2012 sisters
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Hello all - thank you for your kind and helpful responses. At the same time I posted here, I posted on facebook. Just a few lines - basically, "H Everyone. I have breast cancer." A bold move for me considering I've known about this for weeks and have hardly told a soul. I got tired of being in this alone or laying everything on my fantastic fiance/boyfriend of 10 years. The response was amazing. just like it is here. I am employed and do have insurance...just not a great policy for this type of thing. And, after the owner of my company found out, he offerred to help pay for everything and pay me during my recovery. It was like the sky opened up and the sun burst thru. Truly the nicest, most amazing thing anyone has every done for me. I guess that putting it out in the universe does help! (I'm from california after all...)
@ jpmomof3 - I'm definitely getting one of those F CANCER shirts (they have wristbands too) - or perhaps I'll make one up based on the phrase that showed up most in my facebook responses. Lots of people wrote some variation of "kicking cancer's ass"-I think that would make a great t-shirt. kicking cancer's ass...
More to come. Thank you all for your input.
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LAjen: Wowow!!! I am so happy for you! We are here for you! Feel free to vent anytime and throw any questions our way! I have a t-shirt that has two baseballs where the boobs are and says "save second base". I wear that to chemo and get lots of reactions from the staff at the cancer center.
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LAjen, I am so happy to hear that you got such a great response from your employer. THats a blessing to have an employer like that. We have enough stress dealing with the diagnosis and treatments, who needs the financial stress. I am glad that will be easier than expected for you now. Keep us updated!
I am the main wage earner for my family and my insurance (and my kids) is through me. I was previously healthy and dumbass me didnt sign up for short term disability. I didnt have much leave time saved up at all. I was terrified at the beginning that I wasnt going to be able to work during all this and was going to lose my income, maybe even my job and my insurance. luckily I have been able to work all the way through chemo. I may have pushed myself more than i should have at times but I am glad that i did and that it is almost behind me. I haven't taken any time off at all since before my diagnosis and am more than tired and burned out but grateful that i have done this well! I have one more dose of taxol in 5 days and suregery and rads to look forward to but honestly i think I am through the worst of it already.
Kjiberty, love the t-shirt!
Have a great day!
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Lajen, SO HAPPY for you. I am glad things got better. Whew!
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Lajen-That's GREAT news!
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Dang I am getting company next week so I have been trying to get things in order around here as I have been pretty much a slacker since my diagnosis and all my biopsies, lumpectomy, snb, and NSDMX. But I just spent the last hour reading everyones posts, getting up to date and had a big response with comments to everyone. I accidentally went back to reread one persons remark, before commenting to them and hitting submit, and I lost the whole thing. I won't say whose comments I was rereading when I lost everything, but if anyone notices that I am treating them as if they did something wrong, you can surmise that even though it wasn't your fault I did something so stupid, that I'm taking it out on you anyway. lol. I can't believe I did that. Anyway I just want to let everyone know that I am thinking about you all, want to welcome the new comers, wish those with upcoming surgeries the best and those waiting on results great news.Those of you with hives and rashes I feel so bad for you. I have allergies and get both hives and rashes ( plus swollen lips when I'm real lucky) and I'm miserable as heck with them. Can't imagine how you deal with it while going thru all you are going thru now. You are all super ladies! (Tazzy I hope you don't feel jealous that I think the others are super too-you're super super ok?) For those that were discussing products I don't know if this post will be of any help to you but I know alot of the girls that post have been thru chemo and rads http://community.breastcancer.org/forum/7/topic/779760?page=17#idx_496
I had another fill yesterday. I am excited to say that these 2 old fried eggs are starting to morph into a different shape- good or bad I'm not sure , but definitely different! LOL
Jpmomof3 Love, Love Love Thor! He looks so good and perfect I know I won't be seeing him on my new favorite show Dogs in the City . Actually I love dogs - never met one I didn't like; wish I could say the same about their owners lol
