April/May 2012 Chemo hang out
Comments
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DH took the girls out to eat Chinese yesterday afternoon, followed by a grocery shopping trip. I wasn't up for getting out again, so I stayed home. After they got home, our 14 year old sounded kinda funny. And then she sneezed. Ummm, "Are you sick?"
She assured me that she didn't think so, and then she sneezed again. It was my bedtime anyway, so I went to bed and left her in there. This morning, I sanitized the remote controls, light switch plates and anything else that she may have touched before bed. She just came upstairs. Yup. She's sick.
I've quarantined myself to my room for the day, since it appears to be nothing more than a summer cold. No need punishing her for getting it. DH is my germ buffer, since I trust his hand-washing practices. He can get into the fridge or open doors and such that I want to avoid. I'm probably going overboard, but I don't want a delay in my visit to the BGC on Wednesday.
It could be worse. At least I don't mind being quarantined today. It's supposed to be 102 here in the Kansas City metro, with a heat index nearing 110. No thank you. I'll stay in my air conditioned bedroom with a TV and my laptop and my water.
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Got package in the mail yesterday..a 'prize....red tee shirt that read..Cancer..you picked the wrong bitch..Love it..co worker of my eldest sent it to me..was so sweet she thought enuf of me wasn't it?
should go good with the bald head I'll soon be sporting..pulling hair out by the handfull..LOL..thought about shaving it but then would have the short stubble falling out..at the rate is is shedding..should be all gone by Monday...
Oh well..if loss of hair is my big complaint..right?
hoping the best for all you ladies..Doris
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Much better start today. I took Restoril before bed and had a great night's sleep! I took a slightly cooler and shorter shower and am dressed and back on the couch. My DH is making me an omelet! I plan on getting more rest today and will hopefully be back to normal tomorrow.
Wishing minimal SE for all of you today!
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Hi All - and welcome to the newcomers!
I am going to mention because I have not seen anyone else post about it - talking about germs...Bath and Body works has an antibacterial lotion in several scents. Ever since my smell and taste went "ba bye" there are only a couple of scents I can stomach. The upside is they are far less drying to the skin than the normal gel hand santizers. They are reasonably priced AND good for a retail therapy session!!! I keep one in every corner...car, purse, backpack, kitchen...etc. etc. My "go to" standard is hand washing, cant beat that if done correctly.
Speaking of retail therapy! Got mine in yesterday -- - I was not going to buy clothes since I have not had my recon yet and I have gained a couple lbs. but...ya know...I could not resist some cute workout shorts and a pair of cute denim capris!! Along with some stuff for the house, I felt much better (and tired) when I got home.
On a blue note, I went to my normal group bicycle ride yesterday and learned that another rider from our group was diagnosed recently....I reached out to her on Facebook and she returned my email with several questions regarding chemo, wigs, SE's etc. I told her about this amazing group so keep on the lookout for Angela Brown from Oceanside, CA.
It has been said before, I wish none of us had to be here....smiles and virtual hugs to all.
D
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Marcia - sounds like you are much better and glad you are still taking it easy today. I take Restoril too, as far as I'm concerned this stuff is heaven sent - so wonderful to have a good night's sleep.
Fierro - yikes your temps sound like here in Texas today - you are right, too hot to do anything but stay in the A/C. Hope your daughter gets to feeling better.
Welcome Lisa514 - sorry you are here, but welcome. This is such a wonderful group and so much knowledge to share.
DorisMarie - when my hair started falling out my daughter used the clippers on my head but like a short, short boy cut, 9 days after my second TCH I still have hair on my head, thin and fuzzy, but still some hair, I'm going to leave it to see if it all comes out. Still have eyebrows/lashes, hair on my arms and fingernails are still growing (thought that would stop).
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lisa2012 - I usually take it for the 2 full weeks after chemo when I'm having the worst time sleeping. Then I wean myself from it for the 3rd week until just before chemo when I start the steroids again. It has worked great for me so far - but I don't have long term use experience to share.
thanks fighting for the thanks!
lisa and fighting -
BTW, I too have suffered with thrush with each and every treatment despite Nystatin. Mine usually lasts at least a full two weeks. It sucks. I can't believe yours (fighting) is continuing with the Diflucan, too! That stuff is resistant!!! I can tell like clockwork almost when my whites are up good and strong (thrush starts to go away) and when I'm starting to dip back down (comes right back). Counts don't have to be even super low for it to come on, just slightly low. Grrrr! I've also developed it under my armpit (make sure you don't sweat and let it stay wet any length of time) and in another not so great area - you can imagine (uggh!). Hope I never see nasty thrush ever again in my lifetime!
