Early Stage Natural Girls!

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  • himalaya
    himalaya Member Posts: 149
    edited May 2012

    yes, true... im vegetarian for 20 years and do yoga daily, eat organic foods....

    In India they say the main cause of  brest lumps and cancers  is  suppressed sexual desires and broken heart sindrom.

    So that is what  i got recently, before i discovered my lupm before xmas.

    That emotional  crisis  could be  the main cause for my breast problem.

    --------------

    still i cant understand if i have cancer or not...biopsy say-i do have a carcinoma, but other machines and analises say i dont have any cancer, just a precancerous stage...shal i do my surgery or no?

  • Kaara
    Kaara Member Posts: 3,647
    edited May 2012

    himalaya:  If the biopsy and tests show any kind of formed tumor, it should be removed with clear margins, so that the immune system can heal the body without having to fight to kill off the tumor.   Following a healthy diet and lifestyle after that can hopefully give optimal results.  From what I've read, even the most adamant natural advocates believe in surgery to excise the tumor if possible.

  • himalaya
    himalaya Member Posts: 149
    edited May 2012

    Thank you so much, my ayurvedic doctor today say the same!

    At least i will try to avoid radiation and chemo.

  • Sherryc
    Sherryc Member Posts: 5,938
    edited May 2012

    I get a news letter from Natual News and tonight there will be a free live show with Dr. Keith Block, MD, Integrative Oncologist and Co-founder of the Block Center.  Here is the link if anyone is interested in listening.  I will unfornatley be on the road to my son's house so won't be able to listen in.

    http://www.naturalhealth365.com/talkhourshow.html

  • MariannaLaFrance
    MariannaLaFrance Member Posts: 777
    edited May 2012

    Mallory-

    I have always been into organic, whole foods. I exercised religiously, ate right, drank water, treated my body well. I did have several stressful periods in my life as I adjusted to boyfriend breakups, job stress, etc., but honestly I was a "clean living" individual.  No smoking, no drugs, very little alcohol.   And I got BC.

    I will always stand by the idea that I think mine was caused by birth control pills-- took them for over 10 years, and mine were a high estrogen dose. Followed by 5 pregnancies, 3 live births, breastfeeding, and voila-- BC. I know there are naysayers to this, but I go with my gut on this one. 

  • purple32
    purple32 Member Posts: 3,188
    edited May 2012

    JOY

    You said :" My point was we can't look back at the stress from last year or our bad habits and assume they were the cause."

    We agree !

  • candygurl
    candygurl Member Posts: 130
    edited May 2012

    Himalaya,  if you are going to have surgery and  if you're premenopausal, you should check out this article.

    Does the Timing of Breast Cancer Surgery Affect Survival?

    Judith Randal

    "When a breast cancer patient is premenopausal, are some phases of her menstrual cycle more propitious than others for surgery?

    Biopsies, lumpectomies, and mastectomies are usually scheduled without regard for the menstrual cycle's hormonal ups and downs. Yet there is evidence that the prognosis for a premenopausal patient may depend on when in the cycle she has surgery. . . "

    http://jnci.oxfordjournals.org/content/89/7/473.full

  • Kaara
    Kaara Member Posts: 3,647
    edited May 2012

    himalaya:  I had the surgery but didn't do either radiation or chemo.  Instead I'm following an anti cancer diet and take a ton of supplements in hopes that my immune system will kill off any remaining cells that might be floating around.  Good luck to you whatever you decide.

  • himalaya
    himalaya Member Posts: 149
    edited May 2012

    Zuvart, thank you for article!

    Kaara, did they recomend for you  chemo or rads?

    Can you please tell me more about your diet and food supliments?

  • himalaya
    himalaya Member Posts: 149
    edited May 2012

    And by the  way maybe somebody here can tell me about  lymph nodes removal...im risking to loose all my lymph nodes, if i go for surgery with my chosen surgeon...he was angry with me today, i gues he will not operate me...

    He said if he doesnt like  the  one testing node, he will remove all nodes.

    In 2 biopsies  results show that they are clear.

    I realy dont want to loose unnecessary my nodes...

  • himalaya
    himalaya Member Posts: 149
    edited May 2012

    Zuvart, English is not my native language.I was reading article but i feel i cant understand the esence.Please can you tell me shortly what is about.

