March 2012 chemo
Comments
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Masserz: Thank you for the input on diet. I know you are doing it to be helpful. I did really good today staying away from garbage. Every day is an adventure though.
I met a lovely lady today at a health food buffet dinner and she told me something that really stuck with me. She said that being around positive, good people helps to fill your cup so that you can make it through the week. Being with you ladies helps me 'keep my cup full' and get through this treatment. Thanks!
Happy Mothers' Day to all of you (even if all you mother is your cat
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Triplem- weiner in the dirt!!! I like it. It is going on my list of sayings. One of my current favorites is "I got your back like a buttcrack". I don't often have a time/place to say it but it makes me smile none-the-less.
Masserz-I want to reply to you, and will soon but my wiener is in the dirt.
This last round has really worked the fatigue. I am a little worried because I have tx4 tuesday and I still feel like crap from the last one. I am just so fricken tired! Oh well I suppose it could always be worse.
Happy Mothers Day Everyone!!!! Hope you all had a wonderful day.
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Telly
I found too that the fatige between #3 and #4 was the worst for me. So much so that I practically slept throughout my last infusion. Yet not so bad after #4.
I have been doing alot better on the food thing the last few days. Have been eating a salad daily which I craved so much during TX. No chocolate, no chips, no ice cream. Stared with the vitamin D3 and biotin, green tea. I even picked up some chia seeds and have been hunting around on the internet for some ideas on how to do something with them. I'm trying to make sure I get protien in at every meal without it being full of cholesteral like eggs/meat. Really want to cut the carbs since I've been living on them during TX. I have to lose some weight and keep the estrogin at bay. I'm not getting my period anymore so I know its coming from fat and adrenals. I also have a sneaking suspision any PS I intent to see over the next while will likely tell me to lose at least 20 pounds as well for recon purposes. I think as well turning 50 in October has alot to do with it.
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Tellie-LMAO! Sorry you're feeling crappy to. I could've really used the energy this week. But hopefully this coming week it will come back. I'd like to be able to walk outside and not have my heart thumping out of my chest.
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Happy Mother's day to all you ladies and your mothers, and to all the caregiving nurturing listening supporting empowering feeding wise questioning souls who are part of our journeys, and without whom this journey would be so much heavier...
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kCB
Back at you! How are you doing? Hope you're feeling better. I might have asked you before but where are you being treated out of? Sunnybrook?
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Morning all - well, I called my BS office (she was in surgery all day) and talked to the nurse - she doesn't think it could be LE because she said it likely wouldn't be in the opposite side and I would definitely know it if it were LE. Thinks it is possible that I am just hyperaware of all changes and I am using that side more and have been since the SNB was in the other side. Not really happy with that as an answer because it doesn't solve anything. I guess I could try and catch one of the nurses today while I am getting labs done at MO and ask them. I don't understand the differences between all the nurses at my drs office - there are the ones that work in the labs and do blood draws all day (they are all RNs), then there are the one that work in the infusion room and do chemo stuff all day. Then she has 3 nurses that actually work in the exam rooms with her that you talk to if you have issues.
KCB -
Michelle - I feel that way too (heart pounding). Hate it. LOL on the wiener in the dirt.
MLB - continued success with your healthy eating - sounds like you have made some good changes.
tellie - I am on 3 of 4 as well and have felt really tired. Like yawning all day tired.
Sissy - glad you are feeling better.
Alright, well I am off to get my labwork done...
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The "wiener in the dirt" sounds like something my guys would say!
So far today no steroid crash yet, so I'm getting some work done. Probably tomorrow the crash will come if it happens the way it did last time. Really enjoyed yesterday - DS#1 made dinner - tenderloin steak - and I made chocolate cherry skillet cake for dessert. So far, chocolate still does not taste like ass. ;-) Hopefully all the water I'm chugging is helping with the taste stuff. -
Sounds like we have a lot of dirty wieners in the group these days! Lol... What an image.
I'm right there with y'all. I've barely moved from the couch all weekend. This morning I tried to straighten up a bit while my son was getting ready for school and it wore me out so much I had to sit down and was practically panting...I could feel that my face was pale and drawn. He came over and sat down next to me so worried, poor guy. He didn't want to leave me. I had to reassure him that I was okay and just wiped out so he could go to to school. I hate being so weak! The good news is I have lost the water I retained during the infusion. I had held onto over 5 freakin pounds of water! It took a couple of days, but I'm no longer a walking water balloon and my LE hand doesn't look like a Mickey Mouse glove anymore. That was really freaking me out.
