Starting Chemo July 2012

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teeballmom
teeballmom Member Posts: 322

Hi Everyone.

Just wondering if anyone else will be starting chemo in July 2012?  

Take care!

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  • Truffles
    Truffles Member Posts: 13
    edited June 2012

    Hi teeballmom - I'll be starting on July 2 - ddAC x 4 and T x 4. What about you? I was originally stage IIa and node negative in 2010 but now have a recurrence in a node so am upstaged to IIIa.

    I've been getting so much amazing info and help from the April, May and June boards so hopefully we'll have a group of our own to go through this with!  

  • teeballmom
    teeballmom Member Posts: 322
    edited June 2012

    Hi Truffles (love your name) - I just heard from my ONC's office and it looks like they are aiming for me to begin July 11th (all depending upon when my BS puts in my port - he's on vacation right now).  They're trying to work with me so I have treatments on Wednesdays since it will work better for me with taking my 2 little ones to summer school in the mornings and then heading to my appt (2 hours away) and then having a few days time so if I have any SE's it will occur on the weekends when my DH is home.  

    I also have been getting some great info from those boards too.  I'm trying to get my questions together for my treatment class on June 22nd.

    I'm so sorry you are having a recurrence, but you will be fine!  Will you be having radiation?  I will have A/C x 4 (every 2 weeks), taxol/herceptin x 12 (weekly), herceptin (for a total of one year every 3 weeks) and somewhere between taxol/herceptin and herceptin alone, I will get my radiation treatment.

    Take care!

  • teeballmom
    teeballmom Member Posts: 322
    edited June 2012

    Wow, so far are there only the 2 of us? 

  • Truffles
    Truffles Member Posts: 13
    edited June 2012

    I guess so... it's really surprising! Seems like every other month there's been a lot more. Maybe we can join the June group if nobody else comes!

    I'll be having radiation after the ACT is over so not until the winter. My infusions will be on Wednesdays too, except for the first which is a Monday because of the July 4 holiday. Since it's just 8 total, I won't be getting a port and we're hoping to use just veins. Fingers crossed that it works!! Sorry you have to travel so far for your appts, I'm lucky that I work at the hospital where I'm being treated so it's only 10min away by car or a 30min walk if I feel well.

    How little are your little ones? I'm starting ovarian suppression soon so sadly no little ones for me for quite a while... hopefully someday! 

  • Lifeonitsside
    Lifeonitsside Member Posts: 250
    edited June 2012

    I might be joining you in July. Just had my lumpectomy four weeks ago (re-excision two weeks ago) and am waiting to meet with my MO but seems that July would be likely. I'll let you know.

  • teeballmom
    teeballmom Member Posts: 322
    edited June 2012

    Welcome Lifeonitsside!  Just like everyone says, it's the place we don't want to be but we all have each other to lean on for support!  How are you feeling?

    Truffles:  Our little ones are doing good.  I'm so sorry about the ovarian suppression, but you'll have little ones someday!  I decided to have my ovaries removed when I had my BMX (I'm 46) and found out why we never got pregnant - my ovaries and tubes were a mess.  Our little ones are adopted, but I couldn't love them more if I had given birth to them myself. I've been lurking in the June group, too, and learning quite a bit from them.  I'm putting my questions together from what they've been mentioning so I'm ready for my chemo class this Friday.  I'll have my radiation during winter, too.  If my calculations are correct, it'll be during the latter part of Nov and Dec.  

  • swimmom01
    swimmom01 Member Posts: 58
    edited June 2012

    I am meeting with my oncologist in the morning to map out my treatment plan. I expect her to tell me I will start some time in July. I am just about 2 weeks out from my BMX and free Tram. Will let you know.....

  • teeballmom
    teeballmom Member Posts: 322
    edited June 2012

    Welcome swimmom01!

  • swimmom01
    swimmom01 Member Posts: 58
    edited June 2012

    I will be getting my port installed on July 16 and start my first round of TCH on July 18. When I was in the waiting room at my oncologist a woman mentioned biotin toothpaste and mouth wash for help with any sores that may develop. Have any of you heard of this or any other tips/tricks that you can pass along.

    Jae

  • teeballmom
    teeballmom Member Posts: 322
    edited June 2012

    I have read about the biotin toothpaste on one of the other groups and will be asking about it at my chemo class this Friday.  I'll definitely pass along what I find out. 