  • Kaara
    Kaara Member Posts: 3,647
    edited May 2012

    himalaya:  I would get a second opinion on the node removal.  It is no longer necessary to remove any more nodes than the sentinel node.  Even if the node shows signs of cancer, the outcomes are no different whether or not the additional nodes are removed.  The reason for removing the node is to determine the aggressiveness of the tx.  Removing all the nodes will subject you to lymphedema and be an ongoing problem for you later.  Stand up for your rights as a bc patient.  You have the right to be treated with the latest technology in bc surgery.

    Chemo was not recommended for me due to my oncotype score, but I declined rads because I felt it was an overkill for my early stage of bc.  My diet consists of fruits, veggies, lean protein, nuts and seeds...no white flour or sugar.  I take a wide range of supplements prescribed by my ND.  I keep my body in a high alkaline state because it is difficult for cancer to grown in an alkaline environment.

    You are lucky your BS declined to operate on you....get that second opinion....you have time. 

  • himalaya
    himalaya Member Posts: 149
    edited May 2012

    Thank you so much for  support...Im on my way for other doctor.And i will check what kind of foods are alkaline.

  • himalaya
    himalaya Member Posts: 149
    edited May 2012

    My doctor say that only in UK they take a few nodes if sentinel node is not clear.

    Other countries just cut all out.

    That info was confusing for me thats why we couldnt continue conversation and he just went out from the room...

  • luv_gardening
    luv_gardening Member Posts: 1,393
    edited May 2012

    Himalaya, in Australia and America they take several nodes and leave the rest.  But if there are cancerous nodes left behind then I think they could spread if you're not having chemo or rads. Getting all the cancer out is important if you're not having the other treatments.

    It sounds like a different surgeon might have a better attitude.  It's up to them to fit in with your wishes, not the other way around.  And there's no excuse for rudeness from them.

  • DianaNM
    DianaNM Member Posts: 281
    edited May 2012

    I had my surgery Monday, and my surgeon took the Sentinel node and one more. Both looked clear, so he stopped there. I was so thankful.

    Doing some reading last night about oxygen and cancer cels. In the hospital, my saturation was consistently around 95%, so I'm a little worried about it. I do use oxygen at night. So I'm going to be looking into ways to bring that up, even if it means more excercise lol.

    I do maintain that the altitude I live at has an effect on it. My city is the same altitude as Denver. I always feel much better at sea level, sure wish we could move! 

  • Kaara
    Kaara Member Posts: 3,647
    edited May 2012

    Himalaya:  I live in the USA and my BS only took the sentinel node.  He told me that even if it showed cancer, he would not remove any more, because the outcome is still the same as far as spread.  The nodes are there to protect your body and removing them creates problems with arm swelling, etc.  If cancer is discovered in the SN then the treatment is designed to eliminate any remaining cells.

  • himalaya
    himalaya Member Posts: 149
    edited May 2012

    Kaara, thank you, the same say my doc from Chicago, and doc from India.

    Only my dutch doctor here in holland wants to take all nodes out just for sure and just to be not worried about any nodes in the future.

  • himalaya
    himalaya Member Posts: 149
    edited May 2012

    If im on the operation table i cant say, stop dont take anymore any nodes out!

    And actulay we cant control how many nodes dr takes out...

  • LAstar
    LAstar Member Posts: 1,574
    edited May 2012
    Thanks for the link, zuvart.  My ND oncologist was mentioning this research recently, and I was pleased to realize that my BMX is scheduled for the day I should ovulate!  If it had not worked out that way, she suggested taking progesterone the day before, of, and after surgery to mimic a small luteal phase.  She didn't think that it could hurt and could possibly help based on the results of these small studies.  Before my dx, I had been taking progesterone prescribed by my doctor so I have some pills.
  • LAstar
    LAstar Member Posts: 1,574
    edited May 2012

    Has anyone used colon hydrotherapy as part of their treatment?

  • candygurl
    candygurl Member Posts: 130
    edited May 2012

    Himalaya,

    What the article is basically saying is that there is some evidence that those who have breast surgery during the luteal phase of their menstrual cycle have much higher overall survival rates than patients who are operated on during other phases of their cycle.

    With an average follow-up of 8 years,  the study showed  that cancer recurred in twice as many women who had surgery in the first half of their menstrual cycle (the follicular phase), compared to those who had surgery in the second half ( the luteal phase), which are days 13-28.  If one were to follow this, it seems days 18-20 of the menstrual cycle would be the ideal days to have surgery.