Jazlaumir So glad you are comfortable with your surgery. That is so important. I had an area of ALH on each side found during core biopsies. I then had an excisional biopsy on both sides. The alh on one side turned out to be IDC so my biopsy was then considered a lumpectomy. My margins were clear and my bs said since it was small and had clear margins that I could just go on and have rads and "close surveillance". I had already been doing close surveillance for 8 years due to strong family history; seeing the breast specialist for 8 years every six months and had alternated mammograms and ultrasounds every six months and mris every 2 to 3 years. The alh on the IDC side actually only showed on the MRI this year. This was all in the back of my mind when I went to see the MO. He said that they had also found LCIS in the other area of alh and he sent that pathology off to be rechecked to make sure it wasn't ILC. When it came back still LCIS and I tested negative for Brac he very reluctantly gave me his blessing for the rads and close followup that I had planned. He did however stress that a NSDMX would be very appropriate for me considering the LCIS in my other breast and my family history as well. That got me thinking about how all those years of close surveillance kind of let me down; I kept thinking about how the cancer didn't show on any of the tests, and what if there was more cancer hiding. I thought about my family history and how something was definitely at play in my family even if it wasn't brac. My husband " carefully " reminded me that I spent a couple months prior to my tests these last 8 years fretting followed by more fretting while waiting on the results plus all of the fibroadenomas I've had biopsied. He ask me if I was prepared to continue all that plus have the MRIs yearly. All of a sudden the NSDMX sounded like a much more reasonable treatment for me. I even had them throw in an oophrectomy on surgery day so that I didn't have to worry about ovarian cancer anymore (my uterus was gone long ago). The surgeries were fairly easy for me and I can't tell you the sense of relief I have. It's not for everyone but the decision was definitely the best for me. Now I am concentrating on getting these 2 fried eggs filled. My pleasures have definitely become more simple after all of this. lol
Super-super Tazzy we have to put the DH's in touch so that when they are ready to commit us, it's in the same place and that we have a large supply of scrubbies incase we have a pool! (I still can't swim yet so you'll get to use them all for now) Actually I was sitting here reading all our posts and kind of laughed thinking we could all do a remake of one of my favorite old movies "one flew Over the Cuckoos Nest" incorporating our issues and interests in a humorous way lol
kjiberty Yum Mexican sounds good. I still like marguaritas but I LOVE the pitchers of sangria our mexican place has. I have a fear of running into one of my DRs while I'm imbibing but my excuse is ready- I don't do it too often AND there is a ton of fruit in it and resverotrol in the wine part. Sounds reasonable right? I have a phobia about running into drs because about a year after my hubbys heart attack, we went to his family doctor ( last appt before drs office lunch hour) where he discussed my husbands weight cholestrol and diet. My husband proclaimed to be "doing somewhat better" with his diet to which of course the doctor was very pleased. He is the same doctor that I go to as well and grumble about my subtle weight gain and how nothing I do seems to help. Well after the appointment we decided to go eat lunch on the patio at the wonderful Italian restaurant around the corner. We are sitting there with a giant pepperoni pizza (which we really intended to take some home) and a beer and who walks by but the doctor we just saw. Talk about embarrassing LOL Anyway, wish we could all get together and have a few laughs and drinks though.
Well back to cleaning. Hope everyone has a great day!
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This thread was removed from my favorites ???? I wondered why no posts were coming from anyone... I missed you guys !
Anyway... gonna try and catch up with you all now and will be reading from the earlier posts first... bear with me.
LAJen... welcome, glad you found us. That is awful beyond words... I am sure the ladies here from the States will have some great advice for you. We're here for you and each other - this is our safe haven. OK so reading all done the posts from yours... and told ya that there'd be some great advice here. Here's to MaddyMac's imaginary margaritas. Finally catching up... read your latest post and that is wonderful incredible news. Give your boss a hug - puts faith back in human kindness.
Allurbadddays....just be careful that the Tylenol isn't masking the fever - that's what my chemo nurses told me... always take your temp before taking them. Oh and your description of that taste in your mouth is really the best ever ...boiling mud pots from Yellowstone... that is so true. DH and me went on a road trip to Yellowstone last year - what an amazing place.
Jpmom... I agree - the beauty industry/pharmaceutical industry have us by the balls with their costs... talk about preying on us. And Thor is a beaut.
Kjiberty... I think my MO told be about the rash - SE of taxotere.... Touch wood I've never had it.
