Has anyone started a Dec 2011 group?

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  • naan1004
    naan1004 Member Posts: 520
    edited May 2012

    Rachel, yay, no more port, hope u feel better soon! We get the gist of your typing, so it's ok! Thanks, can't wait til I'm finally done and crossing the finish line like most of u, will be there soon, so wait for me!

  • Mardibra
    Mardibra Member Posts: 1,111
    edited May 2012

    Naan- I'm singing the Jeopardy jingle for ya!

  • naan1004
    naan1004 Member Posts: 520
    edited May 2012

    Mardibra, thanks

  • seacretgardn
    seacretgardn Member Posts: 269
    edited May 2012

    Rachel, congrats on getting the port out.  I decided to leave mine in until after exchange surgery which won't happen until Nov/Dec.  Oh well.

    Markat, So glad you're feeling ok after surgery.  Great that you already have full range of motion. 

    Naan, one more!  So great. 

    I am almost 3 weeks PFC, no eyelashes, maybe 5 eyebrow hairs left.  Never had thick eyebrows since I plucked them thin as a teenager, and they never grew back.  I never had to groom my brows.  I'm thinking mine may never grow back now.  Can I use rogaine where my brows used to be? 

    Funny thing about the taxol.  I have severely dry eyes that always look irritated.  While on taxol I could actually cry real tears, and my eyes were clear for the first time in years.  Now that the effects are wearing off, eyes are irritated and red again. 

    Still look like a monk in the head hair department. 

    How's radiation going for those of you who've begun?  I still have a couple weeks before beginning. 

    Ok, a good day to all,

    Hugs, Laura

  • Kelloggs
    Kelloggs Member Posts: 965
    edited May 2012

    Rachel - congrats on the deportation!

    Naan - YAY...only one more..you GO GIRL!

    Laura - I've had 11 out of 35 rads as of today.  Starting to feel a little bit ouchy, like sunburn but my skin still looks great.

    I haven't been on in a while, I had a really rough week.  My mom passed away quite unexpectedly on Tuesday last week.  I was very close to her.  She was only 68 and worked for me.  For the last 8 years I have had the pleasure of spending every weekday with my mom so when this happened I was devastated.  I have a brother, but he lives in Mississippi.  So now I am dealing with the aftermath and will have to help my dad who has never had to pay a bill or anything in the last 50 years they were married!  Mother's Day sucked, needless to say and this past Monday was my first wedding anniversary which I didn't feel like celebrating.  As if cancer wasn't enough this past year....UGH!!!!!!  I just want to cry and scream.

    I'm done....just needed to get that out.  Thanks for listening ladies. :(

  • Whatashocker3
    Whatashocker3 Member Posts: 209
    edited May 2012

    Kelly, I am so sorry to hear about your Mom. What a complete shock that must have been. My condolences.



    I was done rads a week ago Monday and was fairly burnt from them. I am on my way to Florida on the 28th for a holiday so I am hoping most of that area has recovered.



    I started tamox today and was reading the tamox thread. Not sure I should have done that:(. I am hoping tamox will be like chemo with min se's. I was blessed with min with chemo.



    Made an appt to talk to a psychologist on Tuesday so I am hoping that will start the healing emotionally.



    As for hair growth the head is coming along nicely but the eye hair is pretty slow. I got a couple of hairs on both brows.



    A day at a time.

  • Kelloggs
    Kelloggs Member Posts: 965
    edited May 2012

    Thanks Whata.  Have a great time on your vacation!  I started Tamoxifen 2 weeks ago when I started rads and so far the only thing I can complain about is the hot flashes....wake me up at night.  I also have some eye floaters, don't know if this is due to the Tamox but they started when I started it.

  • dougieswife
    dougieswife Member Posts: 171
    edited May 2012

    Kelly!!!!  I am so very sorry for you!!!!  Big hugs!!!!  My mom passed away at age 66, so I do understand!!!!  I am sure you are so heart broken!!!!  I am just so very, very sorry for you!!!!

