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  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2012

    Hey everyone!

    Enjoy your trip Rossileo.  It is wonderful to get away and have an adventure.

    I was in Spain for ten days in early April visiting around in Andalucia - food, wine, and all the fabulous history, art and architecture!

    Mammo was clear.  Will be bringing the images to my BS when I see her on Thursday, to be sure she agrees.

    Try not to worry about that PET, Frances.  Worrying won't help, but I must admit I was a bit on edge today until the radiologist said there was nothing there.

    Good for you LadyBoss - getting to the gym and feeling normal.  I feel normal, but soooo lazy.

    Commuting to and from work, working at the office, working some more at home sometimes, going out and doing social stuff --- it all gets in the way of my intentions to go lift some heavy weights at the gym.  I do walk a lot and I ride my bike.  Tomorrow I am going to the gym, though!

    Oh - I still have curly hair, but I got it colored and cut again this past weekend.  The cut is going to allow it to grow out a bit, but makes it much more hip.  And so as not to look like a sheep, my hairstylist used a flat iron on some of it and suggested I try the same.  I will now have to buy another flat iron, since I gave mine to my sister - on a long term loan - figuring I would only burn my ears trying to use it.

    Sorry for rambling on.  I do feel a lot better having gotten through that mammo.

  • ladyboss1997
    ladyboss1997 Member Posts: 202
    edited May 2012

    Rossilieo: Have fun! Yes, post pics!

    FrancesC: I know you can't help but worry about the PET, but it is all for our own good. We are here for you.

    Phillybird: Wonderful news about the mammo! 

    Love you ladies . . . :)

  • theatercat
    theatercat Member Posts: 58
    edited May 2012

    You are so lucky to being doing all that traveling, sounds like so much fun. Had another mammogram it was clear. Will have a pet scan in June with blood work for tumor markers. Also still have curly hair, still silver, but coloring this weekend. Joined a gym with a personal trainer, boy am I out of shape. In between sessions I hit the treadmill and some circuit training. Still worry about cancer showing up back in breasts or elsewhere. Right breast still sore. Hope everyone else is doing well!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2012

    Good for you, Theater!  Great news on your mammo.  With a personal trainer, you'll be in shape in no time!!

    Ignore the soreness; my RO and BS said that can last a while after rads.

  • rossileo18
    rossileo18 Member Posts: 245
    edited May 2012

    Good news Theatercat!  Glad to hear that everybody is going on with life, trying to stay healthly.

    Back from China yesterday Saturday night.  Had a great time and pleased to report that my stamina held up fine.  I was at Jiuzhaigou (nine village valley) and Huanglong (yellow dragon) for three days and hiked for about 8 miles on the first two days.  Oxygen no problem since we took a bus or cable car to the top and walked down. Scenery was beautiful.  Both places are famous for the colored pools of water.  See new profile pic.  You can see that my hair is pretty thick and curly.

    Lazy summer days are here and I have to make sure I'm exercising and eating right.  Too easy to get into bad habits on vacation.  Left breast is still swollen and slightly tender. I try not to worry about it too much.  Next mammo not for another couple of months.

  • ladyboss1997
    ladyboss1997 Member Posts: 202
    edited May 2012

    Glad to hear everyone is doing well. Good to hear everyone mention their sore breast. Mine is sore when I stretch it in certain ways, and I was beginning to worry about it. Now I won't.

    Keeping fit is one of the best things we can do for ourselves. Theatercat: I applaud you for getting the personal trainer. He/she will definitely get you back in shape.

    Rossileo: sounds like you had a wonderful time. Good for you.

  • FrancesC
    FrancesC Member Posts: 346
    edited May 2012

    Hi all, I completed my rads in mid Nov and I still have sore breast! It is so hard and lumpy at some spots that I told my onco there is no point for me to check myself as I can't tell anymore what is what!

    I am going away to Gold Coast in 2 days. Yippee! A good break from work and the hot humid weather here. It's winter in Australia and Gold Coast has temperate climate and hence a very mild winter.



    March on ladies! We are all doing well:)

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2012

    Hi everyone,

    Tomorrow will be one year from my diagnosis.  Not looking to celebrate, but I couldn't ignore the date.  I was on my way out the door to go to the gym when the BS called and used the words "malignant", "MRI", "chest x-ray", "blood work" and "I want to see you in my office on Friday".  Of course I was shocked, but I managed to ask - "Is it okay if I go to the gym now?"

    I think it is fair if I want to sort of joke about it.  It's my cancer.  And I sure hope that after all I have been through this past year (just like all of you guys), that it's gone and won't come back!

    Still have a pain in the boob and surrounding area, and occassional hot flashes to remind me of all of this, but damn it, I have got to move on!!!  BTW, I am going to see a physical therapist, just because the pain bothers me and seems to interfere with my work-outs.

