You can be a blood donor after BC DX

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Kicks
Kicks Member Posts: 4,131

This is not just for IBCers but other types as well.



Many of us have been blood donors for many years and were erronously told that can never donate once DX'd with BC - that is wrong. Once 1 year out of TX and no reoccurance, we can donate again (as long as eveything else is OK just as with anyone). I have donated and my DX is on record just as everything else is. There are some cancers that do exclude one from donating ever but Breast Cancer is not one of them. HT does not matter.



Sorry I'm not good at posting the sites to just click on but you can google 'Red Cross Blood Services ' or 'United Blood Services' to find the info.

Comments

  • SpecialK
    SpecialK Member Posts: 16,486
    edited April 2012

    I worked in transfusion services and would urge you to reconsider donating blood.  How many have we seen on these very boards that recur after several years or less - I would not want to receive blood from a donor who has had cancer.  Keep in mind that those who need blood are immune compromised, critically injured, or very frail and/or elderly.  There are plenty of ways to help organizations like the Red Cross, or your local community blood bank, that do not involve donating your blood.  Please donate your time or your money.

  • gillyone
    gillyone Member Posts: 1,727
    edited April 2012

    Yes - I would not want to give blood to some unsuspecting soul or receive blood from someone who had breast cancer, (or any kind of cancer for that matter) irrespective of how long they had been NED.

  • Kicks
    Kicks Member Posts: 4,131
    edited April 2012

    Those who are advanced/stage IV BC cannot donate. Certainly there are some who are BC survivors that do have other medical issues that will disqualify them from donating besides their BC status but not all. Just as there are many who would be disqualified because of those issues. I was 15 the first time I donated - yes it was technically illegal even back then - but all the potential 'walking' donors had already been used twice and it kept her alive til they could get the blood that was being helio'd in.



    I have never been given blood though it was ordered after first Son was born but somehow the order got lost. Really glad it happened as that was in the early days of AIDS blood contamination.



    Certainly donate time/money but that will not keep someone alive when they need blood. I will continue to donate and hope others do also if they are medically capable of doing it.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2012

    "Once 1 year out of TX, and no recurrence"?

    No recurrence? We don't know whether or not we have had a recurrence until we get symptoms or it is found on a scan, right?  People can have early mets with no symptoms.  How do they know the woman donating blood who is 10 years out....might find out she has mets a few months later?

    Unless the docs can definitely tell us that cancer DOES NOT travel through blood, there is no way I would donate or want to receive donated blood from someone who has had cancer.

  • AlaskaAngel
    AlaskaAngel Member Posts: 1,836
    edited April 2012

    I hear your strong desire to help, Kicks. In Alaska there also are places and weather that can limit access to donated blood in time. I donated many times prior to dx. I am 10 years out now and remain NED, and I would donate if there is clear and definite inability to obtain alternative blood for anyone in need.

    However, I would have to actually understand the theory and evidence behind the reassurance that it is okay. At the same time, it is also true that there are thousands if not millions of people donating blood who have cancer and simply have not yet been diagnosed.

    Does anyone know of any research that would clearly support donation by dx'd patients?

  • rgiuff
    rgiuff Member Posts: 1,094
    edited April 2012

    Here on Long Island and also in nearby NJ, where I wanted to donate, I was told I had to be 5 years out from finishing hormonal therapy, and be NED before I could donate.

  • rgiuff
    rgiuff Member Posts: 1,094
    edited April 2012

    Here on Long Island and also in nearby NJ, where I wanted to donate, I was told I had to be 5 years out from finishing hormonal therapy, and be NED before I could donate.

  • dreaming
    dreaming Member Posts: 473
    edited April 2012

    I could not in good faith donate anything, blood, organs, I would be sick of worry that somebody can get cancer because of me specially since the 5 years do not count for us, BC can come back anytime anywhere.

    For all my surgeries I donate my own blood. Also I know one can ask radiated blood.

    I work in a cancer hospital  in Texas and no cancer patients in remission can donate blood, platelets, or marrow.

  • AlaskaAngel
    AlaskaAngel Member Posts: 1,836
    edited April 2012

    That is why I think we need to see any actual documented research on the question, to reassure us and give us confidence in donating.... or not.

    Otherwise, to be honest I see the risk to be similar to making the decision whether or not to do chemotherapy, while not knowing or at least having any real understanding of what it may or may not do to our genetics and our children's genetics.