Pallmettomom... Glad that your nodes were clear..sucks about the partial mx...but hey long as they got the cancer out eh?
Welcome Brooklynmom...happy you found us, sorry you have to be here. You are in good company though. Love this girls like my sisters.
2Fried... you are a sweetheart. So are you now 2Poached ?? That is one of my fav movies too - huge Jack
Nicholson fan. What a riot we could have in the same asylum And I am reading through you post and thinking... don't remember anyone talking about Mexican food... but by the time I am onto my next post... I've pretty much forgotten anything else.... Chemo brain.Sorry if I've missed anyone but sending good vibes and positive healing vibes to anyone who needs them.
Today is the best I have felt since treatment #7 on June 1....bloody typical that I go again Friday to have the crap kicked out of me...but hey last one.
Peace, love and hugs to you all xxxxxxxxxxxxxxxx
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Oh and I forgot to say that I cannot even begin to comprehend not only having the bc crap we go through, but to have to concern yourselves with insurance and whether you are covered.... geesh! I feel for you guys in the US. I'd be so bloody angry - as am sure you are.
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Tazzy, I keep knocking threads off my favorites list too. It happens when scrolling fast, your finger just touches the line for removing the thread. It's maddening, cause you don't notice it for a while. LOL
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thanks for letting me know moonflwr... least it wasn't part of chemo brain... but yeah I was thinking "why haven't I heard from the 2012 sisters"....
Well I am off to the garden the sun is shining and its almost 30 degrees (90 degrees). I will don my big sun hat and enjoy.
Hoping you are all enjoying your days too - if you can.
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88 degrees INSIDE my house. Don't have an air conditioner, but sitting in front of the fan its not so bad. I did have to have ice water after I got back from cancer rehab, she pushed me, in a good way. It was 91 outside, even here in Port. Now come the big storms. At least it looks like the D train stopped after day 13 post tx. Yay.
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Tazzy- I love how your accent comes through even when you type! I have to be at the cancer center at 7:30 AM Friday for #7, which means I get to leave my house by 5:45 in order to be on time. Yippee on being your last one!
2friedEggs -I had to feel bad for you losing your post,actually I was glad I'm not the only one. I did the same thing on another thread, really long one. Thought I hit the little spell check (I trust it more than my brain) but hit the undo button instead. By then I couldn't remember what I had wrote.
Moonflwr-it's 98 outside here so your 88 sounds cool. 88 is probably what our humidity is out. Stay safe from the storms.
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palmetto and brooklyn, welcome!
jpmom, I am looking for a t-shirt that says "yes they're fake, the real ones tried to kill me!" Just need to pay for it, I've seen them before.
As for lump vs mast, my margins were not clear so mx for me, AFTER trying lump. Palmetto, you are not alone. Glad your nodes were clear!
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vickilind61-I'm also buying a T-shirt that says the same thing! Still deciding which one to get since I saw so many in a website the other day!
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Soya, aren't they fun? I would imagine that years ago, it was impossible to find humorous items for cancer patients. The fact that we can now laugh about loosing a boob means we've made strides, right?
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Lostinmo... that's hilarious you said that about my accent. One of the women I work with, everytime I send her an email she said she reads it with my accent.. too funny. She was one of the first work mates I told about my dx she beat bc almost 3 years ago and actually trained and completed Ironman last year. I told her that I would not be doing something that silly.
Vicki and Soya... I've been wanting that same t-shirt. Can we get one for only one foobie ?? I love it that there is humour out there. Really can you imagine our lives without it.
We have 90 outside at the moment... I do have AC but I have all windows and doors open so there is a beautiful breeze blowing through... nice to air the house that's been shut up for so long.
peace & love xxxxxxxx
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Tazzy: Thank you for the rash info. My MO says "anything" can happen with chemo. How encouraging...eh?
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vickilind61-They're AWESOME!!!!! I will wear it proudly to show my fight with this stupid cancer!
Tazzy-Funny how we want to wear a shirt that says our tits trying to kill us and its OK! I actually want to train for the ironman as well. Its a real challenge since I've just learned how to swim only last year and don't know how to ride a bike yet! Its actually on my bucket list to do ( I made this list 2 years ago, before this cancer). So now I'm even more determined to learn to ride a bike and impove on my swimming. It might take me years, but I will do the ironman SOMEDAY!!!!
