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  • babysammy
    babysammy Member Posts: 74
    edited June 2012

    Ottawamom, welcome.  Sorry you have to go through this.  I am just in the chemo stage.  I remember your stage as it was in March for me.  You get part of the plan then wait for the next.  I see your a mom, how old are your children?  I was seen that the Womens Breast Health Centre and found the social worker helpful at the surgery stage.

    In my experience, I am so glad that my mom and other close family knew from the get go, it would of been so hard to tell them later in the game.  Did not tell my children, they are 8, 6, 3 and 3, until a few days before mastectomy.  Friends etc were later.  My neighbours just noticed Im bald.  Hope I didnt upset you by sharing my experience as that is not my intention at all. 

    Best of luck with the MRI, my surgeon showed me the images of mine and it was very interesting. 

  • OM12
    OM12 Member Posts: 56
    edited June 2012

    babysammy, you're not upsetting me at all - it's so good to get all perspectives and different stories.  My kids are 6 and 8, and I'm not sure how/when we will say anything... for now, for me, it just seems too close to tell people, even family.  Once I get more info I hope I will feel differently. It's funny, I alternate between hoping this next week either slows to a crawl, or flies right by...

  • babysammy
    babysammy Member Posts: 74
    edited June 2012

    Ottawamom.  My family had never had any cancer in the family or friends, so the only knowledge of cancer my oldest had was of Terry Fox.  So my son thought I was going to die when I went for surgery.  So glad that I came home the same day as the poor wee guy would of worried all night.  There is a book by Rethink BC which has chapters, surgery, chemo and rads.  So only need to read the pertinent chapter.  I was reminded that children have no concept of time, so not to tell them anything too far in advance.

    So glad that I didnt upset you. You will get through the week. Then you will have a plan.    

  • redninrah
    redninrah Member Posts: 773
    edited June 2012

    I have a 3 yr and 5 yr old, and I had my chemo surgery nearly 2 yrs ago. I tried to keep my life as normal as possible. I covered my head all the time as I think for a 1 and 3 yard old it would have been a little scary to show them my bald head

  • OM12
    OM12 Member Posts: 56
    edited June 2012

    Hi ladies, this is a copy of a post I put in another thread I'm on - but I wanted some local opinions as well as the really good discussion I've received from some of our US based sisters...

    Met with surgeon (Dr A- although 90% of appt was handled by her resident) and given the fact that this is DCIS, but has presented with some "non standard" features, the plan is for a lumpectomy with a sentinel node biopsy BUT not to be scheduled for 8 weeks, because they want to do BRCA testing (my aunt passed away from ovarian cancer v young) so IF the BRCA testing comes out positive, then that would change the course of action, and BCRA test results take 6-8 weeks even when expedited apparently... also, while there the BS found a lump on the left side that she wants ultrasound-ed as a "baseline"... so back in for an ultrasound next week...



    So - best case scenario - BRCA results come back negative I have a lumpectomy and sentinel node biopsy sometime in August, and then likely radiation...



    Worst case scenario - BRCA comes back positive and we're looking at a whole different ball game....



    Part of me was so relieved to hear lumpectomy... but another part thinks, if we treat this one hunk at a time... will these dense breasts keep me on pins and needles for the rest of my life?? The doc(s) didn't seem to think mastectomy was warranted...

    Have any of you requested second opinions here I town? Also - even though this is DCIS, given its high grade and presence of necrosis, should I be concerned about a two month lag?



    Ugh - didn't really get the clarity I was hoping for frankly...



    OM12 

  • micheleboots
    micheleboots Member Posts: 1,993
    edited June 2012

    Sounds like one tough decision to make.  As for those dense breasts, I can tell you that you will be on pins and needles no matter what you do.  "C-thoughts" will continue to linger in the back of your brain no matter what.

    I got a call the other day from the imaging dept.   I had a mammo 5 weeks ago and they want me back in for another mammo and a US.   I am hoping and  praying it is just scar tissue from my recon in Jan.  The last time they found something suspicious I was in there a couple of days later.  That is what makes me think they are just being extra cautious....Trying not to freak out.  Mammo is this Friday...

  • OM12
    OM12 Member Posts: 56
    edited June 2012

    Michele - I was thinking about you yesterday actually as I watched people coming in for their mammos while I waited! I can only imagine your panic... my fingers and toes are crossed for you...

    My issue at this point is I don't really feel as though I have been given any decisions to make - more like I was presented with a plan... and I'm not sure I'm on board with that plan!  This is truly comical though as 3 days ago - all I wanted was for someone to just tell me what would happen and what to do... I am normally a very decisive, action oriented person - so this waffling is really getting to me (and to my hubs frankly, he's not used to seeing me so totally befuddled!) I'm going to make a list of outstanding questions I have and give the nurse a call... maybe if I get my own thoughts organized and get  plan in action I can at least feel as though I'm armed with the info I need.

  • rachel11
    rachel11 Member Posts: 99
    edited June 2012

    Hi everyone!

    Glad to see a bit more traffic on this thread.

    Michele - I will be thinking good thoughts for you, hopefully it's what you hope it is.