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Fierro - I'd being doing exactly the same thing! Who wants to risk getting sick - even if your counts weren't low - b/c that could delay chemo and hell no none of us wants a delay!!!! Enjoy your "me" day - it's not so bad, is it?
Now you just need to add in a nice bubble bath. marcia - so great to hear how much better you are feeling today!
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Dance: All I can say to you is... LOL. With the thrush! You and I are "kindred spirits" in the one area.
Marcia: Glad to hear you are feeling better.
I have been using .5mg of lorazapam and it has helped me sleep SO much better than the ambien.
Fierro: My DS came to visit with a summer cold... Lucky me. Fortunately, because my WBC's were so low, the MO put me on antibiotics for 10 days after each neulasta shot. My DD, niece, and DH all got the cold, and I was very fortunate I did not. I guess the antibiotics really helped. My DD wound up sleeping in another bedroom so ensure I wouldn't get his nasty cold. Stay cool.
DorisMarie: Wear that shirt with pride! BTW, my hair is starting to grown back (white???) after the third treatment. Looks like bird fuzz. Gotta tell ya though, I come from a very, very hairy family. Haven't lost in on my arms....
TriChick: I love retail therapy when I am up for it. I did the same last weekend. It was nice to treat myself.
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rgina- Glad to see someone else is opting not to shave her head. I've got stubs here and there. I did the same as you--- short boy cut and still have some head hair!!! Heading into #4 round on Tuesday with hair. Still have eyebrows, lashes, some leg hair, arm hair and yes.... some down south. I told my onco's research coordinator that my hair is my little science experiment since I've been curious from the beginning of chemo to see how long it would take the chemo to take out my hair.
Doris- You'll move on from the Hair thing soon. Whatever you decide to do, take control over the hair before it takes control over you!!! I'm not shaving because I wanted to see how long it would take the chemo to get all of my hair follicles ( so far it hasn't) plus I felt that the close shave would be too much of an abrupt change for me. I wear hats/bandanas/Buffs when I got out. The poor wig is still in a ziploc plastic bag and probably feeling that it has been abandoned (b/c it has been!).
Stay cool and hydrated everyone!!!! Elbow hugs for all and especially for those germophobs like me!!!!
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What worries me about germs is this: Antibacterial wipes, gels, etc do not do anything for most viruses. Some of the antibacterial cleaning wipes (like Clorox) say they flight the influenza virus, but that's about it. That's what has me worried about being around DD. If it's a cold, that stuff won't kill the cooties.
Bring on the bleach!You're right, Dance. I'm enjoying it. I'm organizing the filing box that I use for bills and I'm enjoying it! That's sick! DH fetched a Sonic diet Cherry Coke (my weakness) because I had over half my water down for the day at 9am. I'm living it up! Then again, I rarely get alone time unless it's in the car on the way to or from work.
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Six days in to my first TCH and woke up w a runny/bloody nose ..... No more blood now but stil runny nose (is this a cold? !ugh!)
I'm inspired by those of you working through chemo--and it also makes me feel like a total wimp for not working!! My husband took the kids to friends for the night cuz I can barely take care of myself
Also - more questionsm i feel like such s newbie:
-could someone send me a link to a thread or other about the fingernail icing stuff? I don't get that
-my blood count won't be checked until the day before my next chemo (& I was given no booster shot!?!!) So.... There's no way for me to know when I'm at my lowest....
Ugh this sucks!!! -
rgina/melrose/TCH'rs...I am 11 days post my final (4th) TCH - I had arm hair after my 3rd, but I just looked and it appears most of my arm hair is gone now. Lost underarm hair after 1st TCH. Looks like my leg hair is finally all gone now, too (it took longer). I still have some down south hair and still have my eyelashes and brows...will see if they depart in the next few weeks PFC. I feel like a science experiment, too, LOL.