    I got a text message from a dear friend who is younger than I am....she is having a partial or full mastectomy on May 31st...the same day I go in for my exchange.  They have been watching a spot and it is growing fast so they are going in to remove it.  Depending on the size, and since she is small busted, she doesn't know if she is going to wake up with a breast or not.  She has 2 very small precious baby girls.  One is a foster baby whom she has had since birth.  The parental rights have not been terminated yet and this could ruin their chances of adopting this precious baby girl!!!!  I really want to cancel my exchange to be with her....it doesn't seem fair!!!!!!  I am just so incredibly sad and scared for her.  I think because of the rate of growth, they are thinking that it is cancer, but you know, have to wait for the path results.  

    On the eyelash note...more are falling out!!!!  uugghh!!!!!!  But the head hair is coming back in kinda nice!! 

  • victorious2012
    victorious2012 Member Posts: 61
    edited May 2012

    Kelly, I am so sorry for your loss.  It seems like you and your mom had a special relationship.  I can only imagine what you are going through. My thoughts and prayers are with you.

  • markat
    markat Member Posts: 909
    edited May 2012

    Kelly I am so sorry for your loss.



    Whata have a nice vacation!!



    My eyebrows and eyelashes are slowly coming back. I hope the tamoxifen doesn't make the hot flashes I already have worse lol.

  • Kelloggs
    Kelloggs Member Posts: 965
    edited May 2012
    Thank you everyone, I'm hanging in there Cry
  • seacretgardn
    seacretgardn Member Posts: 269
    edited May 2012

    Kelly my heart breaks for you.  I am so very sorry. 

    Prayers for you and your family. 

    Laura

  • naan1004
    naan1004 Member Posts: 520
    edited May 2012

    Kelly, so sorry to hear about your mother, u and your family r in my prayers and your mom has a reserved spot in heaven, I put in a good word already to my buddy, God!



    Thanks for all the cheering, yes I am finally almost done with chemo, this coming Tues will be my last Taxol. I'm so ready to be done with surgery and radiation and then on with my life again!

  • Whatashocker3
    Whatashocker3 Member Posts: 209
    edited May 2012

    Hi everyone I hope you are all enjoying the nice weather. Just looking to get an update on hair progress from everyone. I am coming along on the top of my head but my eye hair has not returned:(.



  • naan1004
    naan1004 Member Posts: 520
    edited May 2012

    About hair, no eye hair, head hair is coming along, but have bald spots on rear left and bottom, top front too guess I've been rubbing against the pillow too much.

  • Whatashocker3
    Whatashocker3 Member Posts: 209
    edited May 2012

    Naan, you have that hair and you finish chemo on Tuesday? Or am I wrong?



    How is everyone coping with the hot weather and hot wigs?

  • Mardibra
    Mardibra Member Posts: 1,111
    edited May 2012

    All my eye hair has been back for a while. Head hair is full coverage on the right side and back, although very short. Shorter than my eyebrows! Left side and top of my head are patchy. I am not looking forward to the hot weather but I refuse to go topless until I can pull off a real hairstyle. Vanity is one of my flaws ;)

  • Whatashocker3
    Whatashocker3 Member Posts: 209
    edited May 2012

    Mardibra you are making me jealous. Having eye hair when I don't? How long has it been since your last chemo? I am as vane as you are and won't go out without some kind of hair covering. My family won't buy into the scarf thing and I have a hard time with it too.



    Are you doing anything to assist with hair growth?

  • Mardibra
    Mardibra Member Posts: 1,111
    edited May 2012

    My last chemo was 3/1.  Facial hair (both wanted and unwanted) came in pretty quick after that.  Head hair?  Now thats a different story.  Outside of my family, I have only told a handful of people about my BC.  So, wearing a "Ive got cancer" head scarf or something similar just wont fly.  So, I wear a wig every day and will continue to until I can get away with people just thinking I cut my hair to some short and sassy style.  At the rate im going, that wont be until the end of the summer or beginning of fall.  I will be visiting my brother in August for a week at the beach.  No one knows me down there so I may go without the wig for the week.