    I am going in for chemo round 3 of 4 tomorrow, my last one should be July 5 and then on to radiation therapy. I have tolerated the treatments fairly well so far, round 1 was the worse so far, round 2 was a breeze comparatively speaking.

    Hope everyone is doing well.

  • redninrah
    redninrah Member Posts: 773
    edited June 2012

    I was diagnosed may 2010 and was given option of lumpectomy or masectomy. I chose masectomy. I have dense breasts too. My surgery was in July so two month window.

    Apparently it was a busy time of the year.

  • micheleboots
    micheleboots Member Posts: 1,993
    edited June 2012

    SCAR TISSUE, woohoo.  I was mighty freaked out to say the least...

  • babysammy
    babysammy Member Posts: 74
    edited June 2012

    Thank goodness Michelle, thats wonderful news.  Hope you have a great weekend.

  • rachel11
    rachel11 Member Posts: 99
    edited June 2012

    That's great news Michele!!!

  • Marple
    Marple Member Posts: 19,143
    edited June 2012

    Happy to hear it Michele. 

  • redninrah
    redninrah Member Posts: 773
    edited June 2012

    Excellent news !!!

  • OM12
    OM12 Member Posts: 56
    edited June 2012

    Great news Michele.

  • Time4life
    Time4life Member Posts: 73
    edited June 2012

    That is sooo good to here Michelle!

  • redninrah
    redninrah Member Posts: 773
    edited June 2012

    Hi

    It's been two yrs since cancer diagnosis. I'm hearing of ppl around me having ct scans and MRI as routine chec ups. I was told by my onc that they don't do that unless they are suspicious, but the way I see it , if u have symptoms, usually it's got worse...so I'm a big fan of early detection. What are u ladies doing for routine check ups

  • Time4life
    Time4life Member Posts: 73
    edited June 2012

    I have been told today at my follow up, that since my risk of breast and ovarian cancer is now less than the average female, there is no routine follow up. Same thing, any concerns with symptoms they will scan. I guess there is no easy answer. Routinely scanning can come with its own long term effects. Come the fall, I plan on putting this journey behind me and moving forward. I just have one last minor 'nip & tuck' with Dr Guay at end of August, and still trying to get this neuropathy in the feet and legs to simmer down so I can tolerate work. I am lucky though, I am part of a study, so they have to scan yearly. Maybe that is why other people are having it done too. I go every three months for a follow up, bloodwork, and study meds as part of the study.

  • babysammy
    babysammy Member Posts: 74
    edited June 2012

    not sure if anyone is interested, the Ottawa Integrative Cancer Centre, is having a free lecture about preventing recurrence.  Its a naturopathic clinic.  Google oicc and go to events.

    http://www.oicc.ca/events/198/oicc-prevention-cancer-recurrence-seminar

  • Marple
    Marple Member Posts: 19,143
    edited June 2012

    Thank you babysammy.  Where is Bayswater Ave?

    Edit to add........DH informed me it's in the middle of the city.

  • Time4life
    Time4life Member Posts: 73
    edited June 2012

    That sounds very interesting!

    Marple, we could carpool together?....

  • rachel11
    rachel11 Member Posts: 99
    edited July 2012

    Hi everyone!

    Had my last chemo treatment today! On my DH's insistance I rang the bell loud and long! Hope everyone is doing well.

  • Whatashocker3
    Whatashocker3 Member Posts: 209
    edited July 2012

    As you should Rachel! Finishing chemo should be celebrated. Good for you and do something nice for yourself.

  • babysammy
    babysammy Member Posts: 74
    edited July 2012

    Rachel11 congrats that is awesome. 

  • micheleboots
    micheleboots Member Posts: 1,993
    edited July 2012

    Rachell, way to go...now it is time to celebrate...put that chemo behind you.

  • rachel11
    rachel11 Member Posts: 99
    edited July 2012

    Now I go on to radiation, probably starting early in August. I have an appointment with my radiation oncologist on July 26. Not sure how quickly it all starts from there but I am hoping that by mid-August I've started this next step!

    Thanks everyone!n Laughing

  • micheleboots
    micheleboots Member Posts: 1,993
    edited July 2012

    As i recall rads started in a couple of weeks after meeting the onc.  Soooo much easier than chemo..just having to go every day is the sucky part.

  • rachel11
    rachel11 Member Posts: 99
    edited July 2012

    Thanks Michele! I am in a hurry to start this next step just so I can be finished with all this. :-)

  • OM12
    OM12 Member Posts: 56
    edited July 2012

    Hi ladies - anyone had an experience with a nipple sparing mastectomy here in NCR?

  • babysammy
    babysammy Member Posts: 74
    edited July 2012

    A little worried.  I have my chemo tomorrow 9AM at the General.  Completely forgot to get my blood drawn this AM.  Lab opens at 7:45, but I have atleast a 45 min drive with NO traffic.  I did have labs drawn Mon and everything was fine, but was told they had to be drawn again.  Just hoping everything will be fine, nothing I can do now.  Damn steriods probably not helping.  Thanks for listening.

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