Has anyone started a Dec 2011 group?
Comments
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Naan, you are so close. Congratulations!
Almost 4 weeks out from 12 taxol, I have alot of fuzz on the sides and back of my head, but I'm pretty nervous about the top. A few sprouts.
I return to work on June 1st, and don't know what to wear on my head. I've been wearing the ball cap with hair. Hate my wig. Everyone at work does know about my diagnosis, but when I stopped by the other day, the only question I was asked was how was I feeling. No one was intrusive. So I was glad about that. I won't wear a scarf to work, even though it's comfortable, so I guess I'm looking at hats again. My daughter bought extensions so we can attach them. Will see how that works.
Maria snow, so glad you are almost done with the A/C. I know it may be hard to believe, but looking back now, it did go quickly. It is an emotional rollercoaster, the amazing women sharing here were an unbelievable support, I had a few relatives that I relied on, and I did seek counseling. I believe in prayer, and God was my biggest support.
A dear friend of mine who had been through chemo 5 years ago said the drugs themselves also affected her emotionally.
Be kind to yourself, and ask for the help that you need.
Hugs to all,
Laura
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Laura, thanks, I know can't believe tomorrow will be my last chemo and my picc line is gonna come out too, I'm soooooooo excited!
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Whata I was done on 3/20.
I just can't wait to feel normal again...if that ever happens. I'm so sick of doctors. -
I done with chemo and doing the happy dance!
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Congrats Naan! Did you ring the bell or run out of there as soon as they finished.
. It is time for the healing to begin.
Do you have to do rads?
Celebrate somehow do something special for yourself. -
Way to go Naan! Welcome to this side of the finish line.
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No bell rInging, but I ran out as soon as they pulled out my picc line! Planning to take a weekend trip with my gal pals and enjoy some hot tub time, pool time and get myself a full body massage on 6/2 can't wait. For now want my picc hole to close so I can take a real shower! Will have surgery 6/8 and radiation after that, one down 2 more to go!
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Congratulations Naan! You did it!!!
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Victorious, yes I did!
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Congrats to everyone who has recently crossed the finish line!!!! It's a GREAT feeling!!!!
I'm about to ditch the wig. (and not because I have that much hair) It's a very nice one, it really is...but it's not "me"...like really me...everytime I put that thing on, it depresses me. It's one more "fake" thing, I guess. I don't know...I guess I just feel free-er to be me without it. Does that make sense?? My biggest "fear" is with my little guys baseball games. No one there knows and there are obviously a TON of kids there and I don't want to be a distraction to them, but it is so stinking hot sitting there....then my head starts itching and I can't scratch it..uugghh.... Oh well...we will see.
Exchange surgery is next week. Scared and excited at the same time. I'll be taking my xanax next week, that's for sure!!!!
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Congrats naan!!
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Lori, good luck with surgery, will be thinking of u. I gave up on my wig a long long time ago too, too hot and itchy!
Markat, thanks -
Congrats Naan!
Lori - I wish I had the guts to ditch my wig. The Herceptin is slowing my regrowth a bit and I'm just not ready to go topless. I am so tired of my sweaty head though....Tamoxifen is giving me wicked hot flashes and I just want to rip the damn thing off my head! Good luck with your surgery next week.
I hope everyone has a wonderful holiday weekend....gonna be really hot here!
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Kelly, thanks
happy long weekend all! -
Kelly I hate to hear that the hot flashes are bad...yuck! I'm really not looking forward to the hot humid weather this weekend in southern Ohio. I can't swim yet after surgery.
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Hi ladies, checking in, got sick, again. Couldnt have last chemo last week, so postponed until next week. Was back in the hospital again Thursday with chest pains. After all the testing was said and done, they said it was pleurisy. Not fun.
Kelly, I'm sorry to hear about your mother. My prayers are with you and your family.
This heat in Florida is unbearable. I was wearing a hat the other day when I went to pick up my kids from school, had a hot flash, took it off, went to walmart, and forgot to pu it back on. By the time I remembered, I was sweating buckets halfway through the parking lot and I was too late to turn around. That was a first with my bald head. Wasn't so bad.
Hope everyone is doing well! Have a great weekend! -
Hmmm - Somehow this thread was deleted from my Favorites. I was wondering why everyone had been so quiet. Sorry to have missed the past week.