    The advantage was greater for women who had estrogen-receptor positive tumors. That's probably because high levels of estrogen are associated with increased cell division in breast tissue and lowered immunity. Those are two factors that may increase the risk of breast cancer. In the follicular phase, estrogens reduce immune activity, phagocytic activity and circulating levels of IL-2 therefore potentially increasing metastatic potential of breast cancer cells.  

     I agree with Kaara, "I would get a second opinion on the node removal. It is no longer necessary to remove any more nodes than the sentinel node." IMO the focus should to be on actually safely targeting cancer cells that may have gone to other organs and healing the body, rather than focusing on more surgery.

    Since the usual treatments, chemo, rads and hormonal drugs are clearly not likely options for you, after you get your path report, you and your naturopathic oncologist or integrative doctor can figure out which treatments, diet, supplements, fasts etc. agree with your body and cancer.

    Also, here is the alkaline food chart and info about cancer and pH.

    www.acidalkalinediet.com/Alkaline-Foods-Chart.htm

    http://www.alkalizeforhealth.net/cancerselftreatment.htm

  • candygurl
    candygurl Member Posts: 130
    edited May 2012
    LAstar, I know that Weedgirl is using colon hydrotherapy as part of her treatment. Hopefully, she or someone else who is having them will chime in. I've had two colonics in the past. But now I juice fast instead. 
  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited May 2012

    My doc took a lot of nodes but apparently it just really looked a mess up their in my armpit. So, while I wish she had not taken so many, I don't blame her. She had told the nurse that she had a terrible time with my armpit, that it was a mess. The nodes were stuck together. So i believe she took all but 2. I am very concerned about lymphedema but will just do what I can to try to keep from doing it. I did learn manual lymph drainage, although I have not done it the past couple of days. I have been in a nearly suicidal funk. It has really been bad. It's a good thing that I am going away for a week next week. I'm just spending time with a friend who happens to have a pond and ducks on her property. She asked me what I want to do while there. I told her I want to watch the ducks, feed the ducks, take pictures of the ducks, help her make meals, and chat. I just really need to chill. I take everything as a personal attack. I cry about everything. And I think I am becoming . . . nasty. It looks like I will be retiring July 1st, though.

  • NattyOnFrostyLake
    NattyOnFrostyLake Member Posts: 377
    edited May 2012

    Himalya,

    You can insist the doctor not take any nodes out. Lots of people have done that since taking out cancerous nodes doesn't effect your survival.

    Look at this NY Times article on the research:

    Lymph Node Study Shakes Pillar of
    Breast Cancer Care

    By DENISE GRADY
    NY Times February 8,
    2011

    A new study finds that many women
    with early breast cancer do not need a painful procedure that has long been
    routine: removal of cancerous lymph nodes from the armpit.

    Less Surgery for Breast Cancer?

    The discovery turns standard medical practice
    on its head. Surgeons have been removing lymph nodes from
    under the
    arms of breast cancer patients for 100 years, believing it would prolong women's
    lives by keeping the
    cancer from spreading or coming back.
    Now,
    researchers report that for women who meet certain criteria - about 20 percent
    of patients, or 40,000
    women a year in the United States - taking out
    cancerous nodes has no advantage. It does not change the
    treatment
    plan, improve survival or make the cancer less likely to recur. And it can cause
    complications like
    infection and lymphedema, a chronic swelling in the
    arm that ranges from mild to disabling.

    Removing the cancerous lymph
    nodes proved unnecessary because the women in the study had chemotherapy
    and radiation, which probably wiped out any disease in the nodes, the
    researchers said. Those treatments are
    now standard for women with
    breast cancer in the lymph nodes, based on the realization that once the disease

    reaches the nodes, it has the potential to spread to vital organs and
    cannot be eliminated by surgery alone.

    Experts say that the new findings,
    combined with similar ones from earlier studies, should change medical
    practice for many patients. Some centers have already acted on the new
    information. Memorial Sloan-Kettering
    Cancer Center in Manhattan
    changed its practice in September, because doctors knew the study results before

    they were published. But more widespread change may take time, experts
    say, because the belief in removing
    nodes is so deeply
    ingrained.

    "This is such a radical change in thought that it's been hard
    for many people to get their heads around it," said
    Dr. Monica Morrow,
    chief of the breast service at Sloan-Kettering and an author of the study, which
    is being
    published Wednesday in The Journal of the American Medical
    Association. The National Cancer Institute paid for
    the
    study.

    Doctors and patients alike find it easy to accept more cancer
    treatment on the basis of a study, Dr. Morrow said,
    but get scared when
    the data favor less treatment.