MLB it sounds like you are doing all the right things! Keep us posted on your progress so we can encourage you. Mmmm, salad. Why is it we are craving them so much? I swear it is the only thing that has sounded good to me this entire time. I know I'm not supposed to eat salad from restaurants, etc. but my blood counts have been good so I've been doing it anyway. I pick Cobb salads or others with lots of protein, but I just really can't seem to get enough of the veggies. My DH is less of a fan and I can tell he's tired of me suggesting them as our sides with dinner at home. : )
I hope all of you moms had a good day yesterday! My daughter came over to visit with me for a while and I got to feel both of the babies move for the first time...best Mother's day present ever!
Okay, I've got to motivate to get ready for my hydration visit. If I go out looking like I do right now, they will hospitalize me.
Hang in there everyone! -
Hi All
Talking a water break and thought I would check in. I received an invitation to a wedding today from an ex coworker. I do want to go, its seems like its going to be the wedding of the century! An only child of an Italian family and the only daugher of a Jewish family at a swanky venue on the lake in August. What's really hilarious is he had invited the owner of the company. She is really something else, a total narcistical ego maniac nutjob LOL! I had already resigned just before being DX last year but was staying on in a commission only basis because I have to park my license somewhere. In negotiating my contract she was totally trying to rip me off so I decided to go totally independent within our organization which completely cut her off from making any money off of me. Due to this she then tried to steal my commissions that were owing to me while I was working under here. It got very very heated at the end at which point I had to threaten legal as well as report her to our governing body and head office. She paid me but not after saying some very unprofessional things (in writing which I kept). Most of the key staff have gone on to resign since as well.
This will make for a very entertaining evening LOL!
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Myleftboob, that wedding sounds fun! Lots of observable entertainment for you! I'd go, just to sit and watch!
Dirty wieners, lol......if we had to have a mascot or icon for our group, lol! -
Hi ladies. It's been awhile since I've been here but I'm still lurking. I had a bad week after the last A/C followed by a really good weekend. I went to my youngest son's first baseball game of the season, then had my parents over for dinner for Mother's Day Saturday night. Then yesterday, hubby and the boys took me to lunch at Olive Garden (one of my favorite places), then we went to the circus. It was sooo much fun - made me a little sad because my oldest son is 16 and the youngest is 9 so I know the days of circuses and carnivals are numbered for us, at least until grandkids come along. I was pretty wiped out after that and crashed as soon as we got home.
I hope everyone is having a good SE free day today. I noticed several of us are starting Taxol soon. I'm so praying that it wlll easier than A/C.
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Well I just found out I lost another friend to this dreaded disease. She fought breast cancer for years, and last I had heard she was doing fairly well. DAMN Cancer Sucks.
OK, so other than that my rash is now all over my head, hope it doesn't get on my face!
I'm trying to think of something positive to say, but I'll have to get back to you!
I hope everyone is have a good day with minimal side effects.
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Kim - So sorry
that sucks, sucks, sucks. Sorry for your rash...now that it is getting hot, I am noticing little bumps around my "hairline" where my scarfs/hats/wig rests and have I feeling it will just get worse with the summer.Lana - was just thinking about you the other day when I had run across your name on another thread. Sorry you had such a hard time with last A/C but glad you had a good weekend.
MLB - the wedding sounds interesting!!
Indigo - hope you have had a productive day before the "crash" hits.
Masserz - yay on the babies! and the loss of the water weight. I hear ya on the kids concerns...my oldest has asked me at least 3 times this afternoon "what's wrong?" because I am just sitting here exhausted.
Counts were back to low normal again as is usual for me for week 3. Then, I went and bought a new bra - um, the one I have been wearing is about 2 sizes too small so that has likely been contributing to my discomfort! I had about 2 hrs to kill when I got back to town so I just hung out at my mom's and then went and got the kids and came home. Dinner is whatever DH decides to bring home. I need to hit the recipe book again and get some ideas for a few nights this week since it is my last "good" week before next A/C on Monday.
Have another quote...this one my oldest quoted to me from a book they are reading at school (she wasn't thinking of it being relevant to my situation, she just liked it (it is a variation on an old proverb):
"You can't keep the birds of sadness from flying over your head, but you can keep them from nesting in your hair."