  • teeballmom
    teeballmom Member Posts: 322
    edited June 2012

    Just found out that my port consultation has been moved up to July 2nd.  My BS really wants to get my port in so I can have my first chemo on July 11th.

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2012

    Hey Ladies- The Biotene toothpaste & mouthwash is to help with dry mouth and can also help with the mouth sores.  One way to help prevent mouth sores is to drink icy cold water and/or eat ice during the chemo infusion.  Also rinsing your mouth several times a day with a mixture of 1/4 teaspoon baking soda +1/4 teaspoon salt + 1 cup of warm water will help.  

  • Lifeonitsside
    Lifeonitsside Member Posts: 250
    edited June 2012

    I'm finally meeting with my oncologist next Thursday so I should have a plan then. I'm feeling good. My BS said that I healed quickly and very well after my lumpectomy so I'm hoping that bodes well for chemo, etc. I am scared and nervous about chemo but I have a great support system or around me, including an amazing boyfriend who helped seal up a leak my incision sprung! Thanks for this group and I hope everyone does well through their treatment.

  • teeballmom
    teeballmom Member Posts: 322
    edited June 2012

    Milrosemelrose:  During my chemo class today we learned about the mixture of baking soda and salt plus how good the Biotene toothpaste and mouthwash is.  Thanks for the tip.

    Lifeonitsside:  Best of luck with the ONC meeting.  I'm sure you will feel a lot better after the meeting, and I can't say enough about how having a great support system really helps. I'm finding out that our family has extended family we are unaware of who are helping us out anonymously.  An anonymous family at our boys' school has donated funds to cover the cost of our boys going to summer school for 6 of the days I will be in treatment and when I have to go in for my Neulasta shots.  I started to cry when I found out.  People are really amazing!

  • Lifeonitsside
    Lifeonitsside Member Posts: 250
    edited June 2012

    My support group is incredible. I also had someone reach out in a surprising way. A fellow artist who I barely know set up a fundraising campaign through Give Forward and has raised over $3,000 to help me cover my rent, food, etc, while I go through treatment. Absolutely humbled and overwhelmed me. So many people reaching out, including a huge number of strangers. People surprise you when you never expect.



    Check out Give Forward through my campaign and maybe see if this is something that might help you or someone else.



    http://www.giveforward.com/susanleecancerfund

  • teeballmom
    teeballmom Member Posts: 322
    edited June 2012

    Lifeonitsside:  You are an incredible artist!!

  • AlexisL
    AlexisL Member Posts: 1
    edited June 2012

    Hi Ladies! I've been stalking these boards since my diagnosis and finally decided that I needed to jump in since I will be starting chemo on July 19th. I am truly dreading it, but it will be nice to have others to relate to during this time. Best wishes to all of you! 

  • Lisa614
    Lisa614 Member Posts: 42
    edited June 2012

    Hi.  I'm starting July 5th.  4 cycles every 3 weeks of Cytoxan and Taxotere.   I will need to go to my chemo class next week.

    I was wondering if anyone has tried the shampoos out there to prevent hair loss.   Was just reading about one called, ThymuSkin.  Very expensive but if it prevents hair loss (studies show 88% prevention), it might be worth it.  

     Good luck to all...let's keep in touch over the next few months?

    :O)   Lisa 

  • teeballmom
    teeballmom Member Posts: 322
    edited June 2012

    Hi AlexisL:  Definitely will be nice to have everyone to relate with during our treatments. Good luck on the 19th!

    i Lisa614:  Good luck with your class!  I haven't researched anything on the shampoos, but I really think it is worth it.  Probably should have researched it myself before I got a pixie cut a couple of weeks ago.  Now my boys can't wait until they can cut Mommy's hair and then watch their Dad shave it off.  They also want to paint my head pink, red and black and then wash it off for me in the sink.  LOL.  Well, doesn't mean I can't start using something with the short stubble that will be left.

    When I visited the portion of the ONC's office where my infusions will be done (during my class yesterday), the chairs all face the green hills of Monterey, CA.  The first thing that came to mind (it was 5:00 PM and the sun was setting against the windows) was "Wow, those windows are dirty".  Isn't that horrible? Not, "Wow, nice tv's or nice chairs or lots of nurses to keep an eye on everyone", but I'm looking at exterior window dirt.  Oh well......

    Take care everyone!!!