  • Whatashocker3
    Whatashocker3 Member Posts: 209
    edited May 2012

    Mardibra, lol. I think we travelled this road by the same path. I haven't told to many people either but it is a small city so word of mouth is quicker than lightening. I am taking a beach holiday in 7 days so I am not sure how I will pull that off. You are about 3 wks ahead of me in terms of chemo but I have since finished rads. I wanted to rush them along and get it over with. I have been off work since diagnosis so have been able to take it easier than those having to work.



    How did you manage at work? Or did they know?

  • markat
    markat Member Posts: 909
    edited May 2012

    My hair is coming in nicely. Pretty thick...but that was during my Herceptin break. Docs say that Herceptin doesn't effect hair regrowth but from what I've read it does. I went out in my neighborhood the other day without my scarf on. I really don't care what people think except for when my kids are around or their friends. I don't want them to be made fun of because of me.

  • Mardibra
    Mardibra Member Posts: 1,111
    edited May 2012

    I had to tell some people at work...a total of 4. I can trust them not to say anything to anyone. And I know they have not opened their mouths because if they did it would spread like wildfire throughout the company! I normally travel a lot for business so my being out of the office isn't unusual. When I was out for my MX we agreed to tell people I was having some mild surgery. Huh! I also spent a small fortune on a really good wig. Nobody has noticed. Im about to start my second week of rads and can't wait til that is done. Next hurdle will be DIEP reconstruction in January. I guess I will be having another "minor surgery"! I've thought about skipping the short and sassy hair style and getting extensions instead. I will have to talk to the folks who made my wig and see what they say. Can't even go to my regular hair stylist because I'm sure the word would get out. I'm not afraid of people knowing Im just a private person and don't think it's anyone's business. Plus all the dopey sappy "I'm so sorry for you" looks would drive me nuts, all the pink crap people would feel they need to give me, and the stupid questions might cause me to go off on someone! So, silence it is.

  • Whatashocker3
    Whatashocker3 Member Posts: 209
    edited May 2012

    Im just a private person and don't think it's anyone's business.



    Mardibra, that is my issue too. I like to blend into the crowd and not be the centre of attention. Having no hair as a female brings alot of unwanted attention. Lol. I also don't want anyone to feel sorry for me. I do admire those that can go camando and rock it. But that isn't me. I have a few friends that have kept my secret and I respect their diplomacy. That's why I call them my friends:). My parents, inlaws and husband have been the ones to spread the word. My husband for work reasons only. In a very odd way I think I am week for getting this disease. Does that make sense to anyone? I have always considered myself to be a physically strong individual and was proud if that. I cannot explain why getting cancer would make me weak but this is my issue.



    Perhaps talking to the oncology psychologist will help me figure that out.



    Market when were you dine chemo? Congrats on walking out in the neighborhood without your scarf. I admire that. I have two kids as well (boys) and the are conscious of my head covering. Probably they get that vibe from me. :( My youngest was hoping I would stay out and play basketball after I planted flowers. I normally would but damn it is hot with that rat on my head.



    I am looking to rock the shorter hair style. It is summer so I will do it up with some coloring and funky earrings. I just need some more hair, right now it looks like a five o'clock shadow when the sun shines on it.



  • Mardibra
    Mardibra Member Posts: 1,111
    edited May 2012

    I can't say I feel weak. That never crossed my mind until you mentioned it Hmmm. I will give that some thought. I'm just the type of person that faces challenges head on. It is what it is. All I can do is educate myself, talk to the doctors and make informed decisions. There is nothing I can do to change my DX so it's just time to look ahead. Honestly, I was waiting for the emotional breakdown that never came. Maybe it will come in the future or maybe never. Although, I'm ready to be done....I want my life back.