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Good quote!
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kltb04: If you ever figure out all of the nurses, please let me know. It's confusing to me as well.
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MLB; I am at Mount Sinai/PMH.
Had first info appointment with RO this morning. I am not feeling at all ready to start thinking about that next step yet.. Not even fully halfway through chemo yet still adjusting to all the ups and downs, I just felt like I wanted to pretend after chemo it's all done... Sadly not the case. Also quietly wishing thy would say I wouldn't need it.. Ha. Totally childish I know, but today I just did feel a little childish. So there. -
KCB
Your not being childish about not wanting RADS. Its like you don't get a break really more like it. I lucked out with not having to do it, and I mean lucked out. I hope you don't have to travel too far for TX. Although we may have discussed it already but I can't REMEMBER LOL! I think if I had to drive downtown everyday from Brampton I would lose it! Credit Valley is only about a 20 minute drive so not too bad.
Will you be starting Tamoxifen after RADS? I just started on Saturday. I've been taking it with supper but I'm going to experiment a little with different times of the day. I always had trouble sleeping early and notice I'm slipping back to old habits, hence I'm still up typing this. With the fatigue from TX I would have been in bed by now. I don't really think its from Tamox, but I guess time will tell. I'm not going to stress about SE's though, deal with it if and when I get any.
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MLB: yes, I will do Tamoxifen after rads, or whenever they start that part (will they wait til after rads?). I don't have far to travel, luckily...only issue is expensive parking downtown vs: subway which just grosses me out right now in terms of germs...
Sorry to hear you're not sleeping. Do you attribute it to Tamoxifen?
This round for me has been not too bad compared to the first two, but sleep is definitely an issue.
Feel well and strong, lovely ladies, if not in body then in spirit... -
KCB
I totally hear you on not wanting to take the subway! All of the hospitals are a burn on parking. If the weather was crap I would use the parking and it would still be $12-15 depending on how long I was there. Erin Mills Town Centre is kitty corner to Credit Valley so I normally park there and walk.
I'm not sure if its Tamox keeping me up. The pharmacist said to take it with my largest meal which is supper. I'm going to take 1/2 this morning and have with lunch then take a whole one at breakfast tomorrow to see if it makes a difference. It may have nothing to do with it at all. Once in a while this happens anyway.
I'm trying to remember in my talks with my MO if when it was still up in the air if I was doing RADs or not if I was to start after. I have a feeling that was the case.
On the lawn front man that flox is so friggin invasive. It had blown in from somewhere and there was a patch about 10 x10 Ft that I tarped two weeks ago trying to kill it. Pulled the tarp up, it was alive and well. So I dug and dug and hopefully I killed it all. Put a whack of soil and seed down. Took me like 3 hours! Mind you I have to have breaks but since I didn't walk yesterday I'm counting it as exercise. I'm meeting my walking buddy this morning for a scoot around the park. Usually takes us an hour.
I hope the weather's as good for everyone as it is here today and that you're all feeling OK!
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MLB: I would love to have your invasive flox problem! My postage-stamp-sized lawn has never succeeded in growing grass, and I would love for it to be taken over by something effortless... Periwinkle, flox, whatever...I have two clumps of flox, one pink and one pale purple, but they don't like toronto soil much,and I hate spending money on soil.
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KCB
Funny we're going to be downsizing very soon. While its nice having a large yard, its alot of work. Coupled with the fact I have a retired neighbor with the most pristine lawn you've ever seen LOL! I actually want to get into a townhouse or something, plant a couple of containers and be done with it. As long as I can sit outside and be able to BBQ I'm good. Even though it's not a huge house or anything,we don't need all this space for 2 people. We barely use the basement except to do laundry. My brother moved from house to a TH and loved it! Then they sold and bought a huge property and while he loves it, he hates the time it takes to maintain it.
There are alot of nice ground covers you could investigate rather than grass that don't have to me mowed and should do fine. A house around the corner from me has a cool japanese style garden on the front lawn. Not my cup of tea but no mowing.
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Good morning ladies. Hope everyone is having a good day with minimal SEs.
KCB: I'm with ya on dreading the RADs. Of course, I have another couple of months before I start. Still have Taxol to go.
onvacation: Sooo sorry to hear about your friend. Cancer does suck!
