Blood pressure/i.v. question (on lymph node side)
I only had Stage 1 breast cancer so they only removed my sentinal nodes. Does anyone know if it's ok for me to get i.v.'s and blood pressure done on that side? Even though it was only the sentinal nodes, do I need to tell the nurses to avoid that arm?
P.S. I'd call and ask my surgeons office but he moved to Montana and I don't know how to reach him.
Comments
-
Nancy, even with only one or two nodes removed, you're still at rist of developing lymphedema. So yes, IVs, BP, all needle sticks should be done on the other side.
You might find some med personnel telling you it's not necessary but I've read about too many women with only SNB who developed LE so why risk it?
Best of luck. You might want to look in the Lymphedema forum to get more info on risk reduction.
Leah
-
Nancy, I agree with Leah and lots of other women here at BC.org. Why risk it? It just isn't worth it. Lymphedema is a lifelong battle.
All IVs/BPs and needle sticks should be done on the opposite side. In cases such as my own, where I had a bilateral mastectomy with axillary node dissection on both sides, the recommendation is to have the above done elsewhere such as the ankle (BP/needlesticks) or neck (IVs).
Unfortunately, for some women, LE happens no matter what you do.
I was one of those 'lucky' ones.
Best of luck to you. The LE forum is full of knowledge and information.
~Cate -
Interesting...I had 3 nodes removed on my right side, and none of my docs ever told me I shouldn't have BP or blood tests done on that side. However, a nurse who was about to take my BP warned me not to have it done on the affected side. Since then, though, I've had to have several IV's for MRI's, and they have not been able to find a good vein on the opposite side and have resorted to using my right hand. In the future, what should they do?
-
I had 3 nodes removed and my BS said I have only a 5% chance of developing lymphdema. Why risk it? FWIW, some women here choose to wear a compression sleeve when they fly. I asked my BS; she said it wasn't necessary since my risk was so low but I decided to get one anyway. My insurance covered the cost of the sleeve and gauntlet. My BS's nurse also gave me advice when flying (avoid salt; drink lots of water; don't pull your luggage with that arm, etc. All the LE advice). Again, I (and you) are low risk but I'm in the camp of "better safe than sorry."
BTW, sorry to hear your surgeon moved. Did they give you a referral? I'm having 6 months check ups with my BS for a few years. Seems like you might want that too.
Wave, if they can't find a vein on your good arm, perhaps they can find one in a leg? I'd check the LE forum. I remember some women (with double MX) have opted for other veins, not in their arms. Maybe the hand is OK. I don't know.
-
I just found out that my mom has stage one breast cancer. I don't know what to do, she just told me yesterday and I don't know anything about breast cancer. Please help me.
-
I also had the SN removed and have had almost every blood draw on that same side. I've had no problem so far thankfully. My MO told me not to worry about it..so I didn't. Now you guys got me wondering...
-
Marina - I'm so sorry about your mom. This site has some excellent information. You may also wish to post in the Newly Diagnosed section. There are many people there who can help you learn what you can do to support your mom.
AEM - you should worry about LE. Most surgeons and MOs are unfortunately woefully ignorant about lymphedema and give a lot of bad advice to their patients. There are many many women with LE who post regularly on the LE forum here who had "just" an SNB and were told by their doctors that they were at low risk and had no need to take precautions. So they went ahead and took no precautions, and allowed blood draws and other procedures on their SNB side. Now they are dealing with LE, an incurable lifelong condition. Why take that chance?
Check out the LE forum. You may also wish to check out a great website put together by b/c survivors who have LE and wanted to share their information with others: http://stepup-speakout.org/
-
NatsFan, thanks for your post. I checked out the LE forum and there was this link (here on bc.org) that lists LE risks factors. They said that 5-17% of patients who have SNB develop lymphedema. Guess my BS was being optimistic when she said I had a 5% risk. So good info to know and guess I'm not being overly paranoid. Better safe than sorry.
http://www.breastcancer.org/treatment/lymphedema/risk_factors.jsp
-
I developed mild truncal LE with my first BC, but my arm wasn't affected. For the first four years no one mentioned I should avoid sticks and BP's on the affected side. When I had my second BC on the other side there was a lot more info available and I began using foot for sticks and leg for BP's and met with soooo much resistance from the medical community. My own GP said bah no problem but I was persistent and stood my ground. Eleven years after the first BC I developed arm LE. Fast forward to thirteen years after first primary and #3 primary reared its ugly little head. They had to use the LE arm during my BMX/DIEP and it has been sore and swollen for almost 3 years now. I ended up in my small local hospital after the first revision surgery and had an iv in my foot. The hospital "Generalist" came into my room, looked at the iv and asked why it was there. When I told him I had LE he said bah it's all a myth! He continued on to say I'd throw a clot and die using my foot for iv's!!! I tried to enlighten him. (I had a friend whose LE was so bad she had to use a sleeve with pneumatic pump just to get her compression sleeves on. She ultimately lost the use of her arm and would hitch her thumb through her belt loop to keep it out of the way.) If I'd been a newbie at this I'd have listened to this guy. He wasn't interested in hearing what I had to say and I ended up telling him he should go back to school or treat people with common colds; booted him out of my room and complained to hospital administration. Sheesh, we have enough to deal with living with BC, we don't need to suffer fools as well.
LE may not be entirely preventable but there's a lot we can do to try to avoid it. There is a wealth of info on the LE thread.
Never be afraid to stand your ground and refuse to let anyone use your affected arm. It's worth taking the precaution. As for the 'throw a clot and die' comment, I've been using feet/legs for 11 years without a problem other than the occasional PO'ed technician who doesn't like doing it and finds someone else after sticking me unsuccessfully a dozen times for a blood draw. Sure it's a little painful lol but it's a lot less painful than LE. I don't often lose my cool when dealing with those in the med community without LE experience, I prefer to share the knowledge instead
Most are willing to listen, learn and appreciate my directing them to this site.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team