    The new mantra is - embrace the curls!

  • rossileo18
    rossileo18 Member Posts: 245
    edited May 2012

    I hate my curls.  I'm letting my hair grow and it looks like only the ends are curly, so I have hopes that I will grow out of this and start looking like myself.  At the Chinese border control neither of the staff thought I looked like me.  One woman asked me if I was really me.  The other guy stared at me and my picture a looooong time.  I finally said that I had changed my hair.  Interestingly enough, I did not run into this at US border control.  Maybe they are used to the way that Americans are always changing their hairstyles.

    It's been more than a year since my diagnosis.    Yes, need to move on and hope that the cancer is gone forever.  Occasionally I forget to take my anastrozole -- I'm not used to being on medication -- and tell myself that one missed day is not going to make a difference.  Much more important is diet and exercise.

  • ladyboss1997
    ladyboss1997 Member Posts: 202
    edited October 2012

    I don't know if any of you are still reading these threads . . . I just wanted to check on everyone. I am now a 1 year, 4 month SURVIVOR. I just had another set of scans - mammo, bone, chest, and ab. Everything is still clear. I had a hysterectomy in April, so my onc has put me on Femara instead of Tamoxifen. I have not been on Femara long enough to see if there will be side effects. My hair is growing back, nice and thick. I am growing it out to an inverted bob (chin length). 

    Hope everyone is doing wonderful! - Diana 

  • rossileo18
    rossileo18 Member Posts: 245
    edited October 2012

    Hi Diana,

    So good to hear from you and know that all is well.  I don't log into the site very often, but I do get a notification if anybody posts on this forum.   Hard to believe that I was just starting radiation about a year ago.  All seems like a bad dream. 

    Hair is still curly and growing faster than I expected -- almost 5 inches.  I'm on arimedex(anostrozole), which makes my joints achy, but it's nothing that I can't tolerate.  Had a mammogram in July and it was all clear.  Next one in January. 

    Hope everybody else is also doing well.

    Rossileo/Anna

  • ladyboss1997
    ladyboss1997 Member Posts: 202
    edited October 2012

    I log in quite a bit. I probably shouldn't. sometimes I relive those first couple of months through newbies. Wow! It has been a year. I started radiation on 10/11/11. My hair is also about 5 inches, but I get it trimmed once a month. I'm glad I didn't know how long the hair growing out would take. Mine is not curly, and it is a totally different color. I am on Femara. Just started it. Was on Tamoxifen, but I went into menopause because of the hysterectomy. Hopefully no side effects. I think of you ladies often. We all provided good positive support for each other. Maybe some others will chime in . . . Diana   

  • rossileo18
    rossileo18 Member Posts: 245
    edited October 2012

    I used to follow the 'bigger' July 2011 Chemo forum last year and sometimes check in just to see how people are doing.  The posts there are getting few and far between.  People are moving on.  There are also some sad stories of women who didn't make it.

    I had a chance to 'relive' the experience with a colleague who was diagnosed about 8 months after me.  I became her BC mentor.  Because I was around, she said she didn't even feel the need to get support from websites.  But I was really glad to have all of you around while I counted the days to my next chemo.

    Please check in every once in a while. 

  • ladyboss1997
    ladyboss1997 Member Posts: 202
    edited October 2012

    I also have had the opportunity to mentor a couple of women myself. I get phone calls from women who say "Hey, I've heard you have been through this". Hopefully I have been able to help someone. You guys were the best support.  

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2012

    Hey Diana, Rossi, everyone,

    In the getting on with life category, I have been trying really hard to get back to my original level of fitness.  Still have stiffness and some pain, but seem to be healthy.  In addition to regular workouts and weight training, I do a lot of stretching and other exercises as per physical therapy sessions from early summer.  Just back from Portugal - history, food, wine, lots of walking - really needed a vacation.

    My MIL died in late August after her 3 1/2 year battle with ovarian cancer.  Her struggle really put a lot of things in perspective for me.

    My hair is short, but like a sloppy shag.  I must have had it colored and cut about 5 times by now, but need more color and will try to cut only the bangs.  It is much less curly; more like my usual wavy.  Even though it seems to be less gray than before, there's still a big white patch poking out.  Anyone notice that the area over the temples grows very slowly?

    Damn tamoxifen and hot flashes!  Been taking daily 1000 IU of vitamin D, too.

    You guys have been a great support to me too.  Just knowing that others could do it and get through it really helped make me brave.  I am also thinking that maybe next spring I will check with the ACS to see if I can volunteer with Reach for Recovery.  I got guidance and support from someone through that program when I was first diagnosed.