Kelly - I'm so sorry to hear about your mother. It's too soon after everything you've been through to have to bear something else. I can only wish you the best as you help your father, and hopefully your family will all be able to support each other as you all need. Be sure to keep taking care of yourself.
Naan - Yay!!!! Glad to hear you've hit the finish line as well. I hope you start bouncing back quickly.
Dougieswife - It's always sad to hear about someone else who has to go through this. I'm sure you'll be a great support for your friend. I wish her the best as she starts her treatment. If you feel being there for her is important, by all means - but I'm sure if you go ahead with your surgery, you'll recover quickly enough to be there for her afterwards. Is she local?
I'm also trying to decide what to do for my head. My hair is actually coming in at a great clip (ouch... no pun intended initially). It's all soft on top, and while the top is thinner, I have a good covering of peach fuzz all over - and dark, not gray, at that! I suspect in maybe 2-3 weeks it will be long enough to go out without a hat, although I'll clearly be seen as either a survivor or just different. I'd like to pick up a few kerchiefs (cotton). I never did scarves because they just aren't me, but as I get a little hair, they might be comfortable.
I'm trying to decide whether to go up to my parents today. I've had a sore throat and chest cough. Strep test came back negative. But with surgery in just under 2 weeks, I want to stay healthy.
Happy a happy Memorial Day, everyone!
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Congrats Naan it is great to be finished! I finished May 1st and it already seems like such a long time ago. Still waiting to get my port out. I think once that is out I will really feel finished. We had 3 of our kids with 2 spouses and 10 of the grandkids here to visit it was so awesome. I too hate the pity party, we went to a funeral of one of our friends dad the other day and I had 3 people stop and say they were sorry they didn't know and I told they we didn't advertise we just wanted to deal with ourselves and go on. Someone came up and said I was being harsh I turned and said it was better than slapping them. I did feel bad later (just a little).
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Okay...officially going with just a hat!!!! It is SOOO hot and my hair is really starting to come in (the top is VERY itchy) so...heck with it. For some reason, I feel more confident in just a hat. I feel more like me and not like I am trying to "hide" something. (which is surprising!)
One thing...so, we were at a Memorial Day service yesterday and of course, there were times when you were supposed to remove your hats..I didn't...I hope that wasn't too disrespectful.
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My understanding is that only men are required to remove their hats. Don't sweat it (excuse the pun!).
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I haven't been on any of the BCO threads for a while, but am so sorry to hear about your mother's passing, Kelly. Your role has quickly shifted from "patient" to "caregiver" as you now focus on your dad. Don't forget about yourself, though! Your body still needs you to pay attention to it.
Way to go, Naan! You made it to the light at the end of the tunnel. Take a deep breath and hope you enjoyed that weekend with the girlfriends.
I finished rads a little over a week ago and for me, the radiation was harder than the chemo (hard to believe). I had terrible burns and ended up taking a week off from the rads. I hope everyone has better success with the rads than I did. I started Tamoxifen yesterday and so far (2 days in), so good. I'm hoping my worst SEs were radiation-related, which quickly healed once the treatments were over.
It's so good to see the majority of the conversations switch from dreaded chemo to HAIR! It's definitely a positive progression for this journey we're on. Stay cool - - it's been a hot stormy couple of days in Central Pennsylvania.
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Congrats on finishing rads Bailey! So sorry to hear you had a tough time. I'm glad you are healing!
I finally got my drains out from my BMX on 5/2 yesterday. I feel like a new woman. I actually took my girls to an amusement park today! I felt slow but more like my old self than I have in 6 months.
I hope you all are doing good. I need to get some baseball hats. It's way to humid here for the wig or scarf. -
T-5 hours till I leave to go to the Surgery Center for the big Exchange!!!!!! I'm nervous, excited, anxious, scared, and every other emotion in between.
My eyelashes that fell out are starting to grow back...I have some stubble coming in!!! wooo hooo!!!!!!! I noticed the other day that I have hair on my arms again! Happy Hair Dance!!!!
It's funny...the back of my hair feels like a lamb....it's really soft but in tight curls that stick to my head, LOL.
Had my Herceptin today and all went well. Had an interesting talk with my MO. He said that I was his most positive patient and talked to me about volunteering with the SOS program. That is a mentor program that they have, but you have to be 1 year out. Not sure if that is one year from dx or end of tx. I will see. I'm not sure that I am the most positive person, but I do try to be. I was telling him about the Fit Bit pedometers at my last appointment and now he is going to try and get grant money to get people who participate in the survivorship program one. He said that I inspired him...who knew?? It's really weird, because I bet we are about the same age, with me being a bit older possibly. I think I kinda like that in some ways because he "gets" me.