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2012

    FOR THOSE GETTING A NEULASTA SHOT AFTER YOUR ROUND OF CHEMO:  You may want to try taking regular 24 hour Claritin to help with the bone pain that may accompany the Neulasta shot.  There is an ongoing clinical trial evaluating Claritin to prevent the bone pain.  Here is the link:  (http://clinicaltrials.gov/ct2/show/NCT01311336?term=claritin&rank=3)

    According to the clinical trial, one takes the Claritin (10 mg) once a day for 7 days beginning the day of the Neulasta treatment.

    I had my first Neulasta shot with my 3rd round of Cytoxan/Taxotere and took the Claritin.  I did not experience any bone pain.  The Claritin doesn't help everyone but it is worth a try since from my understanding the bone pain may be intense.  Just remember to ask your onco about trying the Claritin before you take it.

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2012

    FOR THOSE WHO HAVE A PORT FOR CHEMO :  You may want to ask your onco for a prescription for EMLA cream (lidocaine) so you can numb the port area before you leave home for your round of chemo.  If you forget to apply the EMLA cream or don't receive a prescription, ask the infusion nurse to spray the port area with numbing spray.  That way you won't feel the poke when the port is accessed.   

    If you receive a generic EMLA cream at the drug store, it may not come with any special coverings for the area to put on after you apply it.  In order to avoid getting the EMLA cream on your clothes and other places, just a 4 X 4 inch square of Glad Press N Seal plastic wrap to cover the area.  Make sure you avoid the temptation to spread the EMLA cream on the port area; I'm told that your fingers will be numb for quite a while!!!!

  • cyano
    cyano Member Posts: 67
    edited June 2012
    I start TC*6 next Thursday. I was so hoping to spend the summer backpacking.Frown
  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2012

    Just wanted to let you know that I'm on the April/May 2012 chemo hangout and wanted to share with you some tips to help you.  I'm heading into #4 of #6 rounds of Cytoxan/Taxotere next Tuesday and found getting tips from those who have already started chemo really helped and assured me that chemo is very doable and you are not alone through chemoland. 

    If you have any questions, please don't hesitate to private message me or post your questions here or ask on the April/May 2012 chemo hangout thread.  There is a wealth of practical knowledge here to support you through chemoland.

    Have a great weekend and stay cool!!!!!

  • Lisa614
    Lisa614 Member Posts: 42
    edited June 2012

    teeballmom:  Sounds like something I would notice too...not the beautiful sun set, but rather the dirty windows.  LOL.  that's funny.

    And I think you definitely should let your kids paint your head!  

    melrose:  I will be taking the Neulasta on the day after treatment and I already take Clariten daily for allergies.  So, I will let you know if I do get any bone pain.   

    Thanks for the tip about checking the previous months boards for those already underway.  

      

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2012
    Lisa614- Hope you have minimal side effects from the Neulasta since you are already taking Claritin.  Let me know if you will be icing your nails during the Taxotere infusion.  You may have read about it on other threads but may not know the practical side of icing.  Just let me know if you need some tips on that.
  • TAB55
    TAB55 Member Posts: 198
    edited June 2012

    Hi all,  my chemo starts July 11th.   I'm on a three week cycle of ACx4 followed by weekly Taxolx12.  Can't say I'm looking forward to it at all, but whatcha gonna do?  I'll check out ThymuSkin and Claritin, since I'm getting Neulasta.  My husband uses Biotene, so I'll just use his supply.  Thanks for the tips and encouragement.

  • TifJ
    TifJ Member Posts: 1,568
    edited June 2012

    Hi ladies, I went through TC X 4 at the end of 2010. Sounds like you are all doing some great research to help you get through this time. The Claritin really does work- combine it with Advil and it helps even more! I used the Biotene toothpaste and mouthwash religiously during chemo and never got a sore. It is important though to see your dentist and get your teeth cleaned before your first treatment-this helps cut down on mouth issues as well! Also, be sure to have both something for constipation and for diarrhea on hand- you never know which way you're going to go! If you have any questions, let me know. I'm always happy to help!

    The best advice I was given regarding chemo was "You don't have to be brave, you just have to show up." Best wishes to you all!