MLB: Flox is taking over my yard too, along with every other kind of wild grass and weed imaginable. We have a two acre yard and it grows like crazy. Have to mow it at least once a week, sometimes more.
kltb: Love the new profile pic!
Super busy at work for the past few days but I guess that's a good thing. Keeps my mind occupied. Looking forward to Memorial Day weekend. Hubby, boys and I are heading into Memphis for the weekend just to get away for a few days. Thought we'd just hang out, swim, do the IMAX/planetarium/Pink Palace thing because we haven't been in a few months. Maybe take the kids over to the Incredible Pizza Company for some mini-golf and lazer tag. Can't wait.
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onvacation
I'm sorry for not responding and sending my condolences about your friend. So sad. I think it took me a bit to get my head around it honestly. Yes cancer does suck!
Have to talked to the MO about the rash. I have to say I have a bit of a rash at the base of my neck but I think its directly related to my wig. Its a bit long and I usually wear it in a loss ponytail, its the only area that touches back there, doesn't itch but its there.
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I just wanted to mention that I went for a nice hour long walk today and my legs aren't as weak as they were last week. Could chemo be finally leaving my body?
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Thanks MLB - too much bad stuff going around lately!
I always forget to ask the MO about the rash by the time I see him. I guess I'm just focused on my next treatment. Oh well, at least it doesn't itch and it is getting better so I can't complain too much - well more than I already have! LOL
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Last TX today, whoot? For some reason I am dreading this TX more than the others. #3 just kicked my butt a little. Can't find the desire to do that again. Maybe it is a little bit of the idea that my next step is surgery. Hate hospitals. About the Tamo- my MO said I will start 2 days after last chemo. Not sure if that is standard or not.
I am with everyone one the rads. I have been reading about them and it seems there are different time frames depending on what they use. Here's hoping if we have to have them we get the quick version! This is gonna suck up the whole summer. I live in Oregon so we only have a few months of sunshine. I would hate to miss it.
Okay, funny thing. Is anyone elses DH afraid to have sex until a while after tx? We were just browsing literature in the office of the MO and one book had a faq page which said "ask your Dr. if it is okay to have oral sex". From that my husband extrapolated that if we have sex too soon after tx it will melt his man parts. Honestly I think it is funny and am totally okay with it as I am not actually feeling too frisky anyway. Heck it could even be true, but I still think it's funny.
Great days and min SE's!!!!!!
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onvacation
The only way I ever remember to ask my MO anything is to make notes in my Blackberry as I think of them. I know if I wrote it on paper I would lose the paper!
tellie
Too funny. Did the litrature specify if the DH was supposed to be the recipient or the giver LOL LOL! Either way he would likely think one body part or another might fall off!! I too wish my mojo would come back. Hard to feel frisky when you're tired and bald, at least for me anyway.
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tellie - lol at your last paragraph - melt his man parts! It is totally a non issue in my house but I suppose that that could be an issue...at least for the first 24-48 hrs or so after TX as your body is getting rid of the bulk of the infusion?? I totally understand about the apprehension of chemo being over...when I start to think I will be halfway done, I get fearful of what's next re: surgery, etc...
MLB - downsizing seems like a great plan. My dad complains that they have only an acre or two to take care of rather than the 5 plus they had before they moved but my mom is loving it. My dad would have been just as happy to move into the middle of the woods too though and my mom is also liking having neighbors! And
on the walk.lana - have a great time in Memphis - we have never done the Pink Palace. We usually just drive over for the day and do the zoo - again, we will have to meet up sometime once the worst of this is behind us.
KCB - (((hugs))) - I am in denial about rads right now - it hasn't been brought up so I am just not thinking about it
Can't imagine a subway - ick.Haven't accomplished much today - I am soooo worried that I won't feel well on our little vacation that it is consuming me along with every little ache and pain. What were my wise words about the bird and the nest and all that nonsense? What about with the bird of anxiety flies over and poops on you? Is there a quote for that?
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I think that bird definitely pooped on me today! I am hitting the trough after the steroid crash, thought I'd curl up with my new Redbook that came the other day- and there is this terrifying article in it about MRSA! Not to mention, I am finding it increasingly harder to look at the pictures of pretty women with all their hair....
Going to work harder at flexing my sense of humor. Thanks y'all for sharing your cyber smiles.
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