2012 sisters

juneaubugg, I have lots of sympathy for you with the Crohn's - I have celiac disease. I get the idea that celiac is a little more manageable even. My guts are not happy with the chemo and neulasta but this first time was manageable. The thing that knocked me on my butt was the neulasta fever. I mean, our immune systems are already overactive and then we get a shot to make it more active? ugh. but perhaps my next round won't hit quite so hard as the chemo does its thing. My GP gave me klonazepam for the anxiety. I take just a bit at night to turn off my brain and help me sleep. Some nights I need it more than others. just fyi, my breast healed up very well after my lumpectomy - the docs are always concerned about my healing up too with the autoimmune thing but for me as long as I keep my diet strict, I do alright. Best of luck on the surgery! I felt kind of in a rush and went for the lumpectomy but now I think I should just get the BMX - I totally don't care if I keep them. I look in the mirror and call them "traitors!"

 jpmom and vicki and all chemo patients who keep working thru it: You AMAZE me! Good job! I want to be that woman. I am feeling kind of back to chemo-normal today and I just cannot imagine trying to work through the last couple of days. But knowing that many women do it and survive it helps inspire me. Thank you! I am terrified of the Taxol chemo. simply terrified. If I think about it much I will get panicky. But if you ladies -  jpmom, tazzy, lostinmo, & anyone elsewho has done taxol/taxotere - can give me or oint me to detailed descrips of people experiences, it may help me. please?

& on an up note, my fever seems to have mostly gone & I took a bit over a mile walk the AM. woohoo! I really enjoyed it! 

oh vicki, I'm so sorry about the bone pain. I too hope the tylenol knocks it back!

only using extra strength tylenol.  Still have oxy and vicodin from surgery but I HATE the way they make my head feel.  Will probably ask for Darvocet or Valium before next tx. (Do they even prescribe darvocet anymore?  Loved that stuff after my shoulder surgery in '77)

the D-train has entered the station.  Pepto, do your job!

juneaybugg-The surgery itself is really not that bad, the waiting is so much worst. Hang in there and keep youself busy, you won't worry about it when you're busy with other things, even if you're busy getting stuff ready for the surgery, it will still help. Will be thinking about you next week Tuesday, see you on the other side soon enough!

jpmomof3-I know what you mean about getting a high, I'm crazy about spinning and I went to support a spin off 3 weeks after my surgery and I actually get a high from seeing all those people on their bikes spinning. Don't worry we'll get back there soon enough, I just started back the gym last week and its been slow, I think it'll take me up to a year to get back to where I was in weight trainning but we have to start back somewhere, right?

vickilind61-Sorry to hear about your SEs of chemo, and hope that you feel better soon from them, especially your D-train.

allurbadday-Traitor is right! I actually glad to see them go if it means getting rid of this stupid cancer!!!! 

Vickilind, did you try claritan for the nuelasta bone pain? And, if immodium doesn't work for the d train, call your mo and get something else. Also keep drinking dont get dehydrated with the d. Jueanubug, the wait is the worst thing. Also there is a thread for taxotete, and I think one for taxol, you can find much wisdom there.

Best wishes for tomorrow MaddyMac, i will be thinking of you!

Here  is a link to see a photo of my feline furry buddy http://pbckt.com/py.Osulvk hope it works...

jpmomof3:  I'm in love: sch a cute kitty! Mine love those chairs outside on my deck too.  They cuddle up there for hours!

The Imodium worked.  Been drinking lots of iced tea to stay hydrated.  Bone pain is about what it's been all week.  Feeling better.  Still not too much to complain about.  If the train tries to pull back into my station I will start the Imodium ASAP.  Thanks for all teh good wishes. 

websister-Sorry that you have to join us but welcome to this supoort group, you will find that its a roller coaster ride from the beginning with all the tests and waiting for results, but please know that we are all here for you!

Vickilind, if you have to take more than three sets of immodium, call your mo for something stronger. I drink a lot of ice tea, but I drink it weak and unsweetened. If you like it stronger, just be aware that caffiene and sugar can make the D train move. Just FYI.

Vicki:  I hope you're feeling better soon

Websister:  Sorry you have to be here, but welcome to an amazing group of women.  We will support you in the good times and your low ones as well.  They are moving very quickly.  Sometimes, I think that's good...  I was diagnosed on 1/27 and didn't have my surgery until 3/12.  Lots of time of agonize.  At least you know it will be over with soon and you will be on your way to recovery.

DianeNM:  My oncotype score was 28 and both my BS and MO recommended chemo.  My recurrence rate was 18%.

JPMOM:  Cute kitty and dog!  I love animals.

Tballmom:  You are so lucky to have an herbalist!   

Jpmom... it is the most wonderful feeling in the world.  Knowing that when we walk out of that chemo room... that's it...no more bloody chemo - the only way is UP.   I am doing the happy dance with ya.  And that is a beautiful puddycat. 

Allurbaddays... I had taxotere and from what I gather pretty different se's from taxol.  Also on neupogen which is different from nuelsta  - so I aint much help I am afraid.   I haven't worked - lucky I had a huge sick bank - but listen to your body, rest when you can, and drink lots of water, and then some more.   And like everything with this.. the waiting is by far the worst.   Try not to think of the chemo as a beast to hurt you, but to kick cancers butt into touch - and if it makes you feel bad, imagine how the cancer is feeling - least that's what I
used to tell myself.   And we are here with you.  Happy to hear the fever has pretty much gone.

Juneaubugg - I hear ya about the irrational fear - I have it too - sure we all do, but I was feeling pretty good about myself when I said what I said

Vicki.... My MO told me to take the pain killers (T3'S).  Take what you need to.   Just read a later post... happy you are feling better.

Good luck tomorrow Maddymac - will be thinking of you.      Let us know.  And tomorrow is my FINAL chemo, treatment # 8  finally it got here.

Teeballmom... nice news on the herbalist - so nice they all work together.

Welcome websister... I found mine in the shower too.  You have been through so much this year.   But you've found an amazing group of women.  Here you'll be able to offload everything on your mind.   I hope the scans will give you good news. 

Kjiberty... I think it is wonderful when they move quickly.  I was diagnosed Jan 12 and had my first chemo Jan 27.   I was happy with that.

My MO was extremely happy with my progress today - she said that the 8+cm mass she could feel at the beginning had become more difficult to find as time when on and now felt more like granular lumps and if she is happy I sure am.  Chemo sucks but it works. 

I am sorry if I missed anyone. 

I will check in tomorrow to see how you are all doing once I have done the happy dance home.

Peace and hugs xxxxxxxx

Good Morning All

(Think it's morning) Off for taxol #3 so I will try to catch up with everyone when I get back from my benedryl nap.

Hope everyone has a good day.

MaddyMac thinking of you today

Tazzy- I think your in the chair today also? Hope it goes well. 

Good luck today in the BGC ladies!