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2012

    FOR THOSE HAVING FIRST TREATMENTS of CYTOXAN/TAXOTERE:  Hope this helps.  The first treatment may take longer because you are still learning the infusion center procedure.  You will probably get weighed and then your blood work may be taken to determine if your WBC is high enough for the treatment.  I also see my onco the day of my treatment and before I have my treatment.  So be prepared for things to take a little longer.  You may want to take some snacks/sandwich because you may get hungry.  You may also want to take a blanket/jacket to keep you warm during the treatment unless the infusion center has warmed blankets for its patients.  I'm lucky that mine does.  I usually wear the same outfit--- leggings & long sleeve knit shirt & men's undershirt--- so I can tell if I've gained weight between treatments.  I have my Taxotere infusion first and then have the Cytoxan infusion second.  Make sure you drink water/eat ice during the treatment to help prevent mouth sores and to start flushing that chemo through your body.  You will sit the entire time during the Taxotere infusion since you are icing.  However you definitely can get up and walk around with your IV pole during the Cytoxan.  That means don't curtail your fluid intake thinking that you can't use the restroom because you can definitely get up to take a walk or go to the restroom!!!!  Just ask the infusion nurse to unplug your IV pole from the electric plug.  My onco ordered Ativan in my IV along with the usual IV meds which helps me keep calm during my treatments.

    After the first treatment, keep drinking the fluids to help flush the chemo out of your body.  I know you may not feel like eating but try to eat 5-6 small meals every day.  A fed tummy is a happy tummy.  If your side effects start to escalate, call your onco to get some help asap.  Doesn't matter what time of day it is or what day of the week it is, just call.  They really want to help you get side effects under control and expect you to call. 

    GOOD LUCK ON THE FIRST TREATMENT!!!  WISHING MINIMAL SIDE EFFECTS FOR ALL!!!!  YOU CAN DO THIS.  Once you get through the first one, you need to say out loud " I AM DOING THIS!!!!"

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2012

    FOR THOSE ICING NAILS DURING TAXOTERE INFUSION:  Always clear anything you want to do with your oncos.  You will need to clear it with your onco about icing since not all oncos will allow icing during the Taxotere infusion.  At the suggestion of my onco, I am using clear nail polish on my nails to help keep them strong and also icing the nails to help prevent nail damage which is a side effect of Taxotere.  She suggested that use Sally Hansen Strong As Nails Clear Polish but I switched to Essie polish since it doesn't chip as much as the Sally Hansen brand.  Essie polish costs more but for someone like me who never used nail polish before chemo, the fewer times I have to apply polish the better.  I don't mani/pedis but some do.  I'd rather avoid the germ issue at nail salons and taking of a chance of getting nicked. 

    ICING :

    • Time period for icing- You will for 1/1/2 hours in total= 15 minutes before the Taxotere infusion + 1 hour during the infusion + 15 minutes after the infusion.
    • Ice- You can use frozen peas in quart size ziploc bags marked "Do no eat!!!" and reuse those bags of peas. Some have used small reusable/refreezable ice bags you can get at the drugstore in the first aid department.  I opted to use ice.  I have an ice tray that makes small rounded bottom circular ice.  I tried the peas and decided I liked the ice better because I thought it stayed colder longer.  My infusion center has ice available for me to use if I want to use it.  I always bring an extra bag of ice just in case I need it.
    • Transporting ice to infusion center- I use a cooler with a freezer pack plus take extra infusion ice bags.  
    • What to put the ice bags in- That is a personal preference.  Some just put the ice bags on their feet and wrap a blanket around them so the bags don't fall off.  Some use insulated lunch bags and put the ice bags in those.  My hands and feet are small so I'm using some neoprene wine cooler bags that I bought at Target for $6.99 each.  I figured I could use the wine bags later on.  I'm still able to hold an insulated mug so I can drink really cold water and eat ice during the infusion.  I have pretty small hands/feet which explains how I am able to use those Neoprene wine bags.
    • Hand & Feet Protection- I wear thin sports socks on my feet when I ice the toes.  The socks keep the rest of my feet warm during the icing.  On my hands, I wear a pair of knitted wristlets/fingerless gloves to keep the rest of my hands warm.  If you don't have knitted wristlets, you can make some from men's socks by cutting holes in the toe area.  Some people take their feet/hands out of the ice periodically; however, I don't do that.
    • Process- I let the infusion nurse know that i'm icing so we can coordinate when I should start the icing. Once I know when I'm going to start the infusion, I put the ice bags in the bottom of the Neoprene bags.  I put the ones on my feet first and adjust the ice bags so my toes nails are covered.  I then put the ones on my hands on and adjust the ice to cover my fingernails.  My husband helps me with this process.
  • TAB55
    TAB55 Member Posts: 198
    edited June 2012

    Melrosemelrose, thanks for all the great tips. I really appreciate them! I have chemo class next week, and you are giving me lots of questions for the nurse.

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