  • theatercat
    theatercat Member Posts: 58
    edited October 2012

    Hello everyone, still ok according to my scans. Still tire easily, although its probably because my days start at 6:ooam and end at 11:oopm! Hair is still curly to wavy. Not on any follow up meds. Arimidex did a number on me in many ways. I believe the chemo has caused me  to to develop osteoporosis. Taking Fosomax for that.Time soon for another mammogram soon. Glad to hear everyone is well. Stay safe with this storm coming!!

  • rossileo18
    rossileo18 Member Posts: 245
    edited October 2012

    Theatercat and Phillybird -- glad to hear that both of you are doing well but still working on getting back in shape.  I also feel tired, but don't know if it's from stress at work or the Arimidex.  I do know that the achy joints are from the drugs.  Don't know if I'll ever get used to it, but not much I can do about it except keep moving.

    Phillybird -- sorry to hear about your mother-in-law.   Hope that all of you are coping well. 

    I'm starting to plan vacation for next year and just like this year, the nagging fear of recurrence gets in the way.  Just have to fight it and think positive!  After all, everything went smoothly this year. 

    Hugs to all of you.

  • ladyboss1997
    ladyboss1997 Member Posts: 202
    edited October 2012

    Good to hear from everyone!  I am feeling great. I think my fitness level is back to pre-cancer. I have lost 15 lbs since completing treatment. I am shooting for 10 more, but you know how that last 10 is . . . I just got back from a 7 day Disney Cruise - awesome! Now we are planning our Winter ski vacation - Telluride, CO.

    Diana 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2012

    Had a follow-up MRI today.  Let's hope it shows the same NOTHING as the follow-up mammo from 6 months ago.  I see my BS for follow-up the first week of December.

    Hope everyone else is doing well.

  • ladyboss1997
    ladyboss1997 Member Posts: 202
    edited November 2012

    Hugs!!! to you PhillyBird. I know the every 6 month thing is stressful. We are there with you . . . Diana 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2012

    ALL CLEAR and have a great weekend!!!  Got a bit nervous when they called me today, but they do call with good news too!!

  • rossileo18
    rossileo18 Member Posts: 245
    edited November 2012

    Great news. Now you can enjoy your weekend.

  • FrancesC
    FrancesC Member Posts: 346
    edited November 2012

    Hi you all ladies! Cheers to all clear results for all:). I am focussing on moving on and hence checking in less. But I really do miss you gals as you were here with me when I walked the Big C journey and I didnt feel alone. Thanks to all and I pray all of us continue to get All lear results. I am being checked every 3 months by onco, ultrasounds every 6 months and MRI/CT/Mammo Scan every year. Dislike the tenterhooks I get waiting for results.



    Lets check in once in a while to keep this thread going. I am looking forward to my family vacation in Dec to Hong Kong. Meanwhile, gotta head to Beijing, Venice and Frankfurt for work in the last 2 weeks of Nov.



    Take care and love you all!

  • ladyboss1997
    ladyboss1997 Member Posts: 202
    edited November 2012

    FrancesC: good to hear from you. Yes, lets please keep this thread going. We were there for each other during the worst. We can help each other move on as well . . . Diana

  • rossileo18
    rossileo18 Member Posts: 245
    edited November 2012

    Good to hear from you Frances and glad that all is good for you.  So far so good for me, except the Arimidex just makes my joint aches.  Got to keep moving!  That's what helps the most.

    I activitated the option to send me an e-mail when somebody posts to this forum so I know when somebody has some news.  My next mammogram is not until January, so no more doctors until then!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2012

    Hi everyone!  Definitely want to keep in touch, even though we are putting the BC behind us (permanently, I hope).

    Enjoy your travels, Frances.  I'll be in France next week visiting with my FIL.  It is hard for him since my MIL died, so he is looking forward to us visiting.  DH and I will also spend one night in Auxerre and two nights in Reims on our own.  Looking forward to all the food, wine and cheese.

    Robin

  • FrancesC
    FrancesC Member Posts: 346
    edited December 2012

    Hi ladies



    I am back from my travels and gosh am I tired! Not the usual me anymore. Jut had my bloodworks done and my SGOT and SGPT - liver profile all above normal range. Getting worried and book an appointment to see onco on Boxing Day. Hope ots just a case of inflammation of muscle ...



    Meanwhile have a great week ahead all!

  • rossileo18
    rossileo18 Member Posts: 245
    edited December 2012

    Frances,

    I am so sorry to hear that your tests are not coming back normal.  Hopefully just something from too much activity and that resting up after all your travels will put your counts back to normal.  Please keep us posted.  I am thinking of you.

    Anna/Rossileo

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2012

    Frances,

    So sorry to hear about the tests.  Hoping it is nothing serious.  I'll be thinking about you too.

    Robin

  • ladyboss1997
    ladyboss1997 Member Posts: 202
    edited December 2012

    Thinking and praying for you as well.

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