Anyway....it is so great that we can all start talking about more positive things and not the horrible SE's we've all went through!!! It's time to get out there and enjoy our summer!!!
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Lori - good luck with your exchange surgery! So exciting to get over one more hurdle. My hair is coming in about the same. My MO told me last week that Herceptin will slow its growth....UGH!
Baileybump - thank you for the kind words. It has been so difficult losing Mom because I feel like I have to be strong for my Dad. He is doing pretty well and I am trying to take care of myself, too. I'm in the middle of rads right now, number 21 out of 35 today. My skin is starting to get ouchy. Sorry you had such a hard time with it but congratulations on being done!
Markat - glad to hear the drains are gone and you are feeling well. I am with you on the hats...way too hot and humid already and my head sweats terrible. Hope I can find some cute ones cuz I'm not really a "hat person". Of course, I was never a "bald person" either!
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So today was my last Chemo. When my pump went off, with the last drop of Herceptin, I started singing Queen's "We Are The Champions.". My nurse took a moment talk with me about how far we have come. I didnt go through this alone. My sister took me to my all my treatments, my mother in law took me in for fluids almost every day the week after chemo, and helped wih the kids. My mom and helped take care of me in the hospital when I was septic and had my BMX. My husband was here to take care of me during my first chemo treatments and my mastectomy.
What I forgot to mention is that he is in the army and stationed out of state. We moved the kids down to Fl last Jan because he was getting medically retired after 14 years. He gets out at the end of next month. Finally. It took forever and should not have taken this long.
So, I end my chemo roller coaster just as my kids are finishing school. I feel like I have missed so much this year, it brings tears to my eyes. But, I have the rest of my life o look forward to!
On a side note, my MO filmed a commercial the day I got my pet scan results indicating my lump was gone. They were planning on filming with just one patient, but by chance I got my results and filmed me too. He commercial is on their web page and YouTube.
Lori - My MO's commercial was about patient centered care and he stressed about a patient's positive attitude.
Kelly - I'm sorry about your mom's passing. My father-in-law passed suddenly a few years ago. It was a rough time for everyone. Jus wanted you to know I'm thinking about you. Also, I found some really cute hats at TJ Maxx and Ross. Take care. -
Sunrise - You did it! And you are a champion. It sounds like you had a lot of great support. Glad to hear your husband is getting out soon. And while you may have missed a lot this year, you can look forward to appreciating all the other milestones coming up in your kids' lives.
Lori - How are you??? I hope everything went well and you're back home and recovering. I'm getting nervous thinking to next week. I'm looking forward to your 'report'! The volunteer program sounds fantastic. You have been pretty positive through all this, and I'm sure you'll be a great help to others. I'm in a similar situation with the hair - my eyebrows are now so dark because of the 'five o'clock shadow' - they're like these blotches! As for my arms, though, I'm only now losing the arm hair. And my eyelashes are coming back in, so that wasn't too bad.
Markat - Yay on getting your drains out! Your recovery will start going much more quickly now.
I've had a bad cough since the weekend. I hope it doesn't push off my exchange. I'm starting to think it's reflux-related, or that my reflux is making it worse. Not sure how that might factor in for a surgery decision. I also saw my PT this morning. He suggested I plan staying home from work 10 days. Um.... This sounds like it will be more intense than I planned. I also settled on a new apartment and am supposed to move in by Aug. 1. Yikes! I figured 6-7 weeks would be more than enough recovery time (though I am hiring a moving service).
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Thank you Rachel! Much luck with your exchange. Keep us updated how it goes. I am working on referrals to plastic surgeons. How will it have been from tissue expanders to exchange? Take care, and congrats on the new place!
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Thank you Sunrise. I'm sure it's never easy but it sure sucked that I had to lose my best friend during treatment.
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Lori I hope you are resting and recovering.
Congrats Sunrise! It's so nice being done with chemo.
Good luck Rachel. -
Thanks Markat - now I just have to make it through this week. Hoping for minimal SEs.
Spoke with the MO about starting tamoxifen soon...not too sure how I feel about it. Any ideas?
Thanks!
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