April/May 2012 Chemo hang out

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  • kjiberty
    kjiberty Member Posts: 1,385
    edited June 2012

    Dance:  My urine was bubbly too and I did notice my blood sugar level was higher than it has ever been (just a little out of the normal range).  My doc said that's pretty typical w/chemo as well and should come down.

    Melrose:  My pulse, too, is high...Once is was 113.  Again, I was told it sometimes happens with the Neulasta shot.  My blood pressure has been unusually low (except, of course when I go in for chemo).  You are lucky to have such an understanding internist.

    Fierro:  I still can't believe you put in 38 hours this week!  Take care of yourself, girl!

    Lisa:  Peeling--yet another wonder SE of chemo.  Try aquafor with socks on at night.  

    Vicki:  Sounds like you have a wonderful weekend planned.  

    Rgina and all others getting chemo today:  Hoping for minimal S/E's for you this weekend. 

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  • dancetrancer
    dancetrancer Member Posts: 4,039
    edited June 2012
    laprof - yep...you will either be lucky or not so lucky w/SE's - give it til days 4 - 6 waiting for the shoe.  Smile  Wishing minimal SE's for you!  Happy you are here w/us!
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  • dancetrancer
    dancetrancer Member Posts: 4,039
    edited June 2012
    kjiberty - thank you so much for your post on the bubbles - makes me feel  MUCH better!
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  • kjiberty
    kjiberty Member Posts: 1,385
    edited June 2012

    Dance:  LOL. When you originally posted on the bubbles, I thought:  I am going to wait for her to hear from her doc.  I never even thought to ask my MO about it.  Just thought it was another wonderful S/E.  You are a plethora of info.  Thank yoU!

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  • Fierro6
    Fierro6 Member Posts: 224
    edited June 2012

    A HUGE thank you to dancetrancer for interpreting my blood work.  She's determined I'm going to make it.  LOL  I understand it enough to go forward now.  Thanks so much for sharing all of the research you've obviously done.  Every time you post, I find myself thinking, "Does she spend all day researching?"

    DH got home and started dinner, giving me strict instructions to stay comfortable and let him take care of everything.  God, I love that man.  The next time I complain about his snoring or his socks on the floor, remind me of this post, OK?  LOL

    Have a good weekend, everyone. 

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  • laprofessoressa
    laprofessoressa Member Posts: 18
    edited June 2012

    What kind of skin problems are you having ? I feel like I'm getting acne all of a sudden ???

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  • dancetrancer
    dancetrancer Member Posts: 4,039
    edited June 2012

    LOL Fierro!!!  Yep...pitifully will admit, I spend most of the day planted on the couch on my computer...been too sick to do much of anything else, can't work, don't have kids...decided researching bc would be my job!  There is a dent in the couch where my *ss sits all the time!  Ba-ha-ha! 

    Awwwh, so sweet about DH!  Mine has been gone all week for work, and I've been on "quarantine" until today...so I'm quite anxious for him to get home tonight!!!  Pretty lonely week, if it weren't for you guys!   And he's picking up take out which I can now have - YES!!!  Oh, I love salad and am getting a big grilled chicken one from Crackerbarrel....YUM!!!!   

    Oh, he's home!!!!  Yay!!!!  

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  • mary71145329
    mary71145329 Member Posts: 133
    edited June 2012

    Dancetrancer-- Enjoy your salad for me too! I'm still on quarantine and will be till Tuesday when I see my MO.

    Fierro- my guy is a good catch as well. Since I've been on quarantine since last Friday and can't eat out, he's making me piazza for dinner tonight! Gotta give him credit...he really is a good guy. :)

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  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2012

    laprofessoressa- Glad to you have joined us!! With the chemo and drop in hormones, it's the perfect combination for getting skin problems.  The face acne just shows up like an unwanted guest but you just need to take care of it the way you normally have done so in the past.  My breakout occurred at the time my body hormones were at war with the chemo--- the chemo has won that battle since I'm now in chemopause and no more breakouts.  Poor little ovaries were just so confused!!!  Now if I can just get pass these hot flashes, I'll be in good shape.  I was having some clogged hair follicles since my hair loss but I've taken care of that with some Neutrogena T-Gel shampoo and Aveeno baby conditioning shampoo.

    Fellow bubble makers- Thanks for getting that solved for me.  I noticed that phenomena recently but was waiting to ask my onco about that SE.  I like hearing that some of these side effects will resolve on their own once the chemo is done!!! Whew.....