Fierro - you are absolutely right about the viruses. It's the hand washing is what works best for them! The agitation followed by rinsing them down the sink. For those who don't know - hand wash as long as it takes to sing "Row, row, row your boat" tune 3 times, then use a clean paper towel to try your hands, and that towel to turn off the water and open the door when leaving the restroom. LOTS of germs on the water spicket and the door handle - ick! Spreading my paranoia....you should see me on cruise ships! I haven't gotten the norovirus yet when cruising, despite being on ships with outbreaks...knock on wood!!! The hardest thing of all? DON'T touch your face - eyes, nose, mouth...easiest point of entry.
Enjoy, enjoy, enjoy Fierro!!!
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laprofessoressa-
BLOOD COUNT-As for the blood work, I get my blood testing the day of my chemo. If you go to chemocare.com, you can look up the chemo drugs you are receiving and find out when the nadir period is for your chemo regimen. Here is the link to the listing of chemo drugs:
It will give you a good idea when your WBC may at its low point. My onco only gives the Neulasta shot when it is determined that one needs to have the shot. Since I had a high spikey fever/chills 12 days after my 2nd round, she decided that I had to have Neulasta shots the day after my chemo rounds for the remaining treatments. I had my first Neulasta shot after my 3rd round. I took regular 24 hour Claritin for 7 days beginning on the morning that I received the shot and had no bone pain. So after this coming Tuesday's #4 round, I'll be doing the same.
ICING-Here is a repeat of an earlier posting I did for the icing of toes and fingers. Hope it helps. If you further questions, please ask here or private message me.
- Time period for icing- You will for 1/1/2 hours in total= 15 minutes before the Taxotere infusion + 1 hour during the infusion + 15 minutes after the infusion.
- Ice- You can use frozen peas in quart size ziploc bags marked "Do no eat!!!" and reuse those bags of peas. I opted to use ice. I have an ice tray that makes small rounded bottom circular ice. I tried the peas and decided I liked the ice better because I thought it stayed colder longer. My infusion center has ice available for me to use if I want to use it.
- Transporting ice to infusion center- I use a cooler with a freezer pack plus take extra infusion ice bags.
- What to put the ice bags in- That is a personal preference. Some just put the ice bags on their feet and wrap a blanket around them so the bags don't fall off. Some use insulated lunch bags and put the ice bags in those. My hands and feet are small so I'm using some neoprene wine cooler bags that I bought at Target for $6.99 each. I figured I could use the wine bags later on. I'm still able to hold an insulated mug so I can drink really cold water and eat ice during the infusion.
- Hand & Feet Protection- I wear thin sports socks on my feet when I ice the toes. The socks keep the rest of my feet warm during the icing. On my hands, I wear a pair of knitted wristlets/fingerless gloves to keep the rest of my hands warm. Some people take their feet/hands out of the ice periodically; however, I don't do that.
- Process- I let the infusion nurse know that i'm icing so we can coordinate when I should start the icing. Once I know when I'm going to start the infusion, I put the ice bags in the bottom of the Neoprene bags. I put the ones on my feet first and adjust the ice bags so my toes nails are covered. I then put the ones on my hands on and adjust the ice to cover my fingernails. My husband helps me with this process.
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dancetrancer- Thank goodness for paper towels!!!! I quit using the towels in the kitchen/bathroom. I bought those Kleenex paper towels that come in a box and put those near the bathroom sink so I'll use those instead of using a cloth towel. I always use the paper towel to open doors when I'm leaving the bathroom so I won't touch the door knob. I know..... a little Howie Mandell-ish ( true germophobe)..... but germs are yuck!!!
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laprof - runny/bloody nose most likely from losing nose hairs/irritation to nasal passages from chemo/and/or low platelet count (any combo of the above). Try a small amount of moisturizer (I use baby oil) in the nose w/a Q-tip and see if it helps.