    The new findings are part of a trend to
    move away from radical surgery for breast cancer. Rates of mastectomy,
    removal of the whole breast, began declining in the 1980s after studies
    found that for many patients, survival
    rates after lumpectomy and
    radiation were just as good as those after mastectomy.

    The trend reflects
    an evolving understanding of breast cancer. In decades past, there was a belief
    that surgery
    could "get it all" - eradicate the cancer before it could
    spread to organs and bones. But research has found that
    breast cancer
    can begin to spread early, even when tumors are small, leaving microscopic
    traces of the disease
    after surgery.

    The modern approach is to
    cut out obvious tumors - because lumps big enough to detect may be too dense for

    drugs and radiation to destroy - and to use radiation and chemotherapy
    to wipe out microscopic disease in
    other places.

    But doctors
    have continued to think that even microscopic disease in the lymph nodes should
    be cut out to
    improve the odds of survival. And until recently, they
    counted cancerous lymph nodes to gauge the severity of the
    disease and
    choose chemotherapy. But now the number is not so often used to determine drug
    treatment,
    doctors say. What matters more is whether the disease has
    reached any nodes at all. If any are positive, the
    disease could become
    deadly. Chemotherapy is recommended, and the drugs are the same, no matter how

    many nodes are involved.

    The new results do not apply to all
    patients, only to women whose disease and treatment meet the criteria in the
    study.

    The tumors were early, at clinical stage T1 or T2, meaning
    less than two inches across. Biopsies of one or two
    armpit nodes had
    found cancer, but the nodes were not enlarged enough to be felt during an exam,
    and the
    cancer had not spread anywhere else. The women had
    lumpectomies, and most also had radiation to the entire
    breast, and
    chemotherapy or hormone-blocking drugs, or both.

    The study, at 115
    medical centers, included 891 patients. Their median age was in the mid-50s, and
    they were
    followed for a median of 6.3 years.

    After the initial
    node biopsy, the women were assigned at random to have 10 or more additional
    nodes removed,
    or to leave the nodes alone. In 27 percent of the women
    who had additional nodes removed, those nodes were
    cancerous. But over
    time, the two groups had no difference in survival: more than 90 percent
    survived at least five
    years. Recurrence rates in the armpit were also
    similar, less than 1 percent. If breast cancer is going to recur
    under
    the arm, it tends to do so early, so the follow-up period was long enough, the
    researchers said.

    One potential weakness in the study is that there was
    not complete follow-up information on 166 women, about
    equal numbers
    from each group. The researchers said that did not affect the results. A
    statistician who was not
    part of the study said the missing information
    should have been discussed further, but probably did not have an
    important impact.

    It is not known whether the findings also apply to
    women who do not have radiation and chemotherapy, or to
    those who have
    only part of the breast irradiated. Nor is it known whether the findings could
    be applied to other
    types of cancer.

    The results mean that women
    like those in the study will still have to have at least one lymph node removed,
    to
    look for cancer and decide whether they will need more treatment.
    But taking out just one or a few nodes should
    be enough.

    Dr.
    Armando E. Giuliano, the lead author of the study and the chief of surgical
    oncology at the John Wayne
    Cancer Institute at St. John's Health Center
    in Santa Monica, Calif., said: "It shouldn't come as a big surprise, but
    it will. It's hard for us as surgeons and medical oncologists and radiation
    oncologists to accept that you don't
    have to remove the nodes in the
    armpit."

    Dr. Grant W. Carlson, a professor of surgery at the Winship
    Cancer Institute at Emory University, and the author
    of an editorial
    accompanying the study, said that by routinely taking out many nodes, "I have a
    feeling we've
    been doing a lot of harm."

    Indeed, women in the study
    who had the nodes taken out were far more likely (70 percent versus 25 percent)
    to
    have complications like infections, abnormal sensations and fluid
    collecting in the armpit. They were also more
    likely to have
    lymphedema.

    But Dr. Carlson said that some of his colleagues, even after
    hearing the new study results, still thought the
    nodes should be
    removed.

    "The dogma is strong," he said. "It's a little
    frustrating."

    Eventually, he said, genetic testing of breast tumors might
    be enough to determine the need for treatment, and
    eliminate the need
    for many node biopsies.

    Two other breast surgeons not involved with the
    study said they would take it seriously.