    Fierro & Fightinglikeagirl- FYI- Nose bleeds just happen with chemo.  I'll also tell you that the loss of the nose hair also does occur.  You can also swab the inside of your nose with a little Vaseline to help from getting so dry and also a squirt or two of nasal solution also helps.  Another one of those little annoying chemo SE's. 

    Dancetrancer - Thanks for your help!!!  I talked to my MO's office and they said to hang loose and not worry for now.  They seem to think it was the hike from the parking garage and through two buildings and getting my pulse taken right after that.  When I mean exercise, I mean maybe a little more walking and maybe just 5 minutes on the exercise bike.  I'm all for taking it easy and not pushing myself more than necessary.  

    Everyone- Stay cool and hydrated and have wonderful weekends with minimal side effects!!!

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  • Fierro6
    Fierro6 Member Posts: 224
    edited June 2012

    It doesn't seem like my nose is dry (it gets that way in the winter, and it doesn't feel the same,) but I do the nose-swab thing in the heating months of winter, so I'll just start doing that now.  The main concerns that I had is that it wouldn't stop for quite a while, and it was on the "call no matter what" list.  

    I hope to avoid that list as much as possible from now on.   

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  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2012
    Fierro- If that nose bleed happens again, call asap like your onco has instructed you to do!!!  You might want to give them a call on Monday to let them know what happened.  Our bodies are now different because of the chemo so we can't always treat ourselves the way we used to before having chemo.  Glad we have MO's who want to intervene and intervene quickly.  We just have to not be afraid to call and get that help.  Hug that DH for taking care of you!!!  
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  • dancetrancer
    dancetrancer Member Posts: 4,039
    edited June 2012
    It not stopping would scare the dickens out of me, too, Fierro! 
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  • mistym
    mistym Member Posts: 58
    edited June 2012

    Hi everyone,

    I've been trying to catch up on all the activity....you ladies sure have been busy. 

    Extra giant hugs to you all experiencing bad SE's this week.....extra big hugs to everyone Smile

    I don't know if I get TLN here in Canada but am going to check for that movie suggestion but I got tears just looking at the link and reading about it.

    Tx #2 and CT scan done for me this week.  The port worked fine but it sure does hurt when the needle goes in and comes out! So far side effects are a bit more intense than TX #1 but am hanging in there.  I find I am much more tired, headaches and more nauseous. Absolutely zero appetite and the gatorade that was my best friend no longer likes my tummy.  I started the daily neupogen injections yesterday and am also taking the Claratin.  Bone pain is there today but I am hoping the Claratin will stop it from getting extreme to the point of not being able to walk again.  I have Tylenol #3 and morphine on hand to help if the pain gets too bad.

    I'm planning on taking it easy this weekend because I want to save my energy for next weekend which is Canada Day Long Weekend and there are so many events that I want to be able to attend if I am feeling well enough.  I also am supposed to have a family BBQ next weekend that I had to cancel last weekend due to not feeling well.  Fingers crossed.

    I want to thank everyone once again for all of your amazing support and love.  This site means so much to me.

    Also, welcome to any newcomers to the group and I am sorry that you had to join but you will find so much support here.

    Hugs,

    Misty

    http://www.facebook.com/l.php?u=http%3A%2F%2Fwww.youtube.com%2Fwatch%3Fv%3D0QKxsiRYC9Q&h=RAQEdhrxVAQHF7EqIPzjYtCBkzTBXGduNOTneqg9AsMxQ0w

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  • sandik
    sandik Member Posts: 482
    edited June 2012

    I can't keep up on here! haha So much activity. 

    Im trying to relax, watching tv and the dogs are 'playing' Two- one hundred pound german shepherds and a 50pound boxer/shepherd mix. Driving me nuts. One of them banging into me every two minutes. The little one is a spoiled thing. I think we were on the surgery thread when I got him, but to fill you in, he came from a kill shelter down south. We had him shipped up here. Since he's the newest, and the smallest, everyone lets him get away with murder. He jumps up on the furniture where the other two were never allowed on it. Ugh. He doesn't even care if you are there. He'll jump up and run right over you and the laptop and everything. Drives me nuts! haha Last night I locked myself in my room to get a calgon moment. 

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  • FightingLikeAGirl
    FightingLikeAGirl Member Posts: 69
    edited June 2012
    Well my #'s are prefect...she thinks it was just dehydration. As far as the nose bleeds she wants me to see an ENT next week...maybe i need something cauterized. She checked my blood and said it is clotting perfectly and is not too thin. She has me on Coumadin for the full year that I am on Herceptin...I assumed most people were on it. I am going to have to do some research and talk to her...it could have to do w my family history of heart problems.  Oh yeah...she also said I have a hemeroid...what a treat!!!  Gave me some suppositories...another drug!!!