You are probably starting your lowest point (called nadir) this week - days 7 to 10 are typical for TCH, although you may personally vary by a day or two - so start being cautious right now, esp without the shot. I know it's scary - been there/done it without the shot - just be cautious and monitor your temp, limit your outings in public gatherings - avoid fresh fruits/veggies/cook all meats and eggs very well, etc. Shots are not standard with TCH like they are with AC. They wait to see if you develop something first. I think that's crazy if you ask me. I didn't develop any infections, but my onc DID monitor my bloodwork and when he saw how low it was, decided it wasn't worth the risk to keep letting me go unprotected. Some onc's give them standardly to TCH patients, but it's not in the national guidelines to do so.
I'm not working and no way could I have done it with all of my side effects as well as the physically demanding/public contact job I have. You are not a wimp!!!!
I see Melrose has posted the icing info - thanks girl! And LOL on the paper towels!!!! Yes, I am keeping that industry in business while on chemo, LOL!!!
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Hello my Sisters! I have been browsing these boards since I was diagnosed in April, I have only posted once about 3 weeks ago when my sweet little dog died unexpectedly, it just tore me up, having to deal with so much at one time. Today I am posting because I have an issue that I wanted to see if anyone else has experienced. I had my first T/C treatment last Wednesday 6/20. I got my Naulista shot 24 hours later, and that evening my chest area was on fire, I felt just like I did when I came home from hospital after surgery! It is very painful!, not only there but lower back where I already have arthritis . Ugh! Called Onc on Friday, he was out of town, nurse said she had not ever heard of anyone having that kind of problem at an incision site, but that your senses are heightened during chemo. Has anyone experienced this besides me? I also want to thank you all for getting me through these last couple of months! I don't feel so alone when I am reading your posts! Much love to you all...
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GracefulDay- So sorry about your dog. When it rains, it pours.
I had increased pressure in my TEs after each of my infusions. It didn't last too long, though. I am starting to get a little more used to them, but still can't wait to have my exchange and get rid of these rocks sitting on my chest! -
Dance - I checked that site and it says that nadir for me will be (for both drugs) 10-14 days. I'm getting chemo every 14 days. LOL I guess that's why the Neulasta shot is so important. It also explains why they wanted me in on Friday to check. That was day 11.
Thanks for the link.
GracefulDays - Welcome! I'm sorry you've had other stuff to deal with. I know that I sometimes want to scream at the universe "HEY! I HAVE CANCER. YOU SHOULDN'T BE ALLOWED TO DUMP ANY MORE CRAP ON ME!" I have not experienced what you did after treatment, other than lower back pain, and it wasn't terrible. I hope someone has answers for you. This site is a wealth of information.
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Thank you Marcia and Fierro6, Marcia that's exactly what I feel, like increased pressure and pain, feel better that it is not unique to me, but hate you had to experience it too
. Fierro I felt just like screaming those very words! My little furbaby was my shadow at home, I have wonderful support from my family and friends, and DH has went above and beyond my expectations caring for me, but something about cuddling with my Chewy( his name, he was a Shitzu ) just made me feel better. Peace and love to you both 
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Thank you Marcia and Fierro6, Marcia that's exactly what I feel, like increased pressure and pain, feel better that it is not unique to me, but hate you had to experience it too
. Fierro I felt just like screaming those very words! My little furbaby was my shadow at home, I have wonderful support from my family and friends, and DH has went above and beyond my expectations caring for me, but something about cuddling with my Chewy( his name, he was a Shitzu ) just made me feel better. Peace and love to you both -
@Gracefulday - so sorry about your dog. I'm a huge animal lover so totally understand how devestating that would be. I agree with Fierro - we have enough on our plates already!
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@Gracefulday- i am sorry about your puppy dog. I don't know what I would do w/o mine.
Dance---yes I am talking about my WBC and the Nuelasta shot. Mine got down to 1.9 and they put me on antibiotics.
As far as sleeping, I take the 12.5 ambien but it has quit working! It probably does not help that I am on my second round of a steroid dosepack for the severe itching that was caused by the Taxotere.
I will ask for Restoril I think!
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I just finished reading a book called I'd Rather Do Chemo Than Clean Out the Garage. It is by a woman who has been surviving stage IV cancer for many many years. I highly recommend it. It is lol hysterical and very practical and the authors name is Fran Di Giacomo. I am the third lady to read this particular copy and I will pass it to my next door neighbor or my neighbor across the street who have both been recently diagnosed with BC for one and Ovarian for the other.