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Soyaandpepper: You go, girl!
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Thanks Karen!!!
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Soya... good for you... I have nothing but encouragement for you. We were so proud of her when she did it. It really isn't something I want to even try I will leave that to people like you
kjiberty... how wonderful to our ears... anything can happen.
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Soyaandpepper- we'll be cheering for you when you do the ironman. I just learned how to ride a bike this year at the age of 45. The tables were turned with my 14y DS teaching me. He is a very persistant teacher.
Hope everyone has a good Thursday!
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Hi all. It's been a couple of days and I just TRIED to catch up. Welcome to all the latestest "members" of this group. It's a wonderful place to share.
Re the shirts... Do you think we can get a discount on a bulk order? ;-)
Re lump or MX, I am going straight for the NSUMX. My left breast is perfectly healthy and with my pathology I am keeping it. After TE I will have it augmented during my exchange. I know two people who started out with lumps and ended up with MX, and I just want it out and over.
I felt SO much better after the constant uncertainty and anxiety from DX until I had enough knowledge to make a decision that I know is 100% the right choice for me (it is indeed so personal).
That was 2 1/2 weeks ago. Surgery was scheduled and life moved forward. Now I am less the a week out, I've had my pre op and I'M LOOSING IT! The anxiety and fear of the unknown. How much pain will I be in? What will I look like? What CLOTHES will I be able to wear? What will my DH think when he sees me? How will it effect our sex life? And the list goes on...
I try to stay with my feet (which are in today); but that damn panic keeps creating in. I have Chrons Disease which is a auto immune thing infest effects the colon so they are concerned that all this anxiety along with my condition will inhibit healing; so they put me on Xanax yesterday. Ahh; better. Still not sleeping so great, but I'll be doing nothing but next week.
2fried - cant wait to be where you are in this process.
Out of work until surgery on Tuesday. It's 95 and sunny here in Jersey so I'm driving to dads heated pool and floating for the day. My all time favorite summer pastime. That should take away the stess, aye? (for Tazzy). ;-)
Finally... Where are all the CAT PEOPLE?! Feeling a little left out ( although Thor is very handsome!)
Love to all- -
Oh PS.... If you navigate away from your post while still writing, just hit the back key. It's still there if you've only gone one screen forward/away.
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Hi everyone. Thanks for all the warm welcomes ...even though the circumstance suck this group has been very helpful. I am meeting with a medical oncologist to get result of oncotype 1 week for tomorrow. Then I have an appt w a radiation onc a week later. I'm a little anxious but getting good info here. Btw - Juneaubugg. I am a cat person too- love all animals but have the most adorable kitty /- animals help w the unconditional love thing
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Juneaubug, cats are my first love, I will post a link of my other fuzzy buddy soon. I still haven't had any luck posting the photos directly for some reason. Poor kitty is a bit scared of Thor though.. And I am glad you made a decision about your surgery and feel comfortable about it you should! It is natural to be anxious at this stage, I will be doing the same no doubt next month when my surgery looms. All those worries will work their way out somehow, they have to. You are in my thoughts!
Man it's hotter in NJ and Canada than it is here in NC. Thank goodness we are used to hot weather and have good airconditioning here. Try to stay cool! Pool and beer sounds good to me. Or margaritas.
Soya, more power to you on the triathlons. I have never done one but used to be an avid runner. I can't wait to get back to exercising. I am walking now and will try to keep doing that throughout my treatments and surgeries. When I see people running on the greenway path I walk on I so badly want to start running and blow by them and keep going. I love the high it gives me. I hope you will enjoy it. Its a great goal. Start with small goals and keep working your way up! I know when I start running again that I will really be done with this rotten phase of my life.