    Thanks for all the info on these nose bleeds. I have been using the Ocean saline nasal spray, aquaphor with a q-tip, nede pot and a humidifier at night but none of it seem to help much.

    So while I was in the office waiting for them to take me I saw this card and it just really made me think of all the strong woman on here...couldn't figure out how to post it before...let me see if this works.

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  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2012
    mistym- I was just wondering if your MO gave you a prescription for EMLA cream (lidocaine) to numb your port area before you have chemo?  I apply that to the port area one hour before I leave for the infusion center and don't feel anything there.  if not, ask the infusion nurse to spray some numbing spray (lidocaine) before you get poked.  Try to get some food (crackers, soup) in that tummy if you can.  Ginger ale may also help.  Hope you feel better soon.
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  • mistym
    mistym Member Posts: 58
    edited June 2012

    FightingLikeAGirl thank you for posting the pic.  I love it.

    I saved it and will use on my Caring Bridge and Facebook page soon.

    Misty

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  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2012
    Fightinglikeagirl- Love that picture of the Disney princesses!!!!  FYI- I'm also suffering with "her-rhoids"-  I mean hemorrhoids.  Just get them for a day or two and then poof, they are gone until another round of chemo.  I have an internal one so there isn't any pain.   I figured I wasn't drinking enough water ( if that is possible) and not eating enough fiber ( if that is possible with all of the fresh veggies & fruit I eat plus wheat bran plus the prunes, etc.) after the 3rd round.  So I'm going to try to do better with the 4th round.   Hope you feel better... have a great weekend!!!
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  • TriChick
    TriChick Member Posts: 56
    edited June 2012

    Love LOVE the pic!  I am putting it up on Facebook too!

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  • Fierro6
    Fierro6 Member Posts: 224
    edited June 2012

    mistym - If they didn't give you the numbing cream, ask for it.  I have it, and I don't feel anything.  Before I had it, though, they numbed it there, and it worked nearly as well.  Maybe the nurse doing the sticking assumes you are numbing it?

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  • Gemmie
    Gemmie Member Posts: 103
    edited June 2012
    Another thank you to FightingLikeaGirl for the great pics of the Disney princesses. Love it!
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  • vickilind61
    vickilind61 Member Posts: 338
    edited June 2012

    They used the numbing spray on me and it worked well; didn't feel a thing and before I knew it, the line was in the port and the rn was already doing my blood draw!

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  • mistym
    mistym Member Posts: 58
    edited June 2012

    Thank you for the suggestion of the numbing cream.  I had three different nurses use the port for blood work, chemo and CT scan contrast dye and not one of them mentioned it.  I will definitely ask next treatment before the blood work.

    Misty

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  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited June 2012

    Fightinglikeagirl, thanks from me too, I love the pic and will also put it on my caring bridge site! I have to admit though that I don't recognize all of the princesses. I know from right to left they are: Cinderella, Belle, and the one in the middle is Princess Jasmine, and I think Aurora, and then Snow White on the far left. Is the other princess Ariel without her mermaid tail? Been awhile since I've seen all the movies. :-)

    Btw, my favorite Disney heroine is Mulan! And my favorite fantasy heroine is Eowyn from the Lord of the Rings (book and movie versions both).

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  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited June 2012

    Oh yeah, I'm noticing the bubbles too. My sugar was perfect before all this so I won't stress.

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  • dancetrancer
    dancetrancer Member Posts: 4,039
    edited June 2012
    FightinglikeaGirl - to my knowledge, being on Coumadin is not standard with Herceptin.  It must be something in your medical history, as you said.  The pic you posted is cool! 
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  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2012
    FightinglikeaGirl- I'm taking Herceptin and no Coumadin for me.  If it was standard, I would the think the Herceptin clinical trial I'm participating in would have me taking it.
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  • Fierro6
    Fierro6 Member Posts: 224
    edited June 2012

    Awesome!  Now my throat hurts and my left ear is starting to hurt a bit.  Screw this.  I'm going to bed.  I hope all of these symptoms (and my attitude) resolve themselves by morning.

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  • vickilind61
    vickilind61 Member Posts: 338
    edited June 2012

    Fierro, sleep well, sweet princess!

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  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2012

    Definitely beddy-by time for you Fierro!!! Sweet dreams and hope you feel better tomorrow!!!

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