  • Angelfalls
    Angelfalls Member Posts: 849
    edited April 2012

    The following gives a pretty clear explanation:



    http://www.cancer.org/Treatment/TreatmentsandSideEffects/TreatmentTypes/BloodProductDonationandTransfusion/blood-product-donation-and-transfusion-blood-donation-by-cancer-survivors



    But here in the UK, you cannot donate blood for the rest of your life if you have had any diagnosis of cancer.



    Hope that helps.

  • dlb823
    dlb823 Member Posts: 9,430
    edited April 2012

    Of course we all hope and pray that there are no bc cells remaining in our bodies, but unless there were no options and it was a matter of life & death if one didn't get it, I certainly would not want any of my family members getting blood from anyone who's had cancer in the recent past.  Why in the world are we RX'd Tamox or an A/I and followed for at least 5 years if a recurrence wasn't a concern?

    Assuming the rules are by state, I wonder if the sparce population might be impacting SD's guidelines decision?      Deanna   

  • Kicks
    Kicks Member Posts: 4,131
    edited April 2012

    dlb - it is not SD guidlelines but rather National ones for the Red Cross and United Blood Services.



    Certainly one does not know that they have reoccurance until it is found/DX'd again. But no one knows they have cancer until they are DX'd to begin with - so to use that 'logic' then no one should ever donate because they might have undiagnosed cancer.



    Being a survivor does not automatically preclude one from being an organ donor either. It is possible to be an organ donor while still alive for organs that can be used from living donors and for those used post humously. Yes - if I (or my family) needed an organ and a match was available from someone who was NED, I'd do it. If 'you' need a transplant then 'you' are on borrowed time already and if a match comes up, I would want it and worry about anything that MIGHT come up later IF it did. At least I'd/they'd still be alive to fight.



    So yes - I will donate blood and I'm still listed as an organ donor. The Drs can make the decision of what is or is not usuable. We each have to do what we believe to be right IF we can do it - not all can.

  • mebmarj
    mebmarj Member Posts: 380
    edited April 2012

    I can understand how "standards" might say one year after tx and you're good to donate, but how many times have standards been wrong?

    I went 7 years getting checked every 6 months with mammo or MRI. I saw three docs within 5 months of my second dx, all did clinical breast exam also and found nothing. My second lump came almost out of nowhere. For me, I feel like it's gone this time for good. But, I could never willingly expose anyone to what I've been through. Like specialk said, it's usually people that are already compromised who are getting blood. I had to have blood last fall after 5 rounds of chemo had knocked me so far down.

    I have no family hx, non-smoker, BRCA-, average wt and ht. I can't in good conscience condone donation given two primary stage I breast CA dx. It just doesn't make sense, standards or not.

  • susan_02143
    susan_02143 Member Posts: 7,209
    edited April 2012

    Here is a quote from the American Red Cross Guidelines as posted on their official website:Eligibility depends on the type of cancer and treatment history. If you had leukemia or lymphoma, including Hodgkin’s Disease and other cancers of the blood, you are not eligible to donate. Other types of cancer are acceptable if the cancer has been treated successfully and it has been more than 12 months since treatment was completed and there has been no cancer recurrence in this time. Lower risk in-situ cancers including squamous or basal cell cancers of the skin that have been completely removed do not require a 12 month waiting period.


    Precancerous conditions of the uterine cervix do not disqualify you from donation if the abnormality has been treated successfully. You should discuss your particular situation with the health historian at the time of donation.

    However, a search of the various chapters like MA, KY, and Michigan indicate that those chapters require a 5 year wait. This seems far more prudent.

    The American Red Cross is actually a collection of regional chapters who control their own guidelines. Kentucky, for example, posts this:

      CancerAcceptable if the cancer was treated with only surgery or radiation, and it has been at least 5 years since treatment was completed with no cancer recurrence. If your cancer was treated with chemotherapy, hormonal therapy or immunotherapy, you are not eligible to donate. If you had leukemia or lymphoma, including Hodgkins Disease, you are not eligible to donate. Some low-risk cancers including squamous or basal cell cancers of the skin do not require a 5 year waiting period.Precancerous conditions of the uterine cervix do not disqualify you from donation if the abnormality has been treated successfully.You should discuss your particular situation with the health historian at the time of donation.
  • Kadia
    Kadia Member Posts: 314
    edited April 2012
    Wow, I have been an organ donor since getting my license...never thought about whether I might need to reconsider that given the BC. Need to read up on that some more, I guess. I haven't been able to donate blood for a while due to my tattoo addiction! Cool
  • bedo
    bedo Member Posts: 1,866
    edited April 2012

    Actually my blood and organs are crap, as I've been told.  No one want's anything but maybe my corneas.  I live in Rhode Island. 