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Melrose and Dance - I checked that site (chemo care) and it says for Taxotere nadir is 5-9 days but for Carboplatin it's 21 but with Cytoxan it's 10-14 - so it would seem those on Taxotere and Cytoxan have a 5-14 day period, but I'm getting Carboplatin so that combo the chance of low counts with the Carboplatin are going to hit right at the time of my next infusion (every 3 weeks)? Am I making any sense? Can the "C" in TCH be either Cytoxan or Carboplatin?
Hand sanitizer - picked up some Gold Bond Ultimate Hand Sanitizer Moisturizer at the grocery store this morning, alcohol free, non-dryng - kills 99.99% of germs and it's in a small tube, like hand lotion, also feels good on my old dry skin. Working downtown at the office tomorrow in lieu of at home and you all have me really thinking about germs now.
Gracefuldays - I am so sorry about your dog, being a huge animal lover/rescuer person, I know how heartbreaking loosing one of your pets can be, big Hug.
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Good after noon girls, don't like to butt in, I'm on taxatere and cyclophosphamide and my Dr. has me on Antibiotics from day 5 for 7 days as he said my lowest is from day 7 to day 14...it is Ciprofloxacin 500 mg.
I had my first chemo on Friday June 22/
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Gracefulday: I am so sorry to hear about your dog (as I sit here on the sofa with both my goldens). That must be so hard and painful for you. As far as the pain is concerned, my MO said the pain would be either in my chest (feeling like a heart attack chest pain), hips and abdominial/pelvic area. Are you taking a daily dose of claritan. Don't know if it's helped, but I have had a little (scale of 1-10, 1 being the pain) for the past two injections.
Laprofessor: you are NOT a wimp. Some of us who work like myself, work from home a lot. I may work 2-3 hours, but it keeps my mind off all the other stuff going on in my body.
After my first treatment, I had bloodwork done a week later, and my WBC was very low. I was then prescribed 10 days worth of antibiotics which I now take starting the day after my treatment (same days as I get my neulasta shot). I did not have the shot after the first treatment.
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Hi Fighting, well, no sores but my tongue gets white and hurts. I've done the Nystatin, salt water, and Biotene for dry mouth. Have Diflucan but didn't take it, Onc thought that it was an ongoing side effect that I could manage. I was afraid Diflucan would have side effects (like most things!!) the thrush did go away each round for about a week. Then food tasted better!!
I am so wiped out. I know I am done with infusions but I am day 5 of processing the stuff. And this eye watering business did not happen round one or two. Just whining a little and wondering what lies ahead. Though as my therapist says cross one bridge at a time.
And hey, not constipated thanks to Miralax ( take it 2 x by chemo/ Neulasta.) did go for a little walk and now parked in my lazy boy. Hugs to all of us. -
Ellendou- Your onco may have put you on the antibotics as a precaution to help keep your WBC high. He/She may be trying to spare you from the Neulasta shot which has a side effect of bone pain and seeing how you will do without it for the first round. FYI: The Neulasta shot is expensive which may also be a reason that your onco does not automatically give the Neulasta shot after your chemo round. My onco uses the wait and see approach with prescribing Neulasta. In my case, only when it became apparent that the Neulasta shot was necessary did I start to receive it. I developed a high spikey fever/chills 12 days after my 2nd round and I was in the nadir period. She prescribed some antibotics which took care of that just in time for me to receive my 3rd round. My WBC rebounded to where it was at the 2nd round WBC count but as a precaution, I am now on Neulasta shots after my chemo since #3 round. I took the regular 24 hour Claritin after the Neulasta shot for 7 days beginning the day of the injection and no pain. Hope your side effects have been minimal with the 1st round.
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lisa2012- Give your body a chance to recover because it will. Just keep resting and eating well and slowly you will see the difference. You also have to remember that you are the beginning of nadir from one of the chemo drugs you and I are having. Not surprised you so tired. Definitely okay to whine here!!!! I hope you feel better soon soon soon!!!!
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Thanks Melrose. Your words help a lot! That nadir stuff, right. Here at my clinic they gave me Neulasta each time (after I dropped to 200 the first time. ) No antibiotics but it took about a week to get the WBCs up. Now resting and cruising is my MO. A little short of breath but trying to breath slowly and more deeply.
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