats, but this is ridiculous! But fortunately it's easier to mop up with the towel, and I can splash water on it and now worry about drying it. 

  • rachelvk
    rachelvk Member Posts: 1,411
    edited July 2012

    Whatashocker - Thanks. My BF took it at Relay for Life.

    I'm planning on sticking around bco for a while but if anyone wants to find me on Facebook, just PM me and I'll send the link. 

  • rachelvk
    rachelvk Member Posts: 1,411
    edited July 2012

    I had my port removed about 6 weeks ago, and it's still a little sore to the touch, there's a lot of what seems like scar tissue under the skin (maybe that formed around the tubing? It's sort of tube-like), and the redness on my neck that expanded along the tube throughout chemo still is there and a little sore. Anyone else having problems?

    I see my MO in early August and will ask her then. It's not severe enough to go in special, but it still bothers me. 

  • Jen78
    Jen78 Member Posts: 102
    edited July 2012

    Hi Ladies,

    I had my chemo at the same time as all of you. Finished in early February. I wish I'd found these boards sooner, but even after the fact, it's so reassuring to know we're all still experiencing a lot of the same things.

    Rachelvk - I have redness where my port was. I had it on my chest and upper arm while the port was in, and sometimes the skin was noticeably warmer. I took antibiotics and the warmness went away. But, 3 months after removing the port, I still have redness. I also have some swelling in that arm. One doc thinks I might have superficial blood clots (I've been checked for dvt), another thinks it's some sort of lymphedema (even though it's the opposite side)....I'm going to make an appointment with my BS and see what she thinks. I feel the scarring inside like you do, too. So many weird little things that stick around. I'll be interested to hear what your docs have to say.

    Hope you're all well and enjoying the summer so far!

  • markat
    markat Member Posts: 909
    edited July 2012

    Jen nice to meet you!



    Rachel, hope everything is ok with port site.



    Mardi hope the nails stick around.



    My nails are breaking off at the quick. I'm assuming that's because they are damaged from chemo.



    I hate the idea of shaving off the neck hair, but it seems like my hairline is really messy. Obviously with long hair I never noticed it.

Categories