How did your friends/family help you during your BC journey?
I would be so appreciative to have some feedback from anyone who feels like it - I went through breast cancer 8 years ago and had some really lovely friends helping me with varioius things but it's been a little while and I've probably forgotten a lot. I am in the midst of writing a blog article (my blog is http://MarnieClark.com) and would love to be able to tell the friends and family of breast cancer patients exactly how they can help while their loved one is going through this journey. Not only during the treatment phase but also during the outset. What do you WISH people had done for you? Or what wonderful things did they DO for you? Thanks so much, I appreciate it!
Comments
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I am glad that you are doing this because people really need help in this department. Running a close second to the dx of BC for me is the fact that so many people have deserted me. Its so hurtful-and the hurt isn't going away. BC is in my rear view mirror now but I still feel so sad about this. So here are some of the things that I would tell them:
Do not desert your BC friend
Don't run in the other direction when you see her out
Do acknowledge her situation because she knows that you know about it. You don't have to call...a quick email or even a nice card will do the trick. Doing nothing will seperate you from your friend forever. I am amazed at all the people that I considered friends who have made no mention to me. And really, I don't expect anything more than an acknowledgemeent. I know its hard to know what to say because I have been there.
If you are close enough to her DO ask her the tough questions. Only one person asked me how I felt about having a breast removed. It felt so great to confide in her. I wouldn't open the topic with a friend so as not to get too deep but I do need to talk about it all the same.
I loved it when people made me a meal or brought a little something over-that always made my day.
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Treat me normally. Just talk to me. My DP just simply asked me about things and we talked easily because he kept it simple and normal. It actually helped me keep my own crazy emotions at bay. He hasn't been cold or distant or diminishing, just easy and simple. And then he bribes me with cookies and champagne before and after doctor appointments - cookies before, obviously.
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Mallory107,
Thanks so much for your heartfelt response. Made me want to cry! Great info, much appreciated. I wish you love and light in your healing journey. If I can help at all via my blog (http://MarnieClark.com), just let me know. Or post a question to me here and I'll do my best to answer it. xoxox
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Mallory107 gave a great list.
I would add that many people just do not know what to say so they avoid it. I now that prior to my cancer, I never knew what to say. Still, I tell people who ask my advice, "The worst thing to say is nothing at all." The abandonment of some was very hurtful.
The other suggestion I would make is to offer specific help or just tell the person you will do something. "Let me know if I can do anything," is too vague to be helpful. Offer specific assistance to the family, like, "I am bring a freezable dinner by this weekend, what is a good time?" or "Let me drive your kids to/from soccer practice."
Finally, avoid positive platitudes. Maybe this is just me, but I did NOT want to hear, "Stay Positive!" or "You'll be a stronger person for it!" Barf. Cancer sucks. Acknowledge it.
Liz
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Marnie - my family has been incredible to say the least. Our large family of 8 children has always been very close. My diagnosis has affected all of us and my siblings have been there from day 1. My oldest sister was with me on day of diagnosis and for weeks after surgery there was always someone at my home to help out or just to visit. My husband and son have been great also. They picked up the household chores that I was unable to do after my mx.
Last Christmas, our family tradition has been to exchange gifts with a $$ limit in place. My DH and I opted out of the exchange last yr due to financial restraints that have come with dx. So the family decided to host a regifting exchange instead so that everyone could take part without having to worry about money. Thinking that this was a terrific idea and so very thankful that we were able to now take part in the exchange, I set about finding items around the home to wrap. What a great time we had - being able to "steal" a gift from someone else if we wanted, males getting lovely writing paper sets etc.
Well, once the exchange was completed, my sister handed me an envelope, addressed to my DH, DS and myself. I was stumped as to why I was getting a card when no one else was. Well, when I opened the card, money started to fall out onto my lap. What a totally unexpected surprise! The whole reason for the regifting was so that they could all put the dollars that would have been spent on gift purchases, in an envelope to help us out with bills or to put toward a get away or whatever we needed it for. Well, my DH isn't often brought to tears, but this was one day when they definitely flowed.
Other gestures have included - stopping by with a bouquet of flowers (either purchased or wildflowers from the roadside), treating DH to a day of golf & dinner, driving me to appts in order to give DH a break, picking me up to go shopping or to the bandshell at the beach for Sunday evening concerts.
Co-workers banded together to help knit a beautiful afghan blanket for me. Some of them knitted squares for the blanket and some donated cash. The end result is a one of a kind blanket made with love especially for me. It is beautiful.
I'm sure there are many more instances but these are some that stand out.
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Helpful things
Friends have sent notes, cards, texts and called to see how I am doing. Having a little moment of encouragement can be so timely.
Friends brought meals & picked up my daughter for playdates or sleepovers. These things gave my husband a break too.
One friend is arranging to have a cleaning service come clean my house before I return from the hospital -- major help!
Three friends pitched in and bought me a 90-minute massage before my first surgery. It was an extravagance that I could never do for myself, and it helped ease my anxiety immensely.
Another friend drops by with flowers once a week and leaves them at my door. Those flowers brighten my home and remind me that friends are thinking of me and supporting me.
I appreciated hearing how my friends were googling things about my cancer and learning about what I was going through. They had real questions and wanted to understand my situation.
Not so helpful
Making jokes about my reconstruction or saying things like "you have to cut your boobies off" in a joking way. I normally have a great sense of humor and use it to diffuse uncomfortable situations, but it can shock me when even very good friends do this. I don't have a lot to laugh about while I wait for my BMX.
Making light of the situation like saying that this is nothing, you'll beat it, no problem, etc. It feels like a lot to me & there are no guarantees. I get this a lot with DCIS -- "oh at least they caught it early." I get a pass on chemo but I still lose my breasts -- lucky me.
The constant advice on what to eat, how to live, naturopathic approaches rather than surgery, etc. I am researching all of this too, but it can come across as being judgmental as if I caused this with my negligence. My alternative health practitioner friends can frighten me the most! I see a naturopath for nutrition help, but I see a surgeon for cancer!
The questions about why I think this happened. This comes from other women who are scared to death that this will happen to them. The panic in their face scares the hell out of me.
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I tell everyone that I bought a fancy sewing machine for myself about 2 years before my diagnosis. What I did not know was it came with a special package of new crazy but great pals who drove me to appts at the drop of a hat~
They were great and always knew what to say. Sewing geeks are great for help!
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Friends have been very supportive. Surgery was 1 week ago yesterday. Since then I have received many cards, 7 beautiful flower arrangements, dinner everynight (for the rest of the month), numerous phone calls and a few visits. 3 friends went to dinner tonight and brought dessert here. I think I am very lucky but some people have only contacted me through email or facebook. I think they don't know what to say and don't want to say the wrong thing. I think the people who make light of it are trying in thier own way to make me feel better and don't know the right thing to say.
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