  • bdavis
    bdavis Member Posts: 6,201
    edited April 2012

    I know I will never donate my blood.. I did for years and will not now. Last summer I needed a transfusion and it totally freaked me out... I was out of state and before surgery was trying to find donors who were healthy... I discussed donating my own blood, but couldn't because of chemo and then due to expense of shipping it... For my first surgery, I didn't need the blood so it was recirculated, but then a month later I did need the blood and nothing was in storage for me... so I sure hope that my blood came from a noce young healthy person. So... bottom line, as the recipient, I would not want a BC survivor's blood and so to be responsible, regardless of the Red Cross standards, I will not donate.

  • bdavis
    bdavis Member Posts: 6,201
    edited April 2012

    And I guess due to chemo and hormone drugs, they don't want me anyway!

    "If your cancer was treated with chemotherapy, hormonal therapy or immunotherapy, you are not eligible to donate."

  • Kadia
    Kadia Member Posts: 314
    edited April 2012

    Just read the ACS info on organ donation after cancer:

    "Some people with cancer may not qualify to be living donors due to their medical condition. (That is, they may not be able to donate a kidney or a lobe of their liver.) But some may still have organs and body tissues that can be used after they pass away.

    If you want to donate, it's OK to list yourself as a donor on your driver's license. Be sure that your family knows of your wishes, too, since they may be asked to give consent. If your cancer has been actively spreading, internal organs will not be taken. But if you die after being cancer-free for a long time, your organs may be used. Other tissues, such as skin, tendons, and bone can often be used, too. Careful testing of the organs and tissues is done at the time of death. The decision about which organs or tissues can be safely used is then made by medical professionals, as long your family agrees that you wanted to donate.

    Even if other organs and tissues can't be used, donating the corneas from your eyes is one way to offer help to others. Almost all people with cancer (except those with certain blood or eye cancers) can donate their corneas. You can learn more about cornea donation from the Eye Bank Association of America at www.restoresight.org."

    So, it sounds like if our drivers' licenses indicate that we are donors, we can keep it that way, and the harvesting doctors would sort it out on their end...

  • Kicks
    Kicks Member Posts: 4,131
    edited April 2012

    susan_02143



    KY Red Cross does follow the current American Red Cross Guidelines. I called and had a very nice chat with them. The site you pulled what you said was KY's policy is not current. The first thing it says is "Note to users". That same paragraph goes on to say that it was "Last revised 6-27-2002". (Almost 10 years old.) It also says "for up to date info contact your local Blood Bank". I check sites for MA and MI and it 'sent me ' to the national site for requirements. I called them also and they follow the current regulations. Other states may have equally outdated 'stuff' on them which is sad that some get old info put at them.



    Being a Cancer Survivor who does meet the requirements that pretain to the cancer and TX does not mean you can automatically donate - there are many other requirements that would rule some out - just as they would be ruled out even without a Cancer DX.



    Certainly there is a chance that someone will be dishonest but that exists with all. If my Son needed blood I would feel much safer if he got my blood than from some stranger. I know that I have no Infectious/communicable disease - breast cancer is neither. If I was to the point I needed blood to stay alive - I'd ather get the blood and be alive - if somethhing did happen in the future will deal with it then but at least I'd still be alive to fight it. But then everybody obviously thinks differently.



    Yes we can be signed up as Organ Donors (my DL, M ID, VA ID and my Advanced Dirrectives all shhow it). It will be up to. The Drs to decide what is/is not usuable. It is also up to the receipiant to decide if they want it. If I am to the point of needing a tansplant - then it is my lifeline and I want it.



    Being a BC survivor does not mean you have a lot of health issues. Some do but definately not all - just as some without BC have medically issues - not all do.

  • dlb823
    dlb823 Member Posts: 9,430
    edited May 2012

    bumping for guineamom

  • greenacres
    greenacres Member Posts: 144
    edited May 2012

    In Wisconsin, it's 5 years from end of treatment...then you can donate blood. 

  • Kicks
    Kicks Member Posts: 4,131
    edited May 2012

    greenacres -



    Only partially true. If you are in WI and go to Blood Center of Wisconsin, you are right - they make their own 5 yr decision based on 'whatever'. The Red Cross in Wisconsin follows the American Red Cross and FDA guidlines which is as I and others have shown. Where I live we do not have a Red Cross Blood Bank so I go to the United Blood Services. (Yes I have called both BC of WI and the WI Red Cross - not just going off of what shows on the sites which are often years out of date.)

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