    Dr. Elisa R. Port, the chief of
    breast surgery at Mount Sinai Medical Center in Manhattan, said: "It's a big
    deal in
    the world of breast cancer. It's definitely
    practice-changing."

    Dr. Alison Estabrook, the chief of the comprehensive
    breast center at St. Luke's-Roosevelt hospital in New York
    said
    surgeons had long been awaiting the results.

    "In the past, surgeons
    thought our role was to get out all the cancer," Dr. Estabrook said. "Now he's
    saying we
    don't really have to do that."

    But both Dr. Estabrook
    and Dr. Port said they would still have to make judgment calls during surgery
    and remove
    lymph nodes that looked or felt suspicious.

    The new
    research grew out of efforts in the 1990s to minimize lymph node surgery in the
    armpit, called axillary
    dissection. Surgeons developed a technique
    called sentinel node biopsy, in which they injected a dye into the
    breast and then removed just one or a few nodes that the dye reached first,
    on the theory that if the tumor was
    spreading, cancer cells would show
    up in those nodes. If there was no cancer, no more nodes were taken. But if
    there were cancer cells, the surgeon would cut out more
    nodes.

    Although the technique spared many women, many others with
    positive nodes still had extensive cutting in the
    armpit, and suffered
    from side effects.

    "Women really dread the axillary dissection," Dr.
    Giuliano said. "They fear lymphedema. There's numbness,
    shoulder pain,
    and some have limitation of motion. There are a fair number of serious
    complications. Women
    know it."

    After armpit surgery, 20 percent
    to 30 percent of women develop lymphedema, Dr. Port said, and radiation may
    increase the rate to 40 percent to 50 percent. Physical therapy can help,
    but there is no cure.

    The complications - and the fact that there was no
    proof that removing the nodes prolonged survival - inspired
    Dr.
    Giuliano to compare women with and without axillary dissection. Some doctors
    objected. They were so sure
    cancerous nodes had to come out that they
    said the study was unethical and would endanger women.

    "Some prominent
    institutions wouldn't even take part in it," Dr. Giuliano said, though he
    declined to name them.
    "They're very supportive now. We don't want to
    hurt their feelings. They've seen the light."
             

  • himalaya
    himalaya Member Posts: 149
    edited May 2012

    Thank you so much, now i know 2 things---i realy need to cancel my surgery date 30th may, chose  more flexible surgeon and  make the surgery date in second half of my cicle.

    You help me a lot! I apreciate that!

    Have a nice weekend!

  • luv_gardening
    luv_gardening Member Posts: 1,393
    edited May 2012

    Patty, note from the study report,

    Removing the cancerous lymph nodes proved unnecessary because the women in the study had chemotherapy and radiation, which probably wiped out any disease in the nodes, the researchers said. 

    I had all the signs of lymphedema in the chest and breast before I was diagnosed as my nodes were blocked, in fact that was my only warning as the mammo and ultrasound showed nothing and the "thickening" was soft and hard to find. An area next to my armpit is still affected due to the delay in diagnosis and surgery.  Those bad nodes needed to come out a lot sooner but at least my arms are unaffected so far.  So leaving affected nodes will also cause lymphedema.

  • luv_gardening
    luv_gardening Member Posts: 1,393
    edited May 2012

    Dunesleeper, so sorry you're feeling down.  I was the same at the end of last year till a couple of months ago.  It's still so early since your diagnosis that it's not surprising you're feeling bad.  I hope your break will help put things in perspective and help you reach a place of peace.  You're so lucky to have a friend who can help you.  And with ducks too.

    As far as turning nasty, well we all get a bit frazzled at times and you certainly come across as a sweet, helpful and informed person. 

    Love and hugs.   Joy

  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited May 2012

    THanks Joy. Hopefully this vacation will help me reclaim the sweet before I lose it altogether. Have a good weekend.

  • himalaya
    himalaya Member Posts: 149
    edited May 2012

    Hmm ...strange.

    Since i observe cancer patients for couple of years, i noticed something.

    Some take chemo rads, hormons after surgery and  live long.

    Some take it and  live very short(my sis and mother-in -law, my dance teacher) .

    Some dont take any chemo, rads, hormons and live long with no side efects what they get from chemo etc.

    Now i get across the news that lymphedema  can can be by removed nodes as well as  from nonremoved....

    All over---if its like that then better i dont remove nodes and have lympedema(or dont have, because  biospy show they are clear)...and better i dont take any chemo, radio and die soon(or live long??) ...without sidefects of treatment...

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