    My nephew is getting married in a few weeks and I'm sure my brother and sister-in-law have told a bunch of people (out of state). Not sure how I'm going to handle the inevitable questions. I'm going to have to practice my "I'm not going to talk about this with you" vibe. If my sister-in-laws nosey pesky sister has anything to say to me I just might slap her! Been waiting for an excuse to do that for years! Cancer has given me a certain feeling of freedom!

  • Mardibra
    Mardibra Member Posts: 1,111
    edited May 2012

    Maybe I am weak....too weak to take the attention. I was raised on "don't draw unnecessary attention to yourself". I do admire those who can rock the commando look too. I'm just not one if those gals.

  • Whatashocker3
    Whatashocker3 Member Posts: 209
    edited May 2012

    Mardibra, you have to do what you have to do. Lol. My bil has been amazing he drove me to rads every tues and when I was in chemo he would come visit on his days off. Incredible guy. I didn't get that from my sister, funny the support coming from a male. I have learned a whole bunch of new stuff since diagnosis. I have learned that I have some pretty amazing males in my life along with females. That was a pretty good lesson to learn. It did take me by surprise.

  • Mardibra
    Mardibra Member Posts: 1,111
    edited May 2012

    I've learned some things too. One brother who has been my rock, several friends who stepped up in ways I never would have imagined. One brother who I hope to never see again, and another brother who I'm on the fence about. He at least called but I never saw his face through three surgeries, 3 months of chemo, and now rads. He lives 20 miles away. Cancer has a funny way of showing you the "real" person.



    Just reread that paragraph....man, I sound bitter! Honestly, I'm not.

  • naan1004
    naan1004 Member Posts: 520
    edited May 2012

    Whata, my last Taxol is this coming Tues, I've had less hair loss with this chemo from my head at least, plus I had 3-4week breaks in between and at the start due to low counts which I think helped with head hair growth, but lost all eye hairs :(.

    As far as wigs, I refuse to wear them too hot and itchy. I'm more of a scarf or hat girl myself.

    I consider all of us strong, who could have come this far through surgeries, chemo, rads and not give up the fight, we r all very strong women, if my husband had to go through what we have, I think he would've asked me to shoot him. Why else would God make women have children, cause we r much stronger and can conquer all! Stay strong and positive cause this too will end and when it does take a nice relaxing vacation, get a full body massage and pamper yourselves cause damn it, we deserve it after all we've been through! p>

  • ahdjdbcjdjdbkf
    ahdjdbcjdjdbkf Member Posts: 645
    edited May 2012

    Dear Naan, congrat on your upcoming 12/12 taxol!! You are my hero for the day. I still have 2 A/C and 12 Taxol ahead. I haven't been very positive at all lately and my sister told me this morning I need to join a support group because I'm kind of sucking the life out of my partner, Michael, and in general my constant state of emotional crisis is wearing everyone down because they are all so overwhelmed themselves caring for my dad who is very ill and my mom who has Alzheimers. Everyone has been very loving and supportive for the past two months but my relationship has been very much on the rocks and my sister thinks that if I don't get some other support besides my partner he won't be able to hang in. I bought two books today - Lance Armstrong's and a book my Anna Schwartz on fitness during cancer. My sister is an incredibly loving, suppotive and patient person so if she is telling me to get my shit together a bit, she is probably right and I will take it from her. Thanks for being ahead on the road and sharing it!! A/C #3 for me coming up this Thursday! I can walk out counting myself 75% done with A/C!!

  • naan1004
    naan1004 Member Posts: 520
    edited May 2012

    Mariasnow, we've all been there, crying for no reason and getting angry at family when they r only trying to help. It is a good idea to see a counselor or join a support group, but if u don't have the energy or motivation we r always here for u too. Others have opted to ask for medication, which is upto u also. Whatever helps. Congrats u r half way done with AC, that in itself is an accomplishment and sooner than u think you'll be done with AC and counting down your Taxol like me. Hang in there, u can do this!

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