I am really not looking forward to going to work today but am thankful that I can. -
Hi Juneaubugg Don't stress- don't you hate it when people say that!!! lol No it's very normal to get in panic mode the week before surgery; we've all been there.! I too was very calm in deciding to have my NSDMX with TE's but the week before started to get so anxious about the anticipated pain, when would I have breasts again since I wasn't telling anyone but my husband about my surgery, getting groceries/shopping done for fear I would never be able to do it again,and lots of other irrational thoughts. If you look thru our May2012 group we were all fretting but many posted a day or 2 later that the worry up until surgery day was WAY worse than the actual surgery and recovery. I know that it's hard to buy off on when it's you waiting for the surgery. I think once you've made up your mind and are at peace with surgery, that when it's done it's such a relief , that you overcome any other things that may come up afterwards, pretty easy. I definitely worried for nothing. I took those pain pills religiously the 1st few days. The day of surgery I thought wow, this is really uncomfortable; am I going to feel this way forever then the next day WOW I was like a new person. In fact two days after surgery I had my hubby drive me to the store to grab some bigger blouses so I could knot them at the waist to hide the bulk around my waist and get out more. We were out with friends just a couple days later. I still don't have any breasts to talk about yet because I had some necrosis and healing issues so I couldn't get many fills, but hey, I throw a little stuffing over my friedeggs and go and no one knows any better. You'll be there before you know it and hopefully be saying the same thing-that the week leading up to surgery was far worse than surgery and recovery. I'm sure your husband will be fine with the whole thing. As Tazzy and I have talked about, our husbands have been so supportive and taken all of our emotions and grief like real troopers. Put the shoe on the other foot-if your hubby had to have something similar done, wouldn't you feel so bad that he has to go through it yet be so relieved that he is ok; his scars wouldn't bother you. I think when you really love someone, you don't see a few scars as a negative-that after the scare itself, you might even realize that you love them more than you know. Enjoy your swim! It's in the 90's here too but since I can't swim yet, that swim sounds extra nice. Put some of those scrubbies in the bra of your swimsuit, even though you don't need them yet, and tell Tazzy and I what they do water wise. lol Thanks for the tip too I'm not sure if I was in the right window when I went back - Tazzy gave me permission to say it's my empathic chemo brain.
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Juneaubug.... I am with you on the anxiety.... I am trying to keep mine at bay until after my chemo is finished and until I get nearer the date (which I dont have yet - just beginning of August sometime). Your DH will love you no matter what. for me, doing nothing sometimes is the perfect therapy. Enjoy your floating... arh what bliss! thanks for the advice on the navigating back and forth.
jpmon.... hoping work was bearable for you.
I am off for bloodwork today, meet friends for lunch, then pre-treatment check in with my D-care trial drug nurse and my MO.
If I missed anyone - hello! I hope that you all have good, minimal se days.
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juneau, I have cats. One black and one gray and they are both old. No more pets for me when these two go. Just do NOT want to deal with any of it. And I am so sorry you are having so much anxiety. The Xanax should help. And my daughter went to school with a young man who has Crohns; it is such a difficult disease to deal with.
soya, you go girl!
jpmom, I am staying home today. Starting to board the d-train and the bone pain is already kicking my butt. Already took my tylenol hoping to keep it from getting worse.
Just keep swimming...
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Dear Juneaubugg,
I made the same decision as you to keep my healthy breast. Was sooooo very scared of the surgery, lymph node removal and TE placement, but I will take that any day above the chemo because it's over so quickly. When I woke up after the surgery, it was really painful, I won't lie to you. They knocked me out for the first day with a strong painkiller. After that it became better every day. I didn't try to be brave, took the painkillers that were prescribed, and it was quite tolerable. Just five weeks before this surgery I had a hysterectomy and gallbladder removed simultaneously, and recovering from that was way worse. You will bounce back quickly.
As for clothes, I found a soft, padded bra made by Bali, no underwire, which fits nicely over the left breast with TE. Bought three of them. The right breast looks a little smaller of course, but nobody really notices. If they do, I don't care. I only wear the bra when I go out, otherwise I go without. My husband was so sad that I got cancer, had to lose my breast, go through chemo, rads etc. He has been nothing but amazing and supportive, reassuring me over and over that he loves me just the same whether I have breasts or not. We are celebrating our 33-year wedding anniversary on Saturday, and this cancer thing has brought us even closer together. The important thing for him is that I am alive and on the way to recovery. Your hubby will feel the same, I am sure. This too shall pass, quicker than you think. Just hang in there. Hugs to you!
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